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Mercies in Disguise - A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them-logo

Mercies in Disguise - A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them

Gina Kolata

New York Times science reporter Gina Kolata follows a family through genetic illness and one courageous daughter who decides her fate shall no longer be decided by a genetic flaw. The phone rings; the doctor has the results. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested. But she had to find out. If your family carried a mutated gene that foretold brutal illness and you could find out if you inherited it, would you do it? Would you confront it, accepting whatever answer came? Or ignore it while you could? In Mercies in Disguise, acclaimed New York Times reporter and bestselling author Gina Kolata tells the story of the Baxleys, an upstanding family in small town South Carolina. Many of them were doctors, but still, they are struck down by an inscrutable illness. Finally, they discover the cause of the disease after a remarkable sequence of providential events. Meanwhile, science, progressing for 50 years along a parallel track, handed the Baxleys a question-not a cure, but a blood test that would reveal who had the gene for the disease. Science offered another dilemma-fertility specialists had created a way to spare the children. A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise tells the story of a family that took matters into its own hands when medicine could not help. It's a story of a family dealing with unspeakable tragedy without being driven apart. It is the story of a young woman-Amanda Baxley-who faced the future, determined to find a way to disrupt her destiny.

New York Times science reporter Gina Kolata follows a family through genetic illness and one courageous daughter who decides her fate shall no longer be decided by a genetic flaw. The phone rings; the doctor has the results. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested. But she had to find out. If your family carried a mutated gene that foretold brutal illness and you could find out if you inherited it, would you do it? Would you confront it, accepting whatever answer came? Or ignore it while you could? In Mercies in Disguise, acclaimed New York Times reporter and bestselling author Gina Kolata tells the story of the Baxleys, an upstanding family in small town South Carolina. Many of them were doctors, but still, they are struck down by an inscrutable illness. Finally, they discover the cause of the disease after a remarkable sequence of providential events. Meanwhile, science, progressing for 50 years along a parallel track, handed the Baxleys a question-not a cure, but a blood test that would reveal who had the gene for the disease. Science offered another dilemma-fertility specialists had created a way to spare the children. A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise tells the story of a family that took matters into its own hands when medicine could not help. It's a story of a family dealing with unspeakable tragedy without being driven apart. It is the story of a young woman-Amanda Baxley-who faced the future, determined to find a way to disrupt her destiny.
More Information

Description:

New York Times science reporter Gina Kolata follows a family through genetic illness and one courageous daughter who decides her fate shall no longer be decided by a genetic flaw. The phone rings; the doctor has the results. "Are you ready Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested. But she had to find out. If your family carried a mutated gene that foretold brutal illness and you could find out if you inherited it, would you do it? Would you confront it, accepting whatever answer came? Or ignore it while you could? In Mercies in Disguise, acclaimed New York Times reporter and bestselling author Gina Kolata tells the story of the Baxleys, an upstanding family in small town South Carolina. Many of them were doctors, but still, they are struck down by an inscrutable illness. Finally, they discover the cause of the disease after a remarkable sequence of providential events. Meanwhile, science, progressing for 50 years along a parallel track, handed the Baxleys a question-not a cure, but a blood test that would reveal who had the gene for the disease. Science offered another dilemma-fertility specialists had created a way to spare the children. A work of narrative nonfiction in the tradition of the The Immortal Life of Henrietta Lacks, Mercies in Disguise tells the story of a family that took matters into its own hands when medicine could not help. It's a story of a family dealing with unspeakable tragedy without being driven apart. It is the story of a young woman-Amanda Baxley-who faced the future, determined to find a way to disrupt her destiny.

Language:

English

Narrators:

Andrea Gallo

Length:

8h 31m


Chapters

Introduction
Introduction

10:36


Part 1, Chapter 1
Part 1, Chapter 1

36:45


Part 1, Chapter 2
Part 1, Chapter 2

47:49


Part 1, Chapter 3
Part 1, Chapter 3

27:58


Part 1, Chapter 4
Part 1, Chapter 4

22:20


Part 1, Chapter 5
Part 1, Chapter 5

42:15


Part 1, Chapter 6
Part 1, Chapter 6

13:37


Part 1, Chapter 7
Part 1, Chapter 7

12:09


Part 1, Chapter 8
Part 1, Chapter 8

29:34


Part 1, Chapter 9
Part 1, Chapter 9

29:18


Part 1, Chapter 10
Part 1, Chapter 10

13:31


Part 2, Chapter 11
Part 2, Chapter 11

29:03


Part 2, Chapter 12
Part 2, Chapter 12

26:19


Part 2, Chapter 13
Part 2, Chapter 13

24:35


Part 2, Chapter 14
Part 2, Chapter 14

16:09


Part 2, Chapter 15
Part 2, Chapter 15

16:17


Part 2, Chapter 16
Part 2, Chapter 16

15:57


Part 2, Chapter 17
Part 2, Chapter 17

26:28


Part 2, Chapter 18
Part 2, Chapter 18

11:50


Part 2, Chapter 19
Part 2, Chapter 19

23:39


Part 2, Chapter 20
Part 2, Chapter 20

22:15


Part 2, Chapter 21
Part 2, Chapter 21

12:44


Part 2, Chapter 22
Part 2, Chapter 22

00:42