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This Is Just The Beginning With Michael Tresca
Take a journey back to 1999, when cellphones were a rarity, dial-up internet access was still used, and Amber had her first surgery of the 2-step j-pouch process. Amber’s husband Mike, a writer and communicator, journaled his thoughts on the day of the surgery. This journal was recently uncovered and Amber reads it to Mike and gets his reactions and further recollections of that challenging day. You can find out more about Amber and Mike in Episode 8, where you’ll hear about being told...
Amber Answers the IBD Advocacy Tag Questions
Megan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It’s a great way to get to know people in the community better and hear different perspectives. My answer to the form of IBD I have is not going to be what you expect and my socially awkward moment is pretty epic: I remember every detail about it, even though it happened almost two decades ago. And who did I tag? Well, I do that in my own way,...
You Have To Be Happy Within Yourself
Pregnancy and birth are different for women with IBD. There are not only challenges that come from the disease itself but the lack of awareness about IBD during pregnancy can lead to less than optimal treatment. Brooke Abbott of The Crazy Creole Mommy Chronicles describes how she coped with ulcerative colitis during her pregnancy and a birth that did not go as she’d hoped or as she’d expected. Learn how everything turned out in the end and find out what Brooke and Amber think pregnant...
About IBD Podcast - When IBD Gets Married With Jaime Weinstein
Getting married is a joyful time in one’s life. Until you have to bring your IBD and body image difficulties along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected Jaime’s perceptions about body image throughout her life and how it all culminated in a trip to a bridal shop that left her angry and frustrated. Plus, we share our best tips for making the dress shopping, and eventual wedding day attire wearing, go more smoothly if IBD decides to make make an...
About IBD Podcast 16 - We Are Not Unique With Christy Stone of Crohnie Bologna
Are you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she’s not unique as an inflammatory bowel disease patient, why she chooses kindness, and why these things make her a better advocate. Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram:...
About IBD Podcast 8 - Michael Tresca, Amber's Husband
What's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we met, what it was like to watch my health degrade, and all about our fairy tale wedding. Featured Guest: Michael Tresca Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Want to become a Lady or Lord of Glencoe,...
About IBD Podcast 7 - Michael Osso - Crohns & Colitis Foundation
On this episode of About IBD, I talk with Michael Osso of Crohn's & Colitis Foundation and learn how important clinical trials are to patients with Crohn's disease and ulcerative colitis, including how we can do better to ensure trials are completed. This podcast will answer many of your questions about clinical trials, plus we discuss the brand new resource the Foundation has launching later this month! Featured Guest: Michael Osso President and CEO Crohn's & Colitis Foundation...
About IBD Podcast 6 - Traveling With IBD - Jaime Weinstein
When you fly, do you board early? Once you get on the plane, what's the first thing you do? What's the second? Veteran traveler Jaime Weinstein, who lives with Crohn's disease, answers these questions and more based on her personal experiences when flying the friendly skies. Featured Guest: Jaime Weinstein Twitter: @JaimeEditor Instagram: @slightlyjaided Web Site: http://prettyrottenguts.tumblr.com/ Facebook Groups: https://www.facebook.com/groups/ibdjourney/...
About IBD Podcast 5 - Brooke Abbott - The Crazy Creole Mommy Chronicles
I talk with Brooke Abbott of The Crazy Creole Mommy Chronicles about what it's like to be a parent with a chronic illness and how that's affected our relationship with our children. We also try to figure out how to clone ourselves and I'm so tired that I get the name of a well-known celebrity wrong -- several times. Featured Guest: Brooke Abbott Twitter: @CrzyCreoleMommy Facebook: https://www.facebook.com/crazycreolemommy/ Web site: https://crazycreolemommy.com/ Women of Distinction:...
About IBD Episode 4 - Ryan Stevens - Crohn's Guy
What's it like to be a competitive swimmer and one day develop Crohn's disease? Well, you don't stop swimming! Hear Ryan Stevens, Crohn's Guy, talk about the work he's doing to raise awareness of IBD. Featured Guest: Ryan Stevens Twitter: @ryan_crohnsguy Facebook: https://www.facebook.com/IBDSwimmer/ Web site: www.crohnsguy.com Swimming With Courage & Crohn's: http://www.janssen.com/making-a-splash-with-patient-advocacy Finely Tuned: http://www.finelytuned.com/ Music: Moose - Bensound.com...
About IBD Podcast 3 - My J-Pouch Is My BFF
On this episode of the About IBD Podcast, I discuss j-pouches and bust some of the misconceptions that surround them. I also give my firsthand experience as a poucher, a j-poucher who gave birth twice, and let you in on what it's like for me to have a midline scar. Music: Dance - Bensound.com - www.bensound.com/royalty-free-music
About IBD Podcast 2 - Let's Talk About "The Talk" With Your Partner
The second edition of the About IBD Podcast where I talk with 3 women with IBD about their experiences in telling their partners about their illness. Featured Guests: Jaime Weinstein prettyrottenguts.tumblr.com @JaimeEditor Brooke Abbott crazycreolemommy.com @CrzyCreoleMommy Christy Stone crohniebolognaibd.com @CrohnieBologna Music: Funky Element - Bensound.com - www.bensound.com/royalty-free-music
About IBD Podcast 1 - Let's Talk About That Fungus Thing
The first edition of my About IBD Podcast where I talk about this fungus fracas, how it relates to IBD, and why I'm not too worked up about IBD research done on mice. Music: Happy Rock - Bensound.com - http://www.bensound.com/royalty-free-music