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Invisible Not Broken

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Location:

United States

Language:

English

Contact:

6507872799


Episodes

Epilepsy, Philosophy, Creative Writing, and Rose Colored Glasses

8/14/2018
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Creative writing and memoir writing What it's like to come out of a seizure Vulnerability of seizures Secret Super Power of Invisible Disability Dating and Epilepsy Not Drinking Socially My Cat Tries To Crash The Interview Medical Marijuana and Epilepsy (Charlotte's Web) Medical Marijuana California Laws Financial Realities of Those of Us On Disability Pixar Incredibles 2 Epilepsy Warnings Triggers for Epilepsy You Might Not Expect What To Do If You See Someone Have A...

Duration:01:11:39

Being A Teenager With Chronic Illness, NMO, Depression, ME, Homeschool , and Chronic Pain

8/8/2018
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Join the Dark (Humor) Side Sign Up For Our VERY Infrequent Newsletter Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Links More Than A Spoonie Blog Young People With Chronic Illness Audible Adam Ruins Everything Uniqlo Bras and Bra Tops Victoria Jackson Favorite Podcasts SickBoy Stuff You Missed in History Class Lore Joe Rogan Deal With It Myths and History What is your disorder? * Neuromyelitis optica, depression, adrenal...

Duration:01:01:40

Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}

7/31/2018
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Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Follow Desiree Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder? * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome, Ehlers Danlo’s Syndrome, other GI issues At what age did your disorder become a daily issue? * 19 Who were you before your illness became debilitating? * A runner,...

Duration:01:03:50

Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}

7/31/2018
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I admit it I ADORE her and her dog Sirius (How can you not love a pirate service dog named for Harry Potter character Sirius Black?) We had a long talk about Ehlers Danlos, life in a wheelchair, CRPS, and service dog etiquette. Service dogs behaving badly can be a huge danger for disabled people dealing with chronic pain and chronic illness. Enjoy this week and tune in next week for part 2.

Duration:01:03:50

30 Day in the Spoonie Life Video Challenge From Your Chronic Illness Podcast Invisible Not Broken

7/23/2018
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30 Day in the Spoonie Life Video Challenge From Your Chronic Illness Podcast Invisible Not Broken

Duration:00:03:07

Ehlers Danlos Pirate Service Dog CDIF CRPS {A chronic illness podcast}

7/16/2018
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I admit it I ADORE her and her dog Sirius (How can you not love a pirate service dog named for Harry Potter character Sirius Black?) We had a long talk about Ehlers Danlos, life in a wheelchair, CRPS, and service dog etiquette. Service dogs behaving badly can be a huge danger for disabled people dealing with chronic pain and chronic illness. Enjoy this week and tune in next week for part 2.

Travel and Disability: Tips, Tricks, for Roadtrips, Planes, and Family Reunions When You Have A Chronic Illness

7/9/2018
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Travel and Disability: Tips, Tricks, for Roadtrips, Planes, and Family Reunions When You Have A Chronic Illness…click to read more or to listen to the podcast

Duration:00:54:03

Don't Try This At Home An Experiment In Pain Medication: Chronic Illness Blog

7/2/2018
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Join the Dark (Humor) Side Sign up with your email address to receive news and updates. Sign Up We respect your privacy. Thank you! </form> Alright maybe I have listened to too many Tim Ferris Podcast episodes (no really super motivating. Give it a try if you haven't). I decided to run a personal experiment as the US has yet again made it more difficult to get pain medication even when you go to a PAIN CLINIC and pharmacies have decided that they will supersede doctors n how much and...

Duration:00:15:21

Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk Part 2

6/18/2018
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First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses know another way to conduct interviews with everyone being able to see each other PLEASE reach out! Otherwise, I PROMISE you this interview is worth listening to even with the audio. Eliott has become one of my favorite people. I can not thank Eliott enough for VERY gently correcting my language to be more inclusive and for explaining trans and nonbinary in ways that I could really understand. Eliott...

Duration:00:43:17

Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk on Invisible Not Broke

6/11/2018
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First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses know another way to conduct interviews with everyone being able to see each other PLEASE reach out! Otherwise, I PROMISE you this interview is worth listening to even with the audio. Eliott has become one of my favorite people. I can not thank Eliott enough for VERY gently correcting my language to be more inclusive and for explaining trans and nonbinary in ways that I could really understand. Eliott...

Duration:00:48:13

Cost of Chronic Illness A Chronic Illness Podcast

6/4/2018
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Kyros and I are back on our soapboxes again to take a clear look at the hidden and not so hidden cost of the most expensive hobby you could ever have...chronic illness

Duration:01:08:48

Thoracic Outlet Syndrome, Spoonie Business Owners, Pain Management, & Relationships Chronic Illness Edition

5/28/2018
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This week we’re talking about the Thoracic Outlet Syndrome with Jen Hein and I have been waiting a long time for this episode because I really want to talk to another person who has a chronic illness and had to close of business that they built. Some of you know that I also had to shut down my Menlo Park photography studio when my Ehlers Danlos became too severe to continue. We talked about everything from pain management, medical marijuana in California, the opioid crisis has always been...

Duration:01:11:10

Secret Spoonie II A Chronic Illness Podcast

5/21/2018
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Hello everyone and welcome back to Hidden in Plain Sight. For those of you just joining me, my intent is for this to be a monthly column about the trials and tribulations of living life with invisible illnesses that (most) people don’t know about. To recap: Over the last twenty-eight years, I have had numerous major surgeries, and a handful of minor ones, in addition to dozens of other (often invasive) medical procedures. I’ve had organs removed and a metal plate and cage implanted in my...

Duration:00:09:45

Hashimotos, Alopecia, Author Jenny Berk on Body Image, Chronic Illness Parenting, and Zombies A Chronic Illness Podcast

5/14/2018
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I had far too much fun interviewing best selling author and coach Jenny Eden (seriously buy her book The Body Image Blueprint). We talk parenting with chronic illness (she has Hashimotos and Alopecia areata). We talk anorexia and body image and raising daughters. We even talk zombies. I hope you enjoy and head over to Jenny’s coaching website Jenny Eden Coaching Until next week’s chronic illness podcast: Be Kind. Be Gentle. Be A Badass.

Duration:00:42:00

Ulcerative Colitis: Jackson Pollock, Life Hacks, Chronic Fatigue, and Questions To Never Ask Interview with Holly Fowler {Chronic Illness Podcast}

5/8/2018
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Click title to listen to interview with Colitiscope Nutrition founder Holly Fowler about her Ulcerative Colitis: Jackson Pollock, Life Hacks, and Questions To Never Ask {Chronic Illness Podcast}

Duration:01:00:49

Bipolar, PostPartum Depression, PTSD ,and Migraines : An Invisible Illness Podcast

4/30/2018
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From the best way to support a spoonie to great ways to manage anxiety to the true story of postpartum depression with and without medication this episode is absolutely full of great spoonie life hacks and some real information about bipolar, anxiety, and migraines from high school to college to being a new mom. Make sure to share this episode with anyone who has or anyone you would like to know more about postpartum depression, migraines, or bipolar. Thank you and until next week Be kind....

Duration:00:59:13

Faking it: From Disability Placards To Service Dogs: Chronic Illness Podcast

4/23/2018
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Kyros and I heavily debated doing this episode on Faking It All About Disability Placard and Service Animal Abuse of the System. Though we are not fans of calling people out this has become such an issue in our and others lives. The abuse of the system means life is so much more difficult for those who need these services. Take a listen and let us know what you think or if you have solutions we'd love to hear from you!

Duration:00:49:33

Multiple Sclerosis Lab Rat Side Hustle Alternate Pain Management & A Healthy Dose of Controversy {A Chronic Illness Podcast}

4/18/2018
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This week Lucas Robak was kind enough to talk about his experiences with Multiple Sclerosis, time as a lab rat, and some interesting views (his please don't sue us) on the medical system, charity and research organizations, and medicine in the US.

Duration:01:01:00

Polycythemia Vera: Vampires Would Love Her {Chronic Illness Podcast}

4/10/2018
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Hello everyone thank you for being patient this week I was regular sick. I truly believe that those of us with chronic illness should be given a pass on the flu but hey no-one asked me. This week I am talking with the author of You Are Not Your Diagnosis Lyn Thompsan about her polycythemia vera, a blood disorder that even after 6 months of doing this chronic illness podcast I have never heard of.

Duration:00:41:20

Secret Spoonie Our Newest Blogger About Life In The Chronic Illness Closet {Chronic Illness Podcast}

4/2/2018
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Introducing Hidden In Plain Sight a monthly column from our secret spoonie about life from inside the chronic illness closet.

Duration:00:05:00