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Invisible Not Broken

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United States

Language:

English

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Episodes

Holidays & Parties Spoonie Survival Guide {Chronic Illness Podcast}

12/14/2018
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Does this look familiar? Yup an oldie and goodie from last year. Kyros & I are not doing well and this one is just too good not to share again. Please share with family, friends, and support groups. I hope you enjoy and that Kyros and/or I am doing well enough to record again soon. Self-care is your buzzword of the day. Make sure you have your meds Make a playlist that makes you smile, no judging Jefferson Airplane We Built this City is on mine. ok judge, if it makes you feel...

Duration:00:10:00

Crohns, Fibromyalgia, Being Sick in Socialized Medical Care vs Being Sick, in For Profit, and mental health and chronic illness

12/4/2018
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A wonderful interview with Rebecca about life with Crohns, Fibromyalgia, and ME. We cover mental illness and chronic illness, body image and chronic illness, and how to take VERY good care of the spoonie in your life. We also talk about the difference of being sick in a world of socialized medicine and how it is different living in America where our health care is for profit. What is your disorder? * Crohns, previously fibromyalgia/CFS (still deal with immense fatigue, joint and immune...

Duration:01:02:00

Spoonie Tested Chronic Pain Management Gifts for Spoonies

11/27/2018
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Briana our resident Pain Management PA is back and just in time for Holiday Shopping! Here is a gift guide for your spoonie or for you. She has brought a bunch of products available on Amazon that she has found helpful for pain management and her own chiari malformation and Ehlers Danlos Syndrome. Amazon pain relief product list Migraine Hat $29.99...

Duration:01:15:50

Interview With Shona Curley From Red Kite Meditations on Lyme Disease

11/21/2018
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Interview With Shona Curley From Red Kite Meditations on Lyme Disease, meditation and chronic illness, relationships and chronic illness, and of course the cost of being sick in America. Find Out More About Shona & Follow Her: www.redkitemeditations.com Instagram FaceBook What is your disorder? * Lyme disease At what age did your disorder become a daily issue? * 40 Who were you before your illness became debilitating? * A busy mom of two little kids, a self employed Pilates studio...

Duration:00:52:12

Interview with Author and TED Speaker Emily Ann Peterson About Essential Tremor, Hypothyroidism & Her Book Bare Naked Bravery

11/13/2018
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Emily’s Website * Emily’s Podcast * Emily’s Twitter * Emily’s Instagram * Emily’s YouTube * Emily’s Pinterest * Emily’s SoundCloud *Emily’s Facebook singer-songwriter & creative consultant bestselling author of Bare Naked Bravery founder of The School of Bravery a learning lab for creative visionaries Recomendations Holli Margel School of Bravery Zapier Trello Fabulous IOS APP Emily Ann Peterson, the founder of The School of Bravery, a learning lab for creative visionaries, talks...

Duration:01:01:55

Financial Planning For Spoonies Interview with Emily Guy Birken

11/6/2018
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I am beyond excited for you to listen to this interview with Emily Guy Birkin. Being sick in any country is expensive. No matter where you are there is time off work and a lowering of energy. A new chronic illness or disability diagnosis can be terrifying for so many reasons but one of them might be something you can control and prepare for, financial. Emily and I will cover some of the ways to budget with fixed income, tools for what to do if you are still working, and ways to financially...

Duration:00:52:52

FEAR AND CHRONIC ILLNESS HALLOWEEN : MONICA MICHELLE AND KYROS STARR TALK ALL ABOUT THE THINGS THAT SCARE THEM

10/30/2018
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FEAR AND CHRONIC ILLNESS HALLOWEEN EDITION MONICA MICHELLE AND KYROS STARR TALK ALL ABOUT THE THINGS THAT SCARE THEM. Monica Michelle has been having a tough time with Ehlers Danlos Syndrome and a new diagnosis of MCAS and Kyros is have joint problems and some new troubling symptoms. Disability has never been so spooky. In all seriousness warning if you have problems hearing about depression and things that go along with depression. Panel Discussion: FEAR Article...

Duration:01:04:11

Lemonayde App Founder Niko Interview About Dating With Chronic Illness and Tinea Versicolor

10/18/2018
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An interview with Niko, founder of the chronic illness community and dating app Lemonayde, about dating with chronic illness and his own chronic skin issue Tinea Versicolor. Lemonayde App Name * Niko Geoffroy What is your disorder? * Tinea Versicolor At what age did your disorder become a daily issue? * 15 Who were you before your illness became debilitating? * Before my condition, I was already pretty introverted and my skin condition really added to that and made it harder to get...

Duration:00:44:13

Copy of Chronic Illness and Life Choices Part 2 School, work, and dating with a chronic illness

10/11/2018
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I am back talking with Eva from Wellacopia about how chronic illness shapes and factors into our life choices. Click here for Eva's interview about her life with fibromyalgia Monica Michelle (me) has Ehlers Danlos, Fibromyalgia, Mast Cell Activation, and POTS. In this first episode, we talk about chronic illness and high school, factors to consider when you are a spoonie choosing a college, and a long chat about dating when you have an invisible illness. In the comments please tell us...

Duration:00:58:40

Chronic Illness and Life Choices Part 1 School, work, and dating with a chronic illness

10/2/2018
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I am back talking with Eva from Wellacopia about how chronic illness shapes and factors into our life choices. Click here for Eva's interview about her life with fibromyalgia Monica Michelle (me) has Ehlers Danlos, Fibromyalgia, Mast Cell Activation, and POTS. In this first episode, we talk about chronic illness and high school, factors to consider when you are a spoonie choosing a college, and a long chat about dating when you have an invisible illness. In the comments please tell us...

Duration:00:53:53

Interview with Lisa Sniderman on her book: A LIGHT IN THE DARKNESS: TRANSCENDING CHRONIC ILLNESS THROUGH THE POWER OF ART DERMATOMYOSITIS

9/21/2018
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Buy A Light in the Darkness: Transcending Chronic Illness Through the Power of Art I got an up close look at an amazing woman, Lisa Sniderman, Aoede, with an interview about her upcoming book A Light in the Darkness: Transcending Chronic Illness Through the Power of Art and her chronic illness Dermatomyositis. She is full of fairy sparkle and creativity. Just listening to her made me feel so inspired. We talk a lot about what it means to be chronically ill and disabled as an artist. In many...

Duration:00:58:01

CSF Leak and Ehlers Danlos Pain Management Physicians Assistant Helps A Zebra Out With Chronic Pain Management Questions and Life on Disability With A Chronic Illness

9/12/2018
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Life can be full of kismet. I just started doing live recording on ZubiaLive about chronic illness and trying to live a life and the site wanted to connect with LinkdIn. I have not been active on LinkdIn since I was a photographer. So I did my best to create a decent profile for Invisible Not Broken Podcast. In less than an hour I had gotten a lovely email from a Pain Management Doctors PA. who also has Ehlers Danlos Syndrome. A fellow zebra who knows things from the other side of the...

Duration:01:09:01

Fibromyalgia, Chronic Illness and School, Target Should Do Better, Thank you ACA, and a Kinder Gentler World for Spoonies

9/6/2018
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Links From Fibromyalgia Interview : Fibromyalgia Frock Flicks Bored Panda Good Witch Savella Fibromyalgia Medication Sleep Number Bed Cost of Chronic Illness (Past Episode) ACA What is your disorder? * Fibromyalgia At what age did your disorder become a daily issue? * 12 Who were you before your illness became debilitating? * I hadn’t really figured out who I was for sure. I was a week away from my 16th birthday when I was diagnosed and by that time I was in pain every day and...

Duration:00:58:23

Writing Through Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, & Stroke: The Indomitable Georgiana

8/31/2018
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https://georgiana3026.wixsite.com/mybeautifultr: website https://twitter.com/mybeautifulTr /https://www.facebook.com/mybeautifulTr/ https://www.facebook.com/groups/mybeautifultrauma/ What is your disorder? * SLE Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, Stroke At what age did your disorder become a daily issue? * 12 Who were you before your illness became debilitating? * Youth Worker What would you do if you were not dealing with your invisible illness?...

Duration:00:39:12

Chronic Illness and Remaining Politically Active When Disabled

8/26/2018
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Trigger warning rape and discussions about chronic pain depression and suicide (click if you need help this link will take you to a hotline) I am doing trigger warnings not because I think you should not listen but I don’t want to sideline you I promise even though we do meander down some trails we do discuss a way to remain politically active no matter your mental or physical disability. Jen Toal Link and her businesses Women’s March Guide I wish I had when I was looking into...

Duration:01:10:13

Epilepsy, Philosophy, Creative Writing, and Rose Colored Glasses

8/14/2018
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Creative writing and memoir writing What it's like to come out of a seizure Vulnerability of seizures Secret Super Power of Invisible Disability Dating and Epilepsy Not Drinking Socially My Cat Tries To Crash The Interview Medical Marijuana and Epilepsy (Charlotte's Web) Medical Marijuana California Laws Financial Realities of Those of Us On Disability Pixar Incredibles 2 Epilepsy Warnings Triggers for Epilepsy You Might Not Expect What To Do If You See Someone Have A...

Duration:01:11:39

Being A Teenager With Chronic Illness, NMO, Depression, ME, Homeschool , and Chronic Pain

8/8/2018
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Join the Dark (Humor) Side Sign Up For Our VERY Infrequent Newsletter Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Links More Than A Spoonie Blog Young People With Chronic Illness Audible Adam Ruins Everything Uniqlo Bras and Bra Tops Victoria Jackson Favorite Podcasts SickBoy Stuff You Missed in History Class Lore Joe Rogan Deal With It Myths and History What is your disorder? * Neuromyelitis optica, depression, adrenal...

Duration:01:01:40

Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}

7/31/2018
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Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Follow Desiree Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder? * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome, Ehlers Danlo’s Syndrome, other GI issues At what age did your disorder become a daily issue? * 19 Who were you before your illness became debilitating? * A runner,...

Duration:01:03:50

Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}

7/31/2018
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Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Follow Desiree Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder? * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome, Ehlers Danlo’s Syndrome, other GI issues At what age did your disorder become a daily issue? * 19 Who were you before your illness became debilitating? * A runner,...

Duration:01:03:50

30 Day in the Spoonie Life Video Challenge From Your Chronic Illness Podcast Invisible Not Broken

7/23/2018
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#30dayspooniechallenge. JOIN THE DARK (HUMOR) SIDE Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. So this is stupid simple and all you need to do is just post a video or a picture of what your life is like with a chronic illness. Can be as long or short as you like. Just add a not or say where you are from. We have been so lucky and I am so honored that Invisible Not Broken has listeners from Africa, India, China, Russia, South Korea,...

Duration:00:03:07