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Invisible Not Broken

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United States

Language:

English

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6507872799


Episodes

Copy of Chronic Illness and Life Choices Part 2 School, work, and dating with a chronic illness

10/11/2018
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I am back talking with Eva from Wellacopia about how chronic illness shapes and factors into our life choices. Click here for Eva's interview about her life with fibromyalgia Monica Michelle (me) has Ehlers Danlos, Fibromyalgia, Mast Cell Activation, and POTS. In this first episode, we talk about chronic illness and high school, factors to consider when you are a spoonie choosing a college, and a long chat about dating when you have an invisible illness. In the comments please tell us...

Duration:00:58:40

Chronic Illness and Life Choices Part 1 School, work, and dating with a chronic illness

10/2/2018
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I am back talking with Eva from Wellacopia about how chronic illness shapes and factors into our life choices. Click here for Eva's interview about her life with fibromyalgia Monica Michelle (me) has Ehlers Danlos, Fibromyalgia, Mast Cell Activation, and POTS. In this first episode, we talk about chronic illness and high school, factors to consider when you are a spoonie choosing a college, and a long chat about dating when you have an invisible illness. In the comments please tell us...

Duration:00:53:53

Interview with Lisa Sniderman on her book: A LIGHT IN THE DARKNESS: TRANSCENDING CHRONIC ILLNESS THROUGH THE POWER OF ART DERMATOMYOSITIS

9/21/2018
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Buy A Light in the Darkness: Transcending Chronic Illness Through the Power of Art I got an up close look at an amazing woman, Lisa Sniderman, Aoede, with an interview about her upcoming book A Light in the Darkness: Transcending Chronic Illness Through the Power of Art and her chronic illness Dermatomyositis. She is full of fairy sparkle and creativity. Just listening to her made me feel so inspired. We talk a lot about what it means to be chronically ill and disabled as an artist. In...

Duration:00:58:01

CSF Leak and Ehlers Danlos Pain Management Physicians Assistant Helps A Zebra Out With Chronic Pain Management Questions and Life on Disability With A Chronic Illness

9/12/2018
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Life can be full of kismet. I just started doing live recording on ZubiaLive about chronic illness and trying to live a life and the site wanted to connect with LinkdIn. I have not been active on LinkdIn since I was a photographer. So I did my best to create a decent profile for Invisible Not Broken Podcast. In less than an hour I had gotten a lovely email from a Pain Management Doctors PA. who also has Ehlers Danlos Syndrome. A fellow zebra who knows things from the other side of the...

Duration:01:09:01

Fibromyalgia, Chronic Illness and School, Target Should Do Better, Thank you ACA, and a Kinder Gentler World for Spoonies

9/6/2018
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Links From Fibromyalgia Interview : Fibromyalgia Frock Flicks Bored Panda Good Witch Savella Fibromyalgia Medication Sleep Number Bed Cost of Chronic Illness (Past Episode) ACA What is your disorder? * Fibromyalgia At what age did your disorder become a daily issue? * 12 Who were you before your illness became debilitating? * I hadn’t really figured out who I was for sure. I was a week away from my 16th birthday when I was diagnosed and by that time I was in pain every day...

Duration:00:58:23

Writing Through Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, & Stroke: The Indomitable Georgiana

8/31/2018
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https://georgiana3026.wixsite.com/mybeautifultr: website https://twitter.com/mybeautifulTr /https://www.facebook.com/mybeautifulTr/ https://www.facebook.com/groups/mybeautifultrauma/ What is your disorder? * SLE Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, Stroke At what age did your disorder become a daily issue? * 12 Who were you before your illness became debilitating? * Youth Worker What would you do if you were not dealing with your invisible illness?...

Duration:00:39:12

Chronic Illness and Remaining Politically Active When Disabled

8/26/2018
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Trigger warning rape and discussions about chronic pain depression and suicide (click if you need help this link will take you to a hotline) I am doing trigger warnings not because I think you should not listen but I don’t want to sideline you I promise even though we do meander down some trails we do discuss a way to remain politically active no matter your mental or physical disability. Jen Toal Link and her businesses Women’s March Guide I wish I had when I was looking into...

Duration:01:10:13

Epilepsy, Philosophy, Creative Writing, and Rose Colored Glasses

8/14/2018
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Creative writing and memoir writing What it's like to come out of a seizure Vulnerability of seizures Secret Super Power of Invisible Disability Dating and Epilepsy Not Drinking Socially My Cat Tries To Crash The Interview Medical Marijuana and Epilepsy (Charlotte's Web) Medical Marijuana California Laws Financial Realities of Those of Us On Disability Pixar Incredibles 2 Epilepsy Warnings Triggers for Epilepsy You Might Not Expect What To Do If You See Someone Have A...

Duration:01:11:39

Being A Teenager With Chronic Illness, NMO, Depression, ME, Homeschool , and Chronic Pain

8/8/2018
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Join the Dark (Humor) Side Sign Up For Our VERY Infrequent Newsletter Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Links More Than A Spoonie Blog Young People With Chronic Illness Audible Adam Ruins Everything Uniqlo Bras and Bra Tops Victoria Jackson Favorite Podcasts SickBoy Stuff You Missed in History Class Lore Joe Rogan Deal With It Myths and History What is your disorder? * Neuromyelitis optica, depression, adrenal...

Duration:01:01:40

Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}

7/31/2018
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Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Follow Desiree Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder? * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome, Ehlers Danlo’s Syndrome, other GI issues At what age did your disorder become a daily issue? * 19 Who were you before your illness became debilitating? * A runner,...

Duration:01:03:50

Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}

7/31/2018
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Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Follow Desiree Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder? * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome, Ehlers Danlo’s Syndrome, other GI issues At what age did your disorder become a daily issue? * 19 Who were you before your illness became debilitating? * A runner,...

Duration:01:03:50

30 Day in the Spoonie Life Video Challenge From Your Chronic Illness Podcast Invisible Not Broken

7/23/2018
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#30dayspooniechallenge. JOIN THE DARK (HUMOR) SIDE Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. So this is stupid simple and all you need to do is just post a video or a picture of what your life is like with a chronic illness. Can be as long or short as you like. Just add a not or say where you are from. We have been so lucky and I am so honored that Invisible Not Broken has listeners from Africa, India, China, Russia, South Korea,...

Duration:00:03:07

Ehlers Danlos Pirate Service Dog CDIF CRPS {A chronic illness podcast}

7/16/2018
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Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Follow Desiree Instagram Follow Sirius @sirius.service.dog Desiree @desireejaykins What is your disorder? * Reflex Sympathetic Dystrophy/ Complex Regionals Pain Syndrome, Ehlers Danlo’s Syndrome, other GI issues At what age did your disorder become a daily issue? * 19 Who were you before your illness became debilitating? * A runner,...

Travel and Disability: Tips, Tricks, for Roadtrips, Planes, and Family Reunions When You Have A Chronic Illness

7/9/2018
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Join The Dark (Humor) Side Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Before you travel Make sure you have more than enough meds to get you through the trip. (My rule of thumb is to always make sure I have enough for 3-5 extra days in case I get stuck somewhere due to weather or other problems) If you use a daily pill sorter, Take it empty along with your bottles of pills Fill it but take pictures of each pill next to its bottle in...

Duration:00:54:03

Don't Try This At Home An Experiment In Pain Medication: Chronic Illness Blog

7/2/2018
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Join the Dark (Humor) Side Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Alright maybe I have listened to too many Tim Ferris Podcast episodes (no really super motivating. Give it a try if you haven't). I decided to run a personal experiment as the US has yet again made it more difficult to get pain medication even when you go to a PAIN CLINIC and pharmacies have decided that they will supersede doctors n how much and when you may have your...

Duration:00:15:21

Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk Part 2

6/18/2018
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Join Us Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Warning: We really got into some intense issues from body issues, to disordered eating to suicide. If these are upsetting please look under recommendations for help and helplines. First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses know another way to conduct interviews with everyone being able to see each other PLEASE reach out! Otherwise, I PROMISE...

Duration:00:43:17

Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk on Invisible Not Broke

6/11/2018
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Subscribe Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Warning: We really got into some intense issues from body issues, to disordered eating to suicide. If these are upsetting please look under recommendations for help and helplines. First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses know another way to conduct interviews with everyone being able to see each other PLEASE reach out! Otherwise, I...

Duration:00:48:13

Cost of Chronic Illness A Chronic Illness Podcast

6/4/2018
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Subscribe Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Panel Discussion: The Cost of Having an Invisible Illness Important Note: According to a 2017 RAND study, as of 2014, 60 percent of Americans had at least one chronic condition, and 42 percent had multiple chronic conditions. These proportions have held steady since 2008. As used in the RAND study, it includes any physical or mental health condition that lasts more than one year...

Duration:01:08:48

Thoracic Outlet Syndrome, Spoonie Business Owners, Pain Management, & Relationships Chronic Illness Edition

5/28/2018
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Subscribe Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. This week we’re talking about the Thoracic Outlet Syndrome with Jen Hein and I have been waiting a long time for this episode because I really want to talk to another person who has a chronic illness and had to close of business that they built. Some of you know that I also had to shut down my Menlo Park photography studio when my Ehlers Danlos became too severe to continue. We talked...

Duration:01:11:10

Secret Spoonie II A Chronic Illness Podcast

5/21/2018
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Subscribe Sign up with your email address to receive news and updates. Sign UpWe respect your privacy. Hidden in Plain Sight The Life of a Secret Spoonie: Part Two: Origins Hello everyone and welcome back to Hidden in Plain Sight. For those of you just joining me, my intent is for this to be a monthly column about the trials and tribulations of living life with invisible illnesses that (most) people don’t know about. To recap: Over the last twenty-eight years, I have had numerous...

Duration:00:09:45