
My Macular & Me
Health & Wellness Podcasts
Every month the Macular Society host two webinars to bring you closer to the experts. We are joined by experts in macular disease who discuss the latest in treatments and research and answer your questions. Our webinars have been made into podcasts so you can listen on the go.
Location:
United Kingdom
Genres:
Health & Wellness Podcasts
Description:
Every month the Macular Society host two webinars to bring you closer to the experts. We are joined by experts in macular disease who discuss the latest in treatments and research and answer your questions. Our webinars have been made into podcasts so you can listen on the go.
Twitter:
@macularsociety
Language:
English
Episodes
Sorsby Fundus Dystrophy
9/20/2023
Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular & Me podcast to talk to us about Sorsby Fundus Dystrophy.
For further information on Sorsby Fundus Dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:36:54
BrightPage: a tool to help you read with macular disease
9/6/2023
Howard Moshtael, joins us for this episode of the My Macular & Me podcast to discuss his reading tool, BrightPage.
Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’t have to move your eyes. His idea was to find a tool which can scroll text in a natural way for reading. This would not be as a continuous scroll, but rather one that mimics the movements that our eyes make whilst reading. This way of reading turned out to be a great success and instantly boosted reading speed in both the fully and partially sighted.
To find out more about BrightPage and to try the app, visit their official website here: https://www.brightpage.tech/
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:33:03
An insight into the Macular Society research team
8/16/2023
Macular Society's research manager Geraldine Hoad and research officer Sarah Clinton join us for this episode of the My Macular & Me podcast to give an overview of the team and bring an update on the latest developments in macular research.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:41:27
How effective are techniques to manage visual hallucinations?
8/2/2023
Professor Robin Walker joins us for this episode of the My Macular & Me podcast to discuss his team's study on the effectiveness of recommended techniques to manage visual hallucinations caused by sight loss.
Do you suffer with visual hallucinations caused by Charles Bonnet syndrome? The Macular Society runs a CBS support group via our counselling service. This is done over the telephone and you can speak to other people experiencing CBS as well as one of our professional counsellors. If you are interested in joining, please call our Advice and Information Service on 0300 3030 111 and we can pass on further information.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:35:29
Inherited Macular Disease - Should I know my gene?
7/19/2023
Professor Andrew Webster and genetic counsellor Hannah Knight join us for this episode of the My Macular & Me podcast to talk about understanding a genetic diagnosis of inherited macular disease and explore the benefits of genetic testing and counselling.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:41:14
Research Into Best Disease
7/5/2023
Dr Amanda Carr, a researcher at UCL Institute of Ophthalmology, joins us for this episode of the My Macular and Me podcast. Amanda is currently working on a Macular Society funded project to switch off a faulty gene in Best disease, which causes the progression of the disease. Amanda updates on the project, which, if successful, could pave the way for gene testing to be used for Best disease and other autosomal dominant macular dystrophies, and genetic conditions in other disease areas.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:44:06
Myopic Macular Degeneration
6/21/2023
What is myopic macular degeneration? And why is the number of people living with the condition increasing? Professor Pete Coffey joins us for this episode of the My Macular and Me podcast to tell us more about the condition and how in the future, it could be more common than age-related macular degeneration (AMD).
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:44:09
Punctate Inner Choroidopathy (PIC)
6/7/2023
In this episode of the My Macular and Me podcast we are joined by consultant ophthalmologist Alastair Denniston, along with his colleagues, to discuss Punctate Inner Choroidopathy (PIC) in more detail and hear from a patient living with PIC.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:50:42
Diabetes and your eyes
5/17/2023
Diabetes can have a huge impact on our sight. In this episode of the My Macular & Me podcast, we are joined by consultant ophthalmologist Samantha Mann, from Guy's and St Thomas' Hospital. Samantha discusses the latest developments in treatment and research in diabetic eye disease.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:43:37
Securing Employment with Sight Loss
5/3/2023
In this episode of the My Macular and Me podcast we are joined by Zsuzsi Szabo of Support 4 Sight and Nick Thomas from North Wales Society for the Blind, who share their employment advice for people diagnosed with a sight condition.
Finding a job can be a challenge at the best of times, but it can be so much harder to find work when you have a sight condition. If you or a family member need advice or support in finding work, or for anything else, please make sure to reach out. Please call us on 0300 3030 111.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends.
Duration:00:44:28
Charles Bonnet Syndrome in Children
4/19/2023
In this episode of the My Macular and Me podcast we are joined by Consultant Ophthalmologist and Clinician-Scientist, Professor Mariya Moosajee. She speaks to the Macular Society about her research into Charles Bonnet Syndrome, specifically in children.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:46:32
Latest Developments into Stargardt Disease Research
4/5/2023
In this episode of the My Macular and Me podcast we are joined by Professor Andrew Lotery of the University of Southampton. He speaks to the Macular Society about the latest news regarding research into Stargardt disease.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:43:46
Cost of living - Support for people living with sight loss
3/15/2023
Our first episode welcomes our Working Age and Young People's Service Manger, Colin Daniels. The focus of this episode is benefit entitlements, cost of living contingencies and grants for equipment.
The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.
Duration:00:41:29