My Macular and Me

For this episode of the My Macular and Me podcast, we are joined Zsuzsi Szabo, an employment manager from Support4Sight in Essex, and Gary Hawkins from Cadent Gas, along with Lee Mercer, who is living with sight loss and is sharing his experience with employment. They discuss the barriers that employers encounter when thinking about hiring someone with sight loss, and whether these barriers are real or perceived. Listen to find out more about how partially sighted job seekers can overcome these barriers. Finding a job can be a challenge at the best of times, but it can be so much harder to find work when you have a sight condition. If you or a family member need advice or support in finding work, or for anything else, please make sure to reach out. Please call us on 0300 3030 111 or email help@macularsociety.org The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends.

Suzanne Roberts from the Macular Society Counselling service joins Colin Daniels for this episode of the My Macular and Me podcast. We are also joined by Lesley who was diagnosed with macular disease and began using our counselling service when she felt she was at her lowest. This episode looks at the emotional impact of a diagnosis of macular disease and the support that is available from the Society. A diagnosis of macular disease can be extremely upsetting. Finding out that you may lose much of your central vision, and adapting to changes in your vision, can be very difficult to comprehend. After diagnosis many people struggle to cope with their emotions and can feel shocked, afraid or isolated. It can help to speak to a professional counsellor, who is trained to listen to talk through your feelings and help you find ways of dealing with them. We have a team of dedicated counsellors who have extensive experience either personally or professionally within the field of sight loss. This is a service for anyone who has been diagnosed with macular disease. We also offer the same service to that person's family members. You can refer yourself or somebody else via our online form or you can contact us via our helpline on 0300 3030 111. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

For this episode of the My Macular and Me podcast we are joined by Jen, an Eye Care Liaison Officer (ECLO) from West Suffolk, and Michelle , a rehabilitation officer from Lambeth, London, as they discuss their roles in supporting people with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard laser, which has been available for many years, and another much newer laser. It was found that the newer laser could clear up mild DMO without producing a burn on the retina, unlike the standard laser. The news of the trial is positive for those living with diabetes as it has found that this newer macular laser is a good treatment option. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about Sorsby Fundus Dystrophy. For further information on Sorsby Fundus Dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/ The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Howard Moshtael, joins us for this episode of the My Macular and Me podcast to discuss his reading tool, BrightPage. Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’t have to move your eyes. His idea was to find a tool which can scroll text in a natural way for reading. This would not be as a continuous scroll, but rather one that mimics the movements that our eyes make whilst reading. This way of reading turned out to be a great success and instantly boosted reading speed in both the fully and partially sighted. To find out more about BrightPage and to try the app, visit their official website here: https://www.brightpage.tech/ The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Macular Society's research manager Geraldine Hoad and research officer Sarah Clinton join us for this episode of the My Macular and Me podcast to give an overview of the team and bring an update on the latest developments in macular research. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Professor Robin Walker joins us for this episode of the My Macular and Me podcast to discuss his team's study on the effectiveness of recommended techniques to manage visual hallucinations caused by sight loss. Do you suffer with visual hallucinations caused by Charles Bonnet syndrome? The Macular Society runs a CBS support group via our counselling service. This is done over the telephone and you can speak to other people experiencing CBS as well as one of our professional counsellors. If you are interested in joining, please call our Advice and Information Service on 0300 3030 111 and we can pass on further information. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Professor Andrew Webster and genetic counsellor Hannah Knight join us for this episode of the My Macular and Me podcast to talk about understanding a genetic diagnosis of inherited macular disease and explore the benefits of genetic testing and counselling. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Dr Amanda Carr, a researcher at UCL Institute of Ophthalmology, joins us for this episode of the My Macular and Me podcast. Amanda is currently working on a Macular Society funded project to switch off a faulty gene in Best disease, which causes the progression of the disease. Amanda updates on the project, which, if successful, could pave the way for gene testing to be used for Best disease and other autosomal dominant macular dystrophies, and genetic conditions in other disease areas. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

What is myopic macular degeneration? And why is the number of people living with the condition increasing? Professor Pete Coffey joins us for this episode of the My Macular and Me podcast to tell us more about the condition and how in the future, it could be more common than age-related macular degeneration (AMD). The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

In this episode of the My Macular and Me podcast we are joined by consultant ophthalmologist Alastair Denniston, along with his colleagues, to discuss Punctate Inner Choroidopathy (PIC) in more detail and hear from a patient living with PIC. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Diabetes can have a huge impact on our sight. In this episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Samantha Mann, from Guy's and St Thomas' Hospital. Samantha discusses the latest developments in treatment and research in diabetic eye disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

In this episode of the My Macular and Me podcast we are joined by Zsuzsi Szabo of Support 4 Sight and Nick Thomas from North Wales Society for the Blind, who share their employment advice for people diagnosed with a sight condition. Finding a job can be a challenge at the best of times, but it can be so much harder to find work when you have a sight condition. If you or a family member need advice or support in finding work, or for anything else, please make sure to reach out. Please call us on 0300 3030 111. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends.

In this episode of the My Macular and Me podcast we are joined by Consultant Ophthalmologist and Clinician-Scientist, Professor Mariya Moosajee. She speaks to the Macular Society about her research into Charles Bonnet Syndrome, specifically in children. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

In this episode of the My Macular and Me podcast we are joined by Professor Andrew Lotery of the University of Southampton. He speaks to the Macular Society about the latest news regarding research into Stargardt disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.

Our first episode welcomes our Working Age and Young People's Service Manger, Colin Daniels. The focus of this episode is benefit entitlements, cost of living contingencies and grants for equipment. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their family and friends. If you or a family member need advice or support, please make sure to reach out. No one has to face macular disease alone. Please call us on 0300 3030 111.