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PodcastDX

Health & Wellness Podcasts

PodcastDX is an interview based podcast series in a “peer-to-peer supportive format." We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis. We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com . ​

PodcastDX is an interview based podcast series in a “peer-to-peer supportive format." We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis. We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com . ​

Location:

United States

Description:

PodcastDX is an interview based podcast series in a “peer-to-peer supportive format." We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis. We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com . ​

Twitter:

@podcastdx

Language:

English

Contact:

7088032400


Episodes

Muscular Dystrophy

3/2/2021
This week we are speaking with a Muscular Dystrophy Warrior! Keisha Greaves is a motivational speaker, the founder of Girls Chronically Rock, and the Massachusetts State Ambassador for the Muscular Dystrophy Association (MDA). Girls Chronically Rock (www. girlschronicallyrock.com) offers inspired fashion celebrating Muscular Dystrophy and other chronic illnesses. Over the past few years, Keisha has been featured in Good Morning America, Today Show, WCVB Chronicle, ABC News, Thrive...

Duration:00:29:57

Rare Disease CAMK-2 Gene

2/23/2021
Our guest today is Karen is a wife and mother to 5 children. Her youngest, who is now 13 was born seemingly healthy. In her first weeks it became clear that she wasn't developing normally. After 10 years of looking for a diagnosis and not finding answers, they decided to do whole exome sequencing. That finally gave them an answer. She has a mutation of her CAMK2 gene. It was so newly discovered that only a handful of people were diagnosed with this. Since it has been discovered, more...

Duration:00:27:07

Effects of Agent Orange

2/16/2021
Tara Parham, the daughter of a disabled USMCS Veteran, eighty-sixed her 6 figure income career in Government Healthcare and Lean Six Sigma, after falling ill with the first of 3 rare diseases that are associated with her dads exposure to Agent Orange, a dioxin used while he was serving in the Vietnam War. Her goal is to shed light on those who are struggling with the many debilitating conditions from Agent Orange and other Rare Diseases; to advocate for those who are struggling to find Help,...

Duration:00:53:23

Fibromyalgia & POTs

2/9/2021
Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia and postural orthostatic tachycardia syndrome (POTS). He is the host of Discomfort Zone, a podcast featuring immersive stories on chronic illness and disability that showcase our vulnerability, wellness, and resilience. He and his guests find comfort by turning towards discomfort, welcoming it, and laughing at it. Jason is the youngest of three kids...

Duration:00:31:10

Fibrodysplasia Ossificans Progressiva

2/2/2021
Kim Shields is 38 years old and just finished her masters in social work program. She was diagnosed with FOP at age 15, but it has mildly affected her throughout her life. She is a wheelchair user, but she doesn’t let that slow her down. She is working on a plan to open a nonprofit in the future to help with access issues for those with disabilities, specifically wheelchair access, but will fight to help anyone with a disability get access to housing, employment, and transportation that...

Duration:00:33:45

Autoimmune & Tick Borne Illness

1/26/2021
Board Certified in Family Medicine, Dr. Kelley was among the first physicians to become Board Certified in Integrative Medicine. She has studied the causes, effects, and treatments of Lyme Disease extensively, and lectures nationally on this and other topics. Dr. Kelley graduated from The Ohio State University College of Medicine and completed her residency in Family Medicine at St. Joseph Hospital in Chicago. She is a ten-year member of the Institute of Functional Medicine (IFM), a...

Duration:00:29:09

Household Safety

1/19/2021
Talking today amongst ourselves, we will share some important safety tips around the home. (TRANSCRIPT BELOW) ​ Most home safety tips talk about the importance of preventing fires, preparing against extreme weather and protecting the home from potential burglars. If you are a homeowner and have not taken precautions in any of these areas, the time to act is now. ​ Yet even though it’s important to prepare for large dangers, most household dangers are more subtle and require smaller...

Duration:00:30:28

Myostatin Issues- Dylan's Strength

1/12/2021
Myostatin-related muscle hypertrophy is a rare condition characterized by reduced body fat and increased muscle size. Affected individuals have up to twice the usual amount of muscle mass in their bodies. They also tend to have increased muscle strength. This condition is not known to cause any medical problems, and affected individuals are intellectually normal. Myostatin-related muscle hypertrophy is caused by mutations in the MSTN gene. It follows an incomplete autosomal dominant pattern...

Duration:00:38:32

Vaccines

1/5/2021
The first human vaccines against viruses were based using weaker or attenuated viruses to generate immunity. The smallpox vaccine used cowpox, a poxvirus that was similar enough to smallpox to protect against it but usually didn’t cause serious illness. Rabies was the first virus attenuated in a lab to create a vaccine for humans. Vaccines are made using several different processes. They may contain live viruses that have been attenuated (weakened or altered so as not to cause illness);...

Duration:00:19:17

Disability Etiquette

12/29/2020
Basic disability etiquette involves treating people with disabilities with respect. For example, speak to the person directly, not to the person accompanying them. Do not make assumptions about what they can or cannot do. The impact of a specific disability can vary widely from person to person, so offer assistance only if it appears to be needed. Acknowledge and respect the individual’s ability to make decisions and judgments on their own behalf. Always use “people first” language. For...

Duration:00:17:38

Cerebral Palsy

12/22/2020
Cerebral palsy is a group of disorders that affect movement and muscle tone or posture. It's caused by damage that occurs to the immature brain as it develops, most often before birth. Our guest today is Zain Bando, a Chicago area, 21-year-old college student and is studying journalism at the University of Illinois at Urbana-Champaign as a junior. He hopes to pursue a career in broadcasting after graduation and currently resides in Downers Grove, IL with his family. TRANSCRIPT: S8E2...

Duration:00:27:22

Cosmetic Medicine

12/15/2020
Cosmetic Medicine is the practice of non-surgical and minor surgical procedures that are designed to change the appearance of individuals by their effects on superficial tissues, thereby reversing the signs of ageing. Cosmetic Medicine is commonly associated with treatments such as botulinum toxin and dermal filler injections. Other treatments such as laser therapy and sclerotherapy are also extremely popular and are additional therapies that a cosmetic practitioner can offer. Skin Med Spa...

Duration:00:35:03

Fibromyalgia

12/8/2020
Our guest this week is Arushi Lohiya, from Jaipur, Rajasthan -India. She is a marketing & branding strategist, an amateur poet, animal lover, and a Fibromyalgia warrior. She graduated top of her class from Iowa State University, USA in marketing. At one time she was also a national level sports player and managed to combine both of her passions with a dream job in sports marketing. She was accelerating up the corporate ladder with brands like Coca Cola, ESPN, and Kingfisher Beer, basically...

Duration:00:23:11

Corneal Dystrophy

12/1/2020
Savanna is a health policy and patient advocate from Houston, Texas. She meets with senators and representative at the federal level to advocate for patients to have better access to treatments and for the protection of the ACA, as well as creating awareness & education through social media and consulting with companies about the patient experience. Savanna has several chronic illnesses including Psoriatic Arthritis, Severe Asthma, and a form of Corneal Dystrophy, which is what she is here...

Duration:00:22:57

Epilepsy

11/24/2020
Matt is a preschool teacher turned computer programmer and disability advocate. He developed Epilepsy while in college and is here today to discuss this often misunderstood disease. ​ Epilepsy is a central nervous system (neurological) disorder in which brain activity becomes abnormal, causing seizures or periods of unusual behavior, sensations, and sometimes loss of awareness. ​Anyone can develop epilepsy. Epilepsy affects both males and females of all races, ethnic backgrounds and...

Duration:00:46:04

Gastroparesis and J-Tubes

11/17/2020
Ambre is a gastroparesis patient. She was diagnosed in 2016, after suffering with GI symptoms for nearly 2 years. Her disease has progressed to where she is now completely dependent on enteral nutrition. In the last two years she has become a vocal advocate for the gastroparesis community. She has also, in the last year become a vocal advocate for feeding tubes and body positivity. By participating in several photoshoots to help with body positivity and awareness for medical devices, she...

Duration:00:42:58

Lupus

11/10/2020
Britt Clark is a patient advocate and the founder of Lupus Lyfe, a blog about living with lupus. She is also a lupus patient leader for WEGO Health and actively participates in discussions and panels advocating for chronic illness warriors. She has battled lupus, fibromyalgia, trigeminal neuralgia and recently stage 1 kidney cancer. In her spare time, she loves spending time with her husband and 2 sons and traveling. Blog: Lupus Lyfe www.lupuslyfe.com IG: @lupuslyfe ​FB: @lupuslyfe

Duration:00:17:50

Crohns During Motherhood

11/3/2020
Myisha is the ceo of @gameofcrohnsandchronicillness Facebook group and Instagram. Myisha is a 2019 WEGO Health Awards finalist and WEGO Health top 10 rookie of the year 2020 this year. ​ Myisha have been nominated for 10 WEGO Health awards. Myisha started her Facebook group gameofcrohnsandchronicillness to help others feel less alone. ​ When Myisha was first diagnosed 11 years ago she knew absolutely nothing about her chronic illness or what she would be dealing with for the rest of her...

Duration:00:23:22

Halloween During COVID

10/27/2020
In this episode we will discuss Halloween Safety during COVID ​Fall celebrations like Halloween and Harvest Day are fun times for children, who at one time could dress up in costumes, enjoy parties, and eat yummy treats. These celebrations also provide a chance to give out healthy snacks, get physical activity, and focus on safety. ​Check out these tips to help make the festivities fun and safe for trick-or-treaters and some ideas to replace typical parties during these uncommonly scary...

Duration:00:13:29

Barrett's Esophagus

10/20/2020
Our guest today is once again Lita Tomas, one of our co-hosts. Lita has suffered with GERD for most of her adult life (as you learned in S6E19) This year's upper endoscopy showed damage to the esophagus from the chronic acid backflow. She now has a new diagnosis of Barrett's Esophagus. Barrett's esophagus is a potentially serious complication of GERD, which stands for gastroesophageal reflux disease. In Barrett's esophagus, normal tissue lining the esophagus -- the tube that carries food...

Duration:00:14:29