Spotlight on Care: Alzheimer's Caregiving-logo

Spotlight on Care: Alzheimer's Caregiving

Health & Wellness Podcasts

Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at mwitbrac@uci.edu.

Location:

United States

Description:

Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at mwitbrac@uci.edu.

Twitter:

@ucimind

Language:

English

Contact:

9498240008


Episodes
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Navigating Relationships with a Parent Who Was Abusive or Absent with Pamela D. Wilson

9/17/2024
In this episode of Spotlight on Care, co-hosts Steve and Virginia are joined once again by caregiving expert Pamela D. Wilson to discuss the challenges adult children face when caring for parents who were absent, abusive, or neglectful. They explore emotional struggles, complicated family dynamics, the importance of setting boundaries, and the question of whether total forgiveness is necessary. Pamela also provides practical advice on navigating these difficult caregiving situations and emphasizes the importance of prioritizing your own well-being. Social Media YouTube Channelhttps://www.youtube.com/c/PamelaDWilsonCaregivingExpertFacebookhttps://www.facebook.com/pameladwilsoncaregivingexpert/Twitterhttps://twitter.com/CaregivingSpeakFacebookhttps://www.facebook.com/pameladwilsoncaregivingexpert/Website, Consultations, Free Online Programs, Speaking, & Podcast Websitehttps://pameladwilson.com/Pamela D Wilson Eldercare Consultanthttps://pameladwilson.com/elder-care-consultant-aging-parent-consultation-managing-senior-care-needs-meet-with-pamela-d-wilson/Caring for Aging Parents Online Programhttps://pameladwilson.com/support-caring-for-elderly-parents-overwhelmed-caregiver-support-online-course/Power of Attorney Online Programhttps://pameladwilson.com/power-of-attorney-webinar-program/Guardianship for Aging Parents Online Programhttps://pameladwilson.com/how-to-get-guardianship-of-a-parent-obtain-legal-guardianship-online-course-pamela-d-wilson/Caregiving Speakerhttps://pameladwilson.com/caregiving-speaker-aging-parents-expert-advocate-keynotes-presentations-digital-caregiver-programs/The Caring Generation Podcasthttps://pameladwilson.com/caregiver-radio-programs-the-caring-generation/

Duration:00:26:35

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Caregiver Resource Center

8/21/2024
In this episode, Diana Marquez-Siemers and Rachel Smyth from the Caregiver Resource Center (CRC) provide expert insights on the challenges and solutions for families caring for loved ones with dementia. Join Steve and Virginia as they learn about the CRC’s commitment to supporting caregivers. They also discuss the development of their personalized care plans to address each caregiver’s unique needs, offering coaching, training, and ongoing support to ensure quality care. With over 60% of caregivers in Southern California caring for someone with cognitive impairment, this episode highlights the importance of reaching out for help early in the caregiving journey as well as connecting with a supportive community. From the Caregiver Resource Center OC: The Caregiver Resource Center OC is a trusted partner for Orange County families, who are coping with the physical, emotional, and financial responsibilities of caregiving. By providing families with individualized supportive services, the Caregiver Resource Center stands apart as the only Orange County agency focusing exclusively on the needs of caregivers, who are coping with a loved one’s chronic illness. The Caregiver Resource Center provides family consultation, support groups, assessment and care planning, counseling, respite planning and community education. Since 1988, the Caregiver Resource Center has assisted thousands of families who care for an adult with a brain-impairing condition such as Alzheimer’s, stroke, Parkinson’s, Multiple Sclerosis, head injury, or Huntington’s disease, or for someone who is over the age of 60 and requires daily assistance. The Caregiver Resource Center works collaboratively in the community with other service providers and community providers in the aging and disability network. Services are free. For more information, call 800-543-8312 or 714-446-5030 or go to our website: www.caregiveroc.org The materials or product were a result of a project funded by a contract with the California Department of Aging (CDA), as allocated by the Orange County Board of Supervisors and administered by the Office on Aging. Supporting data is available by contacting Caregiver Resource Center OC at 130 W. Bastanchury Road, Fullerton, CA 92835 (714) 446-5030. The conclusions and opinions expressed may not be those of the CDA and that the publication may not be based upon or inclusive of all raw data. Services are provided free of charge. Voluntary contributions are gratefully accepted, and no one is denied for inability to contribute.

Duration:00:27:10

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Caring for Difficult Parents with Pamela D. Wilson

7/17/2024
Virginia and Steve are joined by Pamela D. Wilson, MS, BS/BA, NCG, CSA.– an international resource for caregivers with over two decades of experience in aging and caregiving– known for her consultations, advocacy, and her book, "The Caregiving Trap: Solutions for Life's Unexpected Changes," as well as her own podcast called “The Caring Generation.” Together, they discuss the challenges of caregiving for parents with dementia, where Pamela delves into common issues such as resistance to advice, navigating difficult conversations, and managing complex family dynamics. She also emphasizes the importance of involving parents in planning, setting boundaries to maintain emotional well-being, and understanding the reasons behind a parent's unwillingness to cooperate. Pamela’s links to her social media and programs are provided below: Social Media YouTube Channelhttps://www.youtube.com/c/PamelaDWilsonCaregivingExpertFacebookhttps://www.facebook.com/pameladwilsoncaregivingexpert/Twitterhttps://twitter.com/CaregivingSpeakFacebookhttps://www.facebook.com/pameladwilsoncaregivingexpert/Website, Consultations, Free Online Programs, Speaking, & Podcast Websitehttps://pameladwilson.com/Pamela D Wilson Eldercare Consultanthttps://pameladwilson.com/elder-care-consultant-aging-parent-consultation-managing-senior-care-needs-meet-with-pamela-d-wilson/Caring for Aging Parents Online Programhttps://pameladwilson.com/support-caring-for-elderly-parents-overwhelmed-caregiver-support-online-course/Power of Attorney Online Programhttps://pameladwilson.com/power-of-attorney-webinar-program/Guardianship for Aging Parents Online Programhttps://pameladwilson.com/how-to-get-guardianship-of-a-parent-obtain-legal-guardianship-online-course-pamela-d-wilson/Caregiving Speakerhttps://pameladwilson.com/caregiving-speaker-aging-parents-expert-advocate-keynotes-presentations-digital-caregiver-programs/The Caring Generation Podcasthttps://pameladwilson.com/caregiver-radio-programs-the-caring-generation/ 35th Annual Southern California Alzheimer's Disease Research Conference Join UCI MIND, Alzheimer’s Orange County, and Alzheimer’s Association for the 35th Annual Southern California Alzheimer’s Disease Research Conference. This year’s conference will highlight the incredible advances being made in the diagnosis, treatment and care for people with dementia. For more information: https://conference.mind.uci.edu/

Duration:00:29:11

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Helpful Caregiving Tips with Virginia Naeve (Part 2)

6/25/2024
Virginia rejoins Steve in this concluding 2 part series on caregiving strategies. In this episode, they provide insights into activities and products that can be utilized to enhance daily living and simplify routine tasks. Tune in for valuable information that aims to elevate the day-to-day experience for both caregivers and those living with Alzheimer’s and other forms of dementia.

Duration:00:29:55

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Helpful Caregiving Tips with Virginia Naeve (Part 1)

5/9/2024
Steve interviews Virginia about tips she has compiled over the years to improve the caregiving journey. Listen along as they delve into topics on healthcare visits, money matters, safety, and mood changes. This is part 1 of a 2 part series of tips and tools that can help improve quality of care for loved ones living with Alzheimer's and other forms of dementia. Mentioned Episode in Podcast with Stephen Magro, an elder law attorney, can be found here: https://www.buzzsprout.com/1589794/episodes/8946153

Duration:00:30:11

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Supporting patients and families; a geriatrician’s perspective with Dr. Nathaniel Chin

4/11/2024
Virginia and Steve are joined by Nathaniel Chin, MD, a geriatrician, associate professor at the University of Wisconsin Department of Medicine, Medical Director of the Wisconsin Alzheimer's Disease Research Center, and host and creator of the popular Dementia Matters podcast. Dr. Chin recounts how his father's Alzheimer's diagnosis and dementia journey inspired his career choice. He discusses the importance of getting an early diagnosis, keeping records, and the critical role that caregivers play in the diagnosis and treatment of people with cognitive impairments. Dr. Chin also describes his involvement in dementia research at the Wisconsin Alzheimer’s Disease Research Center and the Wisconsin Registry for Alzheimer's Prevention. To learn more about the Wisconsin Alzheimer’s Disease Research Center and Dr. Chin’s podcast visit: https://www.adrc.wisc.edu/dementia-matters

Duration:00:45:13

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Advances in Alzheimer’s Disease Clinical Care with Ahmad Sajjadi MD,PhD

2/8/2024
Steve and Virginia sit down with Ahmad Sajjadi, MD, PhD, associate professor of Neurology at UC Irvine and research clinician at UCI MIND, to discuss some of the recent advances that have been made in Alzheimer’s disease research and care. He discusses the newly approved drugs, diagnostic tests and coverage of some of those tests, and care navigator programs.

Duration:00:36:38

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Cognitive testing with Dr. Michelle McDonnell

12/7/2023
Steve and Virginia are joined by Dr. Michelle McDonnell, a neuropsychologist at UCI MIND, who discusses the importance of cognitive testing. She discusses the process involved in the testing, tips to encourage your loved one to participate, and the benefits of tracking Alzheimers as it progresses.

Duration:00:31:42

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Why you should start early with end of life wishes and details with Susan Papiri

11/16/2023
Susan Papiri, Community Relations Director for Dignity Memorial. She discusses involving loved ones earlier regarding their wishes, preferences and religious traditions. These conversations can give honor to their legacy and reduce family stress. If you are in the Orange County/San Diego area and wish to learn more about services offered, you can call their toll-free number at (949)-622-7171

Duration:00:31:50

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The dangers of denial with Elizabeth Lonseth

8/17/2023
Steve and Virginia are joined by Elizabeth Lonseth, an author and caregiver, who discusses the dangers of denial in Alzheimer’s caregiving. She touches on the many ways that both patients and caregivers can suffer when caregivers do not come to terms with the realities of the disease. Elizabeth also gives listeners a few tips to help improve the caregiver journey. To learn more about Elizabeth visit https://elizabethlonsethnovels.com/

Duration:00:30:09

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Reducing caregiver stress with Dr. Natali Edmonds

6/15/2023
Virginia is joined by Dr. Natali Edmonds, a board certified Geropsychologist and founder of Dementia Careblazers, an online resource for dementia caregivers. Dr. Edmonds talks about 4 mistakes caregivers make when dealing with their loved ones, and the steps we can take to avoid these behaviors. You can learn more about Dr. Edmonds and Dementia Careblazers at www.careblazers.com

Duration:00:26:39

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Caregiving Two Years Later; a Revisit with Lisa Up de Graff

5/18/2023
Virginia and Steve are joined once again by Lisa Up de Graff, one of their first guests, who gives an update on her mother’s Alzheimer's disease journey. Lisa describes new challenges she has faced as the disease has progressed and recounts how she has dealt with transitioning her mother into hospice care.

Duration:00:31:43

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Long distance caregiving with Irene Olson

4/20/2023
Virginia is joined by Irene Olson, author of the book, “Requiem for the Status Quo'' and a state long-term care Ombudsman. Irene shares tips and challenges she faced with being a long distance caregiver for her father. She emphasizes the importance of building a strong relationship with the staff at the care facility, which in her case, allowed her to remain involved in her father’s care, even at a distance. Irene Olson is a member of AlzAuthors, a 501(c)(3) charitable organization that serves as a carefully curated resource for caregivers and family members of those living with dementia. Find them at: www.alzauthors.com To purchase her book, "Requiem for the Status Quo", visit: https://amzn.to/3rnPK8F

Duration:00:26:29

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Alzheimer's Disease and the Rise in Pseudomedicine with Dr. Joshua Grill

3/9/2023
Dr. Joshua Grill, PhD, is a professor at UC Irvine in the departments of Psychiatry & Human Behavior and Neurobiology and Behavior, as well as the director of UCI MIND. Dr. Grill joins Steve to discuss risk factors for Alzheimer’s disease, steps people can take to lower their risk and the promising investigational therapies. He also cautions listeners about the prevalence of pseudomedicine for dementia.

Duration:00:34:13

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Caring for a Famous Parent with Alzheimer's with Patti Davis

1/17/2023
Virginia and Steve are joined by Patti Davis, author of the book, Floating in The Deep End, and daughter of former United States President, Ronald Reagan. She recounts several different experiences she had while caring for her father who publicly lived with Alzheimer’s disease. She also provides the listeners with sage advice she learned from her caregiver journey and from her time with Beyond Alzheimer’s, a caregiver support group she started at UCLA. To learn more about Patti’s experience, purchase her book, Floating in the deep end: How caregivers can see beyond Alzheimer’s visit: https://www.amazon.com/Floating-Deep-End-Caregivers-Alzheimers/dp/1631497987

Duration:00:35:05

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Keeping the Holidays and Celebrations Happy, Healthy and Safe with Dr. Miriam Galindo

11/29/2022
Virginia and Steve speak with Dr. Galindo, who cared for her father with Alzheimer's disease and helps the listeners understand the importance of simplifying the holidays to maximize enjoyment for everyone. She gives tips on focusing on one or two traditions and recruiting help instead of trying to balance caregiving with all of the pressures of maintaining family traditions. For more caregiver resources at the holidays and throughout the year visit www.alzoc.org or call the helpline at 844-373-4400. Happy Holidays!

Duration:00:34:18

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Learning to Adjust with Dee Ransom

11/22/2022
Dee Ransom joins Steve and Virginia to discuss some of the adjustments she has had to make being a caregiver for her husband, John, who lives with Alzheimer’s disease. Dee shares her experience learning to advocate for her husband, adapting to changes in their relationship and the difficulty and hidden blessings involved in placing him in a residential facility.

Duration:00:31:27

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Wandering with Erin Light, MA

11/10/2022
Erin Light, MA, is a gerontologist and a senior administrator at Silverado Senior Living, a memory care company based in Southern California. She joins Steve and Virginia to discuss how to manage wandering in a loved one with dementia. Erin begins by giving an overview of what wandering is and provides some early signs to look out for. She also discusses what precautions caregivers should take to help keep their loved ones who wander, safe.

Duration:00:38:43

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The Genetics of Alzheimer's Disease with Lindsay Hohsfield, PhD

10/27/2022
Steve and Virginia are joined by Lindsay Hohsfield, PhD, a neuroscientist at UCI and co-founder of a non-profit organization called Youngtimers, to discuss the role that our genes play in Alzheimer’s disease. She helps the audience understand the difference between sporadic and familial Alzheimer’s, early- versus late-onset Alzheimer’s disease, and gives advice to those who are concerned about their genetic risk of developing the disease. To learn more about Lindsays organization, Youngtimers, please visit https://www.youngtimers.org

Duration:00:34:38

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Choosing the Right Hospice Care with Heather Kruse

9/20/2022
Steve and Virginia are joined by Heather Kruse, a licensed RN who specializes in dementia and hospice services. Heather was the hospice nurse for Steve’s wife, Patty at the time of her passing. She discusses the different services offered during hospice care and the things to keep in mind when deciding on hospice for a loved one.

Duration:00:30:44