A Special Storey-logo

A Special Storey

Kids & Family Podcasts >

A podcast about raising young kids with special needs. Our daughter, Lulu, was diagnosed with Down syndrome at birth. Our son, Max, was diagnosed with Sensory Processing Disorder around the age of 3. Our lives are crazy, chaotic, and can be challenging. But we love every second, and wouldn't change it for the world!

A podcast about raising young kids with special needs. Our daughter, Lulu, was diagnosed with Down syndrome at birth. Our son, Max, was diagnosed with Sensory Processing Disorder around the age of 3. Our lives are crazy, chaotic, and can be challenging. But we love every second, and wouldn't change it for the world!
More Information

Location:

United States

Description:

A podcast about raising young kids with special needs. Our daughter, Lulu, was diagnosed with Down syndrome at birth. Our son, Max, was diagnosed with Sensory Processing Disorder around the age of 3. Our lives are crazy, chaotic, and can be challenging. But we love every second, and wouldn't change it for the world!

Language:

English


Episodes

Episode 09 - Lulu's Winter of Drama, Part 1

1/9/2019
More
Lulu’s first winter, and the beginning of some fairly serious health problems that started when she was about six months old. On December 31st, 2015, she had her first seizure, and we talk about the process we went through to get the diagnosis confirmed. Sharon talks about the first time she ever felt like she knew better than the doctor, and why we felt so powerless.

Duration:00:33:04

Episode 08 - Our favorite stories from 2018

1/3/2019
More
A Merry Christmas and Happy New Year to all! In this episode, we recap our Christmas dinner experience, and a secret party that we didn't talk about beforehand. Sharon shares how all the end of the parties makes her feel...until she realizes that we aren't even close to done with Christmas parties. We also review some of the headlines from the Down syndrome community that caught our attention in 2018! There are so many wonderful things happening, and we shared our favorites. Please let us...

Duration:00:22:28

Episode 07 - #wouldntchangeathing Christmas video

12/27/2018
More
We discuss our last minute Christmas shopping, and our plans to host our first Christmas dinner ever. Steve learns what a "tablescape" is, and objects to the term on principle. We review what we got the kids for Christmas, and which gifts have educational purposes vs just for fun. We also highlight the #wouldntchangeathing organization, which has made some wonderful videos showing kids and families with Down syndrome in a positive light. Their latest video features an intro from Michael...

Duration:00:26:16

Episode 06 - The Community We've Found

12/20/2018
More
First, we are in desperate need of gift ideas for our parents. What are your best gift ideas?? Also, both of our kids are now sick, ironically. This of course happened the week after we released our podcast on beating cold and flu season. We are having Christmas dinner at our house this year, where Sharon may or may not play party games, get really competitive, and tell egregious lies in order win. I thought that having community was unnecessary....but now realize I couldn't live without...

Duration:00:30:35

Episode 05 - How We Handle Cold and Flu Season with a Medically Fragile Child

12/13/2018
More
When Lulu was a baby, she had some severe respiratory issues due to her heart condition. We talk a little bit about some of the readily-available products we found to help her stay healthy and out of the hospital! Check out the show notes (with links to the products we mention) at www.specialstorey.com. Please don't forget to rate, review and subscribe!

Duration:00:26:25

Episode 04 - The Top 5 Things We Love about Having a Child with Down syndrome

12/6/2018
More
Episode Recap: 01:00 We recap our second out of town trip in two weeks, and why going on vacation can sometimes make you want to take another vacation! 02:05: Sharon describes her first Sharon-panic over a child coughing, and what we will do now that cold and flu season is here. 06:45: We got our 12 foot tree up! Not in any sort of easy or organized fashion (naturally), but it's up! 09:05: We describe the "Winter Wonderland" they put on in our neighborhood, with a train ride, a horse...

Duration:00:32:17

Episode 03 - What to Say When a Friend Gets a Down syndrome Diagnosis

11/29/2018
More
Happy Thanksgiving!! We recap our trip to Charleston, including our favorite stop at Bitty and Beau's Coffee Shop. We also give a full history of the Apple Cup (kidding!), and explain why we essential blame Costco for almost-sort of-not-really forcing us to make big purchases. We discuss our thoughts as to what to say when a family member or loved one gets a Down syndrome Diagnosis, and some ways you can help and support them during that process. As always, see additional notes and photos...

Duration:00:30:39

Episode 02 - How We Really Felt About Getting a Down syndrome Diagnosis

11/22/2018
More
- We recap our Halloween party, and discuss our Thanksgiving plans!! - We talk about the moment that the Down syndrome diagnosis became "official", and what that felt like. We also discuss some of the feelings that come with the diagnosis, and how joy and grief can coexist. - We give our take on the "Welcome to Holland" story. See show notes and updates on our website: www.specialstorey.com! Happy Thanksgiving to All!!!

Duration:00:33:33

Episode 00 - A Special Storey Intro

11/12/2018
More
We discuss who we are (nobodies) and what our qualifications are to start a podcast (none). And yet, here we are! We also discuss our two kids, who have thrown us into the world of special needs parenting. Our daughter, Lulu, has Down syndrome, and our son, Max, has Sensory Processing Disorder. Both have some challenges, but we wouldn't change a thing!

Duration:00:07:59

Episode 01 - The Story of Lulu

11/12/2018
More
We talk about Sharon's obsession with Fall, Halloween, and her potentially controversial decorating schedule. We also tell the story of Lulu's Down syndrome diagnosis, which happened about an hour after she was born, and some of the thoughts and feelings we had.

Duration:00:26:31