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Accepting The Unacceptable

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This show is for anyone who is raising a child with neurological differences. Being a mother of a little girl with autism and epilepsy, its time that us parents talk about what life is really like. Each week, we will discuss topics relating to the special needs parenting journey. From getting second opinions and talking about therapies, schools, and friendships to learning the tips and strategies that parents and professionals use to manage the difficulties along the way.

This show is for anyone who is raising a child with neurological differences. Being a mother of a little girl with autism and epilepsy, its time that us parents talk about what life is really like. Each week, we will discuss topics relating to the special needs parenting journey. From getting second opinions and talking about therapies, schools, and friendships to learning the tips and strategies that parents and professionals use to manage the difficulties along the way.
More Information

Location:

United States

Description:

This show is for anyone who is raising a child with neurological differences. Being a mother of a little girl with autism and epilepsy, its time that us parents talk about what life is really like. Each week, we will discuss topics relating to the special needs parenting journey. From getting second opinions and talking about therapies, schools, and friendships to learning the tips and strategies that parents and professionals use to manage the difficulties along the way.

Language:

English

Contact:

408-466-3439


Episodes

016 | Special Needs Siblings, How To Balance Siblings Needs

3/26/2019
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One of the biggest questions I get asked, is "How do you do it? How do you balance everyone and have a daughter with special needs?" The short answer is "whats balance?" Being a parent is hard stuff. Trying to raise children, giving them equal attention and time is the trick we are all trying to figure out. I have come to learn that it's not about being equal, but it's about nurturing each child's needs. In this episode, I talk about how we as a family have managed and not managed. I...

Duration:00:58:07

015 | So What Had Happened Was... (update on the podcast)

3/19/2019
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This weeks episode didn't go to plan. I recorded it, edited it and then just wasn't feelin it. I want to always make sure that you get the very best content so I decided not to publish something I didn't find the value in. So today's episode is all about the direction of the podcast. Heres a little secret, the next direction is up to you. For the next several episodes, I will talk about what you want to hear. So here is your homework. Email me and let me know what you want me to talk...

Duration:00:10:07

014 | Autism, Nonverbal Communication

3/12/2019
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One of the first warning signals we may have that our kids have autism, is the fact that they may not be able to speak. We look at the parenting books and see our kiddos are behind. We worry that they may never catch up. What if they are "non-verbal" forever? I think a lot of times, we skip ahead. We worry that they may never talk but before anyone learns how to talk, they learn how to use non-verbal communication. Non-verbal communication is things like gesturing, pointing, using our...

Duration:00:53:59

014 | Autism, Nonverbal Communication

3/12/2019
More
One of the first warning signals we may have that our kids have autism, is the fact that they may not be able to speak. We look at the parenting books and see our kiddos are behind. We worry that they may never catch up. What if they are "non-verbal" forever? I think a lot of times, we skip ahead. We worry that they may never talk but before anyone learns how to talk, they learn how to use non-verbal communication. Non-verbal communication is things like gesturing, pointing, using our...

Duration:00:11:58

012 | Autism, How To Get Your Child To Communicate

2/26/2019
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I remember when Remy was first diagnosed with autism. The first concern I had was that she wasn't able to communicate. If she couldn't communicate, she would never function in a way that could get her through life. But what I didn't realize is that communication and speaking weren't exactly the same thing. There are plenty of people who can speak but they aren't using words to form thoughts and communicate them to another person. I never knew what a complicated task that was for our...

Duration:00:55:16

011 | Autism, How To Get Your Childs Attention

2/19/2019
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Kids learn the most from watching others. They learn facial expressions, tones, sounds, speech, emotion etc. Our kiddos with autism have a harder time paying attention to all the details from people. This makes it harder for them to learn from others. A child with autism can become fascinated with an object or toy and miss out on essential learning opportunities that adults and other children can provide. For parents, learning how to be interesting enough to get a child's attention is a...

Duration:01:03:36

010 | Autism, Our Story

2/12/2019
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Autism has become a very big topic of conversation in our society. I never really cared about the conversation to be honest, until I wondered about my daughter. The thought of autism is scary. We as a society fear it because we don't understand it. I know I didn't. With Remy having seizures due to a genetic disorder, I never could have imagined that autism would also be a part of her world. But here we were seeking out a diagnosis and coming to terms that our child might be autistic. I...

Duration:00:57:27

009 | How I Use Cannabis For My Daughter's Seizures

2/5/2019
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Cannabis There's so much talk about cannabis with our kiddos seizure disorders. It's also a big topic for kids with autism too. Since our daughter Remy started having seizures, the number one topic people bring up is "Have you tried cannabis?" The reason is that medical marijuana has been successful at treating some of the worst types of epilepsy that the other pharmaceuticals cant touch. Its only natural that we would be curious to see what it could do. So in this episode, I talk...

Duration:00:32:57

008 | Im Not Doing So Well At This Mom Stuff

1/29/2019
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Today I had a hard day. Do you ever have those days where you just feel like everything you do is wrong? You don't have anything figured out? The laundry is piled up, You haven't read your kid a bedtime story in forever, you haven't showered in 2 days, motherhood isn't quite fulfilling your sense of worthiness, you are questioning if you are doing anything right. I had that day today. The to-do list was longer than the completion list. Sometimes I feel like I should know how to juggle...

Duration:00:32:05

007 | Making Peace With Drugs / Pharmaceuticals / Medications

1/22/2019
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Having a daughter (she's 5) who has such severe seizures, our medication protocol is essential to be the very best. But I have to be honest, drugs scare me. There are so many side effects. I wish I could have the magic pill. The one that would cure Remy (my daughter) with zero side effects and we could just live happily ever after. So today we are talking about how the decisions of our kid's medications are critical to get right, extremely scary and risky and how its always going to be an...

Duration:00:57:58

006 | Acceptance, Accepting the Child You Have

1/15/2019
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Acceptance sounds like a poetic and silly thing to talk about. Especially when we are talking about a child we haven't lost. Sure, we all know that you should accept your child. But what if they have a disease or neurological condition and you just can't see how its fair or how to get over it. You might be thinking, sure I accept my child no matter what, it's their disability that I don't accept. What if I told you that if you don't accept their disability, you don't accept them. Ouch,...

Duration:00:46:48

005 | Depression and Grieving the Child You Thought You Were Going to Have

1/8/2019
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Depression is the peak of grieving and almost guaranteed at some point in the journey of special needs parenting. Depression affects all of us, and the reason why it's important to talk about it is that there are ways out of it. We don’t have to be depressed forever even though sometimes it feels like we will. What I have learned about depression, is that getting through it takes work. It's not something that just goes away. Getting to the acceptance stage of grieving is the most crucial...

Duration:00:30:38

004 | Bargaining and Grieving the Child You Thought You Were Going to Have

1/1/2019
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Have you ever thought to yourself that you would give ANYTHING to cure your special needs child? Would you do anything to take their suffering away? Do you ever regret certain choices you have made or thought you have obviously done something wrong to deserve a child who is sick? In this episode, I talk about bargaining and grief. When you bargain, it's your way of trying to gain control of the situation. It makes you irrational and miserable because it never leads to anything but...

Duration:00:43:26

003 | Anger and Grieving the Child You Thought You Were Going to Have

1/1/2019
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When you are grieving for a child you THOUGHT you were going to have, Anger is a big part of that grief. For me, watching my daughter Remy suffer through multiple hospital stays, seizure after seizure and seeing the apparent intellectual disabilities unfold, I have seen my fair share of anger. But the anger comes out in subtle ways. Snappiness, resentment, jealousy, being short-tempered not just the outbursts you think of. When you realize you have no control over your child's health, it...

Duration:00:32:41

002 | Denial and Grieving the Child You Thought You Were Going to Have

1/1/2019
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Do you feel anger, jealousy, and resentment because your child isn't who you dreamed of when you thought about being a parent? Do you feel way over your head and that you and your child have been short-changed due to a medical diagnosis? Grieving over a life you prepared for and fantasized about is totally normal and actually very healthy. Us moms feel such shame around grieving because we are supposed to be thankful and grateful for what we have. But sometimes life has other plans, and we...

Duration:00:41:35

001 | Why Getting a Second Opinion is so Important

1/1/2019
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The topic of getting a second opinion isn't the most glamorous, I totally get it, but there is a reason I am starting here. When Remy first started having seizures, we assumed that the neurologist at the hospital (who sees thousands of epilepsy cases a year) would be able to guide us and show us the way. She was supposed to know everything there was to know about epilepsy and seizures and treatment, but as we found out, not only did she not know, she overlooked some critical information...

Duration:00:27:35

000 | All About The Show - Starting From The Beginning

1/1/2019
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All About the Show - Starting From the Beginning When I first started on the road of being a mom of a child with autism and epilepsy, I was a fish out of water. I had no preparation or warning and not a clue of how to be the mom I needed to be for my daughter who obviously needed so much care. Out of desperation, I turned to every single place I could possibly think of to find answers. I came up pretty short and was shocked that something so known as autism or epilepsy had so few...

Duration:00:34:06