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Meredith Howell’s Story – a daughter with a rare genetic condition (BBSOAS)

4/4/2019
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Meredith, mom to now 8-year-old Lola, shares her experience with her daughter who was diagnosed with Bosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) shortly after she was three-years-old. However, their story didn’t begin there. As an adventure, Meredith talks about how she and her husband moved to Costa Rica from Indiana after they were married. Lola was […]

Duration:00:49:59

Jade Marie’s Story – A daughter with hypoplastic left heart syndrome

3/26/2019
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It’s a moment that many parents on this podcast have talked about. Your at your ultrasound, pregnant with your child, and all of a sudden the mood of the room changes. Either the technician leaves, or a doctor walks in to “take a closer look” … a million questions and thoughts and fears run through […]

Duration:00:26:14

Stephanie’s Story – A daughter with functional short bowel syndrome

3/18/2019
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After a long fertility journey and a high risk, stressful, and very sick pregnancy, Stephanie gave birth at 26 weeks due to severe preeclampsia. Stephanie, mom to Adeline, shares her experiences in the NICU and describes Addie’s difficulty with digestion. A long road of unknowns eventually led to a diagnosis of functional short bowel syndrome. […]

Duration:00:56:44

Season 2 Finale: Belinda’s Story – A son with low muscle tone, epilepsy and autism

4/30/2018
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Belinda, a mom, certified child life specialist, teacher and creator of ChildLifeConnection.com shares her story with us today on the final episode of season two of the Child Life On Call Podcast. As a cancer survivor herself, Belinda knew that she wanted her life’s work to positively impact hospitalized children and thus she became a […]

Duration:00:39:07

Meredith’s story – A newborn with meningitis and a Tonsillectomy and Adenoidectomy at 2 years old

4/2/2018
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Meredith, a nurse and mother of two, describes her experience as a new mom and what happened when her five-week-old had a fever. After several tests in the ER, she and her family learned that their new son had meningitis. Meredith talks about what their ER and hospital was like with a newborn. Two years […]

Duration:00:28:46

Torie’s Story – A young adult with gastroperesis

3/26/2018
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Torie is a young adult with gastroperesis. Torie’s journey has been a long one which includes a car accident, receiving total nutrition through an IV, NOT EATING FOOD FOR AN ENTIRE YEAR, and being told her illness was related to anxiety. These things, however, don’t even touch the tip of the iceberg when it comes […]

Duration:00:45:08

Season 1 Finale

12/7/2017
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This episode closes out Season 1 of the Child Life On Call Podcast. This podcast went from a dream to a reality thanks to the help of the all the courageous families who came forward to share their stories about having a child with medical needs. Season 1 covered the spectrum in illnesses, diseases and […]

Duration:00:07:28

Episode 11 | Susan’s story – A son with Crohn’s disease

10/19/2017
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At just six years old, Susan’s son began complaining of belly pain along with other alarming symptoms. After a trip to the doctor, they were quickly sent to meet with a Pediatric Gastroenterologist and would eventually learn the news that one of her sons, Preston, had Crohn’s disease. Susan shares personal details about their journey, […]

Duration:00:52:09

Episode 9 | Liz and Jamie’s Story – A daughter acquires HIV after a blood transfusion during cardiac surgery

8/28/2017
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Episode 9 features an interview with Liz and Jamie. Shortly after Jamie was born, she developed a heart murmur and began passing out. Her mom, Liz, walks us through what it was like to witness such terrifying scenarios and how she began to become an advocate for her daughter. Despite being told that nothing was […]

Duration:01:26:03

Episode 8 | Part Two of Mandy’s Story – A son born with a rare genetic condition

8/21/2017
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Episode 8 is Part 2 of Mandy and Nolan’s story. If you haven’t listened to Part 1, head on over to Episode 7 so you have a better understanding and appreciated for Mandy’s story. I mentioned that Nolan was scheduled for surgery and I’m sure you’re interested in an update… and this is directly from […]

Duration:00:41:56

Episode 7 | Part 1 of Mandy’s Story – A son born with a rare genetic condition

8/14/2017
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Episode 7 features the first part of Mandy’s story. Her son, Nolan, was born five weeks early with a host of symptoms which led them to find that he was diagnosed with a condition that only four other people are currently living with. Nolan is the ninth person in the history of medical science that […]

Episode 6 | Tricia’s Story – A daughter diagnosed with Rolandic Epilepsy

8/7/2017
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Episode 6 features Tricia, a mama who lives in the southwest side of Chicago. Tricia bring a unique perspective and understanding of child development in her experience based on the fact that she has her masters in early childhood development and education, is currently an adjunct faculty member at Depaul University and is also a […]

Duration:00:45:02

Episode 5 | Karen’s Story – A nicu stay after undected gestational diabetes

7/31/2017
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Karen had a typical pregnancy up until the last few scary days when she was unable to feel her daughter move. After following her mother instinct, Karen went to the hospital and quickly learned she would need an emergent c-section. As emergencies go, everything was unexpected. In this episode, Karen walks us through what her […]

Duration:00:26:28

Episode 4 | Abigail’s story – a son diagnosed with Spina Bifida and Hearing Loss

7/17/2017
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After arriving at her 20 week ultrasound, Abigail, her husband and mother were anxiously awaiting to hear the news of their first child’s gender. However, the appointment took a turn when they learned that their son would be born with Spina Bifida. Abigail talks to us about that experience and their journey since that life […]

Duration:00:53:01

Episode 3 | Kim’s Story – A son born with Microtia Atresia and hearing loss

7/10/2017
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In this episode you will hear Kim talk about her experience in finding out that her son had Microtia Atresia, the interesting link to their family history and how that has affected her journey, and the tough decision about how and when to move forward with surgery. Microtia is a congenital deformity where the external ear is underdeveloped, and […]

Duration:00:38:25

Episode 2 | Michelle’s Story – A life-threatening illness leads to a week-long coma

7/3/2017
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Michelle’s story is one that took place over 15 years ago, and this is the first time she has spoken about it publicly. At the age of two, Brynn started developing inexplicable fevers which concerned her mother, an Emergency Room nurse. After trusting her gut that “something was wrong,” Michelle brought her daughter in the […]

Duration:00:48:57

Episode 1 | Kelli’s Story – A daughter with Goldenhar and Caudal Regression Syndrome

6/26/2017
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After a long pregnancy on hospitalized bedrest, Kelli describes the birth and first year of her twin girls, one of which was born with two genetic conditions, Caudal Regression Syndrome and Goldenhar Syndrome. The journey to diagnose these conditions was a long one, and Kelli talks about what that process was like, and what is like to […]

Duration:00:37:26

Promo Episode

5/11/2017
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This is the first and introductory podcast for Child Life On Call. First episode to launch in June 2017.

Duration:00:01:26