Go Shout Love Podcast

In this episode we meet Kyle and Lindsey, the parents of James who has an extremely rare mutation of the CNTNAP1 gene. They open up and share about the difficulty of how the excitement of James' birth quickly became a traumatic event and one of the hardest days of their lives with his unexpected diagnosis. See their story and shout love for them through a purchase at www.goshout.love/James!

In this episode we talk to Alvaro (Al) and Ashley, the parents of Ryder and Harper - two of the five amazing kiddos we are shouting love for this month from Southern California.

Seth and Jessica chat with Ileana and Lorenzo, parents of Giselle, on of our five amazing Southern California kiddos being featured in April. We think you'll resonate with the themes of family togetherness, positive influence, and growth and determination you'll hear in this episode!

In this bonus episode, Jessica sits down with Devon (Hadley & Hollyn's mom) & Michelle (Nathan's mom) for a special chat on what it means to find support by journeying together through difficult seasons.

We’re excited to introduce you to the families of three awesome kiddos from the Houston area: Hadley, Nathan, and Hollyn! Hadley and Hollyn are sisters and they find strength in facing their medical journey together along with their cousin, Nathan. In this episode, Josh chats with both sets of parents including Nathan’s parents, Johnathon and Michelle, along with Hadley and Hollyn’s parents, Josh and Devon. You’ll hear the story of each child’s diagnosis and learn of a special family friend...

Beckett is a happy and loving one and a half year old who lives in Brenham, Texas. Shortly before his first birthday, his parents noticed some regression in Beckett’s abilities which ended up leading to the diagnosis of Leigh’s syndrome, a severe neurological disorder for which there is no cure. In this episode, Beckett’s parents, Tyler and Katie, talk about the reality of receiving a terminal diagnosis and share how they’ve chosen to to embrace every moment they have with Beckett and the...

We concluded part one of our conversation with Rebecca overcoming staggering obstacles in adopting Ellie and bracing for a legal battle to leave Ghana for Chicago. Part two continues the conversation covering a four-year process of getting Ellie to the US for proper medical care and gives more information about her diagnoses.

In part one of our two part conversation, you will meet Rebecca, who is the mother of a thrill-seeking five-year-old girl named Ellie. They live in the Chicago area but their fascinating journey together started in Ghana. Their story is truly inspiring and we’re so excited to introduce you to this awesome family.

We introduce you to Florence's parents as they share how her journey with Ohtahara Syndrome is inspiring people to fight for inclusion for kids with special needs.

Emery’s parents, Justen and Anna, share their fun story of meeting over ping pong, Anna’s creative pregnancy announcement, and Emery’s broad love of music. They also share about additional medical challenges Anna faces and the sources of hope they've encountered in their journey.

Jessica chats with Sofia’s parents, Tyler and Stefanie Izzi, about their daughter's diagnosis of Pitt Hopkins Syndrome, a neuro-developmental disorder with only about one thousand diagnosed cases worldwide. They describe the power of Sofia’s kisses, share some of the significant “inch-stones” they’ve celebrated along Sofia’s journey, and share a surprising connection of our shirt design with their family’s story.

In this episode, Josh sits down with our featured family for August 2018. Jeff and Alison Silver share the story of the surprise diagnosis of osteogenesis imperfecta shortly after their son Samuel's birth, the misconceptions of “Brittle Bone Disease,” what they’ve learned from Samuel, and more.