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Go Shout Love Podcast

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Each month we feature a family with a child on a rare medical journey to shout love their way through raising awareness and financial support.

Each month we feature a family with a child on a rare medical journey to shout love their way through raising awareness and financial support.
More Information

Location:

United States

Description:

Each month we feature a family with a child on a rare medical journey to shout love their way through raising awareness and financial support.

Twitter:

@goshoutlove

Language:

English


Episodes

33 - Meet Jack

10/15/2019
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Jessica & Kristin sit down with Jack's mom, Cassie, Jack's Grammy, Nancy, and Jack's nurse, Ann. These amazing ladies share a variety of elements of Jack's story, including how Jack has impacted Cassie as she prepares students going into the field of special education. Learn more about Jack rally behind his family at www.goshout.love/Jack.

Duration:00:27:19

32 - Meet Levi

10/8/2019
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In this episode, Seth and Kristin chat with Brandon and Julie, the parents of Levi. They talk about processing emotions of receiving a terminal diagnosis before Levi was born only to find out through further testing that he had been misdiagnosed. They share about sibling connections, the power of community, and managing a tension of grief and joy in the midst of receiving difficult news. Learn more about their adorable kids and rally behind this family at www.goshout.love/Levi.

Duration:00:40:17

31 - Meet Avery

10/1/2019
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In this episode, Josh and Seth chat with Kevin and Alisha, the awesome parents of Avery. Avery is a silly, sweet, and sassy seven-year-old girl from Butler, Pennsylvania. She loves spending her days cuddling with her family, listening to music, and spending time with her sister, who affectionately dotes on her. Avery is the definition of strength and perseverance; she marches through life with the sweetest smile on her face. Learn more about Avery's journey and support her through a...

Duration:00:32:20

30 - GSL Team Member Chat: Meet Jessica

9/24/2019
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A chat with Go Shout Love's own Jessica Santo. In this episode, Jess discusses difficult moments that have shaped her life, the highs and lows of her Go Shout Love involvement, and some exciting news about her family.

Duration:00:45:00

29 - From hopeless to thriving with Grace Grutter

9/17/2019
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In this episode we chat with Grace Grutter, whose daughter, Nella, was the inspiration behind Go Shout Love starting back in 2014. When doctors had set the expectation to be prepared to bury their daughter, a stranger connecting on Facebook provided a hope for Nella's life despite a diagnosis of SMA. Grace shares that story as well as learning to embrace joy, choosing to thrive, and discovering the power of a life well-loved. Visit www.goshout.love to meet this month's featured kiddo and...

Duration:00:43:33

28 - Scoot Over and Make Some Room

9/10/2019
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Heather Avis is a wife and proud mom of three awesome kids, including two who have Down syndrome. Together with her husband Josh, Heather runs a social awareness brand called The Lucky Few, where the goal is to shift the narrative that comes with having Down syndrome. In this conversation, Heather talks about the natural unfolding of their lives that has given them a platform to speak into the importance of inclusion. She also talks about the role posture of the heart plays in creating...

Duration:00:42:58

27 - Meet Evely Part 2

9/1/2019
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We chat with Jon and Tameka, the amazing parents of Evely whose rare medical journey includes being born without eyes. In this two-part interview, they share honestly about the constantly shifting puzzle that is Evely's medical journey, the reality of grief that can come with a difficult diagnosis, and the importance of maintaining relationships that keep you centered. Learn more about Evely and shout love for her with a purchase at www.goshout.love.

Duration:00:45:30

26 - Meet Evely Part 1

9/1/2019
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We chat with Jon and Tameka, the amazing parents of Evely whose rare medical journey includes being born without eyes. In this two-part interview, they share honestly about the constantly shifting puzzle that is Evely's medical journey, the reality of grief that can come with a difficult diagnosis, and the importance of maintaining relationships that keep you centered. Learn more about Evely and shout love for her with a purchase at www.goshout.love.

Duration:00:42:08

25 - 13 Year Old Inventor Ella Casano

8/15/2019
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At age seven, Ella Casano was diagnosed with a rare medical condition that requires regular IV treatments. In response to a competition at school, she wanted to solve a problem that was unique to her. In the process of doing that, she created a product called the Medi-Teddy which is now patented, in-process of being produced, and will soon be in medical facilities around the world with the sole purpose of making IV treatments a bit less scary for kids. In this chat with Ella and her mom,...

Duration:00:28:02

24 - Meet Isabella

8/1/2019
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We introduce you to an amazing little gal named Isabella (Belly) and her parents, Charles and Alexia. Belly was diagnosed at age one with CDKL5, a very rare genetic disorder. She suffers from uncontrolled epilepsy, has a feeding tube, is non ambulatory, and also non verbal. Learn more about Isabella and shout love for her with a purchase at www.goshout.love.

Duration:00:31:51

23 - Chat with GSL co-directors Josh & Rashele Veach

7/15/2019
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Seth chats with Josh & Rashele Veach, Go Shout Love co-directors, as they share the source of their passion for GSL, the joys and challenges of behind the scenes operations, and dreams they have for the future of GSL.

Duration:00:31:16

22 - Meet Lana

7/1/2019
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In this episode we are talking to Tonya, the mother of one year old Lana. This joyful little girl was diagnosed at three months old with a rare condition called Neurofibromatosis type 1 (NF1). Tonya shares about how difficult it can be searching for a diagnosis while a child is experiencing severe systems. And how tough and uncertain hearing a diagnosis can be, such as hearing the word “tumor" for the first time. Learn more about Lana and shout love for her and amazing kids in the future...

Duration:00:30:24

21 - Team member Kristin Estok & the early days of Go Shout Love

6/15/2019
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In this episode you'll meet the founder of Go Shout Love, Kristin Estok. Kristin shares how hearing one child's diagnosis, and an unshakeable desire to do something to help, set the stage for what is now Go Shout Love. Learn more about our team, previous families, and support this month's family on our website at www.goshout.love.`

Duration:00:30:35

20 - Meet Bella

6/1/2019
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In this episode you will hear from Bella's parents, Thomas and Sarah. Bella is the sweetest little Nebraska gal with a contagious smile that speaks volumes into her young personality. She has been diagnosed with one of the severest forms of spina bifida. You'll hear how this little fighter never allows the challenges she faces to steal her happiness. You will also has some very real moments as the parents share their experience of hearing the diagnosis from the doctors when Sarah was still...

Duration:00:26:13

19 - Meet Silas

5/29/2019
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In this episode we talk to Melly and Matt brown, the parents of Silas, one of our amazing Boston area kiddos being featured in May. Silas has a unique blend of diagnoses but still lights up the room with his smile. One of the topics that the conversation focuses on which is something we haven’t talked about before is Neurostorming. Melly and Matt share with a compelling honesty about their life and journey with Silas including some of the toughest moments and where they’ve found...

Duration:00:23:41

18 - Meet Chase

5/24/2019
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In this episode you have the privilege of meeting Shane and Amy, the parents of Chase and Nathan. They share honestly and openly about about the host of conditions Chase battles, and how they have navigated their journey so far relationally, emotionally, and spiritually. You can learn more about Chase, see his video, and support this awesome kiddo through a purchase at www.GoShout.Love/Chase! Every purchase in May will help cover the cost of a stairlift for Chase.

Duration:00:18:09

17 - Meet Emily

5/17/2019
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In this episode you’ll meet Brian and Amanda, the parents of Emily, one of our featured kiddos for May from the Boston area. They share the realities of taking home a baby that is doing all the typical baby things, only to find out on day nine of life that a significant part of her brain was missing. You’ll hear how a simple act of compassion by the doctor in that appointment left a lasting impression. As she turns 12 this month, Emily has and is surpassing every label and expectation that...

Duration:00:17:21

16 - Meet Savannah

5/10/2019
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This episode is an honest conversation with Mark and Lacey, the awesome parents of Savannah, a happy, beautiful with conditions including Naa10 Mutation, Hydrocephalus, Epilepsy, and Eosinophilic Esophagitis (EOE). We know you'll appreciate this great conversation with two people who give a very real look into life with a child like Savannah. You can learn more about Savannah, see her video, and support this awesome kiddo through a purchase at www.goshout.love/Savannah!

Duration:00:18:33

15 - Meet Kennedy

5/3/2019
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In this episode we are talking to Shelby and Patrick, the parents to Kennedy, who is one of the five beautiful Boston area kids we are shouting love for in May. They share about some of the physical and emotional challenges that come with Kennedy’s conditions, especially those associated with epilepsy. But you also hear about the beautiful growth that has happened has Kennedy has adapted to become an older sister. You can learn more about Kennedy and support this awesome kiddo through a...

Duration:00:19:15

14 - BONUS EPISODE: Friends Chat

4/30/2019
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One of the things that was special about Micah's nomination to Go Shout Love is not just the number of nominations that came in for him, but that they came in from his friends... other kids that don't see any labels when they see Micah, but simply see him as a friend. In this bonus episode we hear from these young shouters about what they've learned from Micah and how they are inspired by his journey. Follow the lead of these awesome kids and join us in shouting love for Micah through a...

Duration:00:10:57