Out of Patients with Matthew Zachary

Sickle cell disease (SCD) can affect many areas, including daily life, and some of the effects can be lifelong. More so, SCD impacts the quality of life for many patients in the form of depression, anxiety, executive function, and more. In partnership with The Sickle Cell Disease Association of America, Matthew Zachary Worldwide presents “The Sickle,” a three-part limited series for patients and caregivers. In each episode, you’ll hear from the people living with SCD and experts who work every day to improve their lives. We’ll learn about the lifelong care, interpersonal relationships, and medical disparities people with SCD live with and what we can do to improve them. EPISODE ONE Andre Harris is a 32-year-old Ph.D. student residing in Houston, Texas. He’s currently working on a doctorate in social work. Andre is the first graduate student in his family to make this academic achievement, but his road to higher education was not a smooth one. Andre has lived with chronic pain since he was a child. From strokes to pain crises, he has lived with a disease that can interrupt the flow of life. These symptoms are due to sickle cell disease (SCD), a group of genetic blood conditions that affect about 100,000 people in the U.S. In this episode, Andre talks about his earliest memories of living with SCD and the needs of the most vulnerable SCD patients. Dr. Lewis Hsu, a pediatric hematologist at the University Of Illinois Chicago and the Sickle Cell Disease Association of America, explains what SCD is and how it works. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

As an epilogue to the pilot episode of Not Expecting, Matthew welcomes Ann Scalia (Director, Clinical Education for Alliance RX Walgreens Pharmacy) and Ashley McClure-Wolfson (Manager or Clinical Program Development Walgreens) for an in-person roundtable conversation and recap discussion. What is "Right to Parenthood in 2024?" What's new in the world of oncofertility? How does our understanding of gender identity factor into policies and programs? All this and more are coming up. Thank you, Walgreens, for sponsoring this episode See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Centers for Disease Control and Prevention estimate that nearly one in every eight couples struggles to conceive. Even today, infertility remains a societal taboo to the extent that more than 60% of prospective mothers said they hid their infertility from family and friends, and nearly half didn't even tell their mothers. All people challenged in their family-building journey should be empowered by knowledge, supported by the community, and offered an equitable and affordable path to biological parenthood. Not Expecting is a single-episode pilot audio series about the invisible heroes who—united by advocacy and inspired to act— have fought for better treatment, forced the medical establishment to evolve, destigmatized cultural perceptions, and pressured lawmakers across the country to guarantee rights to treat the illness preventing parenthood. Thank you Walgreens for sponsoring this miniseries. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Testing Our Patients is a limited discussion series about how the sausage is made when bringing life-saving diagnostic tests and breakthrough medicines to cancer patients in desperate need of hope. In this episode, we welcome Dr.Rafael Fonseca (Chief Innovation Officer at Mayo Clinic in Arizona) and Dr.Ola Landgren (Chief of the Myeloma Program and the Experimental Therapeutics Program at Sylvester Comprehensive Cancer Center at the University of Miami) in an examination of the role that doctors have advocating for MRD testing and expanding the role of diagnostics in cancer treatments. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Testing Our Patients is a limited discussion series about how the sausage is made when bringing life-saving diagnostic tests and breakthrough medicines to cancer patients in desperate need of hope. In this episode, we welcome Allison Silverman, CEO of Stupid Cancer, and Lizette Figueroa, Senior Director of Education & Support at The Leukemia & Lymphoma Society, to discuss their work as patient advocates to get MRD testing the patients who need most. Diverse schools of thought often collide between the risk/reward of rushing approvals too soon vs. the patient advocates who decry, "What's taking so long? We just want to live." See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Finding your voice while navigating a cancer diagnosis is not always easy, but self-advocacy can be a game changer. Advocating for education, research, and funding can drastically change outcomes, and often, it is the voices of those who have experienced health disparities first-hand that impact institutional change. Follow the stories of Montessa Lee, Rayanne Lehman, and Maida Mangiameli as they share moments of strength, wisdom, and advocacy from their journeys with Small Cell Lung Cancer. While there is still no cure for SCLC, there are new screenings and treatments and new reasons to be hopeful. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

“Get your affairs in order” was the advice from one ER doctor to Rayanne Lehman upon seeing her chest X-Ray. That was 4 years ago. When Maida Mangiameli received her Small Cell Lung Cancer diagnosis she wanted to live to know her newborn grandchild and that child is now 6 years old. And for patient Montessa Lee, her Small Cell Lung Cancer (SCLC) diagnosis 16 years ago has led her to a lifetime of advocacy work for lung cancer research, funding and education along with a commitment to being a voice for the voiceless. These lung cancer success stories are not only hopeful but through their journeys, these three patients and their caregivers have gathered a wealth of information and insight to share with others. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this series finale, we meet Maimah Karmo, President and CEO of the Tigerlily Foundation, and learn about her journey to end disparities for young breast cancer patients of color. If you like this series, be sure to subscribe, leave a rating a review, share on social media, and please tell your community to check it out. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we meet breast cancer advocates and users of #BCSM, Liza Bernstein, Anne Marie Mercurio, Christine Hodgdon, and Julia Maues. We find out how they got involved in #BCSM and how they utilized the hashtag to further their advocacy. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Breast Cancer Social Media (#BCSM) is an online community dedicated to empowering those affected by breast cancer. #BCSM began in 2011 as a conversation on Twitter and has grown into a world of support, guidance, and reliable information. In this episode, we meet breast cancer survivors and co-moderators of #BCSM, Alicia Staley and Jody Schoger. We also find out how Dr. Deanna Attai got involved in the online patient community. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The fight for equitable healthcare goes to Congress. Plus, we meet the next generation of breast cancer activists. Relevant Resources: Leslie’s Week METAvivor - Political advocacy work Tigerlily Foundation - Political Advocacy Work Tigerlily Foundation - RAISE See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Because of years of being delayed, dismissed, and denied, metastatic patients have had to become the experts in their own care. With the help of doctors and researchers, these patients are now changing the healthcare system from the inside out. Relevant Resources: Tigerlily Foundation - Barriers Toolkit Storm Riders Network - Christine’s Database for Clinical Trials The BECOME Project - Stephanie Walker’s Study Trials of Color - Sharon Riveria-Sanchez’s Org METAvivor - Research - Exciting MBC research made possible by METAvivor grants See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

For decades, only one type of patient has been represented in the breast cancer awareness movement. In this episode, we learn the consequences of this representation gap and meet patients who are flipping the script. Relevant Resources: METAvivor - Health Disparities in MBC Tigerlily Foundation - Barriers Toolkit Tigerlily Foundation - My Life Shonte Drakeford - My Life, My Legacy See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Following the 2023 Healthcare Burnout Symposium, returning champion Dr. Gabe Charbonneau (CEO at Medicine Forward) is joined live in the studio with Dr. Todd Otten (COO at Medicine Forward) for a frank and candid conversation about the state of the state as it pertains to their grassroots movement, "Fight Burnout." Primary care is at the epicenter of clinician burnout, and positive change is happening, yet where we are blind is that there is still quite a bit of stigma about burnout. Today's extraordinary human conversation delves deep into the critically understated issues of moral injury, including how Hippocrates-driven providers receive the support and care they need to live their lives while saving lives in the process. Learn more about the Fight Burnout movement at https://www.fightburnout.org. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Wayback Machine was in full force today when my buddy Darren Petronella dropped by the studio for an IRL nostalgia-driven, GenX-themed episode about aging gracefully and our modern-day "Get Off My Lawn" grievances about life, the universe, and everything. Darren and I first met while undergraduates at SUNY Binghamton, with a common thread being musical theater nerds. His claim to fame, says me, was his epic rendition of "Corner of the Sky" from Pippin, and who knew all these years later, we'd meet up in person, and it would be like we'd not missed a day in over 30 years. Oh yes, and healthcare shenanigans abound. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The twins are back for another "very special episode" (no — not the one where Arnold gets molested on Diff'rent Strokes or Alex P. Keaton's friend dies) of Out of Patients to celebrate all the things and talk with their Daddy about what 2024 has in store for them. Like what? Well, their forthcoming 14th Birthdays, 8th Grade Graduation, and the start of their Freshman Year of High School! Plus, we talk gratitude, challenges, what it means to be a teenager in 2023, and a little Gen-X fatherhood pride when we talk about their favorite 1970s and 1980s hit songs. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Knownst to me, but unknownst to others, long before the Award-Winning documentary "The Cancer Mavericks: A History of Survivorship" hit podcast feeds, a pilot episode was storyboarded and produced to test the waters with our newly minted production team, helmed by acclaimed executive producer, Steve Lickteig. If all went to plan, we would proceed with the heavy lifting needed to bring this 320-hour, 8-episode history series to life. Suffice it to say, it indeed went to plan. For this pilot episode, the chosen topic would center around a history of cancer throughout the last century's zeitgeist of mainstream film and television. The storyboarding around this pilot would ultimately lay the groundwork for what would become Episode 6 of the final series, titled "Caner Mavericks Goes To Hollywood." So, who better to join host and narrator Matthew Zachary for this exploit of pop culture-meets-healthcare narrative than his mother, Roz Greenweig? A 30-year veteran educator within the NYC public school system (Kindergarten and First Grade,) Roz is also an ardent, veteran, encyclopedic cinephile who holds a Master's Degree in Film History and Film Studies with a concentration in Film Noir. Together, Mother and Son wax poetic on the taboos, the trends, and the trajectory that the cancer narrative took over the past 100 years across scores of films and television series. Thanks to this pilot episode, the project was greenlit to bring to life the groundbreaking, award-winning, and "appointment-listening" documentary The Cancer Mavericks: A History of Survivorship. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today, Matthew welcomes Dr. Aaron Neinstein, Chief Medical Officer at Notable, which is — jargon alert — a leading automation platform for patient engagement and staff workflows. What does that mean? Well, you'll find out from this underachieving Triple board-certified endocrinologist (yes, triple) who received his degree while on a Ski Lift in Montana. You can't make this stuff up. A spirited Diabetes-focused discussion ensues, tackling everything from patient trust, access to the latest and greatest gizmos and medications, and whether AI will indeed become Skynet and kill us all. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Once again, the SUNY Binghamton alumni network bestows upon us an incredible guest more than worthy of the hot seat. Dr. Adam Harris is a self-proclaimed "reluctant medical practitioner" who accidentally found himself proficient in all the right classes only to realize, "Why not?" Now serving as Clinical Assistant Professor at the Department of Medicine at NYU Grossman School of Medicine and Senior Director of Strategy and Operations at Oscar Health, he's become somewhat of a unicorn with perspectives from all sides of healthcare. Beyond all things SUNY Binghamton, they discuss how social media helped and ruined everything, patient empathy and trust, the role of today's physician in "Burnout land," and when and if insurance will ever get it right. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The best way to describe Dr. Aditi U Joshi would be a "Telehealth Whisperer" who comes to the party with a storied history as an emergency medicine physician and former advisor to such juggernauts as the American Medical Association and Weight Watchers. The author of "Telehealth Success: How to Thrive in the New Age of Remote Care," Dr. Joshi takes us on a historical tour of the tools that underlie successful telehealth programs and practices and how everyone can implement them, including a hot take on where telehealth sometimes goes wrong and where it more likely goes right for companies, health systems, providers, and the ultimate end user, the patient. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.