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Demystifying NMO

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A podcast series aimed at simplifying scientific jargon associated with neuromyelitis optica, facilitating better understanding for patients + their caregivers, and fostering greater connectivity among the community.

A podcast series aimed at simplifying scientific jargon associated with neuromyelitis optica, facilitating better understanding for patients + their caregivers, and fostering greater connectivity among the community.
More Information

Location:

United States

Description:

A podcast series aimed at simplifying scientific jargon associated with neuromyelitis optica, facilitating better understanding for patients + their caregivers, and fostering greater connectivity among the community.

Language:

English

Contact:

4403159317


Episodes

Episode 4: Let's Talk About Sex, Baby

1/6/2020
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Sexual dysfunction is a common invisible symptom in NMOSD, but given the intimate nature of the topic, it's not discussed as much as it should. What exactly is sexual dysfunction? What causes it? What can be done about it? Hear the answers in a discussion between Chelsey and Dr. Tamara Kaplan, a neurologist at Brigham and Women's Hospital and assistant professor in neurology at Harvard Medical School. Dr. Kaplan shares her expertise in treating NMOSD and MS patients, including managing...

Duration:00:17:00

Episode 3: Gratitude through NMO

11/24/2019
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In episode 3 of Demystifying NMO, Chelsey shares her conversations with 3 inspiring individuals living with NMOSD: Chelsey Tucker, Ron Crowe and Marie Newbrough. In their chats, they share their experiences and emotional journeys through finding their NMO diagnosis and coping with the loss of their old lives. Each tell how they have worked to manage these whirlwind emotions, and have even found new perspectives that in some ways make them find gratitude in the new lives. We hope you...

Duration:00:21:10

Episode 2: NMO Treatments: Acute vs Maintenance

10/24/2019
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Episode 2 of Demystifying NMO by The Sumaira Foundation (TSF) for NMO and Connor B Judge Foundation (CBFJ) focuses on NMO Treatments: Acute vs Maintenance. Follow along to hear a candid conversation between Connor, of the CBJF and NMO patient, and his sister Chelsey, also scientific advisor with the CBJF. In their discussion, they talk about the differences in treatments to manage an active relapse versus to help prevent relapse. Glossary of Terms Used AQP4: aquaporin-4; a water...

Duration:00:19:53

Episode 1: Autoimmune Disease and NMOSD Overview

9/23/2019
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The Sumaira Foundation and Connor B Judge Foundation are proud to present their first episode of their new joint podcast, 'Demystifying NMO!' Follow along with Austin Hoover, who lives with multiple sclerosis (the 'cousin' of NMO), and Chelsey Judge, PhD immunologist, as they chat about the basic science of autoimmune disease and NMO. They'll cover 3 main questions: 1) What is an autoimmune disease? 2) How does autoimmunity happen? 3) How does the immune response contribute to...

Duration:00:10:26