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Spotlight Lipedema

Medical

Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research.

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Location:

United States

Description:

Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research.

Language:

English

Contact:

2408887574

Episodes

Episode 15 - CurvyGirlBeth - Pt. 2 with Beth Rylaarsdam

5/2/2022
It's finally out! Episode 15 of the Spotlight Lipedema is out - featuringPart 2 of my interview with Beth Rylaarsdam. This was a great conversation about how CurvyGirlBeth made her debut. We talk about how lipedema ladies tend to hide from picture or hide themselves and their legs in pictures and why Beth thinks that needs to change. How do we share knowledge of lipedema when we encounter people that appear to have it too. Find Beth Here: https://thecurvygirlbeth.com/links/ Instagram:...

Duration:01:00:44

Episode 14 - Talking Lipedema with Beth Rylaarsdam (CurvyGirlBeth)- Part 1

12/13/2021
It's finally out! Episode 14 of the Spotlight Lipedema is out - featuring Beth Rylersdaam - Curvy Girl Beth. It was a great conversation - so good that we just kept chatting. So here's Part 1 of our conversation all about Beth's Lipedema discovery and what she's done to manage it. Stay tuned for Pt. 2 where Beth talks about how she became Curvy Girl Beth. All Music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php

Duration:00:40:34

The Lipedema Foundation - Focusing on Lipedema Research with Dr. Guy Eakin - Episode 13

8/23/2021
This episode is a bit different than what we've done before. I had the chance to speak with Dr. Guy Eakin, the Chief Science Officer of The Lipedema Foundation. Dr. Eakin provides some background on the Foundation and the work they are doing to provide funding for lipedema research. In our conversation, we learn a bit about the main areas of research that are the current focus of The Foundation, what projects they have recently funded, and some of the areas of research that appear promising...

Duration:00:57:14

Peace and Self-Care - A Chat with Nita Clewis - Episode 12

6/2/2021
It's June and that means it's Lipedema Awareness Month. I hope that you will be taking advantage of all the events that will be occurring online to educate us and the general public about lipedema. There's too much for me to list here, but you can use these links for information on these events: From Lipedema Simplified: Lipedema Awareness Month Webinar Series 2021 (mykajabi.com) From Lymphapress: Mind, Body & The Matrix: The Role of Pumps and Other Therapies for Lipedema - Webinar...

Duration:00:54:12

Spotlight Lipedema Returns - Episode 11

5/17/2021
The Spotlight Lipedema Podcast is back for a quick episode to catch up with what's been going on and to let you know that we're still here - Getting ready for Lipedema Awareness Month in June. Intro Music "Walk in the Park," Closing Music "In the Field," courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php

Duration:00:18:38

Lipedema, Lymphatics and Eating Keto with Dr. Leslyn Keith - Episode 10

9/28/2020
Well, this was a jam-packed episode! I had the chance to talk (and kind of geek out) about some of the science behind lipedema and the lymphatic system with Leslyn Keith. One of the things you realize when you have lipedema is that there is a lot to learn about adipose tissue, the lymphatic system, and how to manage lipedema and lipo-lymphedema. I got the chance to ask Leslyn some questions about the lymphatic system, about the function of fat in the body - and why we need to eat fat. We...

Duration:01:01:32

F*Lipedema! A Chat with Lipedema Blogger Carol Nogueira - Episode 9

8/16/2020
In the lipedema world, Carol Nogueira is lucky to be one of the ones to discover her lipedema when she was still at stage one. That doesn't mean that discovery was without its challenges. We also talk about how it can be overwhelming to get this diagnosis and how it becomes part of our identity. Carol also talks about how she figured out that she had lipedema and then her experience finding a surgeon to help her try to keep it there. Listen to hear about her lipedema journey that has taken...

Duration:00:44:52

Global Lipoedema Awareness - Talking About Surgery with Maria Kokkinou Boege -Episode 8

6/29/2020
Today we talk about surgery. Are you thinking about liposuction for your lipedema / lipoedema? Does the thought make you nervous that you don't know everything you need to know. My conversation with Maria Kokkinou Boege may give you some peace. We start off talking about Maria's lipoedema journey, then move on to the fabulous Facebook group she has put together. A support group where women share the experiences searching for the right surgeon and then their surgery successes and challenges....

Duration:00:47:34

A Lipedema Conversation with Selena Chronister - Episode 7

6/10/2020
Well, this episode took some time coming. Technical issues and a injury to my arm made getting it together a bit of a challenge, but hey, we finally got it done. In this episode, we talk briefly about June being Lipedema Awareness Month, then move on to my conversation with Selena Chronister. She may be familiar to you if you have visited her YouTube channel, "Selena Sez" where she has instructional yoga videos that are made specially for women with lipedema. If you haven't found it yet....

Duration:00:36:57

Lipedema, Grief and Coronavirus Days - Episode 6

4/29/2020
Well, this episode was long in coming out. Sorry for the delay. I have to admit, I've been pretty focused on the news about the coronavirus, and that slowed down the process a bit, but I'm back on track now. This project may sound a little be choppier than normal because it is the first one I've done mostly by myself, with some assistance from my wonderful producer Chris Duckman. My goal has been doing this on my own without having to pester him too much, so I am on my way. To start things...

Duration:00:41:49

Inflammation - The Scourge of Lipedema - Episode 5

3/16/2020
This Episode was long in coming. It took me a bit of time to figure out exactly how to address the topic of inflammation. I was inspired by a particularly bad bout with inflammation and thought that I really needed to be more mindful of what triggers it for me - and STOP DOING THAT! I'm sure I'm not alone. Of course there were other things that would come up and I'd need to divert my attention away from the podcast and take care of other business. So in Episode 5 we look at inflammation. I...

Duration:00:21:49

Lipedema Fitness - A Chat with Pattie Cornute - Episode 4

2/9/2020
Shownotes: I am really excited about this episode of the Spotlight Lipedema Podcast. This month I'm sharing my conversation with Pattie Cornute, the founder of the Lipedema Fitness Facebook Group and the website/blog Lipedema Fitness. You are going to want to listen to this inspirational story of how Pattie went from struggling with the challenges of reduced mobility to being a fitness leader for the lipedema community. Pattie shares some of the challenges she faced and shows how she...

Duration:00:44:27

Lori Chats with Lipedema Sister Mariam Aladdin - Episode 3

1/4/2020
Happy New Year! I am really excited start of 2020 by sharing this episode with you. In Episode 3 of the Spotlight Lipedema Podcast, I got the chance to chat with fellow Lipedema Sister Mariam Aladdin. Miriam shared her lipedema story and provided some great insights for people that have just gotten diagnosed. Miriam also shares what she does to help manage her lipedema, as well as some of the challenges she faces from day-to-day. I hope you enjoy listening to this as much as I enjoyed making...

Duration:00:37:40

It's Not Obesity, It's Lipedema - Episode 2

12/6/2019
Well, we finally got episode two completed. This one brought some technical issues to slow its release a bit, but we finally got something together to release. It's not perfect, but we learn as we go. Not to mention a mouth that didn't want to get all the words out the way I wanted, but hey, it happens. So, on the second episode, we look at what the differences are between obesity and lipedema, and why it is so important for people, especially doctors to know the difference. We look at the...

Duration:00:23:51

Lori's Story and What is Lipedema - Episode 1

11/1/2019
Welcome to the debut episode of the Spotlight Lipedema Podcast. I can't describe how excited I am to get this podcast finally started. It has been long in the making. I've been rolling ideas around in my head for well over a year, but finally got things together, and with the help of my wonderful producer Chris Duckett, was able to get this episode done and the podcast officially launched. Hopefully, this is just the first of many, many more to come. On this episode I'm going to give a...

Duration:00:21:37

Spotlight Lipedema Podcast Intro

10/25/2019
Welcome to the debut episode of the Spotlight Lipedema Podcast. I can't describe how excited I am to get this podcast finally started. It has been long in the making. I've been rolling ideas around in my head for well over a year, but finally got things together, and with the help of my wonderful producer Chris Duckett, was able to get this podcast officially launched. Hopefully, this is just a quick introduction, but the first of many, many more to come. Intro Music "Walk in the...

Duration:00:01:10