Walking with Freya; A Journey Through Special Needs Parenting-logo

Walking with Freya; A Journey Through Special Needs Parenting

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This podcast is for parents and caregivers of children with special needs to share stories of the challenges and joys we face.

This podcast is for parents and caregivers of children with special needs to share stories of the challenges and joys we face.
More Information

Location:

United States

Genres:

Podcasts

Description:

This podcast is for parents and caregivers of children with special needs to share stories of the challenges and joys we face.

Twitter:

@annefricke

Language:

English

Contact:

707-223-0438


Episodes

Ep 14 - Caitlyn, Neo-Natal Diabetes

6/13/2018
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In this episode Caitlyn shares her story, from the traumatic introduction to neo-natal diabetes, to the challenges, frustrations and heart ache of intellectual and developmental delays. We talk about siblings, unknown futures and how she herself finds comfort in this situation. And at the end, Caitlyn even drops some important information for anyone out there who may have been diagnosed with diabetes before the age of 6 months.

Duration:00:52:08

Ep 13 - The Grandmas

5/30/2018
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Since this is the last episode of the month, I thought I would end it with the Grandmas….Freya’s Grandmas. Not only have they known Freya since she was born, but they also both have other experiences with children with special needs. I will admit there is a little bit of doting in this episode, which I think is to be expected from grandparents. But they also speak openly about their other experiences, and offer their advice to grandparents of children with special needs.

Duration:00:43:04

Ep 12 - Courtney, a sibling

5/23/2018
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I had the pleasure of speaking with Courtney, an older sister to Max – an adult with PWS. As an adult Courtney has moved into the role of counselor, dealing with trauma and eating disorders. In out time together she spoke about growing up with a brother with special needs – how it was just a part of their life, learning to adapt, the moment she became his champion, their relationship as adults and how he has been an inspiration to her in her life.

Duration:00:42:01

Ep 11 - Emily, PWS Mom

5/16/2018
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I spoke with Emily Felt, a mother to 6 year-old Olivia with PWS. She talks about how Olivia’s birth and diagnosis affected her, the grief that came from it, and how one session with a therapist helped shift her outlook dramatically. We discuss the frustrations we have with doctor’s feeling like they need to harp on the negative aspects, what needs to be fixed or treated, without the balance of positives – what is working, what is going well. Emily is also in the process of creating something...

Duration:00:59:08

Ep 10 - Foundation for Prader-Willi Research

5/9/2018
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Without research and the knowledge gained from this research, most of our kids and adults with Prader-Willi Syndrome would face more difficulties in their lives. Thankfully, with the continued effort of the Foundation for Prader-Willi Research, there are new treatments and understandings of the challenges with PWS. This episode is an interview with Susan Hedstrom, the Executive Director of FPWR and fellow PWS mom. She speaks on the who, what, how and why of FPWR.

Duration:00:55:16

Ep 9 - Gen

5/1/2018
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May is Prader-Willi Awareness Month! This episode is the start of a month long dive into the world of PWS and the ways in which families, doctors and organizations are fighting for the lives of our children. I spoke with Gen, the mother of a young girl with PWS. We share battle stories, tips for success and a few good laughs. This is a conversation between two mamas who have found themselves on similar paths and are trying to figure out which way to hold the map. This conversation is not...

Duration:01:03:04

Ep 8 - Laura the Midwife

4/18/2018
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Laura is a dear friend and local midwife. She was with me through Freya's pregnancy and post-cesarean care. We talk about ways to emotionally process having an unexpected cesarean and the importance of having a chance to bond with your baby before a diagnosis is given, if medically safe that is. Laura tells us of her AskMidwife707 podcast that will be coming out in May, a place for women to share birth stories and information for those interested or invested in midwifery care. She closes the...

Duration:01:06:55

Ep7 - Take 'em as they come

4/4/2018
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I began this episode going back to the beginning, trying to fill in some of our story around Freya's infant feeding issues. What came out after was the unexpected and confusing grief I experienced watching my friends' babies grow and do things my daughter could not. Sometimes we are so good at masking and covering strong emotions that we forget they are there, only to have them rise up when we go back and tell our story.

Duration:00:23:50

Ep6 - Siblings

3/21/2018
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The first of many conversation about the effects on siblings of children with special needs. A place to find help, and why we should keep hope.

Duration:00:35:32

Ep4 - Diagnosis

2/28/2018
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This is the story of when we received Freya's diagnosis and how I handled it. I share a poem, "Kintsugi" that I wrote describing the emotions, the turmoil and what we gained from that moment. I close this episode with information on Prader-Willi Syndrome as found on the website pwsausa.org.

Duration:00:37:18

Ep 3 - The Time Between

2/20/2018
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For three and a half months we cared for our baby who was hypotonic, not eating well, sleeping too much and generally not thriving. We did not have answers for why. This episode deals with the fear and heart ache of those months, along with the ways that we coped.

Duration:00:17:56

Ep2 - Birth Story

2/20/2018
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To begin this journey, I tell Freya's birth story, when my desired home birth became a much feared cesarean.

Duration:00:17:48

Ep1 - Intentions

2/20/2018
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In this episode I explain my motivations and intentions for creating this podcast, and how people may get in touch and share their stories.

Duration:00:25:04