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Navigating Life as we Know It

Storytelling Podcasts

Navigating Live as we Know It seeks to build an educational and entertaining way to help the people around those with Special Needs better find the way to live their best, most self-determined life possible, and how to manage the challenges of the systems

Navigating Live as we Know It seeks to build an educational and entertaining way to help the people around those with Special Needs better find the way to live their best, most self-determined life possible, and how to manage the challenges of the systems

Location:

United States

Description:

Navigating Live as we Know It seeks to build an educational and entertaining way to help the people around those with Special Needs better find the way to live their best, most self-determined life possible, and how to manage the challenges of the systems

Twitter:

@NLAWKI

Language:

English

Contact:

6162980832


Episodes

55. An Anecdotal Field Guide for The Rest of Us

7/7/2022
In this new book, Tracee offers you the tips she remembers, stories of adversity and success, to document her personal battles with self and others in a position to grant or deny life-saving tools, equipment, and the access to freedom we all hold dear but often take for granted. The author encourages all of us to use the Field Notes daily to meet success and navigate each one of life’s seemingly impossible hurdles. Topics in the book include: employment, mental health, education, family,...

Duration:01:01:16

54. Vitalxchange - The Uber of Diability Resources

6/24/2022
If you set out to climb the Himalayas it would be wise to hire a sherpa. Why, you ask? Because the climb may be treacherous and your mistakes very costly! A sherpa has been on the path many times and knows how to climb to the top with positive results. How much do you want to leave to chance? The same may be said about navigating the challenges and obstacles ever present for people with disabilities. Legal planning, financial planning, benefits planning, educational programs, work incentives...

Duration:01:12:05

53. A Deep Dive into Courage

4/29/2022
There is a gulf between changing a world and changing THE world, and the difference is the people who help build the steam needed to bring about true and lasting change to the way a society approaches a topic. Earlier this season we discussed the life and advocacy of Bill Rush and some of the people around him on his quest for a life on his terms. We had a chance in the followup to talk with a contemporary of his, John McGill, who offered insight into the changing of the disability...

Duration:00:42:08

52. Advocacy and Education for Independence

4/14/2022
Affordable, accessible housing, transportation and internet availability are serious issues for people with disabilities in just about every state in the USA. It is especially problematic in rural areas. As if these challenges weren't enough, the crew of the Disability Resource Network in Huntsville Alabama opened for business during the early days of the COVID-19 pandemic. For some, quarantine and social distancing would have been the straw that broke the poor camel's back. For Davina...

Duration:00:46:51

51. It's BROKEN - Let's Fix It: Support the NADSP

4/2/2022
Imagine engaging an architect to create plans for the perfect house to fill all your needs.... You are excited about turning this dream into a reality…but then discovering there is no one to do the excavation for the foundation. Also, there is only one carpenter to work on the frame...and that craftsman can only work 12 hours a week on your project. There is a shortage of plumbers...so you will have to make do with an outhouse until one is available. And an electrician? Sorry...only one is...

Duration:00:56:05

50. Faith Love & Courage Pt 3

1/7/2022
Episode 3 - Life together and Changing the World Most movements for social change are identified with a few prominent and well-known leaders. For instance, people like Martin Luther King, John F Kennedy, and Robert Kennedy, among others, are associated with the Civil Rights movement in the USA. Nelson Mandela is a name synonymous with the abolition of apartheid in South Africa. The truth is…these individuals provided a voice and a face to the movement, but without the thousands who heard...

Duration:01:17:30

49. Faith, Love & Courage Pt 2

12/22/2021
Episode 2 - Love and the Audacity of Change Most movements for social change are identified with a few prominent and well-known leaders. For instance, people like Martin Luther King, John F Kennedy, and Robert Kennedy, among others, are associated with the Civil Rights movement in the USA. Nelson Mandela is a name synonymous with the abolition of apartheid in South Africa. The truth is…these individuals provided a voice and a face to the movement, but without the thousands who heard them...

Duration:01:28:34

48. Faith, Love & Courage Pt 1

12/15/2021
Family, Faith, and the Seed of Self Advocacy Most movements for social change are identified with a few prominent and well-known leaders. For instance, people like Martin Luther King, John F Kennedy, and Robert Kennedy, among others, are associated with the Civil Rights movement in the USA. Nelson Mandela is a name synonymous with the abolition of apartheid in South Africa. The truth is…these individuals provided a voice and a face to the movement, but without the thousands who heard them...

Duration:00:57:16

47. Caring About and Beyond

12/2/2021
It is not ever comfortable discussion what happens after someone dies. But when it comes to the death of care providing parents conversations need to happen and plans must be made. Legal, financial and Medicaid Planning are important, of course, but living a full life is more than providing these core necessities. Life as we know it (and aspire to live it) includes meaning, purpose, identity and being “seen” by the members of your family...whether that “family” is the product of biology or...

Duration:00:54:48

46. The Many Flavors of Medicaid Waivers 301 - Children's Waivers & Independent Facilitation

11/18/2021
When you have a child with a developmental or intellectual disability your life gets complex. Often it becomes overwhelming. Navigating a path to find the right resources is essential. Today's episode is about two Medicaid Waivers that provide valuable supports, The Michigan Waiver for Children and the Michigan Waiver for Children with Serious Emotional Disorders (SED). We also cover the basics of Michigan's Children's Special Health Care program. If you don't live in Michigan, your home...

Duration:00:59:12

45. The Many Flavors of Medicaid Waivers 201

11/10/2021
Imagine yourself on a vacation to a country where your native language is not spoken. Let's say Portugal. You do not know how to speak or read Portuguese, but you are given a map to help you get around.... but the map (of course) is printed in Portuguese. You can see the roads and have a vague idea of where you are going, but the map does not tell you what the BEST route is. And you won't know what lies between your current location and your destination because....YOU CAN'T READ PORTUGUESE!...

Duration:00:39:59

44. The Many Flavors of Medicaid Waivers

11/3/2021
Our show today is “The Different Flavors of Medicaid Waivers” …. but you are also going to hear a lot of discussion about person-centered-planning (PCP) and the proper use of two assessment tools associated with person centered planning process... the Supports Intensity Scale (SIS) and the Psycho-Social Assessment (PSA). Why?? Because assessment tools, person-centered plan and Medicaid Waivers all work together for benefit of the individual at the center of the plan. To help explain how all...

Duration:00:50:20

43. Navigating The Risks/Rewards of Relationships

10/27/2021
Growing up can be hard. Especially the teenage years. And even more so if the teenager in question has social skill deficits. As humans we are all "hard wired" for relationships with other humans. Individuals living with autism often want to develop skills necessary to make and keep friends. They need to learn the skills necessary to navigate various social situations in which they may not feel comfortable. And they also must learn how to manage conflict and rejection. Parents and care...

Duration:01:06:01

Being Here Now, an introduction to NLAWKI's Mindful Moments

9/29/2021
I'm probably showing my age...but some of you might remember the routine of "defragging" your computer to allow it to work more quickly and efficiently. It was once described to be as allowing your computer to take some time to put files away and "clean up" it's desk. This was it was able to work better. Well, wouldn't it be nice to defrag your mind on occasion? Just to put away the loose ends and clutter that we tend to accumulate and bog down our brain and sap our energy? Well, you can...

Duration:00:19:56

42. The Right Place To Land - Finding the Best Nest

9/22/2021
"There's no place like home!" In the Wizard of Oz Dorothy said these words and clicked the heels of her ruby slippers three times. Instantly she was transported back to her farm home in Kansas. This makes for an enduring story...but getting into the right home presents a little more of a challenge today. Especially if you live with an intellectual and/or developmental disability. You have many obstacles to contend with, such whether you want a roommate(s), where you will live...house,...

Duration:00:47:11

41. Forgiveness: The Pathway from Emotional Pain to Growth

9/15/2021
Everyone has heard the phrase "forgive and forget." That isn't always possible, or even advisable. It is important to remember. To recall emotional pain that has played a destructive role in the course of your life and in your relationships. With these memories it becomes even more important to forgive, or to ask forgiveness, so you may convert the hidden pain your have experienced in your past from suffering to growth. A very empathic person, Shannon has accumulated great knowledge and...

Duration:01:01:38

40. Finding The Emerald City

9/8/2021
Remember Dorothy and the Wizard of Oz? She had an impossible task. First retrieve the broom stick of the Wicked Witch and deliver it to the Wizard of Oz who would grant her wish to return to her home in Kansas. Doesn't life feel like that sometimes? Impossible task? Improbable goals? Flying Monkeys all around you? Attempting to find and secure affordable, community based, appropriately supported housing during a skyrocketing real estate market makes snatching a witch's broom stick look easy,...

Duration:01:22:15

39. Letting Go and Letting Grow

9/2/2021
It's hard to let go of things...and I have a garage filled with items I should have let go of years ago. But I keep thinking, maybe I'll find a use for this "thing." But I hardly if ever do. It is much different letting go of people, but it is natural and necessary when raising children to "let them go" in order to "let them grow." We learn by facing new life challenges, often making mistakes in the process, but learning from our experiences! I have personally made my share of mistakes and...

Duration:00:42:25

38. A Short Bridge to Inclusion

8/26/2021
Bridges create opportunities for connection. They empower travel to visit people and places that might otherwise be inaccessible. And they often unite people together to pursue common goals. Some are span enormous distances while others are measured in feet and inches. Today’s show is about one of the world’s smallest bridges. But it may be one of the most important bridges you will ever cross. The “bridge” we explore today is named Zavikon, a company founded by our guest, Rebecca...

Duration:00:56:07

37. The Risks of "Integrated Care"

8/18/2021
The Space Shuttle, with over 2.5 million parts, 230 miles of wire and 1,060 plumbing valves was once described as the most complex "machine" ever made by man. For successful results it's mission requirements complex systems and a flawless degree of accountability were essential. Flaws in those complex systems resulted in the disasters of Columbia and Discovery. Our health care system, experienced from a patient perspective, appears to rival the Space Shuttle in complexity. But in the case of...

Duration:01:19:10