I'm Aware That I'm Rare: the phaware® podcast-logo

I'm Aware That I'm Rare: the phaware® podcast

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A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
More Information

Location:

United States

Description:

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

Twitter:

@phaware

Language:

English

Contact:

8183953529


Episodes

Episode 131 - Marlene Rabinovitch, MD

2/22/2018
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Dr. Rabinovitch joined Stanford University School of Medicine Faculty in the summer of 2002 as the Dwight and Vera Dunlevie Professor of Pediatric Cardiology, and Scientist at the Vera Moulton Wall Center for Pulmonary Vascular Disease. The main focus of her research program is on uncovering molecular pathways that lead to developmental and inflammatory mechanisms of vascular pathobiology, particularly pulmonary hypertension. In this episode, Dr. Rabinovitch discusses the importance of...

Duration:00:08:12

Episode 130 - Roberta Keller, MD (Part 2)

2/19/2018
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Dr. Roberta Keller is a neonatologist, an expert in caring for critically ill newborns, particularly those with congenital lung or heart disease. She is director of the USCF Benioff Children's Hospital Extracorporeal Membrane Oxygenation (ECMO) program, or artificial lung, for newborns. Her research addresses lung and heart disorders affecting newborns, such as congenital diaphragmatic hernia and patent ductus arteriosus. In this episode, Dr. Keller discusses the basics of...

Duration:00:06:36

Episode 129 - Roberta Keller, MD (Part 1)

2/15/2018
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Dr. Roberta Keller is a neonatologist, an expert in caring for critically ill newborns, particularly those with congenital lung or heart disease. She is director of the USCF Benioff Children's Hospital Extracorporeal Membrane Oxygenation (ECMO) program, or artificial lung, for newborns. Her research addresses lung and heart disorders affecting newborns, such as congenital diaphragmatic hernia and patent ductus arteriosus. In this episode Dr. Keller discusses Pediatric Pulmonary Hypertension...

Duration:00:07:28

Episode 128 - Colin Meyer, MD

2/12/2018
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Colin Meyer, MD is Reata Pharmaceutical’s Chief Medical Officer and leads product development and strategy, clinical trial design and analysis, and medical affairs. Colin received a B.S. in chemistry with specialization in biochemistry and a B.A. in biology from the University of Virginia. He received an M.D. from the University of Texas Southwestern Medical School and an M.B.A. from Southern Methodist University Cox School of Business. In this episode he discusses the process of how a drug...

Duration:00:10:30

Episode 127 - Scott Manaker, MD, PhD

2/8/2018
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Dr. Scott Manaker is an actively practicing pulmonary and critical care physician in the Pulmonary and Critical Care Division at the University of Pennsylvania in Philadelphia, where he is also Associate Professor of Medicine and Pharmacology, Vice Chair for Regulatory Affairs for the Department of Medicine and the Physician Advisor to the Penn Medicine Office of Billing Compliance. Dr. Manaker lectures widely across the United States as a physician advocate, speaking on chart documentation,...

Duration:00:08:46

Episode 126 - Lane Benningfield

2/5/2018
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Lane Benningfield is a pulmonary hypertension patient from Charlotte, North Carolina. In this episode he talks about the power of a positive mindset. Lane is an active member of the PH Men’s PHight Club, an online support group for male PH patients and male caregivers. He discusses how members of the PHight Club can apply for an exclusive scholarship to attend the 2018 International Pulmonary Hypertension Conference taking place June 29-July 1 in Orlando, Florida. Learn more about this...

Duration:00:06:01

Episode 125 - Joanne Sperando

2/1/2018
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Joanne Sperando lives in North Babylon, NY and was the third person in her family to be diagnosed with Pulmonary Hypertension (PH). Joanne’s mother lost her 23-year-old sister Josephine to PH in 1963. Joanne’s brother John was diagnosed in 1995 and passed in 2015 and she received her diagnosis in 1998. Joanne formed and currently co-leads the Long Island Pulmonary Hypertension Support Group. In this episode, Joanne shares a number of important lifestyle tips for newly diagnosed pulmonary...

Duration:00:09:09

Episode 124 - Brooke Keith

12/28/2017
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Brooke Keith is a pulmonary hypertension patient from Mason City, Iowa. She was diagnosed in 2007 at age 8. She is now 19, a freshman in college majoring in biochemistry. Thank you for letting me share my story. Together we can be agents of change offering hope and help through educating, advocating, funding research and raising awareness by sharing with others. If you see me around or online, my PH is probably invisible to you. Most days I can keep up with anyone and do whatever I...

Duration:00:02:12

Episode 123 - Dijon Brewster

12/25/2017
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Dijon Brewster is a pulmonary hypertension patient who was diagnosed on 9/11/2001. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube & linkedin @phaware #phaware

Duration:00:04:30

Episode 122 - Cheryl Wegener

12/21/2017
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Pediatric pulmonary hypertension caregiver, Cheryl Wegener discusses her daughter Madison’s road to a PH diagnosis and the impact living with this rare disease has had on the entire family. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube & linkedin @phaware #phaware

Duration:00:09:04

Episode 121 - Eileen Washington

12/18/2017
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Eileen is a pulmonary hypertension patent from Texas who was diagnosed with PH following a serve car accident. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube & linkedin @phaware #phaware

Duration:00:06:46

Episode 120 - Harrison Hap Farber, MD

12/14/2017
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Harrison "Hap" Farber, MD discusses PAH associated with HIV infection. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical Center. He also oversees the care of all patients with Pulmonary Hypertension at Boston Medical Center. Learn more about pulmonary hypertension...

Duration:00:07:52

Episode 119 - Harrison "Hap" Farber, MD

12/11/2017
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Harrison "Hap" Farber, MD discusses inhaled iNO and oxygen therapy as an add-on therapy for patients with pulmonary hypertension. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical Center. He also oversees the care of all patients with Pulmonary Hypertension at Boston...

Duration:00:04:27

Episode 118 - Eric Austin, MD (Part 3)

12/7/2017
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Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension (PH) Program at Vanderbilt University Medical Center’s Monroe Carell Jr. Children's Hospital, where he treats individuals with pulmonary hypertension and other pulmonary vascular diseases. He is also a member of the adult program’s Vanderbilt Pulmonary Hypertension Clinical and Research Program, with whom he leads and/or participates in various translational research studies. Dr. Austin discusses screening for...

Duration:00:08:22

Episode 117 - Eric Austin, MD (Part 2)

12/4/2017
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Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension (PH) Program at Vanderbilt University Medical Center’s Monroe Carell Jr. Children's Hospital, where he treats individuals with pulmonary hypertension and other pulmonary vascular diseases. He is also a member of the adult program’s Vanderbilt Pulmonary Hypertension Clinical and Research Program, with whom he leads and/or participates in various translational research studies. Dr. Austin discusses screening for...

Duration:00:11:09

Episode 116 - Eric Austin, MD (Part 1)

11/30/2017
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Eric Austin is the Director of the Vanderbilt Pediatric Pulmonary Hypertension (PH) Program at Vanderbilt University Medical Center’s Monroe Carell Jr. Children's Hospital, where he treats individuals with pulmonary hypertension and other pulmonary vascular diseases. He is also a member of the adult program’s Vanderbilt Pulmonary Hypertension Clinical and Research Program, with whom he leads and/or participates in various translational research studies. Dr. Austin discusses screening for...

Duration:00:09:03

Episode 115 - Marc Humbert, MD

11/27/2017
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Marc Humbert, MD, PhD, is Professor of Respiratory Medicine at the South Paris University (Université Paris-Saclay) in Le Kremlin-Bicêtre, France. He is the Director of the National Reference Centre for Pulmonary Hypertension, Department of Respiratory and Intensive Care Medicine, Hospital Bicetre, Assistance Publique Hôpitaux de Paris, France. He is the Chief Editor of the European Respiratory Journal (impact factor 10.57). Dr. Humbert has published over 700 peer-reviewed manuscripts. He...

Duration:00:08:48

Episode 114 - Guillermo Young, MD

11/23/2017
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Dr. Young graduated from the Univ Nac Mayor De San Marcos, Fac De Med, Lima, Peru in 1967. With more than 50 years experience, Dr. Young is the oldest pediatric cardiologist practicing in Los Angeles. He is affiliated with Ronald Reagan UCLA Medical Center. Dr. Young discusses the history of the cardiac catheterization. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube &...

Duration:00:15:41

Episode 113 - Tamara Norton, CCN

11/20/2017
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Tamara Norton, CCN from UC San Diego Medical Center discusses a CTEPH patients journey from evaluation through PTE surgery. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube & linkedin @phaware #phaware #CTEPH

Duration:00:04:57

Episode 112 - Steve Mathai, MD

11/16/2017
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Dr. Stephen Mathai is an Associate Professor of medicine at the Johns Hopkins University School of Medicine. His areas of clinical expertise include pulmonary disease and critical care medicine. His research interests include scleroderma-associated pulmonary hypertension, idiopathic pulmonary fibrosis and pulmonary complications of connective tissue disease. Dr. Mathai discusses how scleroderma increases your risk of the development of pulmonary hypertension. Dr. Mathai discusses clinical...

Duration:00:06:45

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