Two Disabled Dudes-logo

Two Disabled Dudes

Health & Wellness Podcasts >

More Information


037 – Rare Disease Week On Capitol Hill & The Ataxian

We are excited to bring you the recording of a live panel following the showing of the film The Ataxian, which is the movie both of us are featured in! You probably know about the movie by now- it focuses on our team's journey in Race Across America (RAAM), the world's toughest cycling event, trekking 3,000 miles from CA to MD. This movie serves as a vehicle which introduces viewers to the FA (Friedreich’s Ataxia) community. The documentary screening was the kick-off event for Rare Disease...


036 – Patient Advocacy – Live at Reata Pharmaceuticals

We are proud to present the second half of our interviews at Reata Pharmaceutical, this time it is all about Patient Advocacy and Patient Voice. Today is also the first day of Rare Disease Week, a US initiative sponsored by Rare Advocates, a week for those in the rare disease community to meet with our national senators and representatives in DC.Sean and Kyle are here in DC, along with our two behind-the-scenes dudes Jake and Matt, helping to amplify the patient voice! February is global...


035 – Drug Development – LIVE at Reata Pharmaceuticals

We’re excited to bring you the first of two episodes about the drug development process we recorded LIVE at Reata Pharmaceuticals headquarters in Irving, TX. In this episode, we talk to Warren Huff, the founder and CEO, and Dr. Collin Meyer, Chief Medical Officer. In a behind-the-scenes look at a pharmaceutical company, we hear the background stories of both Mr. Huff and Dr. Meyer, as well as the origin of Reata. One of our guests divulges that he owns a Viper and races cars. Listen to...


034 – Living for Today with Katie Stevens, President of Dyskeratosis Congentia Outreach (DCO)

When tomorrow is filled with uncertainty, we learn to make the most out of each day. Katie Stevens begins with the personal story of her son’s diagnosis with Dyskeratosis Congenita (DC), a rare genetic disorder. But she ends with a feeling of hope and confidence. Katie is the president of Dyskeratosis Congenita Outreach: Katie tells us about the diagnosis of her son before he was a teenager. Because genetic testing didn’t seem necessary, his DC was diagnosed as bone marrow...


3 Steps to use Gratitude to Bust Your Funky Attitude

Without gratitude, it’s easy for us to focus on our struggles in life. Living with a disability seems like a great excuse for us to get bogged down by negativity, to brood over how simple tasks can be a lot more difficult or even impossible for us to do on our own. This difficulty is not something we choose to dwell on and we discourage others from focusing on it, but we have to acknowledge that it exists. Sometimes living in the shadow of frustration at what we can’t do is much more...


032 – Behind The Scenes with Jake & Matt

This episode features the other half of the 2DD Production Team. We interview Jake Tompkins & Matt LaFleur and talk about what they do and why they do it. This show wouldn't be possible without their help. We record from opposite sides of the country, causing some logistical challenges that these other guys are better at then us (mostly Sean). Tune in to hear more about Jake and Matt and how this show comes together!


031 – Anniversary Episode! Listener Appreciation

We began this project a year ago, hoping to give a voice to those who choose their own attitudes in the face of challenges that life serves up. So here we are, 30+ episodes later, and the 2 Dudes have come to realize how the podcast is kept alive and strong by the group of people it brings together! In this, our one year anniversary episode, we focus on the fact that the podcast is held up by you as a listener. And you are the reason why we can’t wait to continue this next year! In this...


030 – Our First Episode

Many of our listeners know that we are approaching our one year anniversary! In two weeks we are going to feature an episode that includes a few of our loyal listeners plus Jake and Matt, the two behind-th-scenes Dudes that make this show possible. While we are busy preparing the anniversary episode we are bringing you one of our most listened-to episodes - the very first one, from December 12, 2016. Enjoy!


029 – Wonderful and Different with Paul Avery

“It’s a wonderful life; it’s just a different life.” We interview Paul Avery, CEO of World of Beer; former COO of the parent company of Outback Steakhouse, father of two daughters diagnosed with Friedreich's ataxia (FA); and chair of the board of the Friedreich's Ataxia Research Alliance (FARA). The transition from being in the business of running successful restaurants to becoming forefront in the research and treatment of a rare disease was a sudden and unexpected change: but not a shift...


028 – Self-Discipline Update

We're bringing you a follow-up episode detailing our progress to the challenges we gave each other in a previous episode (026). We are working towards greater self-discipline! Inspired by our conversation with Drew Dudley (025) and the book Living With A Seal by Jesse Itzler, we issued a few challenges to each other and this episode brings an update to our personal performance. The first challenge we talk about is our 100-pushups-per-day challenge. The 2DD Pushup-up challenge started...


027 – Live Patient Panel

Living with any condition presents challenges for everyone, some common and some unique. No matter our circumstances though, life is what we choose to make it. We are all dealt some cards and everyone chooses how to play the hand they're dealt. In this episode, we talk with a panel of three friends living with Friedreichs Ataxia. Jean, Kate and Michael talk openly in front of a live audience about life with FA. From adapting to high school to playing in the dirt 30 years after a prognosis...


026 – Self Discipline

In this episode, we get back to the basics. No guest, just 2 Dudes hanging out and talking about a topic very important to us: self-discipline. Living with a disability is often frustrating. Maybe that’s an understatement. When so many normal daily activities are impossible, or at least difficult, to do independently, we are tempted to develop a victim’s mindset. But that’s not who we are, and that’s not who you are. The key to unlocking your own greatness is self-discipline. Sean has a...


025 – Leadership with Drew Dudley

Almost anyone with a disability can tell you that we are often thrust into the spotlight, even though we never asked for that. People with disabilities are too often seen as “brave” or “strong” or “inspiring,” when in reality we are just living. This is in no way to diminish the struggles of “just living” while overcoming a disability: believe me, we understand that hardship. But to be called “heroic” or “inspiring” just because we have a disability is cheap. It feels like it dismisses us....


024 – Rare Disease Parent Perspective with Tom Hamilton

Tom Hamilton spent 25 years on Wall Street and when his daughter was diagnosed with Friedreich's ataxia (FA), he started using all his knowledge and expertise to fight Rare Disease. Tom is on the Board of Directors for the Friedreich's Ataxia Research Alliance (FARA), he is a founding Board Member for Chondrial Therapeutics, he is Executive Producer of The Ataxian, and co-founder of the CureFA Foundation. It’s understandable that most of what we focus on in this podcast is meant to...


023 – How The Challenged Athletes Foundation is Changing Lives

Patrick Lawrence is the Senior Programs Manager for the Challenged Athletes Foundation (CAF) and he joins us to talk about CAF and specifically their grant program in order to empower the athlete in all of us! One of the ways we manage life with a disability is to stay as active as we can. But staying active when you have a disability looks a lot different than it does for able-bodied people. Whether traveling to an accessible location, finding equipment that we can use, or locating a...


022 – The Psychology of Disability with Dr. Dan Gotlieb

Dan Gottlieb is a practicing psychologist and therapist with more than 40 years of experience. Best known as the host of "Voices in the Family," a weekly radio program heard for more than 30 years on WHYY-FM, Philadelphia’s NPR affiliate. Dan recently retired from the weekly radio program, and now produces and hosts six specials each year. Our focus this episode is on the often overlooked inferior life of those affected with disabilities. We interview Dr. Dan Gottlieb, renowned...


021 – rideATAXIA Europe, Le Peloton de l’Espoir

rideATAXIA Europe - Le Peloton de l'Espoir was a 450 mile ride from Strasbourg, France to Lyon, France during July 1-8, 2017. There were 20 riders from the US and 30 riders from France. The purpose of the ride was to bring together the French and US FA communities as one united FA community, moving to the finish line together. Join us as Sean "interviews" Kyle about the ride.


020 – LIVE at Horizon Pharma

Join us for a discussion about patient engagement in rare diseases with Horizon Pharma. This is our first recording in front of a live audience!


019 – Dr. David Fajgenenbaum – Conquering Castleman Disease

In college, his friends called him The Beast. But then he got mysteriously sick and was on the brink of death 5 different times, stumping specialists. Diagnosed with Castleman Disease, Dr David Fajgenbaum earned his MD and started research on himself. He formed the Castleman Disease Collaborative Network (CDCN) to speed the progress toward a cure for himself and the entire Castleman Disease Community. How does anyone keep going, when your body is your own worst enemy? For David, the answer...


018 – Breaking Your Chains with Rudy Garcia-Tolson

Sometimes being brave is what gets us through. Facing the unknown and facing unknown possibilities down the line is familiar to any of us living with a disability. Maybe no one understands that better than Rudy Garcia-Tolson, who made the decision to have both of his legs amputated above the knee when he was only five years old. Born with legs that weren’t able to support him and allow him to function properly, Rudy wanted more than anything to be as active as his brothers and sisters...


Try Premium for 30 days

Live games for all NFL, MLB, NBA, & NHL teams
Commercial-Free Music
No Display Ads