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About IBD

Health & Wellness Podcasts

About IBD focuses on issues vital to people living with Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease). Patients, physicians, and caregivers give their opinions and advice on a variety of topics including nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

About IBD focuses on issues vital to people living with Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease). Patients, physicians, and caregivers give their opinions and advice on a variety of topics including nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

Location:

United States

Description:

About IBD focuses on issues vital to people living with Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease). Patients, physicians, and caregivers give their opinions and advice on a variety of topics including nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

Twitter:

@aboutibd

Language:

English

Contact:

2039780725


Episodes

Colitis Conversations: The Impact of Ulcerative Colitis

1/24/2022
Inflammatory bowel disease (IBD) affects our quality of life. What that means, however, is going to be different for each person. It may depend on many factors including disease severity, access to care, and support structure. The symptoms of ulcerative colitis such as diarrhea can prevent people from taking part in activities that aren’t near a bathroom. Bleeding can cause anemia, leaving people feeling tired and unable to go about regular activities. Not to mention the effects on mental...

Duration:00:45:42

Colitis Conversations: Getting an Accurate Diagnosis

1/10/2022
Once people understand that symptoms like ongoing diarrhea and bloody stools are not normal, they need a way to overcome embarrassment and talk their symptoms over with a health care provider. Having an open and honest conversation will help ensure a quicker diagnosis of ulcerative colitis and getting the right treatment. On this episode, Rasheed Clarke, ulcerative colitis and j-pouch patient and author of Three Tablets Twice Daily and Dr Christina Ha, an IBDologist at the IBD Center at...

Duration:00:44:56

Every Kid We Take Care of, We Become Part of Their Family

12/6/2021
How is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What’s next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Division of Digestive Diseases, Hepatology and Nutrition at Connecticut Children's, and a Professor of Pediatrics at the University of Connecticut School of Medicine. He provides a historical perspective on the treatment of IBD and is able to highlight how therapies have advanced over the last 30 years....

Duration:00:18:06

What Remission Means to a Teen With Ulcerative Colitis

11/21/2021
Inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric patients, and indeed how to prevent IBD in the first place, is still lacking. What’s not in short supply is the strength and resilience shown by pediatric IBD patients and their families. Meet Brooke, a pediatric patient at Connecticut Children’s Hospital who credits her dedicated IBD team with her...

Duration:00:26:34

Living With Ulcerative Colitis as an Air Force Pilot

11/7/2021
Did you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his...

Duration:00:28:28

J-Pouch Surgery for Ulcerative Colitis With Vikram B. Reddy, MD, PhD

10/25/2021
Ulcerative colitis surgery is sometimes viewed as the last stop for treatment but it can be a good option to treat inflammatory bowel disease (IBD). Dr. Vikram Reddy, Division Chief of Yale Medicine, Colon and Rectal Surgery, answers questions about j-pouch surgery including how patients feel about it, how he manages his patients after surgery, what complications might occur, and why surgery for ulcerative colitis is complicated and nuanced. Transcript and more information at:...

Duration:00:33:42

Finding Success with Nutrition Therapy

10/11/2021
IBD is not a condition that is easy to diagnose or treat. People who live with Crohn’s disease or ulcerative colitis have needs that include guidance on nutrition. Diet is notoriously difficult to study but some research is starting to be done. Dannielle Jascot, MS, CNS, CDN, certified nutritionist and IBD patient talks over the recent results of the DINE-CD study, which compared the Specific Carbohydrate Diet and the Mediterranean Diet. Episode page and transcript:...

Duration:00:32:37

Every Mom Matters: The MELODY Trial

9/27/2021
What should people who live with inflammatory bowel disease (IBD) eat? What diet plans are available? Barbara Olendzki, the Director of the Center for Applied Nutrition and an Associate Professor at the University of Massachusetts Chan Medical School, helped developed the inflammatory bowel disease anti-inflammatory diet (IBD-AID). The IBD-AID is currently being studied in pregnant people in the MELODY Trial. Barbara gives the lowdown on the IBD-AID, the MELODY Trial, and how and why she got...

Duration:00:21:03

The Snuggles Are the Thing

9/13/2021
How do your pets help you with your IBD? I speak to Meredith Mangold, "The Bowel Battling Badass,” about the role her dogs have played in her life. She became seriously ill with ulcerative colitis, which progressed into a rare complication called toxic megacolon. As her journey with IBD progressed, she eventually needed colectomy surgery, and has since been diagnosed with other immune-mediated conditions. Her two dogs, however, have become a big part of her advocacy work and they help her...

Duration:00:35:41

Making a Plan for Back to School With Dr Brad Jerson

8/8/2021
The back to school period is already a time of so much change but once again in this pandemic, parents and school systems are also facing difficult choices. The experiences of families during the pandemic has been diverse, which means that individual needs need to be addressed. But how do we manage that? Dr Brad Jerson Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children’s, puts some framing around these issues and how we might...

Duration:00:38:01

A Wee Spark of Inspiration With Author Kathleen Nicholls

7/26/2021
This is the second part of my conversation with Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: A Handbook for Today's (Diseased) Dame.” Hear the first part in Episode 97, where Kathleen tells us about her Crohn’s disease diagnosis and how blogging became the way she processes her disease journey. We talk about how to answer when people ask us how we’re doing. Which leads to another topic, and that’s how providers can ask...

Duration:00:25:33

Wine, Biscuits, and Drinking Water With Author Kathleen Nicholls

7/12/2021
Life with inflammatory bowel disease (IBD) brings challenges and many life changes but it can also sometimes bring unexpected opportunities. Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: a handbook for today's (diseased) dame” was diagnosed with Crohn’s disease in her 20s. She started a blog as a way to process her disease journey. She was stunned when people started reading it and when publishers became interested. Two...

Duration:00:25:39

Fatherhood and IBD With Jordan McConnell

6/20/2021
The patient advocacy space is lacking the voices of men and especially men of color. The result is that the IBD community is not diverse enough to provide the kind of support that they need. Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. Jordan served in the military and was eventually discharged due to his Crohn’s disease. It was a shock and changed his career plans unexpectedly. His disease journey showed him that he needed to...

Duration:00:39:53

Kelly Owens: Vagus Nerve Girl

6/14/2021
What is the next innovation in the treatment of inflammatory bowel disease (IBD)? Is it the microbiome? Stem cells? Or, is it the emerging field of bioelectric medicine? IBD is a complicated disease to treat and can bring complications and other, related conditions. The problem is the immune-mediated nature of the disease and how it affects the entire body. For Kelly Owens, who lives with Crohn’s disease, bioelectric medicine has bumped her into remission and changed her life in several...

Duration:00:38:37

Single Motherhood and IBD With Brooke Abbott

5/31/2021
Motherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ignored altogether. That's why I asked my close friend and co-founder of IBDMoms, Brooke Abbott of The Crazy Creole Mommy Chronicles, to tell me about her challenges and her successes living with IBD, a j-pouch, and being a single mom of a young son. Concepts discussed in this episode: What Are the...

Duration:00:31:51

Motherhood Unplugged With Natalie Hayden

5/17/2021
It's one thing to talk to your physicians about becoming pregnant when you live with ulcerative colitis or Crohn's disease. But what about getting the benefit of experiences from the mothers who have been through a pregnancy, birth, and breastfeeding journey? Former news anchor and current blogger and Crohn's patient Natalie Hayden gives her experiences with pregnancy and receiving biologics, as well as how she has participated in research during her pregnancies and the benefits it offers...

Duration:00:41:45

IBD and Pregnancy With Jill Gaidos, MD

5/3/2021
We used to be told that women with IBD couldn’t have children. We were also told people with IBD shouldn’t have children. The truth is this: women with IBD get pregnant and have healthy pregnancies and babies. We have more evidence and guidance than ever before. Gastroenterologist Dr Jill Gaidos, Associate Professor of Medicine in the section of Digestive Diseases and the Director of Clinical Research for the Yale Inflammatory Bowel Diseases Program discusses the finer points of pregnancy...

Duration:00:36:13

Healthcare Disparities in IBD

4/5/2021
Hey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD. IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these demographics are changing, and IBD is now considered a global disease.[1] A harmful and pervasive misconception is that IBD does not affect people...

Duration:00:01:39

Derek Mari of Crohnie: It's Not Impossible

3/23/2021
Have you ever seen a person who lives with inflammatory bowel disease (IBD) in a movie or TV show? If so: was the depiction positive or negative? My guest is actor, writer, and filmmaker Derek Mari. Derek lives with Crohn's disease and his IBD journey inspired him to create a story that explores the way people cope with living with a chronic illness. He has already filmed a short film, entitled "Crohnie," which was positively received at several film festivals (before the pandemic shut...

Duration:00:30:09

Fully Vaccinated Against COVID-19

3/8/2021
Telling your Crohn's disease or ulcerative colitis story is powerful. It can be freeing but it can also come with some unexpected side effects. Welcome back Rosanne Mottola, who originally intended to talk over receiving her second dose of the Pfizer BioNtech COVID-19 vaccine. She told her ulcerative colitis story and about receiving her first dose on Episode 87, "COVID-19 Vaccination With UC Patient Rosanne Mottola." She gives her experience on her second dose, how it affected her, and...

Duration:00:20:25