CURE Epilepsy

In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor. The post Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy appeared first on CURE Epilepsy.

This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an epilepsy research lab at the University of Iowa. The post Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy appeared first on CURE Epilepsy.

Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy discusses the current state of research into Post-Traumatic Epilepsy (PTE). The post Post-Traumatic Epilepsy: What We Know and Where the Research is Going appeared first on CURE Epilepsy.

After losing her son to a sudden and devastating form of epilepsy, Nora Wong founded the NORSE Institute to raise awareness and fund research. The post The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy appeared first on CURE Epilepsy.

Jon Tuteur shares his journey with adult onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures The post The Sudden and Life-Altering Impact of Adult-Onset Epilepsy appeared first on CURE Epilepsy.

Dr. Laura O’Dwyer discusses the fastest growing segment of people living with epilepsy, adults over 65 years old. Dr. O’Dwyer provides an overview of the causes of epilepsy in older adults, the subtle signs to look for, and the importance The post Older Adults and Epilepsy: the Causes, the Signs, and the Treatments appeared first on CURE Epilepsy.

This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy chronicled in her recent memoir Seizing Control. The post One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery appeared first on CURE Epilepsy.

A mother uses her nursing knowledge to advocate for her son’s epilepsy care and surgery. The post A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery appeared first on CURE Epilepsy.

Dr. Daniel Goldenholz of Beth Israel Deaconess Medical Center discusses the current and potential impacts of artificial intelligence on epilepsy care. The post Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment appeared first on CURE Epilepsy.

This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode. The post Best of Seizing Life 2023 appeared first on CURE Epilepsy.

This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, about community, awareness, and advancing research. The post Rare Epilepsy Organizations: Fostering Community and Advancing Research appeared first on CURE Epilepsy.

This week on Seizing Life® Annette Adkins discusses the impacts of intractable epilepsy on her life, and how it led her to a regenerative brain cell clinical trial that has brought her a year of seizure freedom. The post Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom appeared first on CURE Epilepsy.

This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment. The post Infantile Spasms: The Facts, The Research, and The Hope for the Future appeared first on CURE Epilepsy.

This week on Seizing Life® Dr. Elizabeth Gerard discusses concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, we explore managing epilepsy through all stages of a woman’s life. The post Epilepsy in Women: Challenges, Concerns, and Considerations appeared first on CURE Epilepsy.

This week on Seizing Life® Peter Burpee shares his experiences with absence and tonic clonic seizures and explains why he’s running for Team CURE Epilepsy in the upcoming NYC Marathon. The post NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research appeared first on CURE Epilepsy.

This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents. The post Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child appeared first on CURE Epilepsy.

This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families. The post Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book appeared first on CURE Epilepsy.

This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal. The post An Extraordinary Life of Autism, Epilepsy, and Advocacy appeared first on CURE Epilepsy.

This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy. The post A Young Woman’s Journey with Jeavons Syndrome appeared first on CURE Epilepsy.

This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant. The post Pursuing Effective Epilepsy Treatment and Running for Research appeared first on CURE Epilepsy.