AlzAuthors: Untangling Alzheimer's & Dementia

Welcome to a special episode of the AlzAuthors podcast, part of our first-ever Film Festival! Celebrating our 10th anniversary, host Marianne Sciucco sits down with acclaimed arts educator, author, and filmmaker Mary Crescenzo to explore the transformative role of the arts in dementia care. In this heartfelt conversation, Mary shares her journey from early experiences in nursing homes to the creation of her poetic play-turned-film, "Planet A." We discuss her innovative, age-blind casting, the real-life stories inspiring her work, and practical strategies caregivers can use to bring arts engagement into dementia care—at home or in care facilities. Whether you’re navigating Alzheimer’s in your family, working in dementia care, or seeking creative approaches to foster dignity and connection, this episode is filled with inspiring insights and actionable tips. Key Topics Covered: Quotes: Takeaways: Resources and Links: AlzAuthors.com AmazonAlzAuthors WebsiteContact Mary CrescenzoSubscribe to our PodcastFacebookInstagramLinkedInPinterestTwitter/XBlue Sky Don’t miss our continuing film festival—visit our website for upcoming screenings, panel discussions, and more creative resources for the dementia journey. If you found this episode helpful, subscribe, share, and leave us a review! For more stories and support, visit alzauthors.com. Meet the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. Proud to be a Whole Care Network Featured Podcast Want to be on the podcast? Here’s what you need to know Shop our Store

In a conversation that challenges stereotypes and brings to light the unexpected realities of caregiving, this episode reveals the experiences of three men who stepped up to care for their mothers with dementia. It's a heartfelt exploration of grief, growth, and the bonds that are both tested and strengthened through caregiving. Shattering Stereotypes: Men as Caregivers We often associate caregiving with daughters, wives, and sisters, yet over 40% of caregivers are men. Many of them, like guests David Bredbenner, Alfredo Botello, and Vincent Zappacosta, find themselves in this role simply because "there really was no other option." Their stories reveal that caregiving isn’t just a woman’s job—it’s a human one. Vincent shares, “My mother and I were always close and I just didn’t trust anyone else to take care of her, because nobody knew her as well as I did.” David talks about “reacting, firefighting, and suddenly you’re just drawn in, and before you know it, it becomes part of your routine.” Alfredo, navigating life as an only child, speaks honestly about how necessity and love for his mother collided the moment his stepfather passed away. Lifestyle Overhauls and Personal Sacrifice For each son, caring for their mothers led to seismic shifts in their daily lives. Plans are always tentative, boundaries are tested, and a new form of “parenting” emerges. As Alfredo vividly describes: “Nobody told me growing up that I'd have another kid in my 50s—only she’d be in her 80s and have opinions!” From rearranging work schedules to leaving reassuring Post-its for an anxious parent, the logistics become second nature, though the emotional toll lingers. The men openly discuss balancing frustration, guilt, and even resentment with deep love. They offer comfort in recognizing that no one is “superhuman”: “It’s almost like we do expect ourselves to be perfect...and that never happened,” Christy reflects. While the stories in “Sons Caring for Mothers” circle around men, the lessons ring true for anyone on a caregiving journey. There are no perfect solutions, only the imperfect, beautiful bonds of love, memory, and forgiveness. After the Podcast Learn more about David, Vincent, and Alfredo and purchase their books here. Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

Join AlzAuthors Film Fest 2025 – Celebrating 10 Years of Dementia & Alzheimer’s Awareness Experience powerful films on dementia, Alzheimer’s, and caregiving—stories of hope, love, and resilience. Register now at AlzAuthors.com to receive streaming links and watch from the comfort of your home, anytime. Each month, meet a featured filmmaker in a live Q&A event at 2 PM ET, and explore their journey as storytellers and dementia care advocates. Don’t miss this unique opportunity to connect, learn, and be inspired in the fight against Alzheimer’s. Sept 8: Mary Crescenzo, “Planet A” Find out more about Mary Crescenzo https://alzauthors.com/alzheimers/mary-crescenzo-planet-alzheimers-guide/ Sept 22: Susie Singer Carter, “No Country For Old People” Find out more about Susie Singer Carter https://alzauthors.com/alzheimers/behind-the-scenes-of-nursing-homes-one-filmmakers-crusade-for-change-with-susie-singer-carter/ Oct. 6: Frank Silverstein, “Lousy: Love in the Time of Dementia” Find out more about Frank Silverstein https://alzauthors.com/dementia/frank-silverstein-lousy-love-in-the-time-of-dementia/ Nov 10: Kitty Norton., “Wine, Women and Dementia” Find out more about Kitty Norton https://alzauthors.com/alzheimers/please-join-us-next-month-at-the-2024-dementia-arts-festival-in-new-york-city/ Dec 8: C. Nathan Brown and his film, “The Present” Find out more about C. Nathan Brown www.ExposeDementia.org Join the Newsletter: https://sendfox.com/alzauthors Learn about the Moderators Marianne Sciucco https://alzauthors.com/alzheimers/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/ Christy Byrne Yates https://alzauthors.com/books-chit-chat/christy-byrne-yates-on-raising-kids-while-caring-for-parents-with-dementia/ About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.To sustain our efforts please donate here: https://alzauthors.com/donate Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network Want to be on the podcast? Here’s what you need to know: We’ve got merch! Shop our Store

Caregiving isn’t always a storybook journey, especially when family ties are already frayed. In this candid, emotionally charged episode, Jennifer Sullivan joins Christy Byrne Yates and Jean Lee, an acquisitions editor at AlzAuthors, to share her raw and inspiring account of caring for her mother with Alzheimer’s—through complicated family dynamics, financial crises, and the unique heartbreak of the COVID-19 pandemic. Discover how Jennifer turned deep childhood wounds and a rocky mother-daughter relationship into unexpected healing and clarity. Hear about her struggles with sibling responsibility, navigating Medicaid and memory care, and finally, the bittersweet reconnection with her mom just as the world—and their contact—shut down. Jennifer and the hosts dive deep into how dementia can shift family roles and reveal unspoken truths, the unexpected gifts that can emerge from even the most difficult relationships, and the importance of self-compassion on the caregiving journey. Top Takeaways: Memorable Quotes: “All the pressure I put on myself was taken away...not being afraid to just love has been one of the biggest gifts.” Where to Find Jennifer: JENNSULL.comnstagramWhen a Window Closes Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTubeSupport With a Donation Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here: https://alzauthors.com/donate Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know: We've got merch! Shop our Store

In this eye-opening episode, Christy and Marianne welcome back the formidable advocate, filmmaker, and podcast host Susie Singer Carter. Known for her poignant short film My Mom and the Girl —inspired by her experiences with her mother’s Alzheimer’s and starring the late beloved television actress Valerie Harper - and her award-winning podcast, “Love Conquers ALZ,” Susie shared details of her latest project, No Country for Old People, a stirring docuseries set to premiere on Amazon Prime August 1st. The conversation delves into the often-unseen challenges families face when loved ones require long-term or memory care. Despite finding what she believed was a 5-star facility for her mother, Susie encountered heartbreaking realities: inadequate care, chemical restraints, and a systemic unwillingness to change. As Susie recounted, “Most documentaries are labors of love. They’re not money makes. If you choose to do a documentary, it’s because you really care.” Her commitment shows not only in her work but in her partnership with retired federal prosecutor Rick Mountcastle (Dopesick), who spent decades investigating and prosecuting elder care fraud and neglect. Their collaboration—and the nearly 100 interviews with families, doctors, and whistleblowers—revealed this crisis is widespread, persistent, and demands urgent reform. Processing her own trauma, Susie found motivation in community and collective action. Inspired by the lack of real change through traditional advocacy, she and her partners founded ROAR—Respect, Oversight, Advocacy, and Reform for long-term care. “Any hard issue in our society has been overcome by the collective. That’s our power,” Susie urges. She invites everyone to join the movement, harnessing the “power of love” to demand oversight and expose the veiled corporate interests prioritizing profits over people. Join the movement nocountryforoldpeople.com and learn about ROAR. No Country for Old People will be featured in the AlzAuthors Fall Film Festival 2025 — sign up for our newsletter for details as they come out. Mentioned Resources No Country for Old PeopleNoCountryForOldPeople.comAlzAuthors.comMy Mom and the Girl Love Conquers ALZ About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. Please help: donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Learn about the Moderators Marianne Sciucco Christy Byrne Yates Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

In this powerful episode, Marianne Sciucco welcomes back friend of the podcast Lance A. Slatton, owner/operator of Enriched Life Home Care Services in Livonia, Michigan and host of the award-winning podcast All Home Care Matters. Together, they dive into Lance’s recent experience attending the Elizabeth Dole Foundation’s National Convening in Washington, DC, a major advocacy event supporting family caregivers, especially those caring for veterans and individuals with dementia. Tune in to hear insights into the unique challenges facing dementia caregivers, the extraordinary resources offered for military families, and the critical intersection of policy and real-world caregiving support. Key Discussion Topics: Caregiver Resources & Advocacy: Learn about the work of the Elizabeth Dole Foundation, which addresses the needs of military and veteran caregivers, and their innovative programs like Hidden Heroes and Hidden Helpers—designed for caregiving children & youth. Dementia & Veteran Care: Hear firsthand stories and the reality of caregiving for those with Alzheimer’s, dementia, and traumatic brain injuries—many of whom are combat veterans. National Policies Affecting Caregivers: Discover how public policy, including the recent Dole Act, directly impacts the resources and benefits available to caregivers and veterans. Hear how bipartisan efforts can drive real, meaningful change. Personal Journeys & Real Stories: Hear inspiring and emotional examples of caregiving from Lance, Marianne, and other leaders in the field—including Medal of Honor recipients and Dole Fellows who advocate tirelessly for America’s caregivers. Work-Life Balance for Family Caregivers: Insightful discussion around the career challenges caregivers face, the importance of caregiver-friendly employers, and the impact caregiving can have on personal and professional lives. Resources Mentioned Elizabeth Dole FoundationVA Caregiver Support ProgramAll Home Care Matters PodcastAlzAuthors.com Lance A. Slatton Bookallhomecarematters.com Learn about the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know: We’ve got merch! Shop our Store

In this heartwarming episode, Jean Lee, AlzAuthors founder and author of Alzheimer’s Daughter, joins us to discuss her personal journey of caring for both of her parents after their simultaneous Alzheimer’s diagnosis. Jean shares how she journaled her family’s dementia journey, the emotional process of turning those notes into a memoir, and the discovery of her parents’ World War II love letters during the difficult process of moving them into memory care. The conversation covers crucial topics facing caregivers—navigating diagnoses, managing moves to different care facilities, supporting siblings at a distance, and confronting the emotions tied to sharing private family stories. Listeners will also hear about the importance of community, storytelling, and connecting with others who understand life on the dementia journey. Plus, don’t miss Jean’s poignant reading of her parents’ correspondence and practical tips for families facing similar challenges. What You’ll Hear In This Episode: After the Podcast Purchase “Alzheimer’s Daughter” Read one of Jean’s many blog posts Listen to another podcast featuring Jean Lee Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

Poet Marjorie Maddox and acquisitions editor Sheila Luna join host Marianne Sciucco to discuss the healing power of poetry, the realities of long-distance caregiving, and finding hope through the complexities of Alzheimer’s and dementia. Maddox’s, recent collection, Seeing Things, explores the tangled emotional landscape of dementia caregiving. The discussion examines the ways poetry can illuminate and comfort those touched by memory loss. Marjorie reads several of the poems, a gift to all . The conversation moves beyond the personal to the universal. Marjorie shares that many poems in Seeing Things draw on her caregiving experiences for her mother, who lived with dementia, as well as her supportive role with her father-in-law—both journeys complicated by long distance and pandemic separation. As Marjorie admits, “You do feel so isolated when you’re going through it,” but the overlap in experience and shared vulnerabilities make poetry a communal space for catharsis. Poems in the collection touch not just on family memories but also larger societal losses—mass shootings and cave rescues—drawing lines between personal and collective grieving. Marianne and Marjorie bring up a topic rarely discussed: the fractured roles in family caregiving, particularly for long-distance caregivers. Marjorie, based in Pennsylvania, supported her mother by daily phone calls and periodic visits, while her sister managed in-person care in Phoenix. Meanwhile, her brother handled the finances. These divisions, while pragmatic, often go unrecognized, and both the emotional and practical burdens can be immense. The episode closes on the essential role of poetry—and storytelling—in chronicling caregiving journeys and connecting with others who walk a similar path. Whether it’s through a poem, a book, advocacy, or acts of compassionate service, these stories, hard-won and deeply personal, help others feel less alone. As Marjorie shares: “Being there for those little moments…even when you don’t feel like you’re doing anything, just holding someone’s hand… still does a lot.” And, perhaps, reading or writing poetry about those moments offers a light, a “slice of joy,” for a world too often shaped by loss. After the Podcast Purchase Seeing Things Learn about the Moderators Marianne Sciucco Sheila Luna About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We've got merch! Shop our Store

Poet Marjorie Maddox and acquisitions editor Sheila Luna join host Marianne Sciucco to discuss the healing power of poetry, the realities of long-distance caregiving, and finding hope through the complexities of Alzheimer’s and dementia. Maddox’s, recent collection, Seeing Things, explores the tangled emotional landscape of dementia caregiving. The discussion examines the ways poetry can illuminate and comfort those touched by memory loss. Marjorie reads several of the poems, a gift to all . Personal Stories Woven with Universal Truths The conversation moves beyond the personal to the universal. Marjorie shares that many poems in Seeing Things draw on her caregiving experiences for her mother, who lived with dementia, as well as her supportive role with her father-in-law—both journeys complicated by long distance and pandemic separation. As Marjorie admits, “You do feel so isolated when you’re going through it,” but the overlap in experience and shared vulnerabilities make poetry a communal space for catharsis. Poems in the collection touch not just on family memories but also larger societal losses—mass shootings and cave rescues—drawing lines between personal and collective grieving. The Unspoken Challenges of Long-Distance and Sibling Care Marianne and Marjorie bring up a topic rarely discussed: the fractured roles in family caregiving, particularly for long-distance caregivers. Marjorie, based in Pennsylvania, supported her mother by daily phone calls and periodic visits, while her sister managed in-person care in Phoenix. Meanwhile, her brother handled the finances. These divisions, while pragmatic, often go unrecognized, and both the emotional and practical burdens can be immense. Why Poetry Matters in Dementia Care The episode closes on the essential role of poetry—and storytelling—in chronicling caregiving journeys and connecting with others who walk a similar path. Whether it’s through a poem, a book, advocacy, or acts of compassionate service, these stories, hard-won and deeply personal, help others feel less alone. As Marjorie shares: “Being there for those little moments…even when you don’t feel like you’re doing anything, just holding someone’s hand… still does a lot.” And, perhaps, reading or writing poetry about those moments offers a light, a “slice of joy,” for a world too often shaped by loss. After the Podcast Purchase “Seeing Things” Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

This podcast brought together two remarkable friends—Peter Berry and Deb Bunt—for a conversation that was as inspiring as it was deeply honest. Hosted by Marianne Sciucco and Christy Byrne Yates, the discussion explored not only the personal journeys and books of Peter and Deb, but also the profound insights they’ve gained into living well with dementia. Peter's journey began with a diagnosis of early-onset Alzheimer’s at the age of 50. As a successful business owner, he was shocked—and initially devastated—by the news. He shares openly about the dark period following his diagnosis, describing it as “a year of hell,” marked by depression and even suicide attempts. What’s remarkable, though, is how Peter transformed that despair into a renewed sense of purpose. Inspired by both his own experience and his father’s long journey with Alzheimer’s, Peter resolved to become a source of hope and understanding for others facing similar challenges. Enter Deb Bunt, Peter’s cycling buddy-turned-co-author and close friend. Their relationship is a beautiful demonstration of how support doesn’t just flow one way. As Deb and Peter describe it, they each bring unique strengths to the friendship: Deb provides companionship and boundless camaraderie, while Peter offers technical know-how and navigational skills. Together, they reinforce the idea that living well with dementia is as much about mutual support and meaning as it is about medical care. This mutuality spills into their advocacy efforts—travelling throughout the UK, speaking at events, and writing books together. Their creative journey produced two books so far: Slow Puncture, a memoir of Peter’s life post-diagnosis, and Walk With Me: Musings Through the Dementia Fog, a collection of Peter’s raw and poetic reflections. Deb explained how Peter’s poetic descriptions became the muse for her own long-harbored ambitions to write, and how collecting Peter’s texts and turning them into a book gave both of them a sense of validation and purpose. These works don’t just recount Peter’s experiences; they offer a window into his emotional landscape—with metaphors that make the inexplicable aspects of dementia relatable. For Peter, cycling is like “a balloon that takes me high into the sky”—a momentary escape from the limitations of his diagnosis. Read their books: Slow PunctureWalk With Me Watch “The Restaurant That Makes Mistakes” About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

In this engaging episode, hosts Marianne Sciucco and Christy Byrne Yates are joined by fiction writer and caregiver,Alfredo Botello, and AlzAuthors’ acquisitions editor Ruth Stevens. Dive into a heartfelt and surprisingly humorous conversation as Alfredo discusses his novel, Spin Cycle, which explores the journey of a son caring for his mother with dementia. Alfredo, who transitioned from architect to screenwriter to novelist, and also runs a California dive bar, shares the inspiration behind his original story and opens up about balancing humor and heartbreak on the Alzheimer’s caregiving path. Key Highlights: Whether you’re a caregiver, a family member, or simply want to better understand Alzheimer’s and dementia, this episode offers vital insights, practical encouragement, and genuine laughter. Alfredo’s honest storytelling and the hosts’ empathetic questions highlight the challenges and unexpected gifts found on the dementia journey. Find Out More: Get Spin Cyclehttps://alfredobotello.com/https://alzauthors.com/https://alzauthors.com/blog Subscribe and Share: If you enjoyed this episode subscribe to the AlzAuthors podcast and share this story with someone who cares. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Welcome to a powerful episode of the AlzAuthors Podcast featuring acclaimed author Marita Golden and her novel, The Wide Circumference of Love, as part of the Aging & Amazing Book Club series. This engaging discussion dives into the storytelling craft, the nuances of family caregiving, and the realities of Alzheimer’s and dementia, especially in African American communities. An award-winning author of 22 books, Marita Golden shares her journey as a writer, from being a story-loving child in Washington, D.C., to producing literary works that explore social issues and healing. She shares how she came to write a story centered on a caregiver after immersing herself in caregiving spaces, meticulous research, and witnessing a friend’s torturous battle caring for her husband. Ms. Golden shares insights into the connection between writing and healing, and how journaling and other forms of writing can be vital mental health tools that promote resilience. She also speaks to the higher rates of Alzheimer’s and other dementias in the African American community, citing the lack of representation in clinical trials as one contributing factor, and speaks to why awareness and advocacy are more important now than ever. For readers and writers, Ms. Golden shares insight into the craft of writing, her writing routine, and her creative evolution. Key Takeaways: The Wide Circumference of Love, About Marita Golden: Marita Golden is President Emeritus and co-founder of the Hurston/Wright Foundation. She is also an educator and author of fiction and nonfiction exploring Black life, identity, and resilience. Her recent memoir, How to Become a Black Writer, is available now. Find out more about Marita Golden on her website. Read Marita’s AlzAuthors Blog Follow Marita Golden: Facebook Instagram LinkedIn Buy Marita’s books: The Wide Circumference of LoveUs Against Alzheimer’s Anthology About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children’s book, Come Grandpa Meow, Let’s Fly, adds a much-needed resource for families navigating the challenges of Alzheimer’s and dementia. A Personal Story Sparked by Loss Carol’s journey began more than 25 years ago, during her own father’s struggle with Alzheimer’s. She originally wrote the book as part of her grieving process, but it wasn’t until she’d spent years working at both local and national Alzheimer’s organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol’s children’s book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don’t just take our word for it—Come Grandpa Meow, Let’s Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you’re a caregiver, educator, parent, or grandparent, Carol’s book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Do you want to gain a deeper understanding of the impact of dementia on marriages? If you’re seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra’s expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra’s AlzAuthors blog post Visit Debra’s website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

David Bredbenner, author of "Going Home: A Journey with Dementia," shares his profound experience caring for his mother through her journey with dementia. Before dementia, Betty Jane was a dynamo - a retired nurse turned successful artist who ran marathons well into her late 70s. The decline began subtly after a fall, but it was the passing of David's sister Terry that marked the stark transition into full-blown dementia One of David's most powerful lessons was learning to "throw logic right out the window." Traditional reasoning and reality-checking only led to frustration. Instead, he discovered the transformative power of meeting his mother where she was, using humor and creative redirection rather than confrontation. Despite working in technology and traveling frequently, David and his sister made the conscious choice to keep their mother at home. While acknowledging it wasn't always possible for everyone, he describes it as both "pure hell" at times and "an absolute gift." The journey taught him profound patience and the importance of focusing on emotional connection rather than factual accuracy. Even in the most challenging moments - like when his mother became combative or refused care - David found that humor and gentle persistence could break through where logic failed. Perhaps most touching was David's reflection on love transcending understanding: "She knew she was loved...and she didn't have to know why." This simple but profound observation captures the essence of caring for someone with dementia - that connection and comfort matter more than comprehension. In this episode, you will: · Discover effective strategies for caring for a parent with dementia. · Understand the emotional journey of being a dementia caregiver and how to navigate it. · Explore the impact of Alzheimer's on family dynamics and relationships. · Uncover the process of writing a book about personal dementia experiences. · Learn practical and valuable strategies for managing dementia symptoms. After the Podcast Read David's AlzAuthors blog post Purchase “Going Home: A Journey with Dementia” Learn about the World Walks Against Dementia Learn about Norrms McNamara and Global Purple Angel Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution. Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter’s Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics. As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode. Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement. In this episode, you will: · Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one. · Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection. · Find ways to navigate the challenges of estrangement while providing loving care for your family member. · Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories. · Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible. After the Podcast Buy “In Search of Rainbows” Read Susan’s AlzAuthors Post Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

This episode is our contribution to Podcasthon, a global collaboration of podcasters to raise awareness of their favorite charities. Our favorite charity is us. We are a 501 (c) (3) organization. Please be generous. Donate at AlzAuthors.com. In this deeply personal and informative episode, hosts Marianne and Christy are joined by panelists Jean Lee, Ann Campanella, Loretta Woodward Veney, and David Iverson, all caregivers for ten or more years, as they explore the five pillars of caregiving – emotional toll, physical strain, financial difficulties, social isolation, and coping strategies. Key Themes & Takeaways: Emotional Toll: Caregivers shared moving personal stories of grief, guilt, and anger while navigating their loved ones’ dementia journeys. There is strength in allowing yourself to grieve, as highlighted by Ann Campanella, who stated, “Grieving clears the way to bring in joy and beauty.” Physical Strain: From exhaustion to disruption of sleep cycles, the taxing demands of caregiving impact physical health drastically. David emphasized practicing self-care through exercise and staying physically active as a necessary coping mechanism. Financial Difficulties: A significant challenge highlighted was the cost of care, with inputs from Jean, Loretta, and Dave emphasizing the overwhelming need for better elder care policies. Loretta noted how caregivers should proactively explore local programs like Medicaid waiver lists early on for financial support. Social Isolation: Many caregivers expressed feeling isolated, especially given the stigma surrounding dementia diagnoses. Loretta found joy in keeping her mother socially active, even organizing creative activities like Lego building to keep her mother engaged. Strategies for Coping: Incorporating joy into daily routines was a recurring theme, especially for Loretta, who promised her mom “a little bit of joy every day.” The authors shared reminders to stay connected with loved ones and leverage support groups for affirming connections and shared experiences. After the Podcast Learn more about the panelists Purchase their books Alzheimer’s DaughterBeing My Mom’s MomMotherhood: Lost and FoundWinter Stars: An elderly mother, an aging son, and life's final journey Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Have you been told to walk away from loved ones with Alzheimer's, assuming there's nothing left to connect with? The pain of feeling disconnected and hopeless in caregiving is all too real. But what if there was a way to find joy and connection in the midst of it all? Let's uncover the power of creativity and joy in dementia care together. In this episode, Marilyn Raichle, author of "Don't Walk Away: A Care Partner's Journey," provides valuable insights on the power of art therapy for Alzheimer's patients. Her personal experience caring for her mother showed her that her mother was still "in there," and they built the loving relationship theyb were unable to create in the past. Quote: People living with dementia have lives to live and gifts to give. Watch on YouTube Key lessons Art Reveals Hidden Abilities Discovering her mother's artistic talents showed that people with dementia still have gifts to share. Focus on What's Present Instead of dwelling on what's lost, concentrate on discovering and appreciating what remains in the person. Take Time to Just Be Spending quality time together, even just five minutes doing something enjoyable, can build meaningful connections. Listen More Than Talk Ask questions and truly listen to their answers, even if repeated, as they may reveal what's important to them. Find Joy in Small Moments Sharing laughter, songs, walks and simple pleasures can create happiness for both caregiver and care recipient. Accept Their Reality Meet them where they are rather than trying to correct or change their perspective. Love Can Still Grow Despite memory loss, the capacity for giving and receiving love remains intact. Resources mentioned in this episode: Participate in the Expose Dementia Conference, The Art of the Matter, happening March 28th to 30th at the Maritime Conference Center in Linthicum, Maryland. Learn more about the intersection of art and dementia care. Tune in to Podcasthon starting on March 15th and listen to the AlzAuthors episode featuring a discussion on the long-term impact of caregiving. After the Podcast Purchase Don’t Walk Away Learn more about the Moderators Marianne SciuccoChristy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Connection is key in dementia care. Discover the transformative power of arts engagement for people living with dementia in this inspiring conversation with Mary Crescenzo, author of “The Planet Alzheimer’s Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own.” In this heartfelt episode, a replay of an Aging & Amazing Books & Chit Chat discussion, Mary shares her decades of experience using various art forms to connect with and enrich the lives of people living with cognitive decline. From her early days as an art teacher to becoming a pioneering voice in arts engagement for dementia care, Mary offers practical, accessible ways to bring creativity into caregiving. You’ll learn: Mary’s Key Messages for Caregivers: Quote: “Art brings joy into the darkness of this disease.” - Mary Crescenzo After the Podcast Download Mary's Tip Sheet: 7 Tips for Connection and Communication through the Arts Get the book: The Planet Alzheimer's Guide by Mary Crescenzo Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you or the author. Read her AlzAuthors Blog Catch the Dementia & the Arts Podcast Episode Follow Mary Listen to her co-hosted show: Dementia and the Arts on Alzheimer's Speaks Resources mentioned: "Planet A" Remember: You don’t need to be an artist to engage in creative activities with your loved one. As Mary says, creativity is an innate human ability that can bring connection and joy to the dementia journey. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. Meet the Moderators Marianne Sciucco Christy Byrne Yates Support AlzAuthors We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store

Have you ever considered creating a “contract” with yourself as a caregiver—one that clearly defines what you can and cannot do? Debra Hallisey, caregiver advocate and author of A Relationship Contract for Dementia Caregivers, joins us to share her insights on navigating caregiving dynamics, especially for those caring for a loved one with dementia. In this heartfelt conversation, Debra offers practical tools and exercises to help caregivers embrace the reality of dementia while maintaining their emotional well-being. From her caregiving journey to her work supporting families, Debra provides a profoundly compassionate perspective on the challenges and rewards of creating a safe and loving environment for individuals with dementia. Whether you’re a caregiver or supporting someone who is, this episode is a valuable resource filled with actionable strategies and powerful insights to help you navigate the complexities of dementia care. Don’t miss it! In addition to learning more about relationship contracts, you’ll learn: Debra also offers the following advice for caregivers: Quote: “Grief runs through caregiving like a river” - Debra Hallisey After the Podcast: Buy the book, A Relationship Contract for Dementia Caregivers, by Debra Hallisey, Note: We are an Amazon Associate and may receive a small commission from book sales. Follow Debra Website Facebook LinkedIn Twitter Resources mentioned in this episode are: Wine, Women and Dementia by Kitty NortonGoodwin Living About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store