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Muscle Owl Radio

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Muscle Owl Radio is the podcast stream of The Muscle Owl. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Muscle Owl Radio is the podcast stream of The Muscle Owl. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.
More Information

Location:

London, United Kingdom

Description:

Muscle Owl Radio is the podcast stream of The Muscle Owl. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Twitter:

@muscleowl

Language:

English


Episodes

Muscle Owl Radio - Ep105: Charcot Marie Tooth! (OwlTalks#80)

5/9/2018
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For a long time we had been looking to produce an episode on the uniquely named neuromuscular condition, Charcot Marie Tooth! Finally, here is that episode! CMT is characterized by progressive loss of muscle tissue and touch sensation across various parts of the body. Meet our fabulous friend Allissa, who has the condition, as she explains it from her perspective.

Duration:00:16:06

Muscle Owl Radio - Ep104: Wellness for People with a Disability (OwlTalks#79)

5/9/2018
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Tune in to our of Muscle Owl talks from just a few months ago, when we discussed wellness for people with disabilities - what it means, why it is so important, and how we can achieve it! This was also our FIRST EVER episode hosted by the amazing Michaela Hollywood, and she is joined by our good friend Hannah Soyer, along with a new brilliant guest, Claire Senita!

Duration:00:17:33

Muscle Owl Radio - Ep103: LIVE with Vivek and Jordan from Action Duchenne Conference 2017 (OwlTalks#77)

5/9/2018
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Tune in to our Muscle Owl Talks LIVE episode from the Action Duchenne International Conference back in November 2017! Peter, Vivek, and Jordan Wright discuss Duchenne muscular dystrophy and accessible holidays!

Duration:00:18:38

Muscle Owl Radio - Ep101: Duchenne UK and DMD Pathfinders - Seeking Adult Perspectives (OwlTalks#75)

4/11/2018
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An episode of Muscle Owl Talks from November, as we talked with Duchenne UK and DMD Pathfinders. Duchenne UK were looking to recruit a panel of adults with Duchenne who can give their views on potential treatments and clinical trials.

Duration:00:17:26

Muscle Owl Radio - Ep99: Understanding the Clinical Trial Process for Rare Diseases (OwlTalks#73)

3/21/2018
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This week we host an episode of Muscle Owl Talks we filmed with Diana Ribeiro - the CEO of Action Duchenne. Diana answers our questions on the clinical trial process for families with a child who has a rare disease. If you have any questions, get in touch with us directly, or leave a comment below!

Duration:00:30:10

Muscle Owl Radio - Ep98: Duchenne Muscular Dystrophy - Just Children?! (OwlTalks#67 - 2017)

3/21/2018
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Duchenne muscular dystrophy…. A childhood condition? After reading a number of posts from around the community, Peter and Vivek respond with their thoughts. How do you think muscular dystrophies should be communicated? Is it fair to a condition to focus on certain age groups? Is it misleading to focus on children with Duchenne when as many adults have the condition? Share your thoughts with us!

Duration:00:21:10

Muscle Owl Radio - Ep97: Advice for Newly Diagnosed SMA Parents (OwlTalks#66 - 2017)

3/12/2018
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Here’s our Muscle Owl Talks episode from the final day of SMA Awareness Month. Michaela Hollywood gives some advice for people who may have just had a child diagnosed with the condition. It’s a reminder that the future can still be bright, and many people with spinal muscular atrophy live truly wonderful lives!

Duration:00:19:13

Muscle Owl Radio - Ep95: Hotel Hoists and Vivek’s Three Days in London! (OwlTalks#78 - 2017)

2/12/2018
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Have a listen to our Muscle Owl Talks Episode 78 from just a few months ago - it’s a catch up chat with the fabulous Vivek Gohil, as we chat about his trip to London, and hoists in hotels!

Duration:00:11:26

Muscle Owl Radio - Ep94: Michaela’s Car Breaks Down Annecdote! (OwlTalks#34 - 2017)

1/20/2018
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Join us for another throwback episode of Muscle Owl Talks from April 2017! Michaela recounts a chucklesome annecdote of how her car broke down on the way to buy some straws!

Duration:00:13:10

Muscle Owl Radio - Ep93: Men with Duchenne living into their 50s (OwlTalks#29 - 2017)

1/20/2018
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Join us for another throwback episode of Muscle Owl Talks from March 2017! Peter and Jon discuss how there are an increasing number of men with Duchenne muscular dystrophy living into their 50s.

Duration:00:10:27

Muscle Owl Radio - Ep92: Employment & Disability with Sulaiman & Vivek (OwlTalks#25 - 2016)

1/4/2018
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Just us for another throwback episode of Muscle Owl Talks from December 2016! We discussed employment and disability, from a muscular dystrophy perspective. Featuring Vivek and Sulaiman. “That sense of being able to work, the sense of feeling valued, it is so important.”

Duration:00:14:30

Muscle Owl Radio - Ep91: Ensuring adults of all ages can get access to treatments (OwlTalks#24 - 2016)

1/4/2018
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Here’s a throwback episode of our Muscle Owl Talks video show from December 2016! Peter and Jon Hastie discuss the importance of adults with Duchenne (of all ages!) getting access to treatment.

Duration:00:20:00

Muscle Owl Radio - Ep90: Life Expectancy & Muscular Dystrophy? (OwlTalks#20 - 2016)

1/4/2018
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Here’s a throwback episode of Muscle Owl Talks from November 2016! We discussed muscular dystrophy and life expectancy with Vivek and Jon Hastie. “If you outlive the age that they say you’re going to live, you can feel lost!” Using life expectancy for muscular dystrophy conditions? What do we think of it? Jon Hastie and Vivek discuss how talking life expectancy can often be unhelpful for Duchenne patients, and Michaela muses on her own experiences with SMA.

Duration:00:21:01

Muscle Owl Radio - Ep88: No Physio for People with MD?! (OwlTalks#18 - 2017)

12/14/2017
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“There is so much focus on us living longer lives, but if we don’t have the right care, and if nobody is accountable, then what is the point?” Vivek discusses the latest All Party Parliamentary Group for neuromuscular care, which was hosted by Muscular Dystrophy UK. Muscle Owl Talks Episode 18 is OUT NOW!

Duration:00:09:25

Muscle Owl Radio - Ep87: Duchenne Leadership (OwlTalks#16 - 2016)

11/20/2017
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In October 2016, we welcomed Jon Hastie onto the show for the first time, and discussed his charity DMD Pathfinders. We also spoke on how people with Duchenne can inspire each other! Here is our Muscle Owl Talks episode 16 for your listening ears!

Duration:00:19:44

Muscle Owl Radio - Ep85: Ableism Continued (OwlTalks#11 - 2016)

11/19/2017
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We look back to episode 11 of Muscle Owl Talks, which concluded our discussion on ableism in society. “Being talked to like you’re not like everybody else is just tiring, but at the same time, you don’t want to be mean to people.” “People are so afraid to say the wrong thing that they’ll often say nothing.” What are you views on ableism?

Duration:00:23:43

Muscle Owl Radio - Ep82: SMA Awareness Month 2017 (OwlTalks#65)

11/1/2017
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August is SMA Awareness Month - so check out our episode from just a couple of months back! We all know spinal muscular atrophy is a form of muscular dystrophy, but how do its different types vary? Hear our co-editor Michaela Hollywood​ (who has SMAtype2) explain in our recent edition of Muscle Owl Talks!

Duration:00:16:00

Muscle Owl Radio - Ep81: Buses, Wheelchairs, and the Supreme Court Ruling (OwlTalks#41)

11/1/2017
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We sat down to discuss travelling by bus for disabled people! Back in January the Supreme Court ruled a partial victory where bus drivers and operators are expected to use “moral force” if someone other than a wheelchair user is occupying the priority space on the bus. In recent weeks, bus operators and disabled people have said that more power to remove people is required. Here is our Muscle Owl Talks episode on the topic from March 2017!

Duration:00:10:00

Muscle Owl Radio - Ep80: What is Limb Girdle Muscular Dystrophy?! (OwlTalks#72)

10/11/2017
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Limb Girdle Awareness Day 2017 was a great success. Here is our special episode on the condition from the day! One of our fabulous team members, Zoe - who has limb girdle muscular dystrophy herself - explains diagnosis, adapting, and the fairly broad diversity that exists between the various condition types.

Duration:00:11:32

Muscle Owl Radio - Ep79: Action Duchenne Conference 2017 - Why Should You Go?! (OwlTalks#71)

10/11/2017
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One for all families in the Duchenne muscular dystrophy community! This is our Muscle Owl Talks show previewing the Action Duchenne Conference in November 2017. We are joined by Action Duchenne CEO Diana Ribeiro and Lynnette Ellison!

Duration:00:19:38