Can I Butt In?

Sam is joined by Mr Emilio Lozano to discuss a tool called LumenEye, which is used to perform what some refer to as “mini colonoscopies” in a range of scenarios. Emilio is a general surgeon with a special interest in anorectal neoplasia colorectal and general surgery in spinal injury patients and benign colorectal disease. LumenEye was created by MedTech company SurgEease. Emilio provides insights into the different types of endoscopies, including flexible sigmoidoscopy and colonoscopy, and explains which procedures are used for different patients and situations. Find out more about SurgEase Read the transcript for this episode. Find out more about Bowel Research UK Music is “Summer Guitar” by Amaksi from Pixabay.

Sam and guest Diane Kelsey draw attention to microscopic colitis – what is it, how is it different to ulcerative colitis, and how does it affect diet and lifestyle? Diane was diagnosed with microscopic colitis in February 2021 shortly after retiring from teaching, and she explains how her condition was diagnosed, what the symptoms were, how she manages it and how it affects her daily life. Read the transcript for this episode. Find out more about Bowel Research UK Music is “Summer Guitar” by Amaksi from Pixabay.

Researchers Robert Kerrison and Gerard Cummins talk to Sam about Samplecam, an innovative new type of capsule endoscopy currently in the works. They explain their research on Samplecam, which is a video capsule endoscopy that will also be capable of taking samples of the bowel as it travels through it. They discuss what a video capsule endoscopy normally does, how this technology will be different, and the potential impact on the patient. The episode also includes recordings from other members of this research team explaining how the technology could be used in primary care settings and why people with Lynch syndrome are being focused on at first. Rob also explains how patients have had their say in the direction of this research. Read the transcript for this episode. Find out more about Bowel Research UK Music is “Summer Guitar” by Amaksi from Pixabay.

Sam is joined by Olivia Rose, Chief Marketing Officer at Ostique, to talk about a new app for people with stomas. Ostique Connect is a first-of-its-kind support platform for ostomates, providing the opportunity to connect with others for one-to-one peer support. Olivia and Sam discuss the development of the app and the valuable feedback ostomates have provided during the beta testing process. Ostique website: https://ostique.co.uk/ Ostique Instagram: https://www.instagram.com/ostiqueltd/ If you have any questions about the app, you can email Ostique at: office@ostique.co.uk Read the transcript for this episode. Find out more about Bowel Research UK Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Steve Clark to discuss his research into the “nocebo” effect. Steve was diagnosed with stage 4 colorectal cancer in 2013 and has since become an active patient advocate. In 2017 he set up StriveForFive.org, a not-for-profit organization with the mission to give hope to fellow patients with stage 4 cancer. Steve and Sam talk about the nocebo effect – the idea that environmental influences or ideas could negatively impact treatment for cancer and other illnesses. You can read more about the nocebo effect at the link to the whitepaper below. Strive For Five website Steve's whitepapers: Navigating the nocebo effect through patient engagement is the key to setting patients up for success Patient Centricity to Integration: Enhancing Cancer Outcomes Read the transcript for this episode. Find out more about Bowel Research UK Music is “Summer Guitar” by Amaksi from Pixabay.

In a Rare Disease Day special, Sam provides an overview of several rare and lesser-known bowel conditions, including CIPO (chronic intestinal pseudo-obstruction), mesenteric plexitis, Hirschsprung’s disease, metastatic small bowel obstruction, paediatric IBD, and Enterocutaneous Fistula or ECF. She also explains the ultra-rare genetic condition constitutional mismatch repair deficiency (CMMRD) and its relationship with Lynch syndrome. Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay and Melancholic Guitar Sting Transitions by VoiceBosch.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Pete Wheatstone to discuss his experiences of having bowel cancer while being self-employed. They talk about how bowel cancer symptoms, diagnoses, treatments, and long-term effects impact business for those who work for themselves. They also cover the differences between being employed and self-employed with cancer, including the financial implications, support networks, and communication. Talk also turns to how researchers and clinicians can help people to make informed decisions on an individual, shared decision-making basis. Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Boddis to discuss the nuances of cancer language. What language does the media use to describe people with cancer, what do we say to each other in society, and how does that make us feel? Simon was diagnosed with bowel cancer in 2020 and has a permanent stoma. Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

In this episode of Can I Butt In, Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Jacqueline Black, a doctoral researcher at Kings College London with a background in health psychology. Some of her work is funded by Bowel Research UK, and they discuss how having a chronic illness can inflict stress on a patient, and how stress can affect the illness that a person experiences. Along with this they outline different methods that people can adopt to cope with that stress that comes with chronic illnesses, including creative writing. Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Louise Usher, a registered nutritionist, Crohn's disease patient and a guest Blogger for Bowel Research UK. She talks about her past experiences, how she became a registered nutritionist and how that allows her to help others with Crohn's disease. They also talk about the daily and holiday struggles of Crohn's patients and provide useful advice for dealing with the challenges that come with the disease. Furthermore, they provide plenty of information on what to do and what to avoid to reduce the risk of a flare-up while travelling, as well as how to get help from local resources. Find Louise on LinkedIn. Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Alicia Toon, Marketing and Communications Executive at Odin Vision. Together, they provide a simple explanation of what AI (Artificial Intelligence) is and what colonoscopies involve. They emphasize the benefits of combining AI with colonoscopies for both doctors and patients. Alicia discusses the research conducted by Odin Vision and highlights that the AI technology they are developing will be used as a tool to assist doctors rather than completely replace them, which has shown to be an important point for patients. Linked In: Odin Vision Twitter: @odin_vision Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK's Patient and Public Involvement Manager, Sam Alexandra Rose, is joined by Emma Tuschick and Karen Manton. Emma Tuschick is a doctoral candidate and research associate at Teesside University, while Karen Manton is an expert in bipolar disorder based on personal experience. They are part of a research team investigating the experiences, thoughts, and emotions of individuals with severe mental illness and learning disabilities regarding bowel, cervical, and breast cancer screening. They discuss the barriers and facilitators encountered by people with learning disabilities and mental illness in accessing cancer screening. Additionally, they present some promising research findings that could lead to significant changes and improvements in the medical field. PErson Centred Cancer Screening Study website: Home - PECCS (northumbria.ac.uk) PErson Centred Cancer Screening Study Twitter: @PeccsStudy Information about cervical smear home testing kits Sam mentions in this episode. Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Nigel Horwood, a guest blogger at Bowel Research UK and a Crohn's disease patient. They discuss the importance of organising your medical records appropriately and establishing strong relationships with your medical experts. Additionally, Nigel gives some tips, suggestions and shares some of his experience to help improve quality of life and to self-advocate when it comes to our health. Nigel's blog & book: https://www.wrestlingtheoctopus.com/ Nigel's Twitter/X: https://twitter.com/Crohnoid Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Simon Carding, Professor of Mucosal Immunology at the University of East Anglia and head of the Food Microbiome and Health Research programme at Quadram Institute in Norwich, along with Adele Sayers, a consulting colorectal surgeon at Sheffield Teaching Hospitals with an interest in IBD. In this episode, they discuss the gut microbiome, explaining what it is, the impacts it has on our entire body and how it is involved in IBD, the potential benefits we get from having a healthy gut microbiome, and how to keep it healthy. More information from Quadram Institute: Understanding the Microbiome - Quadram Institute Quadram Institute (@TheQuadram) / X (twitter.com) https://www.linkedin.com/company/10831092/ https://www.facebook.com/QuadramInstitute/ The Quadram Institute (@quadraminstitute) • Instagram photos and videos Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

In this episode of Can I Butt In, Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Matt Black and Steven Jones to discuss how workplace culture and environment can impact workers with illnesses and disabilities. Additionally, they discuss what arrangements can be made to improve communication and accommodate people with illnesses or disabilities. Matt had bowel cancer during the COVID lockdown and Steven Jones, founder of the Disability Connect mentoring scheme, is a wheelchair user with spinal muscular atrophy. Disability Connect is a disability inclusion specialist and works with organisations in the private, public and third sector. They specialise in sharing lived disability experiences through our services including focus groups, reverse mentoring, insight talks, product reviews and more. Details can be found here: - Website: https://disabilityconnect.org.uk/ - LinkedIn: https://www.linkedin.com/company/disability-connect-mentoring-scheme/?viewAsMember=true - Twitter: https://twitter.com/DCMS_Mentor Contact Disability Connect via e-mail: info@disabilityconnect.org.uk Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Eamonn Dunne, the Partnerships and Projects Development Manager for Thomas Pocklington Trust, a national charity supporting blind and partially sighted people. In this episode, they discuss the difficulties that people with visual impairments have when taking a FIT (Faecal Immunochemical Test), which can be essential for the early detection and diagnosis of bowel disease. Eamonn introduces a prototype, named FIT-aid, which could help people with visual impairments take a FIT with ease. Thomas Pocklington Trust Website: https://www.pocklington-trust.org.uk/ Facebook: @ThomasPocklingtonTrust Twitter: @TPTgeneral LinkedIn: @pocklington-trust Instagram: @thomas_pocklington_trust Read the transcript for this episode. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.

Bowel Research UK’s Patient and Public Involvement Manager Sam Alexandra Rose is joined by Sharon Applin and Charles West to discuss pelvic exenteration surgery and its impact on quality of life. Sharon had this surgery due to squamous cell cancer and Charles “Charlie” West is conducting research into the effects of this surgery known as empty pelvis syndrome. Charlie's Twitter handle: @charliewest89 Music is “Summer Guitar” by Amaksi from Pixabay. Read the transcript for this episode. Find out more about Bowel Research UK.

Find out what's coming up on "Can I Butt In?", the podcast from Bowel Research UK. We welcome bowel cancer and bowel disease patients, researchers, healthcare professionals and carers to "butt in" and share their experiences on a range of topics. Find out more about Bowel Research UK. Music is “Summer Guitar” by Amaksi from Pixabay.