Diary of a Kidney Warrior Podcast | Living with Kidney Disease

Carla shares how she was diagnosed with stage 5 kidney failure without warning, leading to dialysis and ultimately a kidney transplant. This episode explores missed signs, sudden diagnosis, and the reality of living through kidney failure. In this episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Carla — a kidney warrior and former mental health nurse — about her experience of being diagnosed with stage 5 kidney failure without warning. After earlier test results showed declining kidney function, Carla did not receive follow-up — and later found herself sitting in front of a consultant being told her kidneys were functioning at just 12%. What followed was a sudden transition into dialysis, a challenging and emotional journey through treatment, and ultimately, a kidney transplant. Carla shares her story with honesty and insight — from the shock of diagnosis, to navigating dialysis access and setbacks, to the mental and emotional toll of living with kidney failure. This episode is a powerful reminder of how kidney disease can progress silently, and the importance of listening to your body, asking questions, and advocating for your health. 🔹 Key Topics Covered If this episode resonated with you, please share it with someone who may benefit from hearing Carla’s story. Follow Diary of a Kidney Warrior Podcast so you never miss an episode — and join the Diary of a Kidney Warrior family for updates, support, and community. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

What does the difference a year make? Less than a year ago, Cam was in hospital — so unwell that he didn’t want his children to see him. Now… he’s preparing to run a marathon and attempt a world record. In this powerful episode of Diary of a Kidney Warrior Podcast, Cam shares his journey from a seemingly minor ear infection… to crashing into emergency dialysis with no warning, no preparation, and his life turned upside down overnight. This is a story about shock, survival, and what it really takes to rebuild your life after a diagnosis you never saw coming. 💚 IN THIS EPISODE, WE DISCUSS: 🎥 WATCH ON YOUTUBE (2-PART SERIES) This conversation is also available as a 2-part visual episode on YouTube. 👉🏽👉 Part 1 https://youtu.be/7dGYoHE0xrY. and 👉🏽👉Part 2 https://youtu.be/AmyoG49k2-M include the full video experience, additional context, and the journey in full. 💬 WHY THIS EPISODE MATTERS Cam’s story is a reminder that kidney disease can happen suddenly — and without warning. But it is also a powerful example of resilience, determination, and choosing to move forward… even when life changes overnight. If you are on dialysis, awaiting transplant, or supporting someone who is — this episode is for you. 🤝 SUPPORT CAM Support Cam’s World Record Marathon—Sponsor His Run! Kidney Care UK: Manchester Marathon 2026 Follow Cam on Instagram https://www.instagram.com/dialysisdasher?igsh=MWI0ZHJnd2s4dHJqZQ%3D%3D&utm_source=qr 🔗 CONNECT WITH DIARY OF A KIDNEY WARRIOR 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org 💚 FINAL WORD If this episode encouraged you, please share it — because someone out there needs to hear this story. And as always, Until next time, take care and choose to live. 💚 Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. kidney disease, dialysis, kidney failure, marathon runner, chronic illness, transplant journey, kidney warrior, patient story, resilience, CKD, haemodialysis, fitness and chronic illness, UK kidney patient, health podcast, inspirational story, marathon world record attempt, Kidney Care UK, kidney awareness, Diary of a Kidney Warrior Podcast

What is it like to be diagnosed with polycystic kidney disease (PKD) at just 10 years old—and to know it runs through your family? In this powerful episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Natasja about her lived experience of PKD, a hereditary kidney condition that has affected multiple generations of her family. From her great-grandmother to her mother and beyond, kidney disease is not just part of Natasja’s story, it’s part of her family history. In this honest and deeply personal conversation, Natasja shares what it’s like growing up with chronic kidney disease (CKD), navigating the emotional and physical realities of a lifelong condition, and facing serious complications along the way. In this episode, we cover: What polycystic kidney disease (PKD) is Being diagnosed with kidney disease at a young age The impact of hereditary kidney disease across generations Living with chronic kidney disease (CKD) Navigating serious health complications Finding strength through lived experience ⚠️ Content note: This episode includes discussion of serious complications related to kidney disease that some listeners may find difficult. This episode is a powerful reminder that behind every diagnosis is a real story, one of resilience, strength, and lived experience. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #PKD #PolycysticKidneyDisease #CKD #KidneyDisease #KidneyWarrior #ChronicIllness #HealthPodcast #PatientStory #KidneyHealth #HereditaryDisease #DiaryofaKidneyWarriorPodcast pkd, polycystic kidney disease, ckd, kidney disease, hereditary kidney disease, kidney health, chronic illness, patient story, kidney warrior, health podcast

Hi Kidney Warriors and friends, Dee Moore here! I wanted to share a personal update with you. Alongside the recent podcast episodes on weight and GLP-1, I’ve also shared a vlog on YouTube where I talk more openly about my own experience and how this connects to my kidney transplant journey. 📺 The vlog is available to watch on YouTube: https://youtu.be/RAa5ipo8b6k If you’re not already connected, you can also: Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the (free) Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp (free) Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r If you found this helpful, you can also watch/ listen to the recent episodes on weight, dialysis, transplant eligibility and GLP-1. Episode 155: GLP-1 Medications, Weight Loss & Kidney Transplant Eligibility | Beyond The Scale (Part 2) https://kidneycareuk.org/get-support/podcast/beyond-the-scale-glp-1-medications-weight-loss-and-kidney-transplant-eligibility/ Episode 154: Weight, Dialysis & Kidney Transplant Eligibility | Beyond The Scale (Part 1): https://kidneycareuk.org/get-support/podcast/beyond-the-scale-weight-dialysis-and-kidney-transplant-eligibility-part-1/ ⚠️ Disclaimer: This vlog is a personal update and is not part of the Diary of a Kidney Warrior Podcast partnership content. This content is shared for awareness and educational purposes only and is not medical advice. Please speak to your healthcare team for guidance specific to you. Until next time, take care and choose to live. #diaryofakidneywarriorpodcast #kidneydisease #ckd #kidneytransplant #dialysis #glp1 #weightlossjourney #patientstory #kidneyhealth kidney health podcast, kidney disease, chronic kidney disease, ckd, kidney transplant, dialysis, glp1, weight loss, transplant eligibility, patient story, kidney patient, uk health podcast, renal health, kidney awareness, health podcast

GLP-1 medications are being talked about everywhere right now — but what do they mean for people living with chronic kidney disease and dialysis? In Part 2 of this two-part series, we focus on GLP-1 receptor agonists, how these medications work, and what kidney patients need to understand when considering weight loss treatments in the context of kidney transplant eligibility. For many people living with chronic kidney disease (CKD), weight can influence access to transplant surgery. But navigating weight loss while on dialysis is complex, and treatments like GLP-1 medications should always be considered with specialist guidance. In this episode of the Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Dr Adrian Brown, Associate Professor in Nutrition and Dietetics, NIHR Advanced Fellow, and Senior Specialist Weight-Management and Bariatric Dietitian. Together they explore: • What GLP-1 receptor agonists are and how they work • Why these medications must never be used without medical supervision • The risks of buying weight-loss treatments online • How GLP-1 medications may be considered for some kidney patients • Why conversations about weight and transplant eligibility are often more complex than people realise This episode highlights the importance of evidence-based information, patient safety, and open conversations between patients and their renal teams. ⚠️ This episode is for educational purposes only and does not replace personalised medical advice. Always speak with your healthcare team about your individual circumstances. 🎧 Listen now and continue the conversation. If you found this episode helpful, please consider sharing it with someone navigating chronic kidney disease, dialysis, or kidney transplant pathways. Part 1 of this series explores BMI, dialysis, and kidney transplant eligibility in more detail. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Dr Adrian Twitter (X) @brownadey; LinkedIn: Adrian Brown UCL Website: https://profiles.ucl.ac.uk/6560-adrian-brown Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. GLP-1 Kidney transplant Chronic kidney disease Dialysis Weight loss Kidney health Transplant eligibility CKD GLP-1 medications Kidney disease podcast

Can your BMI affect whether you are eligible for a kidney transplant? For many people living with chronic kidney disease and dialysis, weight is not simply about health advice — it can directly influence access to transplant surgery. In Part 1 of this two-part series, Dee Moore explores the realities of weight, BMI thresholds, and transplant eligibility. Joined by Dr Adrian Brown, Associate Professor in Nutrition and Dietetics, NIHR Advanced Fellow, and Senior Specialist Weight-Management and Bariatric Dietitian, this episode unpacks: • How BMI is used in transplant decision-making • Why weight can influence surgical eligibility • The challenges dialysis patients face when trying to lose weight • The emotional impact of weight-related conversations • The importance of patient advocacy For many kidney patients, these discussions can feel overwhelming and deeply personal. This episode aims to bring clarity, compassion and understanding to a complex topic. 📌 This is Part 1 of a two-part discussion. In Part 2, we explore GLP-1 medications, weight loss treatment options, and what kidney patients need to consider when navigating transplant eligibility. 🎧 Listen now and continue the conversation. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Dr Adrian Twitter (X) @brownadey; LinkedIn: Adrian Brown UCL Website: https://profiles.ucl.ac.uk/6560-adrian-brown Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #diaryofakidneywarriorpodcast #KidneyDisease #Dialysis #KidneyTransplant #BMI #TransplantEligibility #CKD #KidneyWarrior

What is it really like to grow up knowing kidney disease runs in your family? In this powerful episode of Diary of a Kidney Warrior Podcast, Dee is joined by Jamie from Texas, USA, who shares her lived experience of Autosomal Dominant Polycystic Kidney Disease (ADPKD) — a genetic kidney condition that affects generations. Jamie opens up about: 🟩 Living with a hereditary kidney disease 🟩 The emotional impact of growing up with uncertainty 🟩 Family history and genetic risk 🟩 Fear, resilience, and mindset 🟩 What living with ADPKD really looks like day to day This honest conversation shines a light on the realities of genetic kidney disease, while also sharing a message of hope, strength, and empowerment for anyone affected by chronic kidney disease (CKD), PKD, or long-term health conditions. 🎧 Listen now and share this episode with someone who may need encouragement or understanding today. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Jamie https://www.instagram.com/finchmod/ https://www.tiktok.com/@finchmodcc Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #ADPKD #PolycysticKidneyDisease #KidneyDisease #CKD #GeneticDisorder #ChronicIllness #KidneyHealth #InvisibleIllness #HealthPodcast #ChronicIllnessAwareness #PatientStory #KidneyWarrior #DiaryOfAKidneyWarriorPodcast

In this powerful Kidney Warrior Story, host Dee Moore is joined by Hakeem, who openly shares his lived experience of growing up with sickle cell disease (SC genotype) and later being diagnosed with chronic kidney disease (CKD). From early health challenges to navigating kidney failure, dialysis, and the emotional impact of long-term illness, Hakeem reflects on the realities of living with multiple long-term conditions — and the resilience it takes to keep going. This conversation explores identity, acceptance, faith, mindset, and the importance of hope when the journey feels overwhelming. If you are living with kidney disease, sickle cell, dialysis, or supporting someone who is, this episode offers reassurance, representation, and a reminder that you are not alone. In this episode, we discuss: • Growing up with sickle cell disease and its impact on health • Being diagnosed with chronic kidney disease • Navigating dialysis and long-term treatment • The emotional and mental health challenges of CKD • Finding strength, purpose, and hope through lived experience • Why sharing kidney warrior stories matters 💚 Diary of a Kidney Warrior Podcast is a safe space for kidney patients, families, carers, and health professionals — sharing real stories, trusted information, and hope. 👉🏽👉 Listen now and don’t forget to follow, rate, and share to help this podcast reach more kidney warriors who need it. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Hakeem 📸 Instagram @hadizafoundation_uk https://www.instagram.com/hadizafoundation_uk?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw== 📺YouTube: https://youtube.com/@hadizafoundation7243?si=fpPp3wG_4L4apI8l Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. Hashtags: #KidneyWarrior #ChronicKidneyDisease #CKD #KidneyDisease #DialysisLife #SickleCell #SickleCellAwareness #KidneyHealth #PatientStories #LivedExperience #HealthPodcast #KidneySupport #YouAreNotAlone

New Year, New You: Why Gut Health Matters for Kidney Patients What does New Year, New You look like when you’re living with kidney disease? In this episode, we explore gut health and why it matters for kidney patients, including the relationship between the gut microbiome and chronic kidney disease (CKD), inflammation, diet and wellbeing. Kidney dietitian Tadala shares practical and realistic ideas for Kidney Warriors in 2026, covering: • gut health & kidney health • the gut microbiome • dietary restrictions in kidney disease • probiotics & prebiotics • plant diversity & fibre • slowing the progression of CKD • kidney-friendly nutrition • realistic lifestyle changes • supporting health in the new year If you have ever wondered what can I eat with kidney disease?, does gut health matter for CKD?, or what practical steps can Kidney Warriors take?, this episode will support you. This conversation focuses on education, empowerment and choice for people living with kidney disease, without pressure or perfection. Next episode: A powerful Kidney Warrior story — resilience, hope and choosing to live beyond a diagnosis. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Tadala LinkedIn: https://www.linkedin.com/in/tadala-kolawole-3470381ba?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. Keywords: kidney disease, chronic kidney disease, CKD, kidney health, renal health, kidney patients, kidney warrior, gut health, gut microbiome, probiotics, prebiotics, fibre, kidney diet, renal diet, kidney-friendly nutrition, slowing progression, chronic illness, new year new you, kidney dietitian, kidney care, kidney wellness We’d love to hear from you! Share your comments, questions, or suggestions—or let us know if you’d like to be a guest on the podcast—by emailing us at diaryofakidneywarrior@kidneycareuk.org And don’t forget to rate and review the show wherever you listen—it really helps others find us!

Choice. Knowledge. Resilience. Hope. As we step into 2026, this special highlights episode brings together some of the most powerful, informative, and encouraging moments from Diary of a Kidney Warrior Podcast in 2025. This episode is designed to empower, inform, and uplift — whether you’re living with kidney disease, supporting someone who is, or working within kidney care. Across seven carefully curated themes, you’ll hear: Why choice, voice, and autonomy matter in kidney care What it really means to live with chronic kidney disease over the long term How people maintain identity, resilience, and purpose alongside illness Clear, accessible explanations from experts on dialysis, transplantation, and patient rights Honest conversations about food, culture, and everyday kidney-friendly choices Why women’s health and menopause must be better understood and listened to in kidney care Messages of hope, gratitude, and encouragement from people who truly understand the journey These are real voices. Real experiences. Real expertise. Shared to remind you that you are not alone and that knowledge truly is power. 🎥 Prefer to watch? The audio + visual version of this episode is available on YouTube. If this episode resonates with you, please: Share it with someone who might need it Follow or subscribe to the podcast Leave a review to help others find these conversations Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyDisease #ChronicKidneyDisease #CKD #KidneyHealth #Dialysis #KidneyTransplant #PatientVoice #HealthEquity #LivingWithCKD #KidneyWarrior #HealthPodcast We’d love to hear from you! Share your comments, questions, or suggestions—or let us know if you’d like to be a guest on the podcast—by emailing us at diaryofakidneywarrior@kidneycareuk.org And don’t forget to rate and review the show wherever you listen—it really helps others find us!

Welcome to a special Christmas Day bonus episode of Diary of a Kidney Warrior Podcast, created in partnership with Kidney Care UK. In this episode, Dee is joined by returning guest Moe (Episode 144) to share heartfelt messages sent in by listeners, kidney patients, past guests, and Kidney Care UK staff. These messages are filled with hope, encouragement, gratitude, and resilience — for anyone living with chronic kidney disease (CKD), on dialysis, waiting for a kidney transplant, or supporting a loved one through kidney failure. You’ll hear reflections on: • coping with dialysis and protecting mental health • waiting for “the call” for transplant and living with uncertainty • the life-changing gift of kidney transplantation • honouring living donors and deceased donors’ families • finding strength through community and shared stories 🎥 Important: The full audio + video version of this episode is available on YouTube: https://youtu.be/hUHpVpz3rFY ✅ If this episode helps you: • Follow/Subscribe to the podcast • Leave a review (Apple/Spotify) to help more kidney warriors find support • Share this episode with someone who needs encouragement • Consider talking with your loved ones about organ donation and your donation decision Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Moe Instagram @MrCoolBeans2889 TikTok @MrCoolBeans Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #Christmas #DiaryOfAKidneyWarriorPodcast #KidneyCareUK #KidneyWarrior #CKD #ChronicKidneyDisease #Dialysis #KidneyTransplant #OrganDonation #RenalHealth #TransplantJourney #ChronicIllness #PatientSupport #Hope #Encouragement #Gratitude #ChristmasPodcast We’d love to hear from you! Share your comments, questions, or suggestions—or let us know if you’d like to be a guest on the podcast—by emailing us at diaryofakidneywarrior@kidneycareuk.org And don’t forget to rate and review the show wherever you listen—it really helps others find us!

This Christmas Day, Diary of a Kidney Warrior Podcast is releasing a very special bonus episode — and you’re invited to be part of it. “A Very Kidney Warrior Christmas: Heartfelt Messages of Hope, Encouragement, and Gratitude” In this short trailer, Dee shares details of the upcoming Christmas Day episode, where she and co-host Moe will be reading out messages sent in by the kidney community. These messages will come from podcast listeners, past guests, and Kidney Care UK staff, all offering words of hope, encouragement, and gratitude to support kidney patients during the festive season. If you’re living with kidney disease, supporting someone who is, or simply want to send a message of kindness to another Kidney Warrior, we would love to hear from you. 📅 Important deadline: Messages must be submitted by Tuesday 23rd December — yes, it’s a short deadline, but even a few words can make a big difference. 🎤 How to take part: Submit your message using the link below: 👉🏽👉 https://diaryofakidneywarrior.getform.com/10w58 Whether it’s a message of hope, encouragement, gratitude, or simply letting someone know they’re not alone, your words could bring comfort to someone listening on Christmas Day. Join us in coming together as a community and sharing warmth, compassion, and support this Christmas. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org #DiaryOfAKidneyWarriorPodcast #KidneyWarrior #KidneyDisease #ChronicIllness #ChronicIllnessSupport #KidneySupport #KidneyCommunity #DialysisLife #TransplantLife #RenalHealth #LivingWithKidneyDisease #ChristmasWithChronicIllness #ChristmasSupport #HopeAndEncouragement #Gratitude #MentalHealthMatters #EmotionalWellbeing #YouAreNotAlone #KidneyCareUK #PodcastCommunity We’d love to hear from you! Share your comments, questions, or suggestions—or let us know if you’d like to be a guest on the podcast—by emailing us at diaryofakidneywarrior@kidneycareuk.org And don’t forget to rate and review the show wherever you listen—it really helps others find us!

Christmas can be beautiful… and heavy—especially when you’re living with kidney disease. In this special seasonal episode of Diary of a Kidney Warrior Podcast (in partnership with Kidney Care UK), host Dee Moore is joined by two renal counsellors, Sarah and Paula, to talk honestly about the emotional realities of the holiday season and how kidney patients (and loved ones) can navigate it with more calm, support, and hope. Together, we explore why Christmas can bring a mix of emotions—from joy and community to grief, exhaustion, overwhelm, and pressure—especially when you’re balancing dialysis, medication side effects, fatigue, and changing family expectations. In this episode, you’ll hear: ✅ Why Christmas can feel emotionally challenging (and also uplifting) with chronic illness ✅ A powerful way to think about kidney disease during the holidays: the “uninvited guest” analogy ✅ How hope helps you keep going—and what to do when you can’t generate hope yourself ✅ The mental health benefits of gratitude, including simple “top and tail” daily practices ✅ Practical coping strategies: cutting the “Christmas fluff,” planning ahead, protecting your energy, and taking 5-minute self-care resets ✅ Permission to do Christmas your way (yes—even if you hate turkey!) If this season feels hard, please remember: you’re not alone. You don’t have to carry everything by yourself. Be gentle with your body, be kind to your mind, and take things one moment at a time. 🎧 Listen now and share this episode with someone who may need support this Christmas. 📺 Prefer to watch? The full audio + video version is available on YouTube: https://youtu.be/0m2FLqlZvQc If this episode helped you, please follow/subscribe, leave a review, and share it with a friend—it really helps more kidney patients/warriors find the podcast. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #KidneyDisease #ChronicIllness #Dialysis #KidneyWarrior #KidneyCareUK #Renal #MentalHealth #EmotionalWellbeing #ChristmasWithChronicIllness #HolidayStress #Hope #Gratitude #Resilience #SelfCare #ChronicIllnessSupport #CKD #LivingWithKidneyDisease #PatientSupport #HealthPodcast #Podcast We’d love to hear from you! Share your comments, questions, or suggestions—or let us know if you’d like to be a guest on the podcast—by emailing us at...

What happens when menopause meets chronic kidney disease? How do you know if it’s your hormones, your kidneys or your medication talking? And what options are actually on the table if you’re living with CKD, on dialysis or post-transplant? In this special listener-led edition of Diary of a Kidney Warrior Podcast (in partnership with Kidney Care UK), host Dee Moore is joined again by menopause specialist Dr Vikram to answer questions sent directly from the Kidney Warrior community. Together they unpack real-life concerns about: •Navigating menopause symptoms alongside CKD, dialysis or transplant •When HRT may or may not be suitable if you have kidney or liver disease •Non-hormonal options for hot flushes, night sweats, mood and sleep •Period changes on haemodialysis and after transplant •Bone health, osteoporosis risk and steroids •Fibroids, endometriosis, early menopause and hysterectomy in the context of CKD •How to advocate for yourself with your GP, renal team and menopause services You’ll also hear a powerful call from Dr Vikram for better research that truly includes women with CKD, especially those from ethnic minority backgrounds – and why your story and participation matter. 🔔 Please note: This episode is for education and information only and does not replace medical advice. Always speak to your GP, renal team or menopause specialist about your own situation. 🎥 Watch the visual version on YouTube This episode is also available as a filmed visual and audio conversation on YouTube. Search “Diary of a Kidney Warrior Podcast Episode 148” on YouTube to watch. 🎧 Continue the conversation For the first part of this topic, listen to Episode 142 – “Breaking the Silence: Menopause and CKD.” 👉🏽👉 If this episode helps you: •Share it with another Kidney Warrior, family member or support group •Follow/subscribe to the podcast so you never miss an episode •Leave a review to help more people living with CKD find this conversation •Send in your questions for future listener-led episodes – your voice shapes this podcast Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Dr. Vikram Talaulikar 🐦Twitter (X) @VikramSinai 👨🏽‍⚕️Linked in - Vikram Sinai Talaulikar 📸Instagram:- menopausecliniclondon, vikramsinaitalaulikar 📘Facebook: Menopause Clinic London Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or...

A special filmed edition of Diary of a Kidney Warrior Podcast is coming on Monday 1st December! In this listener-led conversation, menopause specialist Dr Vikram returns to answer the questions sent in by the Kidney Warrior community about menopause and chronic kidney disease (CKD). This new edition continues the important discussion from Episode 142: Breaking the Silence: Menopause and CKD. 👉🏽👉 If you haven’t listened to Episode 142 yet, we recommend starting there to get the full context before this new episode arrives. Available on Podbean, Apple Podcasts, Spotify, YouTube, Amazon Music and more! Stay tuned — you won’t want to miss it! Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org We’d love to hear from you! Share your comments, questions, or suggestions—or let us know if you’d like to be a guest on the podcast—by emailing us at diaryofakidneywarrior@kidneycareuk.org And don’t forget to rate and review the show wherever you listen—it really helps others find us!

In this powerful episode of Diary of a Kidney Warrior Podcast, Dee sits down with Louise, a kidney warrior whose journey with IgA nephropathy spans over 30 years – from diagnosis in her early 20s, to pregnancy complications and heartbreaking baby loss, to finally receiving her life-changing kidney transplant, lovingly named “Katie the Kidney.” Louise shares how her kidney disease was first discovered during pregnancy, the devastating loss of her son, and how for decades she coped by “putting everything in a box” and carrying on with life. She talks about living abroad with only 22% kidney function, unknowingly walking 20K with undiagnosed angina, and why kidney disease can be such a silent condition. In an emotional and hope-filled conversation, Louise describes the moment she received “the call” for transplant, watching her donor kidney arrive in a cooler from Edinburgh, and being wheeled to theatre with Katie the Kidney on the end of her bed. She also opens up about the emotional healing that came with kidney failure – exploring trapped emotions, trauma, faith, and learning to truly take responsibility for her health and wellbeing. If you’re newly diagnosed, living with chronic kidney disease (CKD), resisting the idea of dialysis or transplant, or struggling emotionally with your diagnosis, this episode will give you hope, validation and practical encouragement. In this episode, we discuss: •Louise’s first signs of kidney disease and IgA nephropathy diagnosis •Pregnancy, kidney disease and the loss of her baby son •Living 30+ years with CKD and feeling “fine” at 22% kidney function •Discovering angina during transplant workup •Getting the call and meeting “Katie the Kidney” •How transplant changed her energy, skin, and brain fog •The emotional side of kidney disease: grief, trauma, “putting it in a box” •Why acknowledging your diagnosis and caring for your mental health is essential •Louise’s advice for anyone newly diagnosed or scared of dialysis / transplant You are not alone. Kidney disease is not the end – it’s part of your story, not your identity. 💚 Connect with Diary of a Kidney Warrior Podcast: •Follow, rate and review on your favourite podcast app •Share this episode with a fellow kidney warrior •Tag us on social media and let us know your biggest takeaway 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r 💬 Connect with Louise: Facebook: facebook.com/shinewithlou Instagram: @iamlouisefletcher TikTok: @shinewithlou Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK...

In this powerful Kidney Warrior Story, host Dee sits down with Tony to unpack a decade-spanning journey through chronic kidney disease (CKD)—from a shock Stage 4 diagnosis of IgA Nephropathy (IgAN) to Stage 5 kidney failure, peritoneal dialysis (PD) with brutal drain pain, a transition to haemodialysis (HD), line infection and coma, the courage to self-needle with a fistula, and ultimately the life-changing gift of a kidney transplant. Tony shares the practical and emotional realities few hear about: choosing PD vs HD, APD (overnight machine) vs manual gravity bags, buttonhole vs rope-ladder needling, home haemodialysis training, fluid management, and rebuilding confidence after hospital trauma. He explains how movement and sport (from 5K Parkruns to half marathons) helped his mental health on dialysis—and how he kept going after FIVE “dry-run” transplant calls before finally receiving his match. Post-transplant, Tony competed at the Transplant Games (bronze in cycling!), then faced a sudden cycling accident with a broken talus—and still came back stronger with kidney function over 90%. Tony’s message? You’re not alone. With support, information, and small, consistent steps, more is possible than you think. WHAT YOU’LL HEAR • Early signs missed: high blood pressure and “white coat” assumptions • Stage 4 to Stage 5 CKD: understanding IgA Nephropathy and next steps • Peritoneal Dialysis (PD): APD vs gravity bags, real talk on drain pain • Haemodialysis (HD): line infection → coma, then fistula and self-needling • Buttonhole vs rope-ladder: how Tony overcame needle phobia • Home HD routine + exercising safely on dialysis (5K to half marathons) • Five transplant calls that didn’t happen—coping tools that helped • The call that changed everything: consent, surgery, waking the kidney • Transplant Games success—and recovery after a serious cycling crash • Mental health: therapy, peer groups, and why talking saves lives • Practical tips: fluid limits, pacing activity, and building back slowly • Community resources: Kidney Care UK, young adult kidney groups KEY TAKEAWAYS • Movement is medicine—start with what you can manage (even 100 metres). • Your effort matters—even when decline happens, you may be delaying harm. • Build your circle: family, peers, clinicians, therapists, Kidney Care UK. • Advocacy counts: read clinic posters, join groups, ask questions. • Mindset + support = progress. Small daily actions add up. If you’re newly diagnosed or supporting someone with CKD, browse our back catalogue for in-depth episodes on PD, HD, transplant prep, and mental health. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r FOLLOW TONY 📸Instagram: https://www.instagram.com/ironkidney.lifeaftertransplant?igsh=MTVwOXBwb3lnbDNhMg%3D%3D&utm_source=qr 📘Facebook: https://www.facebook.com/share/1HzCgxUAYS/?mibextid=wwXIfr 🎵TIKTOK: https://www.tiktok.com/@the.iron.kidney?_t=ZN-8yFOIFBpWOE&_r=1 SUPPORT & RESOURCES Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the...

In this special Black History Month edition of Diary of a Kidney Warrior Podcast, Dee is joined by renal dietitians Timi and Tadala—contributors to Kidney Care UK’s African and Caribbean Recipes magazine—for a powerful and inspiring conversation about African food, culture, and kidney health. Together, they explore how beloved traditional African dishes can be adapted to support kidney health without losing the flavours, memories, and cultural identity that make them so meaningful. From managing potassium, phosphate, salt, and portion sizes to choosing smart cooking methods that protect kidney function, this episode is packed with practical tips, cultural insight, and kidney-friendly food wisdom. Whether you’re living with CKD, on dialysis, post-transplant, or supporting a loved one, this conversation will empower you to enjoy your heritage foods with confidence — without compromising your kidney health. ⸻ In This Episode You’ll Learn: •Why African cuisine is deeply tied to family, heritage, and community •Simple ways to make traditional meals more kidney-friendly •How soaking, boiling, freezing and food preparation methods can reduce potassium •Tips for managing phosphate and avoiding hidden sources in processed foods •How to cut back on salt while keeping your food full of flavour •Why there is no one-size-fits-all kidney diet •How to use herbs, spices, and seasoning alternatives to cook delicious meals that support kidney health ⸻ 🎥 Want the FULL Experience? Watch the Cooking Demonstration on YouTube! This audio episode features the interview portion of our Healthy Heritage Series. To see the step-by-step cooking, ingredients, visuals, and final dishes, watch the full video version on YouTube. 👉🏽👉 Watch now on YouTube: https://youtu.be/S3AjQx_ES8k ⸻ About This Series The Healthy Heritage Series celebrates the richness of African and Caribbean food traditions, while providing guidance to help Kidney Warriors enjoy the meals they love — confidently and healthily. This is Part 1 (African Foods) of a two-part series. ⸻ If you found this episode helpful, please follow, rate, and share to help more Kidney Warriors find this life-changing information. Until next time: take care, and choose to live. 💚 Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Get your print copy of the Kidney Kitchen African & Caribbean Recipe Book: https://kidneycareuk.org/get-support/healthy-diet-support/kidney-kitchen/order-kidney-kitchen-magazines/ Or browse and read the online version here: https://kidneycareuk.org/get-support/healthy-diet-support/kidney-kitchen-magazines/kidney-kitchen-african-caribbean-recipes/ Start enjoying kidney-friendly African and Caribbean recipes today! Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice....

This Black History Month, Diary of a Kidney Warrior Podcast shares an inspiring story of strength, resilience, and hope. When what began as a routine illness led to a life-changing diagnosis, Moe’s world was turned upside down. In this powerful episode, he opens up about his journey through chronic kidney disease, the sudden medical crisis that tested his limits, and the discovery that changed everything. Moe’s experience shines a light on the realities of living with CKD — from malignant hypertension and often-overlooked symptoms to the mental and emotional toll of navigating serious illness. He also shares the importance of self-advocacy, support networks, and the hope found through the gift of living kidney donation. This Black History Month special is both moving and educational — a reminder to know your numbers, check your blood pressure, and never ignore the signs your body is sending. Listen, comment, and share to raise awareness and inspire others on their own kidney health journey. 💚 #diaryofakidneywarriopodcast Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Mo Instagram @MrCoolBeans2889 TikTok @MrCoolBeans Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

This powerful episode of Diary of a Kidney Warrior Podcast reunites host Dee with Lucy, a Specialist Nurse in Organ Donation (SNOD), for a frank, myth-busting conversation about deceased organ donation in the UK. Four years after their first chat, Lucy returns to unpack what’s changed since England moved to an opt-out system (May 2020), why families still have the final say, and how your conversation today can save lives tomorrow. Dee & Lucy explore the realities behind Organ Donation Week, clarify the law and clinical safeguards (brain stem death and circulatory death), confront common misconceptions (like “doctors won’t try to save me” or “they weren’t really dead”), and spotlight the human impact—for grieving families and transplant recipients alike. You’ll also hear practical, compassionate ways to start the donation conversation at home, how to nominate a key representative on the NHS Organ Donor Register, and why every single “yes” matters when only ~1% of deaths happen in circumstances suitable for organ donation—amid 8,000+ people waiting and only ~1,400 donors last year. In this episode, you’ll learn: •What the opt-out law really means (and doesn’t): when it applies, why family consent is still required, and how to record an explicit opt-in. •How death is confirmed in the UK: independent teams, strict tests, and legal definitions (brain stem death & circulatory death). •The role of your family: why registered + discussed decisions lead to consent ~98% of the time—and how to make your wishes crystal clear. •Practical scripts & starters for talking about donation (from TV moments to family gatherings) and why even a short note/letter can help. •Benefits for families: meaning, comfort, and legacy during grief—plus how follow-up info (anonymised) can support healing. •Benefits for recipients: life-changing freedom from organ failure and dialysis—alongside a realistic look at immunosuppression. •Equity matters: why people from Black and Asian communities often wait longer, and how community champions and faith leaders can move the needle. •Suitability myths busted: age, past illness, blood-donation rules ≠ organ-donation rules—register and let clinicians assess. •Action steps for Organ Donation Week: register, nominate a key representative, talk to your loved ones, and share your decision. Resources & next steps •NHS Organ Donation: organdonation.nhs.uk — learn the facts, read about faith & beliefs, register your decision, and nominate a representative via the site or NHS App. •Share your wishes today: tell your partner, parents, siblings, or closest friend exactly what you want—and ask them to support that decision. If you’d accept an organ for yourself or someone you love, say “yes” to giving, too. Your voice could be the one that turns a tragedy into many tomorrows. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The...