Invisible Not Broken - Chronic Illness Podcast Network

Monica Michelle is joined by consultant and podcast host Nick Clemmons. Nick lives with Sickle Cell Disease. In this episode, Monica and Nick discuss: TIMESTAMPS 00:42 - ADA, Title IX, and disability access in schools 20:08 - How Nick makes and achieves opportunities 28:40 - Media and disability 40:42 - How to respectfully be concerned about someone else’s needs The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by consultant and podcast host Tim Reitma. Tim lives with Crohn's Disease. In this episode, Monica and Tim discuss: TIMESTAMPS 00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy 15:41 - Why Tim started his podcast 22:42 - Invisible condition etiquette 31:00 - What HR can do better for employees with invisible illness 39:31 - Tools Tim uses to care for his Crohn’s outside the home The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by artist and disability advocate Sunny Ammerman Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss: TIMESTAMPS 00:45 - What VR/AR offers for chronically ill and disabled folks 11:57 - Sunny’s conditions and how she copes with them 17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences 37:13 - The social aspects of virtual gaming 51:32 - What opportunities VR has for the future 1:04:49 - Sunny’s VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by Journalist Julia Metraux. Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID. In this episode, Monica and Julia discuss: TIMESTAMPS 00:32 - Julia's diagnostic journey 07:02 - Julia’s work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks 26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyle The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author & physiotherapist Kevin Hunt. Kevin lives with chronic pain. In this episode, Monica and Kevin discuss: TIMESTAMPS 00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life’s needs 14:00 - Putting aside the idea of a “quick fix” 19:45 - Kevin’s personal experience with pain and how he uses it with patients 28:44 - Kevin’s book, “Pain: The Ultimate Mentor” The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author & personal trainer John K. Frazier. John lives with ankylosing spondylitis. In this episode, Monica and John discuss: TIMESTAMPS 00:50 - John’s business & diagnosis 07:19 - Chronic pain olympics 09:31 - Talking about & hiding a diagnosis 15:09 - Personal triumph 18:24 - Staying in the present 23:29 - The superman complex The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by musician Laura Mustard. Laura lives with VATER syndrome. In this episode, Monica and Laura discuss: TIMESTAMPS 00:30 - Laura’s new EP / Monica’s recent COVID experience 05:32 - Relationships with chronic illness 11:20 - Image and self acceptance with disability 15:32 - Laura’s creative process and current projects 20:05 - Pursuing creativity despite social media attention The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author Amanda Chay. Amanda lives with Sjögren’s and Lupus. In this episode, Monica and Amanda discuss: TIMESTAMPS 00:26 - Intro + The Girlfriend’s Guide to Lupus 02:17 - Amanda’s diagnosis 10:09 - Amanda’s outlook on writing 17:11 - Navigating chronic illness with kids & family 23:29 - Labels and roles 26:24 - Flare reads & closing remarks The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author Amanda Chay. Amanda lives with Sjögren’s and Lupus. In this episode, Monica and Amanda discuss: TIMESTAMPS 00:26 - Intro + The Girlfriend’s Guide to Lupus 02:17 - Amanda’s diagnosis 10:09 - Amanda’s outlook on writing 17:11 - Navigating chronic illness with kids & family 23:29 - Labels and roles 26:24 - Flare reads & closing remarks The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author Alexis Kline. Alexis lives with Dysautonomia. In this episode, Monica and Alexis discuss: TIMESTAMPS 00:28 - Alexis’s diagnosis & dog 07:18 - Sick teenager road map 10:00 - Alexis’s book & workflow 16:25 - Having an isolated diagnosis 20:50 - Wildlife photography, purchases The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author Emily Falcon. Emily lives with ALCAPA. In this episode, Monica and Emily discuss: TIMESTAMPS 00:28 - Being a sick kid & Emily’s book title 07:28 - Mortality 10:16 - Portrayal of disability in media 12:21 - Post-surgery support 19:23 - Having a public body 23:43 - Self-motivation 29:46 - Emily’s tips for adventures The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by writer and entrepreneur Micaela Hoo. Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease. In this episode, Monica and Micaela discuss: TIMESTAMPS 00:24 - The start of Micaela’s diagnosis journey 14:42 - Gastroparesis & Micaela’s research 16:52 - Healthcare insurance, wait times, and bad docs 21:52 - Micaela’s research pays off 25:52 - Medical closure 29:33 - Micaela’s businesses The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by physical therapist Rita White. Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS. In this episode, Monica and Rita discuss: TIMESTAMPS 00:38 - Rita’s diagnosis and job 04:58 - “pushing through the pain” 14:10 - handling bad days & Rita’s business 19:28 - productivity and patience 26:16 - favorite purchases under $100 & closing remarks The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by author Sara Staggs. Sara lives with epilepsy. In this episode, Monica and Sara discuss: TIMESTAMPS 00:30 - Sara’s writing process 06:03 - Sara’s diagnosis & college 09:44 - Pregnancy & parenting 13:37 - Disability disclosure in dating and parenting 19:17 - Characters with chronic illness 24:36 - Seizure first aid and life with epilepsy 27:37 - Favorite purchases under $100 The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com #epilepsy #epilepsyawareness #author #UncontrollableBook #SaraStaggs Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is once again joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss: TIMESTAMPS 02:20 - Platonic 11:42 - Somewhere Boy 14:09 - More favorite shows 21:38 - Favorite books 26:17 - Appreciating moments of delight 30:42 - Parenting through guided experience Series mentioned in this episode Available on Apple TV+ Available on Hulu Available on Netflix Other The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by activist Cosmo C. Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia. In this episode, Monica and Cosmo discuss: TIMESTAMPS 00:33 - Cats and LARPing 12:05 - Adulting on disability income 22:01 - Privilege and prejudice 31:19 - Deadlines, speech, and steroids The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss: TIMESTAMPS 06:17 - Dion’s diagnosis 14:44 - Music career & food 21:42 - Self advocacy 26:05 - Disparities in care of dialysis centers 31:27 - How to speak with healthcare professionals 35:22 - Distilling down our purpose in life 37:11 - Favorite apps and culinary tools The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by activist Kim Luke. Kim lives with multilevel spondylosis, POTS, and fibromyalgia. In this episode, Monica and Kim discuss: TIMESTAMPS 00:51 - How Kim started 10:54 - Kim’s work 16:03 - Pain clinic negligence 19:33 - Healthcare in politics 27:08 - Recommendations for teaching and advocacy 31:47 - Disability Tech Business Idea 36:04 - The flat effect 40:12 - Pillows! The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by lawyer, author, comedian, and activist Julia Irzyk. Julia lives with Lupus, Osteoarthritis, Degenerative Disk Disease, and Fibromyalgia. In this episode, Monica and Julia discuss: TIMESTAMPS 00:56 - COVID-19 09:10 - Masks in healthcare environments 16:31 - Wheelchairs, flipping them, and HIPPA 18:21 - Julia’s new book 23:03 - COVID-19 in the entertainment industry 24:57 - Access to pain medicine 33:26 - Final Thoughts The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information.

Monica Michelle is joined by activist Lisa Weiner. Lisa lives with Charcot Marie Tooth Disease and Scoliosis. In this episode, Monica and Lisa discuss: TIMESTAMPS 0:37 - What is Charcot Marie Tooth Disease? 4:42 - Lisa’s experience growing up with CMT 19:07 - Braces are no fun 24:47 - Center for Independence of Individuals with Disabilities 20:30 - CMT Association Awareness Month 31:55 - Final Thoughts The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Thank you and enjoy! Hosted on Acast. See acast.com/privacy for more information.