Uniquely Human: The Podcast

Shannon Rosa and Carol Ann Greenburg are parent-professionals and partners in developing and sharing their on-line resource, A Thinking Person’s Guide to Autism, one of the very first resources to provide valuable information to the autistic and neurodivergent communities. In their own words, the mission of TPGA is to be a a one-stop source for carefully curated, evidence-based, neurodiversity-steeped information from autistic people, parents, and autism professionals. They emphasize that autism acceptance is not merely noble but necessary—and are separate matters from the autistic and other autism communities’ never-ending fights for medical, legal, social, and educational accommodation. The goal of TPGA is “to help fast-forward past society’s rampant autism fabrications and negativity, by providing clear, thoughtfully presented, balanced, and referenced information”. Barry and Dave discuss TPGA in the context of Shannon and Carol’s experiences as parents, and as advocates for the autistic community. Learn more about this episode and find useful resources on our website!

Episode 103 • Understanding Autism: A Discussion with Autistic Film Producer and Director, Scott Steindorff Scott Steindorff, an accomplished autistic film producer and director travelled the world to make his new film, “Understanding Autism“. Barry and Dave discuss Scott’s personal experiences leading to his motivation and goals in creating this feature length documentary. Visit the Episode's webpage for more info and resources

Episode 102 - Insights into Neurodivergence Following Brain Surgery: A Discussion with Jacki Edry, Autism Advocate, Parent and Cancer Survivor. Jacki Edry’s personal journey as a brain surgery survivor and parent of autistic and neurodivergent children provides unique insight into the neurodivergent experience. Additionally, her courage and persistence during her ongoing process of recovery, and her desire to help others based on her experience is an incredible story from which we all can learn. Jacki shares her journey with Barry and Dave, and all she has learned that may be of benefit to neurodivergent individuals and their families. Find out more info and important resources on our website

One of the least understood, and most marginalized groups of autistic people are those who are non-speaking, or who have minimal or unreliable speech due to neurologically-based motor speech disorders. Nonspeakers’ “voices” are now being heard, and what they have to say is shattering erroneous stereotypes about those for whom speech is not their primary mode of communication. Harmful beliefs about how speech and behavior are accurate reflections of a person’s intelligence and social awareness are being discarded. We initially spoke three years ago with Ian Nordling, a young autistic man who has benefitted from Spelling to Communicate (S2C), and Elizabeth Vosseller, who developed (S2C). In this episode, we get an update on progress for non-speakers. Learn more about this episode on our website! Follow us on social media

We are celebrating our 100th Episode! We couldn't have done this without you, our Uniquely Human Community. Thank you! Love on the Spectrum is an Emmy award-winning Netflix reality TV show that follows young adults on the autism spectrum as they explore dating, love, and relationships. The show is based on an Australian version of the same name. Dave and Barry join Elaine Hall, who consults to the show and helped with casting, and with Steve and David, two autistic cast members, in a discussion of their experiences on the show, and the importance of relationships in their lives. Learn more about the episode on our webstie!

A great and harmful myth perpetuated for decades is that autistic people are incapable of deep connection, empathy, and loving relationships with others. Over the years, diagnostic criteria have included wording to this effect. We now know that this generalization is inaccurate, largely due to an understanding that autistic children and adults may “show up” in different ways in relationships. As with all people, however, the desire to connect and develop trusting and loving relationships is clearly a part of the autistic experience. Dave and Barry discuss these issues from a historical, clinical, and first person perspective. Find out useful resources and learn more on the episode's website!

Temple Grandin on Understanding Different Minds: Its importance in Education, Life Skills and Eventual Employment for Younger Autistic Individuals One of the many groundbreaking contributions that Dr. Temple Grandin has made in her career is increasing awareness of different learning styles demonstrated by autistic and neurodivergent individuals. Her work has been applied in enhancing employment opportunities and education for older autistic individuals, but less so for younger children. In her new book, Different Kinds of Minds, she reaches out to younger children, their families and educators on this essential topic. In this far-reaching discussion, Barry, Dave and Temple discuss the longer term implications of her work for autistic individuals, and society in general. Learn more and find useful resources on our website

In recent years, there has been increasing interest in a range of medical conditions experienced by individuals diagnosed with autism and other neurodivergent conditions. Autistic and neurodivergent individuals, diagnosed and undiagnosed, may present with complex conditions that cause considerable discomfort and pain, and that have a significant detrimental impact on quality of life. In some cases, concerns about medical conditions may be the “gateway” issues that lead to a diagnosis of autism, in previously undiagnosed individuals. However, many physicians are not trained to explore the complex and at times, puzzling interactions between medical conditions and neurodivergence. Dr. Lenz, with a career of “in the trenches” expertise, discusses these issues with Barry and Dave with a focus on compassionate medical care and life-style changes that best support autistic and neurodivergent people. Learn more about this episode on our website!

Jaya Ramesh and Priya Saaral, both neurodivergent professionals and parents of neurodivergent children bring a unique perspective to the challenges and gifts of raising children of color. Based on their new book, Parenting at the Intersections, we discuss the barriers that families of color face over and above those encountered by all families who have children with neurodevelopmental differences, as well as all that can be learned in each family’s journey. Find out more about the episode, and useful resources, here

How to Dance in Ohio is a heart-filled new musical that explores what it means to belong, the courage it takes to put yourself out in the world, and the universal need to connect. The musical follows the challenges and triumphs faced by a group of seven autistic young adults at a counseling center in Columbus, Ohio. The center arranges a spring formal dance, and encourages them as they encounter love, fear, stress, excitement, and hope along the path to human connection. We speak with Linda J. Walder, Founder and Executive Director of The Daniel Jordan Fiddle Foundation that honored the cast and crew with the DJF Foundation Adult Autism award, and with Rebekah Greer Melocik, book author and lyricist, and Nicole D’Angelo, Assistant Music Director and member of the show’s access team. Learn more and find useful resources on our website!

In his first description of autism, Leo Kanner noted that “insistence on preservation of sameness” was a distinguishing characteristic of autistic individuals. This may be manifest in a number of characteristics including “resistance to change” and the need to maintain routines that have been established in daily activities. Often such patterns may be manifest throughout the lifespan and too often, are described primarily as problematic and as a “symptom” of autism. But what if rather than viewing “control” through the lens of pathology, we consider the “deep why”. That is, from the perspective of the person who is viewed as controlling, what functions might be served by such patterns? Barry and Dave discuss the issue of control from their own personal experiences. Explore more about the episode Find more episodes of De-Pathologizing Series

Autistic and other neurodivergent people of all ages are vulnerable to many factors, both internal and external, that may lead to anxiety and phobias. Dr. Karen Levine’s publications and clinical innovations have directly addressed these challenges in respectful and insightful ways. We discuss ways to understand such challenges and provide support based on a deeper understanding of the experiences shared by autistic individuals and neurodivergent individuals. Karen discusses her approach focusing on relationships, affective support, and the use of humor in co-regulation . Explore more on the episode's webpage.

One of the most challenging behavioral patterns observed in neurodivergent individuals with developmental challenges (and, in fact, all children!), is when they verbally or nonverbally communicate “NO”. In fact, the term “Non-compliance” has been the most frequently used phrase when characterizing refusal or protest behavior, and such behavior most often raises the “ire” of an adult partner. In approaches that focusing only on the surface behavior, and do not explore the “deep why”, reducing “non-compliant” behavior is often targeted in behavior plans for children. However, when a child communicates “NO”, the picture may be much more complex than it first appears. In this first episode or our de-pathologizing series, Barry and Dave explore these complexities. Find out more in the episode's website

Dr. Mary Doherty founded Autistic Doctors international to unify autistic voices who work in medical and health care to “have a seat at the table” in establishing policies and practices sensitive to the needs of neurodivergent individuals. She believes that the lived experience of autistic professionals is essential to shift medical and healthcare practices to be more effective and neuroaffirming. Barry and Dave discuss these issues with Mary. Find out more on our website

Amanda Diekman discusses and provides examples of the approach she refers to as “Low Demand Parenting” and presents this approach in contrast to advice often given to parents of autistic and other neurodivergent children. With her lived experience as a mother of three neurodivergent children, and as an autistic person, she challenges many mainstream beliefs about raising children, especially those who are defined as having behavioral patterns perceived as problematic by others. Her work prioritizes building trusting relationships focused on supporting the emotional growth and well-being of children. Find out more about this episode here

It is widely recognized, but unfortunately, that most attention is paid to understanding and supporting autistic individuals in their childhood years, but much less so in middle-aged and older individuals. The result is a critical need for understanding of the experience of autism in older and late-diagnosed individuals, both from a research and support need perspective. These issues are discussed with Christine Jenkins, an autistic advocate and professional with expertise and personal experience in this much needed area of focus. Dive deeper into this episode, with useful resources, on our website

Dr. Peter Vermeulen, a Belgian Psychologist, is an important international voice in his constructive criticism of popular views on understanding the autistic experience. He is one of the rare professionals who dedicates much of his time and effort to applying the most recent research on human cognition to thinking deeply about the inner experiences of autistic people. And he does so in the service of making direct links to implications and strategies for support. In this episode, Barry and Dave discuss some of Peter’s thought-provoking perspectives. Explore more useful resources on this episode's website

The experience of autism creates complex relationships for many in a shared community, that can result in misunderstandings and even anger directed to others. People in these relationships include autistic individuals, parents, family members, educators, therapists, and many significant others. That said, there is also great potential for loving, mutually supportive and trusting relationships, but that takes work. Elaine Hall wears many hats, as a neurodivergent parent-professional, author, speaker, and consultant in film and TV. Despite significant barriers for her and her son, she has navigated and has thrived on her journey with grace and deep gratitude that is a gift to so many. Dave and Barry join Elaine in a discussion of the experience of feeling gratitude, and the importance of sharing those feelings with others. Learn more and find resources on the episode's website

An understanding of the experiences of non-speakers, or those with minimal speech, is an essential part of the neurodiversity movement. With the appropriate supports, including AAC technology, non-speakers who were silent for years, are now capable of sharing their experiences and their feelings about being misunderstood and too often mistreated. Elizabeth Bonker, a non-speaking autistic woman, discusses her journey and her commitment to educating society and supporting the millions of neurodivergent non-speaking individuals, so many of whom have so much potential to contribute to an inclusive, humane society when provided with effective means to communicate. Note from the hosts: Questions were submitted to Elizabeth ahead of time due to the length of time it takes to formulate and type responses. This is a common procedure when non-speakers are asked to respond to interview questions or are on panels and giving presentations at conferences. Learn more about this powerful episode and find out great resources here

Chris Antao is the lead Surf Therapist, Trainer and EMT at his non-profit, Gnome Surf Therapy. He has grown Gnome Surf into the fastest growing Surf Therapy Organization globally. As founder and Executive Director, Chris has completed over 3,000 hours surfing with athletes of various ages and abilities, making him one of the most experienced Surf Therapists globally. He was an early contributor to the International Surf Therapy Organization, where he helped mold best practices in surf therapy. He majored in Psychology at Sacred Heart University with a focus on Child Development. Since then, Chris has established Gnome Surf as a strong value-based organization for children and adults of all abilities focusing on inclusion, acceptance, diversity and equality. Check the episode's webite for more info!