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AlzAuthors: Untangling Alzheimer's & Dementia

Arts & Culture Podcasts

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com. Featuring Marianne Sciucco, RN Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease. Learn more about Marianne at AlzAuthors.com. Purchase "Blue Hydrangeas" Featuring Christy Byrne Yates, M.S., LEP Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology. Learn more about Christy at AlzAuthors.com. AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

Location:

United States

Description:

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com. Featuring Marianne Sciucco, RN Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease. Learn more about Marianne at AlzAuthors.com. Purchase "Blue Hydrangeas" Featuring Christy Byrne Yates, M.S., LEP Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology. Learn more about Christy at AlzAuthors.com. AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

Language:

English


Episodes
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Seize the Day: Embracing Life's Moments with Alzheimer's

4/30/2024
Perhaps you can’t cure or even prevent Alzheimer’s, but what if you could slow the disease progression? Want to unlock the secrets to living in the moment with Alzheimer's? Get ready to embrace practical advice and actionable insights for a positive journey with Alzheimer's and dementia in this podcast with Danel Gibbs, MD. He’s a retired neurologist with extensive knowledge in the anatomy of the brain and the disease process of Alzheimer's and dementia. His personal experience living with Alzheimer's provides a unique perspective, enhancing his credibility in discussing practical approaches to managing these conditions. He’s the author of "A Tattoo on My Brain" and "Dispatches from the Land of Alzheimer's," which offer a collection of essays and vignettes that provide valuable insights into the cognitive health and well-being of those living with Alzheimer's or dementia. His writing style, which simplifies complex scientific concepts, ensures that his work is accessible to a wide range of audiences, and his contributions to the understanding and management of Alzheimer's and dementia make him an essential guest on the podcast. Quotes: “For those of us on the Alzheimer's journey, it's really important to embrace the moment and not dwell on the frustration of trying to remember the past and plan for the future. Happiness and peace come from focusing on the moment.” - Daniel Gibbs, M.D. “We don't have to wait for a cure. We can just do things that really make a significant difference, that are available, evidence proven, and don't cost anything. Except maybe a gym membership.” - Daniel Gibbs, M.D. In this episode, you will: Resources mentioned: Trial MatchNational Institutes on Health - Clinical TrialsMind DietMediterranean Diet After the Podcast Buy the Dispatches from the Land of Alzheimer's and A Tattoo on My Brain Watch the documentary A Tattoo on My Brain Read Daniel’s AlzAuthors Post Visit Daniel’s Blog Listen to Previous Podcasts: Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer’s Disease Writing Through the Fog About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:00:50:49

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Laughter, Tears and Connection: Discussing a Novel Born from Alzheimer's Experience

4/16/2024
Delight in the surprising journey of Ruth Stevens, from crafting a stage play to penning a heartfelt novel about Alzheimer's. Delve into the unexpected twists and turns as Ruth shares her personal experiences and the emotional impact of her work. Stay tuned for eye-opening insights on turning personal stories into fiction and a sneak peek into her upcoming duology. Get ready to be captivated by Ruth's incredible journey, as she shares the highs and lows of her creative process. For our March installment of Books & Chit Chat, our monthly Book Club collaboration with Aging & Amazing, we talk with Ruth Stevens, a former public relations professional from New York City and LA, and the author of the debut novel "Stage Seven," inspired, in part, by her personal experience dealing with her mother's Alzheimer's disease and decline. A fiction story acquisitions editor with AlzAuthors and a member of the Dramatists Guild of America and Women's Fiction Writers Association, Ruth brings a unique perspective to her writing, infusing humor and tenderness into a difficult topic. Her storytelling abilities, honed through a career in creative writing, advertising campaigns, and numerous articles for magazines, newspapers, and journals, shine through in her work, offering a compelling and relatable portrayal of Alzheimer's and its impact on family dynamics. Like enjoying a performance of her play, you’ll laugh, you’ll cry, you’ll learn a lot. Have a listen. Quote: “I feel like your play gave me permission to move on with my life”. - Audience member In this episode, you will: After the Podcast Buy the Book Stage Seven Find more about Ruth Stevens at https://ruthfstevens.com/ Listen to Ruth on on the Hilarity for Charity (HFC) and AlzAuthors Summer Book Club Follow Ruth on Social Media: Instagram Facebook Goodreads Blog About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:00:59:21

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The Caregiving Podcaster: Broadcasting Resources from His Unique Vantage Point

4/2/2024
When you’re caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers aren’t able to meet your needs. If any of this sounds familiar, this episode will be of comfort. Our special guest is Lance A. Slatton. Lance A. Slatton, the founder of a prominent home care company in southeastern Michigan, brings a wealth of personal experience and professional expertise to the table. His caregiving journey, rooted in profound connections with his grandparents and later involving the care of his grandmother during her dementia and his father's health crisis, has deeply influenced his perspective on family caregiver support. Drawing from these experiences, Lance established his own home care company, driven by a commitment to improving caregiver well-being and patient care. His unique insights, stemming from real-life situations, position him as a credible and valuable resource for individuals navigating similar caregiving challenges. Quotes: Knowing you are not alone is crucial. Seek out others who can understand and relate to what you're going through and educate yourself. - Lance A. Slatton If you've seen one person with dementia, you've only seen that one person. There are so many different variables and all these situations. - Lance A. Slatton I wanted to put something out there that is talking to family caregivers. It's half book, half guide, going through the whole caregiving journey with a lot of great resources and information. - Lance A. Slatton In this episode, you will: After the Podcast Enriched Life Home Care Services https://www.elhcs.com/ All Home Care Matters Podcast https://allhomecarematters.com/ Lance's Book: All Home Care Matters Official Family Caregivers' Guide Ethics of Social Media show: Social Media Episode Unboxing Show: Unboxing Episode About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:00:47:39

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The Caregiving Podcaster: Broadcasting Resources from His Unique Vantage Point

4/2/2024
When you’re caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers aren’t able to meet your needs. If any of this sounds familiar, this episode will be of comfort. Our special guest is Lance A. Slatton. Lance A. Slatton, the founder of a prominent home care company in southeastern Michigan, brings a wealth of personal experience and professional expertise to the table. His caregiving journey, rooted in profound connections with his grandparents and later involving the care of his grandmother during her dementia and his father's health crisis, has deeply influenced his perspective on family caregiver support. Drawing from these experiences, Lance established his own home care company, driven by a commitment to improving caregiver well-being and patient care. His unique insights, stemming from real-life situations, position him as a credible and valuable resource for individuals navigating similar caregiving challenges. Quotes: Knowing you are not alone is crucial. Seek out others who can understand and relate to what you're going through and educate yourself. - Lance A. Slatton If you've seen one person with dementia, you've only seen that one person. There are so many different variables and all these situations. - Lance A. Slatton I wanted to put something out there that is talking to family caregivers. It's half book, half guide, going through the whole caregiving journey with a lot of great resources and information. - Lance A. Slatton In this episode, you will: After the Podcast Enriched Life Home Care Services https://www.elhcs.com/ All Home Care Matters Podcast https://allhomecarematters.com/ Lance's Book: All Home Care Matters Official Family Caregivers' Guide Ethics of Social Media show: Social Media Episode Unboxing Show: Unboxing Episode About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:00:46:40

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When Duty Becomes Privilege: Reframing Caregiving as an Act of Love

3/24/2024
This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode. Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast. Quote: When love and duty are one, then Grace is within you. - Florrie Munat In this episode, you will: After the Podcast Register for Books & Chit Chat Purchase Be Brave: A Wife’s Journey Through Caregiving, which is available as a paperback, and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Connect with Aging & Amazing Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wife’s Journey Through Caregiving by Florrie Munat About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:01:03:50

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Grace Under Pressure: A Caregiver's Journey from Professional to Personal

3/5/2024
By Christy Byrne Yates, MS, California, US Podcast Description: Discover the unexpected truth about dementia care from a professional who found herself on the other side of caregiving. Get ready to uncover the surprising insights that transformed her perspective and could change yours too. Find out what left her reevaluating her own caregiving advice and how she's now championing an empowering approach for other caregivers. It's a revelation that could reshape the way you think about dementia care and caregiving. Mary Ann Drummond, a highly experienced nurse with a career spanning over 30 years, is a prominent figure in the realm of dementia care. Her book, Meet Me Where I Am: An Alzheimer's Care Guide, is a comprehensive resource derived from her extensive work in memory care settings. It offers practical strategies and insights tailored to the unique challenges of dementia caregiving. In collaboration with Dr. Beatrice Tauber Prior, Mary Ann co-authored Grandma and Me, a children's guide for Alzheimer's and dementia, emphasizing her commitment to addressing the broader impact of these conditions on families. With her wealth of nursing knowledge and literary skills, Mary Ann's contributions have significantly advanced the understanding and support available for individuals living with dementia and their caregivers. Quotes: “Give yourself grace. You're only human. There're going to be days where you don't always do exactly what you might know to do, but it's not wrong. It's just human.” “It's about capabilities. It's less about the limitations and more about the abilities.” In this episode, you will: After the Podcast · Meet Me Where I Am – An Alzheimer’s Care Guide · Grandma and Me – A Kid’s Guide for Alzheimer’s and Dementia I Choose to Remember, Connect with MaryAnn Twitter at @RNforAlz for more information and updates. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:00:52:52

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Sharing an Alzheimer's Diagnosis Through Speaking Tours and Writing

2/20/2024
Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's. Through their public speaking tour and workshops, Jane and Sky shared their experiences with dementia, aiming to break the silence and stigma surrounding the disease. Jane's dedication to storytelling and her commitment to raising awareness make her a valuable voice in the conversation about Alzheimer's and dementia. Quotes: "He wanted to meet his people. He wanted to meet other people with dementia. And by doing this church stuff and the workshops, it was his people all over the place." “He was still writing almost up to a year before his death, when he was still at home, and he was unable to dress himself and bathe himself. He was still writing.” In this episode, you will: After the Podcast Purchase Alzheimer’s Canyon: One Couples Reflections on Living with Dementia, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Jane's AlzAuthors post: ‘Alzheimer’s Canyon’ Honors Jane’s Husband’s Wish to Make Blog Posts a Book and Help Others with Dementia. Listen to Jane on the “Untangling Alzheimer’s & Dementia” virtual event Podcast episode, “Writing Through the Fog: Three Authors Share Coping Strategies.” Jane's Bio: Jane Dwinell is a retired RN, freelance writer, and Unitarian Universalist minister. She is the author (or co-author) of four books including Birth Stories: Mystery, Power, and Creation and Alzheimer’s Canyon: One Couple’s Reflections on Living with Dementia, which won the Independent Publisher's of New England's 2023 award for narrative nonfiction. She lives in northern Vermont with her two cats, Tubby and Pogo, and her garden. Connect with Jane Facebook Instagram Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:01:04:03

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Books & Chit Chat: Andrea Couture Discusses Memoir "Embracing What Remains"

2/11/2024
This is the replay of our inaugural book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle Community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are moderated by Andrea Couture, whom we meet during this first of the discussions on January 30, 2024. Andrea, also known as Drea, is the author of "Embracing What Remains," a moving memoir chronicling her experience as a young caregiver for her father during his dementia journey while simultaneously raising her own young children. As an advocate for Alzheimer's and dementia, Andrea's insight into the challenges and emotional toll of balancing caregiving responsibilities with motherhood offers a unique perspective that resonates with many caregivers. Her poignant storytelling and candid reflections provide a relatable and authentic portrayal of the complexities of caring for a loved one with dementia. Andrea's ability to navigate the delicate balance between her roles as a daughter, mother, and caregiver shines through in her memoir, making her a valuable voice in the Alzheimer's and dementia community. Andrea is a member of the AlzAuthors management team specializing in acquisitions and serving as book club moderator. In this episode, you will: After the Podcast Register for Books & Chit Chat Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Andrea's AlzAuthors post: Andrea Couture Wrote the Book She Yearned for on Her Dementia Journey Listen to Andrea's podcast "Behind the Mask: COVID, Kids and Caregiving" See Andrea on the AlzAuthors Live virtual panel discussion "When Dad Has Dementia" Connect with Aging & Amazing About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We've got merch! Shop our Store

Duration:00:59:32

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How to Use Art to Reach Those with Dementia: Proven Strategies to Connect

2/6/2024
Have you heard these myths about the power of art in dementia care? Myth 1: Only artistic individuals can benefit from art therapy. Myth 2: People with advanced dementia can't engage in creative activities. Myth 3: Art therapy is only about painting and drawing. In this podcast, you will learn how different art forms can benefit those living with dementia and how you can incorporate them in your care. From using humor to engaging with music and art, our expert panelists are redefining the meaning of connection in dementia care. Learn how simple activities like painting, singing, and even reading can spark meaningful interactions, revive memories, and create joy. Stay tuned for heartwarming stories and unexpected insights that will change the way you approach dementia care. Immerse yourself in this inspiring journey of reconnection and hope. The Panelists Tom & Karen Brenner, Mary Crescenzo, Katya De Luisa, Marc Rothman, MD, and Tryn Rose Seley. For details on the authors visit our website. Quotes: "I like to generally think of people who have dementia as on a journey that's very different from the one we all are on who don't have dementia. And it's taking them to a different place. It's taking them to a place that's hard for us to recognize."- Marc Rothman, MD "When we meet a person with Alzheimer's where they are, by using fluid guidance, non-judgment, not having preconceived notions what they can or cannot do, we can begin to have engagements with them." Mary Crescenzo "It's our turn to start the conversation, to bring out the best in a person with dementia." - Tryn Rose Seley In this episode, you will: · Discover how art can transform the lives of individuals with dementia and enhance their well-being. · Learn how personalized art can revive memories and create meaningful connections with individuals experiencing dementia. · Explore the impact of humor individuals with dementia and how it fosters engagement and joy. · Uncover the benefits of using reading and writing as therapeutic tools to stimulate cognitive abilities in individuals with dementia. · Embrace the power of patience and innovation in art therapy to create meaningful and enriching experiences for individuals with dementia. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know Shop our Store Join our book club

Duration:01:03:52

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Writing Through the Fog: Three Authors Share Dementia Coping Strategies

1/23/2024
Anyone living with Alzheimer's or dementia, and those who care for them, knows the importance of lifestyle adjustments to successfully navigate this journey. From simple strategies like making lists, reducing social commitments, and focusing on tasks that bring joy, to complex maneuvers like family involvement in advanced directive planning, the lifestyle changes are indeed varied. In this podcast hosted by Kensington Senior Living, three authors discuss the role of personalized coping mechanisms, underscoring the unique experience each individual and family uses to embrace and adapt to the uncertainties of Alzheimer's. You'll meet Daniel Gibbs, MD, a retired neurologist diagnosed with early onset Alzheimer's, Gerda Saunders, a retired instructor in the Gender Studies Program at the University of Utah diagnosed with cerebral microvascular disease, and Jane Dwinell, an RN, freelance writer, Unitarian Universalist minister, and caregiver to her late husband, Sky Yardley, diagnosed with Alzheimer's. Moderated by AlzAuthors co-founder Marianne Sciucco and Susan Evans from Kensington Senior Living. In this episode, you will: Outtakes: "The more you know, the better you could love." - Gerda Saunders "What's good for the heart is good for the head." - Dr. Daniel Gibbs Resources: AlzAuthors websiteKensington Senior Living's websiteDr. Daniel Gibbs' A Tattoo on My BrainGerda Saunders' memoir, Memory's Last Breath,Jane Dwinell's book, Alzheimer's Canyon,Blue Hydrangeas, an Alzheimer's love story Our Book Club with Aging & Amazing Visit our website for full details Visit Aging & Amazing About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store Join our book club

Duration:01:00:11

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AlzAuthors Book Club Chit Chat Promo with Aging and Amazing

1/15/2024
AlzAuthors is excited and honored to partner with the online community Aging & Amazing for a monthly book club, a “Meet the Author” type of event: AlzAuthors Books and Chit Chat. The book club will feature a new book and author every month. The first few months have been scheduled and include: Andrea CoutureEmbracing What Remains: A Memoir Florrie MunatBe Brave, a Wife’s Journey Through CaregivingRuth StevensStage Seven, a novelSherri LevineStealing Flowers from the NeighborsSue Fagalde LickDaniel Potts, MDBringing Art to LifeMargaret StawowyStorms of the Inland Sea Join Us To learn more about this book club or to become a member, please visit agingamazing.com. Register here to receive the Zoom link to the meetings. About Aging & Amazing In their own words, Aging & Amazing, based in Washington DC, is “an online community, in addition to local, in-person care management and training services supporting older adults, caregivers, and professionals specializing in aging. Aging & Amazing offers a helping hand to uplift older adults, caregivers, and professionals through services, education, and support.”

Duration:00:18:13

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Aging and Amazing Book Chit Chat

1/14/2024
AlzAuthors is excited and honored to partner with the online community Aging & Amazing for a monthly book club, a “Meet the Author” type of event: AlzAuthors Books and Chit Chat. The book club will feature a new book and author every month. The first few months have been scheduled and include: Andrea CoutureEmbracing What Remains: A Memoir Florrie MunatBe Brave, a Wife’s Journey Through CaregivingRuth StevensStage Seven, a novelSherri LevineStealing Flowers from the NeighborsSue Fagalde LickDaniel Potts, MDBringing Art to LifeMargaret StawowyStorms of the Inland Sea Join Us To learn more about this book club or to become a member, please visit agingamazing.com. Register here to receive the Zoom link to the meetings. About Aging & Amazing In their own words, Aging & Amazing, based in Washington DC, is “an online community, in addition to local, in-person care management and training services supporting older adults, caregivers, and professionals specializing in aging. Aging & Amazing offers a helping hand to uplift older adults, caregivers, and professionals through services, education, and support.”

Duration:00:20:42

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Behind the Mask: COVID, Kids and Caregiving

1/8/2024
Caregiver Andrea Couture juggles young children, caregiving during the COVID 19 pandemic, and stigma to share her father's Alzheimer's journey, seeking connection and support in a rural community. Andrea Couture, the author of "Embracing What Remains," brings a unique perspective to the podcast with her firsthand experience caring for her father, a surgeon diagnosed with dementia, while also raising young children. Her background in journalism and heartfelt storytelling offer valuable insights into the challenges and triumphs of her caregiving journey, especially navigating through the complexities of providing care during the COVID-19 pandemic. Andrea's willingness to share her family's journey with openness and honesty provides comfort and support to others who may be facing similar experiences. Her memoir and active involvement within the Alzheimer's community showcase her dedication to raising awareness and creating a sense of community among caregivers. In this episode, you will be able to: Impact of COVID-19 on Alzheimer's Caregiving Amid the global pandemic, Alzheimer's caregivers have faced more unique hurdles. As Andrea explained, managing in-home caregivers during COVID-19, the resulting anxieties, and ensuring safety gave rise to much distress. Understanding these challenges can provide viewpoints for creating effective strategies to assist caregivers in navigating similar situations now and in future crises. As a new member of the AlzAuthor sTeam, Andrea now serves as an Acquisition Editor and moderator of a new collaboration with Aging & Amazing - AlzAuthor's Books & Chit Chat," which will feature her book during the inaugural event on January 30, 2024. Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible. After the Podcast Register for AlzAuthors Books & Chit Chat on January 30, 2024 Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible. Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you. Read Andrea’s AlzAuthors post See Andrea on When Dad Has Dementia on YouTube Andrea Couture is an author and mother of three children. She holds a Bachelor of Arts degree in Journalism from Saint Michael’s College in Vermont. Embracing What Remains is her first memoir and book. She lives in New Hampshire with her husband, children, and dog. Connect with Andrea Facebook Instagram LinkedIn Twitter About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:01:00:03

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Empowering Families Caring for Loved Ones with Alzheimer's - Lori Aden and Sheila Parsley

12/5/2023
Lori Aden and Sheila Parsley are two incredible women who have taken their personal experiences as caregivers for loved ones with Alzheimer's and turned them into a powerful tool for support and understanding. Through their series of children's books, Lori and Sheila have found a unique way to address the complexities of Alzheimer's disease in a relatable and compassionate manner. With whimsical dragon characters and heartfelt storytelling, they guide children through the different stages of the disease, helping them understand and cope with the changes they may witness in their loved ones. Their books not only provide comfort and reassurance to children but also offer a valuable resource for caregivers who may be searching for ways to explain Alzheimer's to their young ones. Lori and Sheila's journey as caregivers and authors has allowed them to build a deep understanding of the challenges and emotions faced by those caring for someone with Alzheimer's. Their dedication to supporting others in similar situations is truly inspiring. Lori has also written a book called, “I Remember Me - The Mom Chronicles, which is a memoir of her time caring for her mother. She started with a Facebook thread for family that grew by leaps and bounds when family and friends asked to add others who were on a similar journey. In this conversation you’ll hear from both sisters about their struggles, and ultimately how this journey brought them closer together culminating in a delightful and touching resource for families. In this episode, you will be able to: website: http://irememberme.life o I Remember Me – The Mom Chronicles o Grandma is Acting Funny – A Children’s View of Alzheimer's o Grandpa is Acting Funny – A Children’s View of Alzheimer's You can also hear Lori Aden read from the children’s series on the “Poetry for the Dementia Journey,” episode of Untangling Alzheimer’s & Dementia” Podcast Listen Books by Loria Aden and Lori Aden & Sheila Parsley By Lori Aden I Remember Me - The Mom Chronicles: An Alzheimer's Journey Sharing Lessons Learned and Challenges Conquered as a Caregiver Category: Memoir, Caring for a Mother with Alz Link: https://amzn.to/3t4otaM By Lori Aden and Sheila Parsley Grandma is Acting Funny - Beginning Stage: A Children's View of Alzheimer's Category: Children’s Books Link: https://amzn.to/46famRR Grandma is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Category: Children’s Books Link: https://amzn.to/3QzkVcB Grandma is Acting Funny - the Late Stage: A Children's View of Alzheimer's Category: Children’s Link: https://amzn.to/3u9H4Xf Grandpa is Acting Funny - the Beginning Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QE6nrZ Grandpa is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Link: https://amzn.to/3SDbFXo Grandpa is Acting Funny - the Late Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QwxPYO Baby Doll and Pet Doll Therapy Lori and Sheila referred to a Baby Doll that their mother loved. Baby Doll and Robotic Pet Therapy is often used for comfort for those with Alzheimer's and Dementia. Here are some links for both. They recommend NOT using all the accessories with the dolls. Toy Choi's 16 in Interactive Baby Doll Lissi Doll New York Doll Collection Robotic Pets

Duration:00:55:03

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Finding Peace in Chaos: A Caregiver's Journey in a War Zone with Miriam Green

11/21/2023
In a health crisis, we often refer to our journey as a "battle." We may see ourselves as "warriors." This is true for those impacted by Alzheimer's and dementia. The diagnosis brings uncertainty, disruption, and fear. But what happens when you're dealing with dementia in the middle of a war zone? When airstrikes are the norm, and screeching sirens interrupt each day, warning you to seek safety and shelter in a minute or less? When ordinary life ceases and the top of mind issue is simply staying alive? Avoiding disaster? Breathing? On October 7th, Miriam Green, an AlzAuthor living in Israel, found her life as a caregiver turned upside down when terrorists invaded her country. In this podcast, she shares with us the horror and brutality of what occurred, how her country, her family, friends and community have been affected by this conflict, and how they are dealing with it. She is a mother, daughter, grandmother, and wife, and like most women juggles her responsibilities as best as she can on a good day. Now, she struggles to find peace in the chaos, searching for meaningful, uplifting moments, even hope, while carefully balancing her family's needs. We are grateful to her for speaking with us. We take no sides in this conflict and pray for a peaceful resolution soon. In this episode, you will: About Miriam Green Miriam Greenis the author of The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver. Her poetry has been published in several journals, including Poet Lore, The Prose Poem Project, Ilanot Review, The Barefoot Review, and Poetica Magazine. Her poem, “Mercy of a Full Womb,” won the 2014 Jewish Literary Journal’s 1st anniversary competition. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. She holds an MA in Creative Writing from Bar Ilan University, and a BA from Oberlin College. Miriam is a 24-year resident of Israel. After the Podcast Find Miriam on Facebook and on Twitter . Read Miriam's AlzAuthors blog post. Purchase The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver Purchase Life on Planet Alz by Jack Cohen, Miriam's father Note: We are an Amazon Associate and may receive a small commission on book sales which will cost you nothing. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:00:56:43

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Rewriting the Dementia Narrative: How "Keys Bags Names Words" Is Shattering Stereotypes with Cynthia Stone, Caroline Prioleau

11/7/2023
In this episode of Untangling Alzheimer's & Dementia, hosts Marianne Sciucco and Christy Byrne Yates are joined by guests Cynthia Stone and Caroline Prioleau to discuss their documentary film "Keys Bags Names Words." The film explores the experiences of individuals and families affected by dementia and highlights the importance of community support and education. Cynthia and Caroline share their personal journeys and explain how their own encounters with dementia impacted their work on this powerful film. They discuss the process of creating the film, including obtaining footage and incorporating personal stories. The episode also delves into the impact of the film and the goals behind it, such as changing perceptions of dementia and promoting understanding and support. The conversation is filled with heartfelt stories, valuable insights, and practical resources, making it a must-listen for caregivers and anyone interested in Alzheimer's and dementia. So grab your headphones and tune in to gain a deeper understanding of the challenges and triumphs faced by individuals and families living with dementia. In this episode, you will: Watch the film trailer The resources mentioned in this episode are: AlzAuthors.comAlzAuthors.comConsider hosting a community screeninghear/say Oral History ProgramVisit Alz.org About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:00:56:29

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Everything You've Always Wanted to Know About Living WIth Dementia, part 2

11/2/2023
In this episode, you'll hear from a diverse group of guests who share their personal experiences and insights on living with dementia. Peter Berry, Michael Ellenbogen, Gerda Saunders, and Jennifer Bute each bring their unique perspectives, providing a wealth of knowledge and understanding about the challenges and triumphs of navigating life with dementia. From discussing the impact of technology on social connections to the importance of finding supportive living arrangements, this episode covers a wide range of topics that caregivers and family members of individuals living with dementia will find valuable. Tune in to gain new insights and discover how technology, support systems, and personal resilience can enhance the lives of individuals with dementia. In this episode, you will: Meet the authors on our website Download ebook: Alzheimer's and Dementia Caregiving Stories Download Caregiver Tip Sheet: 13 Helpful Tips for the Long-Distance Caregiver Reading2Connect on AlzAuthors.com About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:01:09:30

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Revolutionizing Caregiving: The Whole Care Network's Streaming Radio Channel, with Chris MacLellan

10/27/2023
Join hosts Marianne Sciucco and Christy Byrne Yates as they discuss the launch of the Whole Care Network's new streaming radio channel with guest Christopher MacLellan, the passionate founder, who aims to connect and empower caregivers through this groundbreaking platform. The app provides trusted information and support to caregivers. Listen to The Whole Care Network Streaming Radio! Download the app from Apple or Google Play. Discover WCN's October Surge event with AlzAuthors In this episode, you will be able to: About Christopher: Christopher MacLellan, is a respected advocate in the caregiving economy. With his extensive experience and knowledge, Christopher offers valuable insights and practical advice to individuals in the caregiving community. As a guest on the AlzAuthors podcast, he shares his expertise on various caregiving topics, providing a wealth of information and support for listeners. Christopher's dedication to raising awareness and improving the lives of caregivers shines through in his contributions to the podcast. His commitment to collaboration and his involvement with the Whole Care Network further demonstrate his passion for connecting caregivers and providing them with the resources they need. Whether you're a caregiver seeking guidance or someone interested in supporting caregivers, Christopher's expertise and contributions are sure to provide valuable insights and support. After the episode, learn more about The Whole Care Network https://thewholecarenetwork.com/ https://thewholecarenetwork.com/wcn-surge Connect with Christopher: Email About About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:00:49:42

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Exploring End of Life Care in Dementia with Anne Kenny, MD

10/24/2023
Anne Kenny, MD had been practicing medicine for more than 30 years, recognized by her peers as a “Top Doc” in Geriatric Medicine, but that did not make her caregiving journey with her mother any easier. In fact, when the professional became personal, she sought guidance through the available literature and found little to guide her and her family through the difficult decision making required in dementia care. So, she decided to write her own book, inspired by her experience as a physician and as a daughter, creating the book she wished she’d had for her mother’s care. Making Tough Decisions about End-of-Life Care in Dementia was published in 2018 by Johns Hopkins University Press. Dr. Kenny has worked clinically as a geriatrician in nursing homes, assisted living, rehabilitation, and clinical outpatient settings. She’s found joy in her work with individuals and their families managing issues related to the diagnosis of dementia. In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging-related issues including navigating dementia, exercise, nutrition, hormone therapy, death and dying, and frailty. In this episode, you will: Purchase Making Tough Decisions about End-of-Life Care in Dementia Note: We are an Amazon Associate and may receive a small commission from book sales. After the Podcast Read Anne’s AlzAuthors post: Making Tough Decisions About End-of-Life Care in Dementia, by Author Anne Kenny, MD Explore Caring Kind Download 13 Tips for Long-Distance Caregivers About Anne Kenny, MD I’m a geriatric physician and founder of Together in Dementia, where I support families and care partners to modify their approach to dementia so that they can find joy, connection and calm in their care journey without losing their minds, falling into depression, or ruining their health or relationships. We do this using our KNOW/ADAPT/CONNECT (KnAC) method via courses, coaching and consulting. Connect with Anne Kenny, MD Facebook LinkedIn Twitter *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:01:06:47

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Unlocking Joy through Reading: Enhancing quality of life in dementia care with reading specialist, Susan Ostrowski

10/10/2023
Have you heard these common myths about reading to individuals with dementia? Myth 1: People with dementia can't understand or enjoy reading. Myth 2: Reading is a solitary activity and won't benefit socialization. Myth 3: It's too late to start reading to someone with dementia. In this episode, Susan Ostrowski debunks these myths and shares the truth about the impact of the Reading2Connect program on individuals with dementia. In her work, Susan has learned that people with dementia can continue to enjoy reading and often find it brings opportunities for socialization and leadership. In this episode, you’ll learn: About Susan Ostrowski: Susan Ostrowski is a highly experienced speech pathologist and the creator of the Reading2Connect® program. With a remedial reading and speech background, Susan has devoted her career to helping individuals with cognitive impairments. Recognizing the impact of dementia on reading abilities, Susan embarked on a mission to develop materials that cater specifically to this population's needs. Through extensive field testing and collaboration with healthcare professionals, she has successfully created over 50 booklets that engage and resonate with individuals living with dementia. Susan's program addresses cognitive challenges such as organizational thought, sustained focus, and working memory, offering a unique approach to reading and comprehension. Her work has gained recognition and support, including partnerships with organizations like AGE-u-cate® and collaborations with libraries. Susan's dedication to improving the quality of life for individuals with dementia through reading is making a significant impact in the field, providing caregivers and individuals with valuable resources and opportunities for connection. After the episode, view these videos to see the program in action: Bk Stand Falls logo.ChaseCity.mp4 Small Group Res-Directed.MOV Rosa Parks 4.mp4 Connect with Susan: Website LinkedIn About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Shop our Store

Duration:00:57:09