Wisdom From The Other Side Of Recovery from Fibromyalgia, ME, CFS, POTS & MCS

This is part 2 of Julia Multiple Chemical Sensitivities Recovery story (MCS recovery story) where we discuss Julia's brain training approach for MCS recovery. We talk about how she faced triggers despite knowing the consequences, how she dealt with the setbacks along her MCS recovery journey and what life is like after Multiple Chemical Sensitivity (MCS) recovery. _______________________________________________________________________ Warning: This interview includes discussions around suicidal ideation! _______________________________________________________________________ SHOWNOTES including transcript: https://cfsunravelled.com/episode19

Julia shares her Multiple Chemical Sensitivities Recovery story (MCS recovery story) in this wonderful interview. In part 1 here, we explore how her illness came on in childhood and how she struggled with doctors and the label of having a psychosomatic illness. Then, her MCS suddenly went into remission following a change in environment (makes sense given that MCS is often referred to as environmental illness) But 10 years later she was back in the throes of chronic illness and her multiple chemical sensitivity (MCS) had flared worse than ever. We explore what may have led to all these issues, the impact on her emotional state and mental health and the shocking adversity she faced during her journey with multiple chemical sensitivities (MCS) and the story of how she found a turning point for her Multiple Chemical Sensitivity (MCS) recovery. _______________________________________________________________________ Warning: This interview includes discussions around suicidal ideation! _______________________________________________________________________ SHOWNOTES including transcript: https://cfsunravelled.com/episode18 Part 2 will be published in a couple of days

It's easy to get overwhelmed with Fibromyalgia, ME/CFS, POTS, MCS, and similar invisible illnesses. People feel overwhelmed trying to do new diets, lifestyle changes, medical treatments, brain training, and just about any other helpful strategy to recover from Fibromyalgia, ME/CFS, POTS, or MCS. Understanding how this affects your recovery and how to change your approach may be the biggest breakthrough in your recovery. SHOWNOTES: https://cfsunravelled.com/episode17

Rachel tells her story of Fibromyalgia Remission - it's interesting to hear her say that despite being healthy again and symptom free, she still says "I have fibromyalgia". We discuss how she became ill and how she went into fibromyalgia remission and the differences between recovery, cure and fibromyalgia remission. For full show notes visit: https://cfsunravelled.com/episode16

Sometimes we are overwhelmed by what is the most important thing to do for recovery from Fibromyalgia, ME/CFS (chronic fatigue syndrome), POTS or MCS. So I share my thoughts and experience around this in this short recovery snippet. For full show notes visit: https://cfsunravelled.com/episode15

Fibromyalgia sleep and ME/CFS sleep are full of problems. Getting to sleep, staying asleep, and experiencing refreshing sleep all elude patients. Dr Jacob Teitelbaum is one of the world's leading Fibromyalgia, ME/CFS and POTS physicians and shares his experience and insights on sleep restoration in this episode of the Wisdom from the Other Side Podcast. Dan Neuffer & Dr Teitelbaum discuss normal sleep vs sleep in fibromyalgia/ME/CFS/POTS and how to normalise fibromyalgia sleep disturbance to accelerate recovery progress. We peel back the layers of strategies for sleep normalisation, including neural retraining and also the psychological components of sleep disturbance. It's so easy into thinking that we have 'tried it all' in terms of fibromyalgia sleep remedies or ME/CFS sleep treatments, but what is needed is a structured building of strategies to improve sleep. We discuss fibromyalgia sleep problems like sleep apnea, fibromyalgia sleep medication (CFS sleep medication) and Upper Airways Resistance Syndrome in Fibromyalgia, ME/CFS and POTS. For full show notes visit: https://cfsunravelled.com/episode15

Should you make a change to a new mind/body program, physical treatment approach, health coach, or other health care practitioner for your recovery from ME/CFS, Fibromyalgia, POTS or MCS? In this short recovery snippet, we discuss the options and seek to understand the reasons why different approaches fail so that we can decide whether to persist or not. For full show notes visit: https://cfsunravelled.com/episode13

It's one thing seeing interviews with people that recovered, and another thing seeing them tell their stories in real-time. In this interview, Shannon tells how she recovered from fibromyalgia, ME/CFS and POTS after 7 years of illness. Her 2½ year journey was bumpy, with her actually worsening before she got better. This interview captures her journey, and when you CHECK OUT THE SHOW NOTES and you will see a collection of her video journals that captured her story which makes for a fascinating watch. For full show notes visit: https://cfsunravelled.com/episode12

Neuroscientist Dr. Delia McCabe shares her understanding and research into the impact of diet on brain health, mental health and recovery from chronic illness. How much of mental and neurological dysfunction is a physical and how much is a psychological issue? What is the impact of adverse childhood events on stress resilience and what about eating vegan, vegetarian or other restrictive diets. Evidence-based information for anyone seeking recovery from chronic illness in this deep dive episode into brain function for stress resilience. For full show notes visit: https://cfsunravelled.com/episode11

When you try all the treatments you find out about, and keep receiving different diagnoses, it can be a harrowing experience. Alexandra shares her difficult decisions in her quest to recover from mould illness and chronic fatigue syndrome and how despite a 'brain-training' program not helping her, she decided to try ANS REWIRE anyway and succeeded with her recovery. For full show notes visit: https://cfsunravelled.com/episode10

In this episode Claudia and Dan talk about that moment in her recovery where she "chose her world". We discuss practical and psychological aspects of where we place our focus whilst chronically ill and some of the fascinating neuroscience behind the practice of visualisation. Strategies, impacts and much more about shifting our focus from illness to health. For full show notes visit: https://cfsunravelled.com/episode9

Finding out how to recover from CFS (Chronic Fatigue Syndrome or ME/CFS) as well as Postural Orthostatic Tachycardia Syndrome (POTS) and MCS seemed downright impossible when nobody seems to know what's wrong with you. Kristin shares her CFS recovery story in this wonderful detailed interview and talks about the treatments she tried, the ups and downs, her relapses and the constant expansion of diagnoses and symptoms. We discuss her first remission from CFS/POTS/MCS and how she ended up relapsing again. So how does she turn it all around? Kristin tells her story of changing her CFS recovery approach and delving deeper to unravel PTSD and Bulimia that she had been dealing with for many years to reach full health. It's a long and detailed interview, so check it out in parts and gain from her wisdom in your time. For full show notes visit: https://cfsunravelled.com/episode8

In this episode, world-renowned fibromyalgia researcher Professor Dr. Kati Thieme shares her research and understanding of the root cause of fibromyalgia. She tells of how her theoretical research accidentally led to the discovery of an effective treatment for fibromyalgia called Systolic Extinction Training (SET), which when combined with psychological brain-training strategies, is very effective in resolving chronic pain in fibromyalgia and other conditions. Professor Dr Kati Thieme explains how blood pressure and baroreceptor sensitivity relays to the autonomic nervous system (ANS) in the brainstem via the NTS nucleus, and how this part of the brain becomes 'blind' to the data from the body leading to dysregulation or dysautonomia as well as chronic pain. We discuss heart rate variability in this context as well as problems around fibromyalgia research and why a tailored approach to recovery is required, plus much more. For full show notes visit: https://cfsunravelled.com/episode7

After speaking with 100s of people that have found a way to cure their Fibromyalgia, POTS, ME/CFS and MCS, there are many learnings to be shared. Raelan Agle who also shares recovery interviews on her YouTube channel was the ideal person to join me for a conversation about recovery. We discuss what we learned from our interviews, commonalities around the onset of illness, how rare recoveries may or may not be and some of the pitfalls people experience, plus much more. For full show notes visit: https://cfsunravelled.com/episode6

In this episode of the Wisdom From The Other Side podcast we discuss WHY the focus of the book is so key for people to recover from ME/CFS, Fibromyalgia and POTS. Claudia asks how I came up for the hypothesis for the pathogenesis of the illness (the root cause of the illness), and we discussed why it has touched so many people so deeply. We also discuss some of the KEY points of the book, how the book unravels so many of the mysteries of this illness in terms of how people get sick and how they recover, as well as the endless list of symptoms. For full show notes visit: https://cfsunravelled.com/episode5

Dr Jacob Teitelbaum is one of the world's leading ME/CFS, Fibromyalgia and POTS physicians and shares his experience and insights in this episode of the Wisdom from the Other Side Podcast. Dan & Dr Teitelbaum discuss their common ground on the pathogenesis of the illness, treatment approaches and delve into specifics around stubborn difficulties with sleep, hormonal cycles and much more. You can visit https://cfsunravelled.com/podcast for show notes, timestamps as well as other resources like the free eBook Discover Hope and more recovery interviews– so check that out after the podcast. For full show notes visit: https://cfsunravelled.com/episode4

Why are we talking about neuroplasticity in regards to Fibromyalgia, ME/CFS, POTS & MCS? What is neuroplasticity? How does neuroplasticity occur? How can we best affect neuroplasticity for recovery from ME/CFS, Fibromyalgia, POTS & MCS? These are some of the questions we answer in this episode of Wisdom from the Other Side as well as central sensitisation and the benefits of taking a wider approach to neuroplasticity. You can visit https://cfsunravelled.com/podcast for show notes, timestamps as well as other resources like the free eBook Discover Hope and more recovery interviews– so check that out after the podcast.

What is ANS REWIRE and how can it help people recover from ME/CFS, Fibromyalgia, POTS and MCS? How does ANS REWIRE compare to other brain-training programs? What do we need to do to breakthrough in our recoveries when progress is lacking? These are some of the questions Dan answers in this podcast and Claudia shares her experience with the program. You can visit https://cfsunravelled.com/podcast for show notes as well as other resources like the free eBook Discover Hope and more recovery interviews– so check that out after the podcast.

What prompted Dan Neuffer to start this new podcast for people experiencing ME/CFS, Fibromyalgia, POTS and MCS? What are some of the worst injustices we experience with invisible illness, and what can you do about it? Claudia Goodell joins Dan Neuffer on this first podcast and explores issues around stigma, injustice and judgement that affect people experiencing chronic illness and we discuss some strategies on how to cope as well as practical ways of handling more difficult people. That’s just some of what we cover in the first Wisdom from the Other Side Podcast. You can visit https://cfsunravelled.com/podcast for show notes as well as other resources like the free eBook Discover Hope and more recovery interviews– so check that out after the podcast.