Move It or Lose it - The Podcast

Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis. There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the world's first truly adaptive shoes. Dr. Tyler Susco of Cadense shares his journey from being an engineer to developing a split treadmill for gait therapy at MIT, which eventually led to the creation of an innovative shoe. The shoe features a variable friction surface that helps users move more comfortably and confidently. The shoe underwent a pilot study, where participants experienced significant improvements in their gait mechanics and overall mobility. Feedback from beta testers, including individuals with MS and recovering from strokes, was overwhelmingly positive, with many expressing newfound confidence and mobility. The shoe's impact on users' lives inspired Dr. Susco and his team to continue their work. Discover the story behind this revolutionary shoe designed to help individuals with foot problems due to stroke, MS, rheumatoid arthritis, and more. Listen to the episode for insights into the creation process and the impact on mobility, and learn about the research, trials, and get a glimpse into the future of mobility aids. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program Visit Cadense If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15 https://www.releafpack.com

Warning Explicit Language Adam Powell - MSd with the Wrong MF'r - is back on the to podcast round up support for his upcoming MS Walk. His 2024 Bike Run is Sunday May 5th with proceeds going towards Walk MS Milford which is on May 19th. Last year at the MS Walk Milford he raised over 10K for the MS Society and this year he is looking to surpass that. The links below are available for your support. Contact Adam Insta: @msd_with_the_wrong_mfr May 5th 2024 - 2024 Bike Run 25/per Bike. 10/Rider Entrance Fee Registration 9:30-11am Kickstands up at 11am Scooters Bar and Grill 6004 Torrey Rd. Flint, MI 48507 Donate to Adam's Walk MS https://events.nationalmssociety.org/index.cfm?fuseaction=donate.team&teamID=52790 DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program Connect with Jamie on Instagram and TikTok If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

In this episode, I had a wonderful conversation with my close friend Jamie, whose handle on Instagram and TikTok is LoveWarriorHugs. Jamie was diagnosed with epilepsy at 18 and later with MS at 24, and we discussed life before diagnosis, the impact of her conditions on her daily life, and the importance of advocacy and support systems. Jamie emphasized the significance of finding a good doctor and being proactive in managing her health through medications and physical therapy. We also talked about the importance of reframing bad days, acknowledging limitations, and prioritizing self-care to navigate the ups and downs of living with chronic illnesses. Jamie's energy and positivity shine through despite the additional challenges she faces, including refractory epilepsy and trigeminal neuralgia. Her commitment to advocacy, positive outlook, and unwavering support for others in similar situations are truly inspiring. Jamie's message to newly diagnosed individuals resonated deeply - "Never stop." DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program Connect with Jamie on Instagram and TikTok If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

As well as featuring stories of individuals who are living with MS on the podcast, I also like to shine a light on organizations that are working to offer support to our community. One of my favorites is Can Do MS, a national nonprofit organization that provides education, resources, and support for people with MS and their support partners. In this episode, I had the pleasure of speaking with Julia Kender, who joined Can Do MS as a Digital Content Specialist. She told me how her background in journalism and social media helped her to transition smoothly into her role at Can Do MS. Julia passionately believes in the importance of personal stories in raising awareness about MS. She discussed the challenges of providing clear answers to complex questions from individuals with MS, highlighting the importance of seeking help and support. We talked about the unique programs offered by CanDo MS, including dedicated initiatives for care partners and upcoming projects focusing on men with MS. Julia expressed her excitement for new faces and short-form video content to be featured on social media, aiming to provide diverse perspectives and support for the MS community. If you or someone you know could benefit from their resources, don't hesitate to reach out to Can Do MS for support. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program Visit Can Do MS Connect with Can Do MS on Instagram, Facebook, and X (Twitter) Follow the Can Do MS YouTube channel If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

Anthony (AJ) McGinty's MS journey began when he experienced symptoms of fuzzy vision when he was traveling for work, leading to a full diagnosis six years ago. Like so many of us, before being diagnosed, he had no experience or knowledge of MS. As you'll hear, he and I share a lot of the same views about the importance of exercise and staying active when you have MS. In this episode, Anthony shares his personal journey of being diagnosed with MS and how he initially struggled to adjust to having a chronic illness at a relatively young age. Despite initial denial and shock, AJ now says that his life has actually improved post-diagnosis. He got married, became a parent, and discovered new career opportunities. This optimistic perspective on life in the presence of MS reflects his belief that the condition does not have to define your entire existence. AJ's advice for newly diagnosed people is to stay positive, avoid negative stories online, and seek support from the MS community. He emphasizes the importance of staying active and finding ways to adapt to the changes MS brings. His commitment to supporting others with MS is evident from his advocacy work, including his involvement in the upcoming Tap MS Out fundraiser on March 30th. Anthony's biggest triumphs, including becoming a black belt in jiu-jitsu and winning pro grappling matches, highlight his strength and perseverance in the face of adversity. His positive outlook and determination to stay active and healthy for his family are truly inspiring. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program Connect with AJ on Instagram Follow AJ's YouTube channel Read My MS Story by AJ McGinty on MS4MS More information and a donation page for the Tap MS Out event (March 30th 2024) If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted. This time around we delve into my journey of public speaking, from sharing my experiences as a pastor's wife to speaking at events for women and youth groups. My speaking career began unexpectedly at AA meetings, where I shared what it was like growing up with an alcoholic parent, leading me to discover my passion for helping young adults and teenagers. Later, we reflect on the advice I would offer to fellow MS warriors, whether newly diagnosed or long-time sufferers. I emphasize the importance of reframing the narrative around MS, finding beauty in the middle of challenges, and embracing the changes that come with the disease. By shifting your perspective and focusing on the positives, you can navigate the complexities of MS with resilience and grace, finding fulfillment in unexpected places. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program! Connect with Amanda Thompson on Instagram If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the heat and migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15 https://www.releafpack.com

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted. The heart of the episode is the introduction of my new 10 Weeks to Disrupt MS Program, which addresses fitness, nutrition, and mental health, all tailored to the unique needs of our community. During our conversation, we reflect on the incredible journey of the podcast, and recent transitions in my professional life, from owning a gym to focusing on personal training and online coaching for those living with MS and other autoimmune diseases. I also shared the challenges of balancing the passion for helping others with the realities of making a living. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Sign up for the 10 Weeks to Disrupt MS Program! Connect with Amanda Thompson on Instagram If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the heat and migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15 https://www.releafpack.com

In this deeply personal and candid episode of the Move It or Lose It podcast, I, along with my guests Julie Stamm and Dawn Morgan, dive into the emotional rollercoaster that comes with living with Multiple Sclerosis. We share our raw and real experiences, discussing how our days can take unexpected turns due to the unpredictable nature of MS, and the profound impact it has on our emotional well-being. We open up about the emotional toll of living with MS and how it can make even the simplest tasks feel insurmountable. However, our discussion is not just about the struggles, but also about the resilience and determination we muster to face each day. We touch on the importance of having a support system, whether it's family, friends, or the MS community, and how crucial it is to ask for help when needed. Despite the challenges, we end on a note of hope and empowerment, reflecting on the beauty that can be found in the hardships and the strength we've gained through our journeys with MS. Our message to listeners, especially those newly diagnosed or feeling overwhelmed, is to look for the silver linings and to remember that they are not alone in this fight. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Visit Julie Stamm Watch Dawn Morgan on MS Views Now: Developing a Strong Relationship with Your Doctor If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

In this episode of the Move It Or Lose It podcast, I am joined by Adam Powell, my friend and truly one of the most inspiring people that I know. Adam joined me to talk about his journey after knee surgery. In this interview, he talks about how his knee suddenly locked up one day, which caused him to realize that he had experienced similar problems before. Although Adam clarifies that his knee issues are not related to his Multiple Sclerosis, I think you'll find plenty of inspiration in his determination to return to a health and fitness routine, and his plans for the future. Overall, the episode underscores the importance of perseverance in achieving success and fulfillment in all aspects of life. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Episode 56 - Adam Powell - "Darkness is a hell of a coach" Facebook Instagram TikTok If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15 https://www.releafpack.com

Roxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior. In the final part of our two-part conversation, Roxanne talks more about the importance of surrounding ourselves with positive and supportive people. We discuss how toxic relationships can hinder our growth and how important it is to have a community of like-minded individuals who can uplift and inspire us. We also talk about Roxanne's amazing Styled Sessions, where she helps women feel empowered and confident through professional styling and photography. These sessions are not just about taking beautiful photos, but also about celebrating each woman's unique beauty and helping them see themselves in a different light. Throughout the conversation, we touched on the challenges of living with a chronic illness like MS, and how it can change our perspective on life. We discussed the importance of prioritizing our health and well-being, and not being afraid to ask for help or take time for ourselves. Roxanne is all about supporting and uplifting women - as she says, we are all worthy to be celebrated and seen! The two episodes I recorded with Roxanne are a powerful reminder of the resilience and strength within each of us. They highlight the importance of pursuing our passions, building a supportive community, and embracing failure as a stepping stone to success. I hope you find them inspiring! DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Connect with Roxanne on Instagram Visit Rox Engstrom Listen to Roxanne's previous appearances on the Move It Or Lose It podcast: Episode 95 - MS and Intimacy, Parts One and Two. If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

Roxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior. In the first part of a two-part conversation, Roxanne shares her experience of being diagnosed with multiple sclerosis and how it motivated her to create a fulfilling career that accommodated her health needs. She encourages listeners to pursue their dreams, whether it's starting a side hustle or exploring a new passion. We also discuss the power of community and the importance of surrounding yourself with supportive and like-minded individuals. Roxanne also talks about collaborating with other female entrepreneurs and the positive impact it has had on her own business and personal growth. Roxanne also highlights the significance of resilience and embracing failure. We also touch upon the challenges faced by people with chronic illnesses and how they can still pursue their passions and find fulfillment. The two episodes I recorded with Roxanne are a powerful reminder of the resilience and strength within each of us. They highlight the importance of pursuing our passions, building a supportive community, and embracing failure as a stepping stone to success. I hope you find them inspiring! DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Connect with Roxanne on Instagram Visit Rox Engstrom Listen to Roxanne's previous appearances on the Move It Or Lose It podcast: Episode 95 - MS and Intimacy, Parts One and Two. If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

Dr. Aviva Gaskill is another example of something which I didn't know existed until a short while ago. Dr. Gaskill is a Clinical Psychologist who specializes in treating MS patients. Not only that, she is a designated Partner in MS Care for the National Multiple Sclerosis Society. Dr. Gaskill's interest lies in the convergence of medical issues and psychology. So in this interview we talk about Depression, Anxiety, Insomnia, and Sexual Issues as they relate to MS. Links and resources: Visit Aviva Gaskill Visit PsyPact You can find Kathy Chester at disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgym Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store 2 items = $20 savings 3 items = $30 savings

Lyndsay Watterson has designed walking sticks used by Selma Blair and Christina Applegate. And if that's not impressive enough, she also performed death-defying circus moves at the closing ceremony of the 2012 Paralympic Games in London. While Coldplay performed! After having arthritis since her teens, Lyndsay had knee replacement surgery at age 39. But an infection left her in more pain, so she took the decision to have the leg she describes as "not a team player" amputated. By this time, she'd already decided that, as a younger lady with a disability, Lyndsay wanted a cool, confident walking stick to help her find her own confidence again. So she created Neo-Walk sticks, gorgeous handmade walking aids in tactile acrylic, and lots of vibrant colors. Lyndsay’s mission at Neo-Walk is to see disability normalized and for designers to embrace our needs in mainstream products. She is passionate about inclusion and wants to use her success to shout it from the rooftops. In this conversation, we talk about her health issues and the frustration she felt when seeing the lack of choice when it came to choosing her first walking aid. She also tells us about creating her first walking stick in her kitchen, the reaction she got when she used it, and all of the amazing things she has done - and continues to do. Links and resources: Visit Neo-Walk Connect with Neo-Walk on Instagram Read an article about Lyndsay's appearance on Dragon's Den UK Watch Lyndsay performing in the closing ceremony of the London 2012 Paralympic Games Find out more about the DMAT Fitness Training program If you're interested in having Kathy speak at your event, learn more here You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15 https://www.releafpack.com

This is an Encore presentation of Episode 63 and one of my favorites from earlier in 2022. My guest was Shari Short, a comedian, writer, and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS. In this episode, we talk about how Shari got started in comedy, her diagnosis with MS, her experiences of loss during the COVID pandemic, and why sometimes it can be ok to embrace the dark humor. Links and resources: Watch clips from Shari’s One Woman Show, “It’s My Mother’s MS, I Just Have It” – Mom and Her Support Group and Don’t Talk to Strangers, plus her series of MS Award Videos Watch Shari’s standup that’s NOT about MS – Being a Jewish Mother at Christmastime Think Outside The Product Box – an article that Shari wrote for Momentum Magazine Shari’s 10 Tips for Making Your Pharmaceutical TV Spot as Generic as Possible Connect with Shari on Twitter Find out more about my new DMAT Fitness Training program Visit Disrupt Fitness You can find Kathy Chester at disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgym Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked them to bring along their partners so we could hear both sides of the story - my own husband included! In the final part of this two-part interview, we talk about what we can do to escape MS, and also share the funniest MS moments from our relationships. We also talk about what those of us with MS would like to give to our partners. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Visit Tyler Campbell Connect with Chris and Nabila Dunbar Visit Dan & Jennifer Digmann Visit Julie Stamm If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

Many people I've spoken to on the podcast have struggled to get an MS diagnosis, but Roxy Murray's story is especially frustrating. A UK-based podcaster, MS advocate, and fashionista, she first presented with MS at 18, waking up one day with double vision and intense headaches. They were rushed to hospital, undergoing an MRI and a Lumbar Puncture - standard tests for MS. However, Roxy was diagnosed with lupus, benign intracranial hypertension, and antiphospholipid syndrome. It would be almost another decade before Roxy was diagnosed with MS, by which point their disease had progressed. But the diagnosis wasn't the end of Roxy's problems, as they faced prejudice and disbelief as a young person of color living with MS - a so-called "white woman's disease." Nowadays Roxy advocates for the visibility of people of color to be included in the MS narrative. In our conversation, we talk about Roxy's work as a fashion stylist, their diagnosis, and subsequent advocacy work. Among other things, Roxy is passionate about removing the stigma surrounding mobility aids and holding space for under-recognized groups within the disability community. Links and resources: Follow Roxy @MultipleSclerosisFashionista on YouTube Follow the Sick and Sickening podcast on Spotify and Apple Podcasts See Roxy's profile on the UK MS Society website Find out more about the DMAT Fitness Training program If you're interested in having Kathy speak at your event, learn more here You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked them to bring along their partners so we could hear both sides of the story - my own husband included! In the first part of a two-part interview, we talk about how they all met and what their partners already knew about MS - if anything. We also talk about how much carers do for the MSers in their life. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Visit Tyler Campbell Connect with Chris and Nabila Dunbar Visit Dan & Jennifer Digmann Visit Julie Stamm If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

For the 100th episode of the Move It Or Lose It podcast, I'm delighted to welcome back a guest who assisted me in one of my first webinars. Dr. Laura Hancock, PhD is a Board Certified Neuropsychologist, specializing in the treatment of people with Multiple Sclerosis. In this episode, we talk about what a clinical Neuropsychologist does, the work that Dr, Laura does at the Cleveland Clinic, and our frustration that a lot of people with MS don't know the benefits that working with a Neuropsychologist can bring. Laura also talks about the things she has noticed about brain function in people recovering from the effects of the pandemic, why she chose to specialize in working with people with MS, and why she wants MSers to rewrite the rules in their own lives. We get on so well because she's a Disruptor like me! Thank you to all of the guests who have appeared on the podcast over the last 100 episodes! More than anything, thank you to you for listening and supporting the work that I do here. Here's to the next 100 episodes! DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Connect with Laura on X / Twitter Check out Laura at the Cleveland Clinic If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15 https://www.releafpack.com

If you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of misinformation out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists. One of my recently discovered favorites is @thatmsdoc on TikTok, aka the awesome Dr. Samantha Roman. And not only is Dr. Sam a Johns Hopkins-trained MS neurologist, but she's also living with her own MS diagnosis. Concluding this two-part interview, Dr. Sam talks about the increased role of social media in getting information to patients, as well as its importance in creating a sense of community for people diagnosed with chronic diseases, including MS. She also talks about how surprised she was by the initial response to her videos, her plans for the future, and her message for people with MS everywhere. DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Follow Dr. Sam on TikTok, X, and Instagram Connect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com

If you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of bad information out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists. One of my recently discovered favorites is @thatmsdoc on TikTok, aka the awesome Dr. Samantha Roman. And not only is Dr. Sam a Johns Hopkins-trained MS neurologist, but she's also living with her own MS diagnosis. In the first part of a two-part extended interview, we talk about her passion for cutting through medical jargon to communicate with the patients in her care, and how this impacts the videos that she shares online. Dr. Sam also talks about how grateful she is that she had some medical knowledge when she was diagnosed with MS in 2016. Don't miss part two, coming tomorrow! DISCLAIMER The information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources: Follow Dr. Sam on TikTok, X, and Instagram Connect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at: msdisrupted@gmail.com disruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more here Find out more about the DMAT Fitness Training program Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code. Koldtec - Cool Head Wrap KOLD10 To save $10 off every item in-store. 2 items = $20 savings 3 items = $30 savings https://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15 https://www.releafpack.com