The Parkinson's Podcast

The Parkinson's Podcast Unfiltered: Sex This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. In this episode of The Parkinson’s Podcast Unfiltered, Heather Kennedy and Kat Hill dive deep into the importance and challenges of sexual health for people with Parkinson’s. Strap in for the ride: as always, with Heather and Kat and The Parkinson’s Podcast Unfiltered, nothing is off the table. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 11 (Unfiltered Episode 2)

This content is made possible through the generous support of listeners like you. Click here to make a donation. Mobility Matters: NexStride and the Parkinson's Community In this episode, we chat with Sidney Collin, the inventor of NexStride: a device transforming mobility for people with Parkinson's. Join us as Sidney shares the journey from idea to creation, offering insights about her innovative solution and overarching mission to empower people with confidence and independence. To learn more about NexStride and DeOro Devices, please visit: https://www.getnexstride.com/ or email: info@deorodevices.com To learn more about the Parkinson’s wellness fund, please visit: https://parkinsonswellnessfund.org/ Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 10

This content is made possible through the generous support of listeners like you. Click here to make a donation. In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 9 (Unfiltered Episode 1)

This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s.

This content is made possible through generous donations made by our listeners. In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through generous donations made by our listeners. In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year. Want to learn more about SteadyScrib? Find out more about their mission on their website. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible through donations made by our listeners. In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, design, and operations. Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of viewers and listeners like you. This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney, co-founder of the Davis Phinney Foundation, and Kevin Kwok, a Foundation board member, as they share their compelling journeys with Parkinson’s. To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/ Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s. To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here. To learn more about the Davis Phinney Foundation programs in Spanish, please visit our Spanish site. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! This content includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navigate the complexities of living with Parkinson's and performs a few of his favorite poems. Loving the Parkinson's Podcast? Listen to more episodes on our website! The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers.

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit:https://dpf.org/podcastdonation In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! The information in this podcast is for general information purposes only. It includes information about Parkinson’s and insights from our Parkinson’s community. It is not intended as a substitute for treatment advice from your own medical providers. Relevant Links Pain in PD Self-Assessment Tool Dr. Zawar’s Clinic Beyond RehabDr. Zawar’s program for pain in Parkinson’sContact Dr. Zawar

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology and using things like light and timing of exercise and medications to improve sleep. Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible. In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulation (DBS). In this episode of the Parkinson's Podcast, we spoke with six people with Parkinson’s who’ve had DBS. We discussed: How to begin the process How to talk to your family and friends about DBS and your hopes and concerns about it What to expect during the approval process What the surgery is really like (and do you have to shave your head) What recovery is like and what kind of support you might need The challenges of programming your device and the joy that comes when you get it right The myths, challenges, and victories of DBS And more! We hope you enjoy it! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to learn more about Deep Brain Stimulation? Check out our DBS Hub here! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, "The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease." In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages this difference can be small." Dr. Bloem and his co-authors also acknowledge that doctors and researchers "often emphasize the tremendous impact of [Parkinson's] on an individual’s life. However, in public awareness campaigns, we largely avoid discussions on the survival of people with Parkinson’s..." It's understandable: the topic of mortality and Parkinson's is often painful. However, in this episode of The Parkinson's Podcast, Dr. Bloem argues out that openly acknowledging that Parkinson's shortens lifespans is a good thing for people with Parkinson's for a multiple reasons. Listen to the episode to hear Dr. Bloem's perspective about multiple topics related to mortality and Parkinson's, including: with from Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

A previous version of this podcast had sound issues. We apologize and hope you enjoy! During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us. In this episode, topics discussed include: Feeling a loss of relevanceShame when I was diagnosedShame around impulse controlSide-effects of medications and shameImportance of community to overcome shame and more! We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more. In this episode, topics discussed include: How to address fear and shame in yourself and with othersHow to handle the fear of being marginalizedWhat is the biggest fear you have of the unknown?Dealing with the fear and grief of missing outHandling the fear of being alone and dating with Parkinson'sHow fear has evolved in our panelists from their diagnosis to the present and more! We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to come to the next Living with Parkinson's Meetup? Join us on the third Thursday of every month at 1 pm MDT by registering here. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can’t see in Parkinson’s. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's. Topics discussed include: and more! We hope you enjoy! Want to see other videos from our Victory Summit on Mental Health? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same. In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. We hope you enjoy it! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more. Topics discussed include: and more! We hope you enjoy! Want to read the article associated with this podcast? Check it out on our website! Want to watch the video version of this podcast? You can watch it on our YouTube! Loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation