Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone. Takeaways Chapters ➡ 00:00 Introduction 00:54 Introducing Dr. Chelsea Pierotti 01:13 Coping with Injuries 03:38 Coping Mechanisms 06:34 The Influence of Childhood Experiences 08:29 Developing Resilience 09:48 Transitioning from Dance 12:11 The Role of Pain 13:09 Challenges Faced by Hypermobile Dancers 13:23 Supporting Dancers through Challenges 17:49 The Importance of Social Support 18:43 Grief and Loss of a Dance Career 20:34 Developing Resilience and Coping Strategies 24:57 The Importance of Values 27:52 Shifting the Dance Culture 29:25 Coping with Career Shifts 33:22 Positive Coaching Approach 35:55 Developing Mental Skills 36:51 Applying Mental Skills to Life 37:24 The Importance of Self-Awareness in Dance 38:25 Mindset: Controlling the Controllables Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Pierotti: https://chelseapierotti.com https://instagram.com/dr.chelsea.pierotti #Dancers #Dance #Injuries #Transitions #Grief #MentalSkills #Hypermobility #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine. Takeaways Chapters ➡ 00:00 Introduction to Dr. Heather Tick 02:05 Understanding Integrative Medicine 07:41 Redefining Pain Management 10:31 The Importance of Education in Pain Care 12:58 The Role of Nutrition in Pain Relief 21:53 Exploring Different Modalities for Pain Relief 53:56 Impact of Habits on Movement 55:11 Benefits of Tai Chi 56:34 Connective Tissue and Movement 57:37 Role of Mast Cells in Stress Response 58:10 Effectiveness of Laser Therapy 01:00:35 Usefulness of Ozone Injections 01:02:03 Effectiveness of Shockwave Therapy 01:03:13 Overprescribed and Underutilized Medications 01:03:44 Importance of Stopping Medications 01:04:32 Impact of Proton Pump Inhibitors 01:05:37 Role of Gut in Producing Neurotransmitters 01:06:34 Importance of B Vitamins and Coenzyme Q10 01:17:26 Evaluation of Interventional Pain Management 01:19:16 Risks of Steroid Injections 01:21:26 Appropriate Use of Regenerative Medicine 01:25:30 Determining the Expertise of Medical Professionals 01:31:28 Differentiating Flares from New Problems 01:33:48 Challenges of IV Infusions and Regenerative Medicine Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Learn more about Dr. Tick https://heathertickmd.com/ https://www.facebook.com/heathertickmd/ Heather Tick - YouTube Buy Dr. Tick’s book https://tinyurl.com/3na9zchp Fibromyalgia and other pain conditions https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/ Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author) https://www.sciencedirect.com/science/article/pii/S1550830718300223 Medical errors https://pubmed.ncbi.nlm.nih.gov/28186008/ https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdf https://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medical Sham acupuncture https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/full Acupuncture in the emergency department https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/ Risk of stroke after chiropractic...

In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility. Watching this episode on YouTube is recommended since there are some graphics used. Takeaways Chapters ➡ 00:00 Introduction 01:22 Background and Interest in Hypermobility 11:56 Neurological Interest and Stroke Recovery 16:23 Traditional Physical Therapy Approaches 25:24 Importance of Bracing and Supports 39:18 Feet and Ankle Support 40:28 Pelvis Support 43:32 Neck Braces 51:46 Dispensing DME and Bracing 56:56 Carrying Products in the Clinic 01:02:59 Final Thoughts and Resources Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability Bendy Bodies's Amazon Page Eclipse Cervical Collar - Thuasne USA https://www.ehlers-danlos.com/echo/ Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge https://www.tamingthezebra.org/ Hypermobility/Ehlers-Danlos Syndrome Educational Handouts #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind

This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin. The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. Takeaways Chapters ➡ 00:00 Introduction and Background 01:58 Motivation for Writing the Book 03:28 Challenges in Managing EDS and HSD 06:08 Different Types of Hypermobility and Connective Tissue Disorders 07:35 Approaching Physical Therapy for EDS and HSD 09:21 Primary Treatment Approach and Identifying Key Issues 21:04 Approaching Physical Therapy with Overlapping Problems 22:48 Non-Linear Path of Physical Therapy 31:01 Modifying Movement for Gentle Exercise 31:21 Addressing Deconditioning and Weakness 35:13 Neural Rehabilitation and Muscle Firing 36:09 Steps to Successful Strengthening 40:18 Expanding the Toolkit for Physical Therapy 43:13 Approaching Stabilization and Alignment 56:32 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Virtual book event sign up https://www.tamingthezebra.org http://www.elevationwellness.co/ www.goodhealthphysicaltherapy.com/clinic-staff/ www.medbridge.com/heather-purdin-physical-therapy https://www.olagrimsby.com/courses-page/ https://www.naiomt.com https://feldenkrais.com https://counterstrain.com https://frequencyspecific.com https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/ #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals. Takeaways Chapters ➡ 00:00 Introduction to Dr. Lillian Holm 01:15 What can physical therapy do for people with symptomatic joint hypermobility? 04:19 Reasons why physical therapy may not lead to expected outcomes 09:09 How to find the best possible physical therapist for EDS and HSD 11:58 Misconceptions about physical therapy for joint hypermobility 21:25 Approach for people who don't like to exercise 25:41 Resetting the boom and bust cycle 35:23 Metrics for measuring success in physical therapy 50:18 Progress and Setbacks 52:47 Balancing Stretching with Strengthening 56:22 Starting to Walk Again 58:12 Physical Therapy for Scoliosis 01:01:04 Resources and Information 01:02:23 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Learn more about guest, Dr. Lilian Holm: https://www.lilianholm.com/ https://www.instagram.com/hypermobilitydoctor/ https://www.facebook.com/HypermobilityD Read her guest blog post for the Hypermobility MD website: https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you #RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries. This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much more. Takeaways YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Chapters 00:00 Introduction and Overview 01:38 Difference between Occupational and Physical Therapy 04:44 Common Reasons for Hand Pain in Connective Tissue Disorders 09:53 Approach to Hypermobility in Hands 12:46 Strengthening Hands with TheraPutty 20:55 Strengthening Hands without Overdoing It 21:27 Reasons Traditional Therapies May Not Work for Hand Pain 24:08 Low Profile Hand Support Options 28:23 Ring Splints and Insurance Coverage 38:34 Ring Splints and Plastic Splints 40:33 Hand Exercises for Different Age Groups 42:33 Avoiding Strain and Hyperextension 45:21 Tips for Traveling with Hand Problems 47:51 Challenges of the Medical System for Chronic Pain 51:22 Hand Pain with Writing 53:52 Hand Pain and Numbness in Sleep 56:16 Thumb Pain and De Quervain's Tendonitis 59:17 Cubital Tunnel Syndrome 01:02:19 Torn Triangular Fibrocartilage Complex (TFCC) 01:06:14 Decuervain's Tendonitis 01:09:17 TFCC Tear 01:13:32 Trigger Finger 01:17:31 Differentiating Trigger Finger from Subluxation 01:18:38 Pulley Injuries in Rock Climbers 01:19:25 Hypermobility Misdiagnosis 01:20:46 Hypermobility Hacks Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Learn more about guest, Corinne McLees here: https://www.handcoachcorinne.com/ Check out the items mentioned in episode 91 here: https://amzn.to/49FkaGY Check out the Bendy Bodies Amazon Shop here: https://www.amazon.com/shop/hypermobilitymd Links to other products: https://www.silverringsplint.com/ https://www.evabellejewelry.com/ https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne #HandPain #HandProblems #HandWeakness #WristPain #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog. They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors. Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Chapters 00:00 Introduction of Dr. Ilene Ruhoy 01:57 Defining Brain Fog 04:14 Risk Factors for Brain Fog 09:42 Identifying Contributing Factors 11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome 14:09 Cognitive Dysfunction and Craniocervical Instability 18:18 Cognitive Dysfunction and CSF Leak 22:59 Cognitive Dysfunction and Dysautonomia 25:25 Cognitive Dysfunction and Upper Cervical Instability 30:12 Cognitive Dysfunction and CSF Leak 38:11 Applying Knowledge in Clinical Practice 39:04 The Importance of Making a Meaningful Difference 40:31 The Role of Nutrition in Cognitive Function 42:38 The Impact of Food Choices on Inflammation 43:44 Avoiding Processed Foods and Sugar 44:38 The Role of Complex Carbohydrates and Dairy 45:28 Increasing Vegetable Consumption 46:44 Improving Lifestyle Factors 47:09 Where to Find Dr. Ilene Ruhoy Online Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/ https://patreon.com/unraveledpod https://instagram.com/ileneruhoymdphd/ https://twitter.com/RuhoyMD https://tiktok.com/ileneruhoymdphd #BrainFog #BrainFogAwareness #BrainHealth #FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness #MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior #BendyBodiesPodcast #BendyBuddy #HypermobilityMD

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility. Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep. Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways: Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility. Understanding the circadian rhythm is important for optimizing sleep. Light, especially blue light, can significantly impact sleep quality. The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle. Morning light exposure is important for setting the body's internal clock. The timing of eating can affect sleep quality. Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality. Shifting sleep patterns can be challenging, especially for individuals with chronic illness. Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes. Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea. Sleep medications should be used cautiously due to potential side effects and dependency issues. Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality. Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep. Education on sleep disorders and their relationship with chronic illness should be improved in medical training. Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education. Chapters 00:00 Introduction of Dr. Roger Seheult 03:22 Understanding the Circadian Rhythm 07:02 Impact of Light on Sleep 09:20 The Suprachiasmatic Nucleus and its Role in Sleep 09:49 The Importance of Light for People with Chronic Illness 13:35 The Effect of Blue Light on Sleep 15:28 Ideal Bedtime for Optimal Sleep 17:25 The Impact of Electronics on Sleep 19:26 The Role of Melatonin in Sleep 20:05 The Importance of Morning Light 23:29 The Timing of Eating and its Effect on Sleep 24:00 Challenges of Working from Home and Small Meals 25:20 Sleep Schedule and Chronic Illness 28:57 Falling Asleep While Watching TV 31:49 Sleep Apnea and Chronic Illness 39:05 Sleep Apnea and Temporomandibular Dysfunction 44:09 EDS and Central Sleep Apnea 44:30 Elevating the Head of the Bed 45:23 Alignment Problems and Breathing 47:37 Sleep Medications and Side Effects 1:00:15 Supplements for Sleep 1:02:01 Sleep Watches and Monitoring Devices 1:03:01 Sleep Positions and Joint Instability 1:04:46 Paresthesias and Numbness in Sleep 1:05:11 Pillow Recommendations for Cervical Instability 1:07:35 Waking Up in Pain 1:09:58 Sympathetic Nervous System Activation 1:12:23 Safety of Melatonin 1:14:49 Improving Education on EDS and HSD Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for...

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key points discussed: **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations. **Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records. **Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved. **Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities. **Service Dogs:** The episode discusses obtaining a service dog and the associated considerations. **Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations. **Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed. **Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted. **Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed. Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities. Chapters 00:00 Introduction and Overview 01:14 Americans with Disabilities Act 03:28 Reasonable Accommodations in the Workplace 04:38 Determining Reasonable Accommodations 09:07 Accommodations in High School and College 11:22 Challenges with Disability Services in Education 13:59 Advocating for Accommodations in Education 16:36 Disclosing Disabilities to Employers and Universities 19:03 Determining Job Compatibility with Accommodations 21:03 Getting a Service Dog 23:37 Regulations and Considerations for Service Dog Training 36:33 Dealing with Unresponsive Disability Lawyers 38:07 Appealing Denied Disability Benefits 40:03 Legal Recourse for Undertreatment of Pain 43:07 Accommodations for Productivity Standards 43:45 Correcting Inaccuracies in Medical Records 47:46 Knowing When to Get an Accommodation or Apply for Disability 48:36 Considerations for Applying for Disability 50:23 Assets and Poverty...

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion. Takeaways Chapters 00:00 Introduction and Welcome 00:30 Introducing Josh Spell 01:36 Prevalence of Eating Disorders in Dancers 03:09 The Relationship Between Hypermobility and Eating Disorders 05:08 Understanding Eating Disorders as Coping Mechanisms 08:00 The Intersection of Eating Disorders and Other Mental Health Issues 10:35 The Impact of Social Media and Diet Culture on Eating Disorders 13:25 Self-Image and Body Standards in the Dance World 16:19 The Influence of Social Media and Zoom on Body Image 20:25 Balancing Sacrifice and Suffering in the Dance World 23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health 27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder 32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder 36:31 Steps to Take If You Suspect You Have an Eating Disorder 42:18 Hypermobility Hack: Giving the Eating Disorder a Persona 45:12 Where to Find Josh Spell Online This important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Resources mentioned during the episode: Links for show notes: https://flexiblemindcounseling.org/ https://www.instagram.com/spellbound20/ https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/ https://www.jennifer-milner.com/ National Suicide Prevention Lifeline: 1.800.273.8255 Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in US Eating Disorder Helpline: Call or text 1.800.931.2237 NEDA – National Eating Disorders Association: www.nationaleatingdisorders.org NAMI – National Alliance on Mental Illness: www.nami.org Project Heal – https://www.theprojectheal.org/ Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expert Find a Therapist: www.psychologytoday.com/us/therapists #Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD

In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension. Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws. He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry. YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation · Why people with EDS are at increased risk of craniocervical instability · What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability · Why he started performing surgery for Eagle’s Syndrome · Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems · Causes of elevated intracranial pressure This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment. It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player. Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial. This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://chiariedscenter.com/ Access Dr. Bolognese's intake forms here. https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0 #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers. Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Chapters 00:00 Introduction 01:04 Motivation for Giving the Talk at the EDS Society Global Conference 04:14 Advocacy and the Challenges of the Healthcare System 07:16 Approaching Advocacy without Blame 10:27 Grief and Acceptance in Chronic Illness 13:34 Key Takeaways from the Talk 18:04 The Role of the Prefrontal Cortex in Chronic Illness 19:12 Neurodiversity and Advocacy 20:12 Presenting Research to Doctors 23:02 Dealing with Suboptimal Experiences with Clinicians 26:09 Processing Traumatic Experiences 29:16 The Role of Grief in Chronic Illness 36:09 Coping with Traumatic Experiences 40:36 Presenting Research to Doctors (Continued) 46:27 Navigating the Challenges of Collaboration 48:07 Addressing Multiple Symptoms and Issues 53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation 59:41 Finding Your Way Through an Unfair Journey This important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Resources mentioned during the episode: https://www.STEMpsychology.com https://www.instagram.com/stempsychology/ https://www.linkedin.com/in/drcassil https://drgabormate.com/book/the-myth-of-normal/ https://www.resmaa.com/merch https://www.besselvanderkolk.com/ #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting #BendyBuddy #HypermobilityMD #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem

In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed. Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Key Highlights: 1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders. 2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative. 3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities. 4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations. 5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells. 6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites. 7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life. 8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions. 9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS. 10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved. 12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects. 13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS. 14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions. Chapters 00:00 Introduction 00:37 Creating Awareness and Increasing Treatment Options 03:09 The Birth of the Documentary Project 05:20 Filming in New York 07:19 Filming in St. Louis 10:32 The Motivation to Work with Complex Patients 15:49 The Journey of Recognizing MCAS 17:34 The Impact of MCAS Treatment 21:00 Personal Experiences and Incorporating MCAS Treatment 22:42 The Need for an Educational Library 25:29 The Challenge of Condensing Information 26:21 Describing MCAS in Sound Bites 31:10 The Importance of Raising Awareness 34:42 Growth and Development Abnormalities in MCAS 40:03 Main Points about Hypermobility Syndromes and Dysautonomia 44:48 Partnership with LDN Research Trust 51:47 Final Words and Call for Support 54:26 Recognition and Treatment of Unrecognized Patients 55:44 Importance of Learning and Trying 56:13 Gratitude for Dedicated Doctors 56:47 Closing Remarks and...

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS. Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients. Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Chapters 00:00 Introduction and Warm-up 01:03 Background and Expertise of Dr. Adam Hansen 03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders 09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility 14:01 Evaluation and Diagnosis of Chest Wall Problems 21:16 Symptoms and Impact of Chest Wall Compression Syndromes 24:49 Emerging Areas of Discovery in Slipping Rib Syndrome 28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging 36:37 Abdominal Compression Syndromes and Chest Wall Disorders 41:19 Self-Help Strategies and Avoiding Surgery 43:48 Posture and Exercise 45:09 Taping Strategies and Lifestyle Changes 46:23 Avoiding High Velocity Manipulation 48:08 Qualifications for Surgery 51:18 Preparing for Surgery 53:21 Surgical Procedures 58:08 The Hansen 3.0 Technique 01:01:18 Outcomes and Complications 01:20:06 Hypermobility Spectrum Disorder and EDS 01:21:09 Male-Female Differences 01:22:11 Recurrence and Additional Slipped Ribs 01:23:49 Physician Awareness and Education 01:24:58 Teaching Other Surgeons 01:26:05 Building a Network of Surgeons 01:26:50 Correlation Between Cervical Instability and Slipping Ribs 01:28:38 Hypermobility and Skeletal Disorders 01:29:59 Key Areas for Stability 01:30:17 Hypermobility Hacks 01:31:00 Finding Dr. Adam Hansen Online 01:33:33 Closing Remarks This important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: http://www.youtube.com/@adamhansen6524 Slipping Rib Syndrome Physical Examination SD 480p: https://www.youtube.com/watch?v=Na69xXUZGhg

In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Jill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience. Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability. Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception. The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness. The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies. Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states. Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity. Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain. Community support and engagement are crucial for managing hypermobility. High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals. It is highly recommended to have individual guidance for this. Chapters 00:00 Introduction and Background 03:01 Inspiration for Writing the Book 09:11 Organization of the Book 13:30 Why Bendy Bodies Should Care About Fascia 15:40 Starting with Limited Budget 19:02 Helpful Exercises for Bendy Bodies 23:27 Addressing Mixed Picture of Bendiness and Stiffness 28:07 The Five P's of the Parasympathetic Nervous System 36:14 Low Back Decompression Exercise 46:07 Improving Core Strength and Breathing 51:41 Understanding Zone One, Zone Two, and Zone Three Breathing 57:29 Self-Fascial Treatments for Better Breathing 01:00:10 Managing Hypermobility Symptoms 01:03:35 Extracorporeal Shockwave Therapy for Acute Pain 01:09:10 The Power of Community and High-Intensity Interval Training This important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: www.tuneupfitness.com https://thereadystate.com/ https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/ https://fasciaguide.com/experts/carla-stecco/ https://jen.health/ https://www.tuneupfitness.com/shop/online-course/roll-into-hiit https://patternpt.com/ https://www.youtube.com/@TuneUpFitness https://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref

In this episode, YOUR guest is Colin Halverson, PhD. He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS). YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Chapters 00:00 Introduction 00:29 Dr. Halverson's Background and Research Interest 03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome 05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome 07:02 Antagonistic Relationship with Healthcare Professionals 08:29 Impact of Antagonistic Relationship on Patients 09:47 Triggers for Transition into Unbearable Symptoms 12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome 13:44 Importance of Panoply of Symptoms in Diagnosis 15:22 Challenges in Describing Multi-Systemic Symptoms 16:26 Numeric Pain Scales and the Complexity of Chronic Pain 19:40 Research on Hypermobile Ehlers-Danlos Syndrome 20:39 Research on Other Forms of Ehlers-Danlos Syndrome 23:56 Failure of Empathy in Patient-Provider Relationships 27:24 Worse Health Outcomes and Trust Issues 28:06 Impact of Failure of Empathy on Patients 30:33 Dealing with Antagonistic Relationships 31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome 36:12 Clinician-Associated Traumatization and its Differences from Other Constructs 39:21 Surprising Aspects of the Research 42:01 Recommendations for Patients with Clinician-Associated Traumatization 45:01 Future Directions of Research 49:04 Closing Remarks This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, articles, and services mentioned in this episode: https://bioethics.iu.edu/people/colin-halverson.html https://pubmed.ncbi.nlm.nih.gov/34524722/ https://doi.org/10.1016/j.ssmqr.2023.100237 Dr. Halverson can be reached at chalver@iu.edu. #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney

In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing. Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Takeaways Chapters 00:00 Introduction and Guest Introduction 02:05 Causes of Foot Pain in People with Joint Hypermobility 06:12 Approach to Hypermobility Patients 08:18 Common Causes of Foot Pain 10:10 Pain Begets Pain 11:36 Approach to Hypermobile Patients 14:59 Orthotics for Children 17:02 Different Approach for Hypermobile Patients 19:06 Assessment and Treatment of Foot and Ankle 21:00 Shoe Selection and Tying Techniques 23:19 Different Foot Types and Shoe Recommendations 26:31 Importance of Firm Heel Counter in Shoes 27:45 Tying Shoes Properly 31:40 Recommended Shoe Brands 34:53 Orthotics and Failed PT 39:51 Addressing Failed PT 47:51 Orthotics and Failed Orthotics 53:48 Over-the-Counter Orthotics 56:06 Self-Mobilization of Feet 01:08:46 Hypermobility in Ice Skaters 01:09:16 Hypermobility Hacks 01:09:26 Foot Problems and Solutions 01:10:21 Lacing Techniques for Foot Comfort 01:10:54 Finding More Information Online This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://lisaralstonpt.janeapp.com/ https://www.bauerfeind.com/b2c/ https://www.oofos.com/ https://www.abeofootwear.com/ https://www.humanlocomotion.com/ https://www.brooksrunning.com/en_u https://www.hoka.com/en/us/ https://www.aetrex.com/home https://yoursole.com/us https://www.vasylimedical.com/ https://www.birkenstock.com/us https://www.nike.com/ https://www.saucony.com/en/home https://naot.com/ https://www.keenfootwear.com/ https://www.merrell.com/US/en/home https://www.chacos.com/US/en/home https://www.mephisto.com/us/ https://www.theballetblog.com/about-us/lisa-howell/ https://nyulangone.org/locations/harkness-center-for-dance-injuries https://www.vasylimedical.com/products/easyfit https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/

In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · What specialty evaluations are most important for patients with hypermobility syndromes · What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD · How they determine when to perform genetic testing and the findings in this group of patients · How his approach has evolved since the clinic’s inception in 2019 · The research that he has conducted and relevant findings · The role of autoimmunity in EDS and HSD · Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS) · The role of the immune system in symptomatic joint hypermobility · The relationship with fibromyalgia · What percentage of patients are diagnosed with hEDS vs HSD · What he says to people who assume that HSD is a less serious condition This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206 https://x.com/knidac?s=21 https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf https://pubmed.ncbi.nlm.nih.gov/35687402/ https://www.ehlers-danlos.com/ https://www.ehlers-danlos.com/healthcare-professionals-directory/ #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility

In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome) · How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related · What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis · How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware” · What correlations exist between Crohn's disease, irritable bowel disease and RLS · Why it is so crucially important to listen to AND believe our patients · How Mast Cell Activation Disease and MCAS differ from one another · Why the term “syndrome” can be problematic · What environmental factors can play a role in MCAS · When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis · What testing can be performed for MCAS and the significance of tryptase levels · How YOU can help support our nonprofit documentary film and free online educational library, Still Standing. The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life. This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.gidoctor.net/provider/leonard-weinstock-md https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/ https://www.mcasfund.org/ https://www.nowleap.com/leap/ https://www.ifm.org/ https://ldnresearchtrust.org/ https://www.ldnscience.org/ https://www.genebygene.com/ #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast #PodcastDiscoveries #EDSdoctor #CompressionSyndrome

In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · Inequality in healthcare and how we can best advocate for ourselves · Why we should prioritize diversity, equity, and inclusion in medical spaces · The need for personal responsibility when learning about sensitive topics · Discrimination and power dynamics in the healthcare setting · Handling microaggressions · Addressing internalized ableism · The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.healedandempowered.com/ #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor