Arthritis Life

On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain. Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details plus a full transcript and video: See the episode page on the Arthritis Life website.

Dr Dave & Dr Campbell answer Cheryl’s burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy. Dr. Campbell encourages participation in research studies to better understand these complex issues. Dr. Dave emphasizes the need for precision medicine approaches in treating autoimmune diseases like RA, where individualized treatment plans can be tailored to each patient's unique needs. Despite the challenges posed by autoimmune diseases and COVID-19, they express optimism about the future of treatment options and the ongoing medical advancements. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & video Go to the episode post on the Arthritis Life Website (page coming soon)!

Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process. Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging societal norms around what constitutes a "normal" life. They also challenge the idea that disability is necessarily a “bad” word. They emphasize the importance of self-care and finding joy in everyday activities, even if they require accommodation. For Catherine, participating in activities like surfing, albeit in an accommodated manner, brings fulfillment and contributes to her definition of living a good life with chronic illness. Throughout the conversation, Cheryl and Catherine underscore the values of self-advocacy, self-acceptance, and finding happiness on one's own terms. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details For full episode details including hyperlinks to things discussed on this episode, go to the episode page on the Arthritis Life website.

Trigger warning: orthorexia / eating disorders; fear of foods In Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family. Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs. Episode at a glance: Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript & video: Go to the episode page (coming soon) on the Arthritis Life website.

Christine highlights the importance of lifestyle methods to manage chronic conditions including sleep hygiene, stress management, anti inflammatory nutrition, exercise and more. They discuss the importance of focusing on what brings joy and meaning to one's life while managing chronic illness. Overall, the conversation underscores the importance of a comprehensive approach to chronic pain management that addresses both the physical and emotional aspects of the patient's well-being. Episode at a glance: Chronic pain explained: Lifestyle: Mental health: Acceptance:Joy:Patient-provider relationship: Long Covid and Fibromyalgia tips:Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now. For full details including a video and transcript: Go to the episode page on the Arthritis Life Website (episode page coming soon).

Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the condition. Episode at a glance: Advocacy and Awareness: What happens when kids with JIA become adults?Thriving with JIA: Coping toolsMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a video & transcript Coming soon on the Arthritis Life Website.

Episode Summary ****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis. She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her experiences navigating different treatments to manage her RA over the past 32 years. Christine shares stories of her travels through South Korea and Indonesia, and her passion for dancing. She shares how she developed resilience during challenging situations, from insurance barriers and navigating healthcare disparities between countries, to adversity in relationships. Christine explains how dance became a transformative force in her life, where she found a space for self-expression and physical release. Christine and Cheryl emphasize the importance of self-advocacy in managing chronic illness, building a supportive community, and finding joy through the challenges. *Trigger warning for this episode*: Between minute 29:00-34:00 there is a discussion of emotional abuse, sexual assault, rape, and abortion. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online empowerment program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video & transcript: See the episode page on the Arthritis Life Website.

Rosemary also shares her experience with a mystery skin rash that ended up being a rare psoriatic arthritis medication side effect: leukocytoclastic vasculitis triggered by drug-induced lupus, and an eventual diagnosis of Palisaded Neutrophilic and Granulomatous Dermatitis. Throughout the episode, Rosemary and Cheryl discuss the importance of coping skills for difficult medical experiences. They also emphasize the importance of finding the right medications, lifestyle strategies, and the role of psychosocial support. Uncertainty and setbacks can be overwhelming, but self-compassion, support systems, acceptance, and perseverance can help you pursue a fulfilling life despite health challenges. Episode at a glance: Chronic Illness Journey: Medication ManagementLifestyle strategies:Emotional ResilienceAdapting to Change: SupportAdvice to Newly Diagnosed PatientsMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript Go to the episode page on the Arthritis Life Website (transcript coming soon!).

Cheryl and Dr. Kimberly discuss the importance of pain science education to help patients better understand and manage their pain perception. The also explore the importance of building a network of health professionals and support groups to empower patients to advocate for themselves and navigate their treatment journey effectively. They conclude by discussing how to accept limitations while finding joy and adapting to new activities. Episode at a glance: Building Support Networks: Pain Perception: Practical tips for Exercise for rheumatic disease: Which lifestyle interventions have the most scientific evidence: Acceptance and Adaptation: Individual needs: Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a transcript: Go to the episode page on the Arthritis Life Website.

In episode 116 of the Arthritis Life Podcast, Lauren Huffman shares her journey with Ankylosing Spondylitis, and how her passion for occupational therapy and dogs has brought her meaning even through challenges. She and Cheryl give insight into the “behind the scenes” of Arthritis Life, and what resources are available. They discuss the importance of support in navigating rheumatic disease, and how the comprehensive approach of Rheum to THRIVE fills gaps in the healthcare system. Episode at a glance: Diagnosis StoryOccupational TherapyArthritis Life: DogsMental Health and Identity:Advice for Newly Diagnosed Patients:Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details plus a transcript Go to the show page on the Arthritis Life Website.

In this episode, Kate shares her journey getting diagnosed with psoriatic arthritis while working as a chef in London. She opens up about her post-diagnosis emotional roller coaster and shares how joining Cheryl’s Rheum to THRIVE online support and education program helped her feel more confident, empowered and supported. She also details other programs that helped her including a mindfulness course and CBT therapy. The episode ends with Kate sharing what it means to her to live a “good life” with rheumatic disease. This conversation was first recorded and released as episode 79 in 2022. Episode at a glance: Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode show notes including a transcript: Go to the episode page on the Arthritis Life website.

Episode at a glance: For full episode show notes go to the episode page here. Diagnosis story:Creative Pursuits:Resilience and Adaptability:Self-Awareness:Living in the Moment:Advice to newly diagnosed patients:Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For Full Episode Show Notes + Transcript Go to the episode page here.

In this episode, Cheryl discusses the major themes in Taylor Swift’s music that relate to the chronic illness experience, from the “Haunting” experience of a medication not working anymore to my own “Anti Heroic” immune system to the constant question of “Are We Out of the Woods yet?” when in a flare up. After weaving in and out her own experience with rheumatoid arthritis and anxiety with listener contributions, Cheryl concludes by exploring the the “State of Grace” we experience when we connect with the chronic illness community. Throughout, she shares how she’s learned to accept what’s out of her control and the empowerment of acknowledging that while my journey might have been rocky, “Long Story Short: I Survived.” Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video: Go to the episode page on the Arthritis Life Website!

Cheryl and Dr. Hosey delve into the importance of accepting the unpredictability of life with chronic illness and redefining what constitutes a "normal" life. This includes a discussion about resilience, mindfulness, and the potential for personal growth in the face of chronic health struggles. Dr. Hosey's shares how she turned her pain into purpose, referencing her upcoming book, 'Girl on a Gurney: Trading my White Coat for a Hospital Gown’. She also provides tangible solutions for medical gaslighting, including medical student education in this phenomenon. ** Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors ** Episode Sponsor Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! *For full episode show notes, go to the show page on the Arthritis Life website at: https://arthritis.theenthusiasticlife.com/2024/01/05/from-medical-gaslighting-to-a-sjogrens-diagnosis-dr-rebecca-hoseys-story/

After discovering that episode 14 is the most downloaded of all my Arthritis Life Podcast episodes, I decided to release it with some additional insights from my perspective now. I also provide some updates after facilitating support groups for over 250 people in the last three years. This episode includes a deep dive into how rheumatoid arthritis affects more than just joints – it affects people’s whole bodies, and whole lives. I reflect on the five things I wish I had known when I was first diagnosed, way back in 2003. I hope that these reflections help you feel less alone and more grounded as you try to manage the best life possible with inflammatory arthritis! Episode at a glance: Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript: Go to the episode page on the Arthritis Life website.

This is a follow up to episode 45: “What’s it like to be on Methotrexate for Rheumatoid Arthritis or Psoriatic Arthritis?” Paulina, Jenny, Ali, and Ananthi share what’s changed and what has stayed the same with their medications, including whether they’re still on methotrexate. They also reflect on how they’ve navigated the ups and downs of chronic illness life and share how grief and joy can co-exist. They also highlight the importance of finding a supportive community with shared experiences. They also discuss their choices around how much to share on social media about their experiences. Paulina, Jenny, Ali, and Ananthi each share wisdom that has guided them along this nonlinear journey; encouraging self-care, advocating, celebrating small victories, and approaching life one day at a time. They conclude with a discussion about how to balance acceptance and adapting with a “fixing” mindset. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video: Go to the episode page on the Arthritis Life website.

Cheryl and Dr. Amigues touch upon the significance of accurately diagnosing RA and the potential for misdiagnosis, especially as this influences the ability to receive appropriate care. They give valuable insight into the journey of living with RA, and bring a positive perspective that thriving can be possible through effective medical interventions and lifestyle modifications. For full episode details including a transcript and video, go to the episode page on the Arthritis Life Website. Episode at a glance: Being a rheumatologistImportance of Accurate Diagnosis: Individualized Patient Care:Rheumatoid Arthritis (RA) Remission: Management through lifestyle adaptationsMental Health and Self-Worth: Language Matters:Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a transcript and video: For full episode details including a transcript, go to the episode page on the Arthritis Life Website.

Emily explains what post-exertional malaise is, and highlights the challenges associated with diagnosing and managing ME/CFS. Emily emphasizes the need for personalized care and the critical role of patients in advocating for their own health. This conversation underscores the significance of creating strong support networks for people living with ME/CFS, as well as the broader chronic illness community. They also highlight the value of sharing personal stories to raise awareness and bring about policy changes. Episode at a glance: Advocacy and awareness: Symptom management: Coping strategies and mental health: Importance of having a support network: Patient/healthcare provider relationship:Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Speaker Bios: Emily Taylor Vice President of Advocacy and Engagement at Solve ME, Emily brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years’ experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies. She is also a veteran of several successful electoral campaigns, where she trained others in effective social media and online organization. She received a B.A. with honors in politics and international relations from Scripps College in Claremont and earned her M.A. in American politics from Claremont Graduate University. Emily draws inspiration from her mother who has battled ME/CFS as well as chronic autoimmune and thyroid conditions since 1999. Cheryl Crow Cheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. For full episode details including a detailed transcript and video: Coming soon on the Arthritis Life Website.

Cheryl and Brianna discuss the challenges and the benefits of sharing your chronic illness story publicly on social media, including how they deal with both positive and negative feedback from a growing audience. They also discuss the positive impact of finding support and inspiration online. Brianna shares her involvement with the Arthritis Foundation and the Lupus Foundation, highlighting the importance of giving back and helping others in the community. The role of support groups, camps, and patient advocacy organizations in providing a sense of community and connection for individuals living with chronic diseases is highlighted. Cheryl and Brianna also discuss the value of adapting and accepting one's condition to live a fulfilling life. Finally, they emphasize the importance of acceptance and adaptation in thriving with rheumatic diseases. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For full episode details including a video and transcript Go to the episode page on the Arthritis Life website for full details!

Summary: Cheryl and Tyra delve into Tyra's unique journey as a Black woman living with rheumatoid arthritis (RA) and her inspiring efforts to create a documentary about her experiences. Tyra, an actress and filmmaker, shared how her struggle with RA led her to embark on the documentary project. She discussed the challenges of living with chronic pain, the lack of representation for people of color with RA in media, and the need to make creative spaces more accessible. Tyra emphasizes the importance of re-parenting oneself and adopting a compassionate attitude toward one's body when dealing with chronic illness. She also touches on the significance of finding joy in love, laughter, and supportive communities despite the pain. Cheryl and Tyra discussed the complexities of living with RA, including the physical and emotional challenges, and the importance of representation and empathy in media. Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Episode Sponsors Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! For Full Episode Show Notes: Go to the episode page on the Arthritis Life Website for detailed show notes including a full transcript and video of this conversation.