Talking Blood Cancer

In this episode of the Talking Blood Cancer podcast, Kate Arkadieff invites Theresa Webb to share her deeply personal journey with non-Hodgkin's lymphoma and her daughter's battle with acute lymphoblastic leukaemia. Kate begins the conversation by acknowledging the tough reality faced by patients and their families. Theresa opens up about the complexities of managing her own health alongside her role as a mother and business owner after being diagnosed with blood cancer. The discussion sheds light on the immense pressure she faced advocating for her daughter's health, how she had to streamline her life to cope with the demands of treatment, and the financial and emotional strain it placed on her. Despite these challenges, Theresa speaks to the resilience and strength displayed by both her and her daughter Summer, transitioning from paediatric to adult medical care and overcoming significant obstacles. Highlighting the often-overlooked aspects of life after cancer treatment, Theresa discusses her post-treatment physical and emotional struggles, including her physical shutdown and the subsequent formation of her mental management business. She also reflects on the changes in her own identity post-diagnosis and the importance of self-care. Through her story, Theresa provides invaluable insights into the importance of appreciating the small things in life and the supportive role played by her father and daughters during the most challenging times. Kate and Theresa converse about the intricate details of their treatment experiences, the impact on family dynamics, and the necessity of support networks. They also delve into the lessons learned and the wisdom gained through their cancer journeys. The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this enlightening episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes Perry Judd, a remarkable blood cancer survivor with a tale of resilience and triumph. Throughout the episode, Perry provides an in-depth look at his personal ordeal with blood cancer, recalling a harrowing infection that led to a transformative health journey. His narrative details a demanding transplant, aggressive chemotherapy, and the formidable side effects that followed, offering listeners an insider’s perspective on the challenges faced during treatment. They explore Perry's out-of-body experiences and his battle with communication barriers and pain management. They shine a light on the significant role alternative medicine and his employer's support played in his recovery. Perry's story is one of connection and endurance, highlighting the power of goal-setting while grappling with serious illness. Listeners will be inspired by Perry's remarkable return to competitive sports, winning multiple medals in cycling and triathlon events, and his ambition to participate in future competitions. His message is one of hope and encouragement, aiming to motivate others with similar diagnoses to believe in their strength and potential. His insights extend beyond his sports achievements, delving into the gratitude he feels for his family, friends, and access to quality healthcare that steered him through the delicate post-transplant phase. Perry's gradual return to his job at Queensland Health and his ascent to a leadership role demonstrate his commitment to using his experience to benefit others in his professional capacity. Finally, Perry shares heartfelt advice for those newly diagnosed with blood cancer: to treat oneself with kindness, trust in the circle of support, and remember that this challenging phase does not define who you are. His story leaves a lasting impression on the importance of attitude, love, and trust in overcoming leukaemia. The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of Talking Blood Cancer, host Kate Arkadieff welcomes Tahli Batkilin, who bravely shares her personal battle and subsequent victory over blood cancer. Tahli takes us through the moment she first received her lymphoma diagnosis amidst the chaos of lockdown and running her home baking business. The confusion of initial misdiagnoses escalating to the eventual life-changing news is recounted with raw honesty. Tahli's determination and resilience shine through as she explains how she continued to push for answers when treatments didn't seem to be working, embodying the critical message of being your own health advocate. Tahli speaks to the heart-wrenching challenges she faced, not just in dealing with her illness but also in adapting her role as a mother during this turbulent time. From the intimacy of family dinners disrupted by grave news to the everyday act of walking her children to school, the juxtaposition of normalcy and the fight for life is poignant. Tahli also discusses the physical and emotional impact of traditional chemotherapy, the process and her experience with innovative CAR T cell therapy, and the significance of minimal side effects in comparison to her previous treatments. Her remission is celebrated, and the conversation shifts to the transformative perspective on life that arises from enduring such a profound personal journey. The discussion concludes with a reflection on the unpredictable nature of life and an emphasis on recognizing the value in every moment. Tahli's story is a powerful testament to the strength of the human spirit, the importance of supportive care, and the advances in blood cancer treatment. The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this inaugural episode of the Talking Blood Cancer podcast, our distinguished host Kate Arkadieff welcomes Peter Geary, a resolute myeloma patient and advocate, to share his profound journey since being diagnosed with asymptomatic myeloma in 2018. The episode begins with Peter recounting the moment of diagnosis and the subsequent "watch and wait" approach that marked the early days of his experience with blood cancer. Peter's story provides a candid exploration of the evolution of his disease 18 months post-diagnosis, the treatments he underwent—including chemotherapy and an autologous stem cell transplant—and the life adjustments he has had to make. Kate and Peter engage in a thoughtful dialogue, covering the physical and psychological repercussions of his treatments, strategies for side effect management, the significance of fitness, and the preparations necessary for a stem cell transplant. Also tapping into Peter's laudable involvement with advocacy groups, his deep-seated commitment to the cause of equitable healthcare access, and the necessity of standardised care protocols, particularly in regional Australia. This episode testimony from Peter underscores the vital role of a resilient mindset, the support of loved ones, and a proactive approach to one's healthcare journey in navigating the complexities of living with blood cancer. Listeners also gain insights into the practical aspects of recovery, from maintaining a healthy weight to navigating daily activities while managing side effects from ongoing treatments. Moreover, the episode features enriching discussions on the support services essential in crafting a harmonious recovery environment and the transformative power of exercise in maintaining a semblance of normalcy in life. Kate concludes the session by expressing appreciation for Peter's wisdom and contributions, affirming the episode's provision of valuable guidance for anyone navigating a blood cancer diagnosis or supporting someone in that battle. The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this special Christmas wrap-up episode of Talking Blood Cancer, hosts Kate and Maryanne reflect on the stories and conversations shared in Season 3 of the podcast. We touch on various topics including feelings of happiness, managing fatigue, coping with infections, and pondering the essence of time. The festive season is a significant time, one that it can be both a time of celebration and reflection. We offer you wishes of love, health, and happiness for the upcoming year. This is a time to focus on the love that surrounds you, and to seek support and guidance if needed. Remember the support services offered by the Leukaemia Foundation are always available, and we invite you to explore the online blood cancer support service available on our website. We are looking forward to the upcoming season in 2024, so stay tuned for the release of a new series in March. To access the Leukaemia Foundation’s support services or to find more information, call 1800 620 420. The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

In this episode of the Talking Blood Cancer podcast, host Vanessa is joined by guest Glenys Davidson to share her journey with acute myeloid leukaemia candidly. Vanessa reflects on the observation of people navigating through treatment at the facility where she is based, setting the stage for a real, raw conversation about the impact of blood cancer on patients and their support networks. Glenys highlights the importance of a positive attitude and familial backing during challenging times, underscoring the emotional and practical support she received from her community. The discussion delves into the specifics of Glenys' treatment, including the physical and emotional toll of chemotherapy, the search for a suitable stem cell donor, and the profound impact of hair loss. The episode also touches on the effects of the COVID-19 pandemic, which impacted treatment procedures and visitation protocols. Further, Glenys emphasises the significance of robust support services for patients and the need for healthcare facilities to communicate the availability of such resources effectively. The conversation concludes with Glenys stressing the importance of social interaction and the realisation of the power of communication during difficult times. The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

Harry shares in conversation how he valued working and how it was essential to his recovery to remain committed to challenging his mind. He also shares the importance of good relationships and how he relied on these in his recovery.

Lisa Smith is the CEO of the Australian Bone Marrow Donor Registry (ABMDR). ABMDR is the only organisation in Australia responsible for arranging bone marrow/blood stem cell donations for patients needing a transplant. ABMDR also administers government funding of public cord blood banks in Australia. Lisa shares in this podcast the purpose of ABMDR and her passion for this area. LIVE NOW: Strength to Give: Swab your cheek. Send it back. Save a life. If you're 18-35, head to Strengthtogive.org.au to order your cheek swab kit and register as a potential Stem cell donor. Every person on the Strength to Give registry has the potential to save a critically ill patient from blood cancer #strengthinnumbers #strength2give #bloodcancer https://strengthtogive.org.au/ The Leukaemia Foundation offers a range of services. Click below to read more. Accommodation servicesSupport services

Carmel Woodrow has been in nursing for over 40 years, with 30 of those years spent in haematology. Now working as a Clinical Nurse Consultant, Carmel focuses mainly on myeloma and amyloidosis patients. The Leukaemia Foundation offers a range of services. Click below to read more. Accommodation servicesSupport services

Jennifer Marx shares insight into being diagnosed with myeloma at almost 27 years old - a condition far more prevalent in older people. Jennifer shares how she navigated the healthcare system, managed treatment and relationships, and her experience having two autologous transplants. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

In May 2020, Fiona was diagnosed with Myelodysplastic Syndrome. Also known as MDS, it is a type of blood cancer that affects the production of normal blood cells in the bone marrow. Fiona shares what it was like to be diagnosed with a rare blood disease as a mother of five, wife and nurse, in the midst of the COVID-19 pandemic. Fiona has since participated in the World's Greatest Shave and raised over $8,000. Listen to her story. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

As 2022 draws to a close, our hosts Kate, Maryanne and Vanessa reflect on the past year and all the wonderful guests who have shared their stories for Season Two of Talking Blood Cancer. Stay tuned for Season Three in the coming months. Did you enjoy listening? We're always looking to improve our podcast so we'd love your feedback. Follow this link to answer our short survey. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

Living in regional NSW as a cattle farmer, Regina Batten noticed she was becoming increasingly fatigued. It was a week before her wedding however, so a blood cancer diagnosis was the last thing on her mind. After a visit to the doctor and some blood tests, it wasn't long before Regina was told the news - she had acute myeloid leukaemia. Regina was rushed to hospital in Sydney where she had chemotherapy, radiation, a relapse and a double-chord stem cell transplant. An honest and raw discussion, Regina talks openly about how blood cancer impacted her relationships. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

In this episode, Kate speaks with Ping, whose daughter Zoe was diagnosed with infant pre B-acute lymphoblastic leukaemia at just 5 weeks old. Zoe is now nearly 5 years old and is in remission and at school. Zoe's mother, Ping, shares what it was like to walk the blood cancer journey with a child so young, and how the family travelled around the world to save Zoe's life. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

Michael Bowen was 33 years old and living in Sydney when one morning, as he was driving to work, he received a phone call that would stop his fast paced life in its tracks. Michael received a diagnosis of chronic myeloid leukaemia (CML). In this conversation, Michael talks about the bouts of depression he came up against and how he was able to overcome these hard times. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

Vicky Pellowe was just 29 years old when she was diagnosed with Stage 4 Non-Hodgkin lymphoma. Vicky and her husband had only been married six months, both working long hours as FIFO workers in Western Australia. Vicky speaks about the shock of mental recovery post treatment - how to try and remain positive while experiencing fear of relapse, side effects, potential infertility, body changes and loss of employment or finances. She also speaks about the journey into motherhood and how she was blessed with two miracle babies post treatment, without IVF. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

Picture this - it was the year 2021 and Melbourne had just come out of its 5th lockdown. Renae and her partner, Sam escaped the 5km radius and went to the beach. Renae remembers feeling a lump in her throat which she thought could have been tonsillitis. One doctor's visit changed Renae's life - she was diagnosed with anaplastic large T-cell lymphoma. Renae talks about what it was like to be diagnosed during the Covid-19 pandemic in Melbourne, and how hospital restrictions impacted her support network during some of the toughest times of her treatment. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

Damien Thompson was diagnosed with ALL in 2010 at the age of just 23. He underwent a donor related allogeneic transplant and suffered sever GVHD. A number of years later post his bone marrow transplant, he had to undergo a double lung transplant. Damien shares pearls of wisdom about how he got through the challenging transplant. He speaks about remembering to celebrate the small wins, as those small wins turn into big gains. Damien made it his challenge to not let leukaemia win. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

This episode tells the story of Robin Matthews. Robin is a dump truck diver from the APY Lands in far north South Australia, building roads for Indigenous communities. Robin was diagnosed with Stage 4 lymphoma in 2021, and talks about what it was like to face a diagnosis in a rural area of Australia, just months after losing his wife to cancer. Robin shares how his family gave him strength in his darkest days and how finding a community within the Leukaemia Foundation helped him manage his diagnosis. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services

Nathalie Cook OAM is an Accredited Practising Dietitian (APD), Accredited Nutritionist (AN) and qualified Registered Dietitian (RD). She was awarded the Medal of the Order of Australia (OAM) in January 2022 for service to dietetics. Nathalie Cook, who was diagnosed with MPN in 2008, tells the story of the delay in her diagnosis and how after attending a conference in the USA, on the flight home, she made the decision to try to get Pegasys on the Pharmaceutical Benefits Scheme for people with MPN in Australia. It took 7 years to achieve this goal and the hearing her share the story of how she made it happen is truly astounding. Not only has Nathalie so graciously shared her story with us here on the podcast but she has helped review our new booklet for nutrition and that we thank her. I also would like to apologise for the audio on this episode – please bare with it and keep listening as Nathalie story is definitely one to hear. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation servicesSupport services