Cervivor Podcast

In this episode of Cervivor Podcast, we delve into the critical intersection of cancer, legal rights, and insurance with Joanna Doran from Triage Cancer. Starting with an introduction to Triage Cancer, Joanna sheds light on the various legal issues that individuals facing cancer may encounter including how to discuss your concerns with your employer. From there, we explore specific ways Triage Cancer offers support, including events, materials, and their invaluable Legal & Financial Navigation Program. Joanna also provides insights into navigating the financial aspects of cervical cancer, discussing the complexities of dealing with insurance, from prior authorizations to appealing denials, and offers practical advice on handling medical bills.Tune in to this episode for essential guidance on navigating the legal and financial maze of cancer care. For more information on the resources mentioned in the episode: Triage Health is https://TriageHealth.org and Triage Cancer is https://TriageCancer.org. About the Guests: Janice Le-Nguyen is an HPV cervical cancer survivor, diagnosed with stage 1A2 more than 3 years ago on April Fool’s Day. She is located in Henderson, Nevada, and currently works as a Systems Analyst with a good rapport with faculty, staff, and students at the state college. Janice has raised awareness for self-care, putting your health first, and advocating for listening to your body on and off campus. Janice wanted to come to the Communities of Color Retreat to learn more about providing a voice for Vietnamese-Americans and the Asian-American and Pacific Islander populations, who culturally tend to be silent about their health disparities. She is hoping to gain skills and ideas to raise awareness for the API population who may deter themselves from seeking treatment because of cultural taboos. Julie Mason Groob is a cervical and vaginal cancer survivor, living with persistent HPV, a diagnosis that began in 2012 shortly after her 27th birthday. Battling non-invasive and invasive cancer for over a decade has led Julie to tell her story and position herself as an advocate for HPV vaccinations and early-detection cancer screenings. She also volunteers as a Patient Educator with the Pathways Program in New Jersey, helping to educate early-career doctors and nurses about the cancer patient experience. Professionally, Julie has worked in performing arts administration in New York for 20 years. She currently serves as the Vice President & Chief Operating Officer at the New York City Center and previously, was a Production Manager at Radio City Music Hall and New York Theater Workshop. In the years between her cervical and vaginal cancer diagnosis, Julie ran the NYC Marathon twice with Fred's Team, raising funds for Gynecologic Cancer Research. She enjoys traveling, karaoke, fitness, and has just taken up tap dancing! Julie lives in South Orange, NJ with her husband, Kevin and their pug, Seymour. Joanna Fawzy Doran, Esq. is a prominent cancer rights attorney, author, and CEO of Triage Cancer, a national nonprofit providing free education on practical and legal issues for individuals and caregivers dealing with cancer. With nearly thirty years of experience, she has taught extensively on cancer rights law, authored pioneering books and chapters, and presented over a thousand seminars across the country. Ms. Doran has also played pivotal roles on various cancer community committees and boards, receiving multiple awards for her legislative advocacy and service. She holds a Bachelor of Arts in Political Science from UCLA and a Juris Doctor from Loyola Law School Los Angeles. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

We explore the dynamic landscape of HPV, diagnosis, and treatment in Namibia. Our esteemed guest, Dr. Laura Muzingwani, the Cervical Cancer Prevention Lead Physician at the International Training and Education Center for Health, guides us through her wealth of experience in cervical cancer prevention. Join us as we unravel the challenges, breakthroughs, and pivotal initiatives in the world of HPV and cervical cancer prevention with Dr. Muzingwani. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

We are honored to feature the remarkable Ms. Doris White, a resilient woman who has confronted the challenges of cervical cancer with incredible strength. Join us as Ms. Doris takes us through her inspiring journey, sharing the highs and lows, moments of despair, and the sheer determination that propelled her to triumph over cervical cancer. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Join us on a heartfelt journey through the past year as we sit down with host, Joslyn Paguio, and Tamika Felder, Founder and Chief Visionary, Morgan Newman, Community Engagement Liaison, and Kimberly Williams, Chief Diversity Equity and Inclusion Officer of Cervivor, Inc. You'll hear the reflections of their favorite moments and accomplishments in 2023 and some clues as to what to expect in their upcoming 2024 plans. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠⁠emailing us.⁠⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Get ready for an inspiring journey of Carol Lacey, a resilient woman who faces a life-altering diagnosis of cervical cancer and the unwavering commitment of her devoted husband, Pete Lacey, who steps into the role of her caregiver with unparalleled devotion. Together, they navigate the challenges, fears, and uncertainties of Carol’s diagnosis, forging an unbreakable bond of love and support that strengthens with each passing day. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠⁠emailing us.⁠⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠⁠Cervivor.org⁠⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

In this special episode, we dive into the remarkable story of an unbreakable bond between two best friends, Charisse Wilkins and Brittney Martin, whose lives were forever changed when Charisse was diagnosed with cervical cancer. With unwavering support and love, Brittney took on the role of caregiver, revealing the incredible depth of their friendship. Together, they share the story of their enduring connection, the laughter that fueled their spirits, and the challenges that strengthened their friendship. Join us as we celebrate the remarkable journey of these two best friends, reminding us that true friendship knows no bounds and can weather even the toughest storms. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠⁠emailing us.⁠⁠⁠ For more Cervivor-related content, check out: ⁠⁠⁠Cervivor.org⁠⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

We delve into the world of support, resilience, and hope with two remarkable guests who are making a profound impact in the lives of cancer fighters, survivors, previvors, and caregivers. Join us as we sit down with Jackie Herigodt, the Director of Partnerships and Engagement at Imerman Angels, and with Lorie Wallace, a cervical cancer survivor turned mentor within the organization. Tune in to this episode to learn more about the essential role of empathy, companionship, and community in the cancer journey. Discover how Imerman Angels are lighting up the path to healing and showing that no one must face cancer alone. Prepare to be moved, inspired, and enlightened by the incredible work being done to provide comfort and understanding to cancer fighters, survivors, previvors, and caregivers. If you or someone you know has been affected by cancer, this episode is a must-listen, offering hope and a reminder that there is strength in connection. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠⁠emailing us.⁠⁠ For more Cervivor-related content, check out: ⁠⁠Cervivor.org⁠⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

In this deeply moving episode, we delve into the extraordinary bond between a daughter and her mother, exploring their courageous journey through the challenges of cervical cancer. Meet Rachel Rump, a resilient young woman who faced a daunting diagnosis with unwavering determination, and her mother, Barb Montague, who became her steadfast caregiver. This heartwarming and inspirational conversation unveils the remarkable story of their unbreakable connection, highlighting the sacrifices, love, and resilience that define the mother-daughter relationship during their experience with cervical cancer. Through their shared experiences, they remind us of the incredible strength that a mother's love can provide during life's most trying moments. Prepare to be moved as we celebrate the enduring power of maternal love in the face of adversity and the incredible impact it has on the journey to healing and hope. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by ⁠emailing us.⁠ For more Cervivor-related content, check out: ⁠Cervivor.org⁠. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

It's time to get the 411 on 420 and learn about how Cannabis is helping cancer patients from alleviating pain to curbing anxiety. Avi Grant-Noonan and Samantha Russell both #CervicalCancer #Cervivors share their experiences with using cannabis and how it has changed their lives for the better. Dr. Brooke Worster a clinician-researcher, practicing Supportive Medicine and cancer pain management for cancer patients at the Sidney Kimmel Cancer Center, breaks down the stigma of using cannabis for cancer patients, including the history and the various cannabis products. Remember, your health is your priority, and seeking information is a crucial step in your journey. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

In this episode, we explore the remarkable journey of "Teens for Vaccines," and learn how young leaders like Arin Parsa and dedicated volunteers like Lindsey Smith are spearheading a movement that is not only transforming the vaccination landscape but also empowering the next generation to be champions of public health. Tune in to this enlightening episode and discover how the passion and determination of youth can drive positive change in our world. Don't miss this opportunity to be inspired and informed about the crucial importance of vaccines in our society. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Check out this bonus content: Below the Belt Conversations featuring Cervivor Podcast Host, Joslyn Paguio and 10-year cervical cancer survivor, Yvette Torres. The Below the Belt Conversations series was created to encourage you to have these conversations with your family and friends about your cervical cancer journey and also discuss the ways of screening and prevention. The more we normalize these conversations, the more we will make cervical cancer a household name which could increase cervical cancer screenings in your area. For more information, visit Cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Pelvic floor physical therapy is well-rounded care! In this episode, our guest expert, Dr. Cyan Agena, pelvic floor therapist and women's health advocate, will guide us through the importance of understanding and caring for this often overlooked but crucial part of the body. She addresses pelvic floor dysfunction including pain with sex, urinary leakage, pelvic organ prolapse, post-surgical recovery, and postpartum recovery. Dr. Agena's goal is to empower women with the confidence to return to a lifestyle of wellness without limits. Whether you're someone who has experienced pelvic floor challenges or simply curious about this essential aspect of human health, this episode will provide valuable insights, expert advice, and practical tips for incorporating pelvic floor therapy into your self-care routine. Be sure to connect with Dr. Agena on Instagram @malamaPT for more content on pelvic floor physical therapy. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

In this episode, we dive into the intersection between cancer and trauma. Join us as host, Joslyn Paguio guides this important conversation with her special guests, mental health expert, Dr. Lillian Walker Shelton, and cervical cancer survivor, Kristin Tanner. Hear their personal experiences and the emotional impact cancer had on each of their lives. Tune in to this insightful episode as we embark on a journey of understanding, compassion, and inspiration for all those impacted by cancer. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

In this episode, you'll hear first of an inspiring journey of resilience and innovation as we sit down with cervical cancer survivor, Eve McDavid. She faced the unimaginable—a cervical cancer diagnosis while 35 weeks pregnant. Hear her journey from patient to CEO and Co-Founder of Mission Driven Tech. Then, Dr. Onyinye Balogun shares how this therapy technique has impacted the treatment of gynecologic cancers and why it is so important as Co-Founder and Chief Medical Officer of Mission Driven Tech to improve it further. You don't want to miss this! From the science behind it to the inspiring stories of survivors, our podcast is your gateway to understanding the life-changing impact of Brachytherapy. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

May is Asian American and Pacific Islander Heritage Month! In this episode, Cervivor Podcast Host, Joslyn Paguio discusses health disparities within the Asian, Asian American, and Pacific Islander communities and the possible reasons why with Dr. Mihae Song, a Gynecologic Oncologist at City of Hope, and Arlene Simpson, a cervical cancer survivor. Through this conversation, you'll hear the personal stories of each guest and where they are at today. Communication is key to understanding one’s health and building a long-lasting relationship with their primary care physician. So, what happens when you aren’t taught the proper terminology? What if you were never taught how to talk about things…particularly below the belt? We realize that knowledge is power. Some experience no abnormal symptoms and are diagnosed with cervical cancer. Then there are some, like Arlene, a Cervivor community member, who realized that "abnormal was her normal." Arlene accepted that as a way of life because of associated diagnoses which later led to her cervical cancer. More about the guests: Arlene Simpson is a loving mom, a devoted wife, a Financial Services professional focusing on the importance of Financial Literacy in America, and a one-year cervical cancer survivor and patient advocate. MIHAE SONG, M.D., has provided free health care for pregnant women in Pakistan, cared for blind and autistic children in South Korea, mentored grade school kids and trained future medical school students in surgical techniques. She’s earned a long list of awards and honors for her skills in the operating room and the classroom. Dr. Song is passionate about women’s health and an expert in minimally invasive surgeries, as well as more complex abdominal procedures. A graduate of New York’s Columbia University, Dr. Song studied medicine at SUNY Downstate College of Medicine in Brooklyn, New York, and continued her training with fellowships in health equity leadership and gynecologic oncology at University of Minnesota in Minneapolis. Dr. Song is excited about new cancer therapies and is eager to help bring them about through clinical trials. It’s one big reason she’s joined City of Hope which, she says, “has the best ingredients to bring research from the laboratories to clinical trials to the clinic.” Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

This week is recognized as National Infertility Awareness Week. It is a topic that is so near to our community of cervical cancer and HPV-related cancer patients and survivors. Follow along as we highlight the stories of those impacted in our community and we encourage you to share your story with us as well. “It seemed like I was constantly sick. I had viral and bacterial infections. But I was also having painful pelvic pain just after my periods would end - a pain so severe, I would be on the ground in a tight ball. My gynecologist couldn't pinpoint the cause. In 2013, my HPV became active again. I was surprised because I was clear since 1991, when I was treated for dysplasia at 20. I had a cervical biopsy but it was clear. The following year, my period abruptly stopped, to my doctor's surprise, and I was officially in menopause. My hopes for motherhood were suddenly over. I didn't think about my Paps, because I was depressed about menopause and the clear biopsy gave me false hope. My pelvic pain seemed to ease up as well. I thought I was out of the woods.” Lorie Wallace faced the devastating news of infertility just prior to her cervical cancer diagnosis. Listen to Lorie share in her own words during our creative writing session from Cervivor School Nashville. Beyond this, read her Cervivor story at: https://cervivor.org/stories/lorie/. Did you connect with this content? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Did you know a high percentage of women experience some form of sexual dysfunction? Did you also know that the rate increases even more when cancer treatment, like cervical cancer, is involved? In this episode, Cervivor Podcast Host, Joslyn Paguio has a candid conversation with Dr. Tali Sobel, a Women's Health Internist at the Mayo Clinic. You'll hear them get down to the basics of understanding sexual dysfunction, how it happens, ways we can alleviate some of the pain and discomfort women experience, and what professional resources are out there to better assist women in reclaiming their sexual confidence. Plus, you'll hear some of the recommended products listed below to discuss with your doctor! Good Clean LoveLeloMayo Clinic StoreMystery Vibe(Use Code: Cervivor15 to get 15% off Tenuto 2, Crescendo 2 and Poco)OhnutUber Lube(Use Code: CERVIVOR to get 10% off) Dr. Tali Sobel is a women's health internist specializing in sexual health and menopause at Mayo Clinic Arizona. She is originally from Washington, DC. She received a degree in psychology at the University of Michigan for her undergraduate studies and attended Georgetown University for medical school. She then moved to Baltimore, Maryland for residency in internal medicine at Johns Hopkins Bayview. She completed a women's health fellowship at Johns Hopkins following residency and is a North American Menopause Society certified menopause specialist. She recently moved to Phoenix, Arizona with her husband and dog and enjoys hiking, exploring the beautiful Southwest, and spending time with her family. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Maya Angelou once said “Words mean more than what is set down on paper. It takes the human voice to infuse them with deeper meaning.” In this episode, we get to hear the voices of two remarkable women, Ayanna Bass, and Milicent Kagonga. One survivor sharing her story of cervical cancer in the United States, and the other in Africa. We'll dive in as they share their personal journeys with cervical cancer, how they lost their voice, and how they found it again to help save other African and African American women. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

Black women have higher rates of new cervical cancer cases as opposed to other races and ethnicities. With February being Black History Month, we wanted to discuss health disparities amongst black communities and the possible influencing factors. One way to close the gap in the fight against cervical cancer is to make sure our stories are heard. We must continue to talk about HPV, cervical cancer screening and prevention including vaccination, and the stories of those impacted by cervical cancer. Whether through casual conversations with friends or family, questions to our doctors, or quick chats with our children, each conversation can lead to change. Don’t miss this conversation between Cervivor Podcast host, Joslyn Paguio and her two guests, Kimberly Williams, a cervical cancer survivor and patient advocate for Cervivor, Inc., and Julia Neely, Program Manager for the HPV Cancer Prevention Program through St. Jude Children's Research Hospital to learn more about and to understand these disparities. Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. Are you a cervical cancer patient or survivor? Share your story on our website at Cervivor.org! For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support

For Cervical Cancer Awareness Month, we have a bonus episode for you. In this episode, we interview Dr. Ulf Gyllensten, a molecular geneticist from the University of Uppsala in Sweden, who is a pioneer in HPV and cervical cancer research. His research on the molecular underpinnings of cervical cancer has led to genetic screenings and the development of at-home screenings for HPV. Beyond the podcast, we encourage you to read Dr. Gyllensten's publication list, including: Next Generation Plasma Proteomics Identifies High-Precision Biomarker Candidates for Ovarian CancerIdentification of Candidate Plasma Protein Biomarkers for Cervical Cancer Using the Multiplex Proximity Extension AssayComparison of vaginal self-sampling and cervical sampling by medical professionals for the detection of HPV and CIN2+: A randomized study Did you connect with this episode? Share your thoughts with us on social media using #CervivorPodcast or by emailing us. Are you a cervical cancer patient or survivor? Share your story on our website at Cervivor.org! For more Cervivor-related content, check out: Cervivor.org. Follow Cervivor on all social media platforms. If you would like to be interviewed as a potential guest for an upcoming episode or would like to request a speaker or topic for a future podcast episode, email us at info@cervivor.org. --- Support this podcast: https://podcasters.spotify.com/pod/show/cervivor/support