2 Parkies in a Pod: a Parkinson's Podcast

Are you struggling to get yourself heard because your voice is quiet, mumbled or you just cant get the words out? Are your meds getting stuck in your throat? Do you dribble or have a dry mouth? We may be able to help! This week the boys catch up with Tim Grover, consultant speech therapist in the movement disorders department at University College London. He tells us why people with Parkinson’s suffer speech problems, offer some tips on swallowing and explains the right time to seek specialist help. More information can be found on the Parkinson's UK website: Speech & Communication problems in Parkinson's Eating, Swallowing & Saliva control in Parkinson's We also reflect on the impact of our last episode about life expectancy with Parkinson’s. And doing AMAZING things this week .. A Parkie swimming the channel, the Premier League referee going public about his diagnosis, and a Parkie taking part in the 2024 Olympics. We hope you enjoy it…

This week we talk about the “The Elephant in the room“ - mortality rates amongst people with Parkinson’s. Our special guest is Professor Bas Bloem, one of the world’s leading Parkinson’s experts. Bas has written a paper on the subject of life expectancy with the condition. In recognition of his outstanding work in the field of Parkinson’s, the professor has recently been knighted in his native Netherlands. He’s one of the most engaging and eloquent speakers in the Parkie world. https://www.parkinsonnet.com/about-parkinsonnet/our-team/ Please don’t be scared to listen to this episode, we also talk about how to stay strong for long with the condition using exercise, diet and a positive mindset. Also in 'People with Parkinson's Do Amazing Things' we feature Sean Stillman's BBC radio documentary 'Parkinson's and Me' where he reflects on his condition and his life since his diagnosis. And Dave reflects on his day out at the Cure Parkinson's Cup https://www.instagram.com/babbelbloem/ @basbloem (Bas Bloem) @morethanatremor (Kuhan) @DaveClarkTV

Joining Dave & Kuhan for a game of Fact or Fiction are Claire & Simon from Parkinson’s UK who help dispel some of the common myths about Parkinson’s. Show links Go to 2parkiesinapod.com or reach out to us on social media email us at hello@2parkiesinapod.com Parkinson’s UK Helpline 0808 800 0303 Parkinson’s UK Research Network Parkinson’s UK Become a Member Parkinson’s UK Information Resources Catalogue Parkinson’s UK World Parkinson’s Day Economist Article Association of British Neurologists Workforce Survey Parkinson’s Diagnosis stats Dept of Work & Pensions Benefits Data Portal NHS Workforce Statistics Free Gym Membership: https://www.everyoneactive.com/promotion/parkinsons/ purehelp@puregym.com Where to send your Parky smells: https://www.medicaldetectiondogs.org.uk/neurological-diseases/

In this episode Kuhan gets his tremor wired for sound, taking part in a ground breaking research study at University College London. The team created 5 unique songs from the tremors of 5 unique people with Parkinson’s. The album ‘Tremors vs Tremors’ is available to listen to on Spotify, Apple Music & Amazon… there’s even a limited edition vinyl record. All royalities are being donated to Parkinson’s UK. We’re joined by the man behind the project Dr Christian Lambert and two of the other study participants, Clare and Stephanie. Tremors vs Tremors https://tremorsvstremors.com/ Listen on Spotify https://open.spotify.com/album/5Q514xQ7lfQPT2s6GpT5jm?si=z-OMxr9IRYaSzWoIVrdQHA Listen on Apple https://music.apple.com/us/album/tremors-vs-tremors-ep/1733686264 Listen on Amazon https://music.amazon.de/albums/B0CWS4RWBV?marketplaceId=A1PA6795UKMFR9&musicTerritory=DE&ref=dm_sh_RoHkhmu4xjztd3igINdcA2XcY UCL movement disorder https://www.ucl.ac.uk/ion/research/research-centres/movement-disorders-centre/research Parkinsons UK Research https://www.parkinsons.org.uk/research/get-involved-research Del Amitri Parkinson’s documentary https://www.bbc.co.uk/programmes/m001x49y Kuhan’ Blog they made a song from my tremor https://medium.com/@kuhan4/they-made-a-song-from-my-tremor-fefe7011d863

In this episode, we explore grooming and self-care. There’s an old saying.. No matter how you feel Get up Dress up Show up Never give up Shafaq @Dr_SF_Hussain⁠ a dentist with Parkinson’s shares her tips on mouth and tooth care Anne Marie Booth @annieconmonkey talks ditching killer heels, Dr Martyn’s, hair and nail care. Joe Gregory @JoeGregory100 tells us about slip on brogues and picking up a fashion bargain. Plus doing amazing this week… Richard Dunning, The shakey photographer @Richardpud1977 The cardigan wearing guitar playing Andrew Wright from Nottingham… @apwright @Peacefultaino 56 year old Puerto Rican man with Parkinson’s pulling off some killer dance moves.. Stylish reading glasses at reasonable prices … https://www.izipizi.com/ww_en Comfortable, stylish gym, leisure clothing (pricey, but lovely) https://vuoriclothing.co.uk Parkinson's UK Mouth and Dental issues

This week the boys talk to Parkinson’s activist and fellow Podcaster Larry Gifford. His podcast ‘When Iife gives you Parkinson’s’ is an open and honest insight into the condition - no subject is out of bounds. Larry is also the founder of PD Avengers, a global alliance of people effected by the condition. In a wide ranging discussion we also talk about our D-Day (diagnosis) experiences, Larry's DBS journey and the impact Parkinson's has on relationships. People with Parkinson’s doing amazing things this week includes @Markxhogben - a man living off grid in the Canadian wilderness.

In this episode the boys discuss how tech can make life a little easier for people with Parkinson’s. From voice assistants, to messaging tips and how Siri can help you listen to your favourite podcast. We also discuss Parkinson’s ON, a new app which aims to track symptoms, help with medication timing and generally improve your Parky life.. Plus more people with Parkinson’s doing amazing things. The man who’s rediscovered his love for playing Led Zep in the spare bedroom and a woman who’s fixed her 10 year old dishwasher… Thanks to Charlie Appleyard @CA_Annapurna Helga MacFarlane @HMellMac Kate The Parkinson Magazine (Kuhan's article) GMB Interview with Dave Clark Download the Parkinson's ON app for free on your iPhone or Android If you're enjoying the podcast please rate, review and subscribe

In this episode we speak to Professor Rimona Weil from University College London. Rimona is one of the world’s leading experts in Parkinson’s dementia. It’s not as depressing as you might think! She talks about ground breaking research which has discovered a link between vision and dementia, tells us who’s most at risk and whether it’s possible to prevent it! Plus how using pictures of cats and dogs can help to understand how cognition is affected in Parkinson’s. We also talk about people’s reluctance to talk about Parkinson’s dementia… If you want to get involved with the professor’s latest research project, which will involve at least 5 visits to London, brain scans and blood tests, you can email her: r.weil@ucl.ac.uk https://www.parkinsons.org.uk/information-and-support/thinking-and-memory-changes https://www.parkinsons.org.uk/research/research-blog/ask-expert/its-time-talk-about-parkinsons-dementia

Parkinsons .. Top 10 worst symptoms In this episode @DaveClarkTV and @morethanatremor (Kuhan) discuss the most troublesome Parkinson’s symptoms. Parkinson's Europe surveyed nearly a thousand Parkie’s with fascinating results. So what’s the number one worst symptom ? Shaking? Speech problems? Low mood? Have a listen and find out what tops the chart…. A huge THANKYOU to @kimrobsonuk for the chart. voice over and contributors Michèle and Katy..

In this special bonus edition Kuhan and Dave join 300 people Walking For Parkinson’s at London's Battersea Park. Parkinson’s UK host a series of fundraising walks around the UK. Everyone walking has their own Parkie story to tell, the boys find out about a few of them… Walk for Parkinson's https://www.facebook.com/2parkiesinapod https://www.instagram.com/2parkiesinpod

In this episode Dave and Kuhan talk to NHS doctor, artist and Parkinson’s campaigner Dr Jonny Acheson. Jonny was diagnosed with Parkinson's in 2016 when he was just 41. Hear about how Bollywood dancing led to his diagnosis and what its like to work in an emergency dept with the condition. Jonny also talks about the Jekyll & Hyde feeling when his medication is wearing off, and his campaign to let people keep their own medication during a stay in hospital. ⁠ ⁠⁠@jonny_acheson @ParkinsonsEN (Parkinson's Excellence Network) https://jonnyachesonart.com/ @DavidAPlummer https://shakinghandsfilm.com/film @PhilJerky @FreddieRoach

Canadian broadcaster Harry Forestell tells Dave and Kuhan his incredible Parkinson’s story. How he interviewed Michael J. Fox, his reaction to being outed by his daughter and how he was wide-awake whilst having brain surgery. From secrecy to advocacy, acts of kindness and singing to extend his TV career, it's a fascinating insight into the career of a much loved and respected journalist. Links: @DaveClarkTV @morethanatremor (Kuhan) @HarryForestell Harry's Interview with MJF The Essay

In this episode Dave & Kuhan answer questions from listeners. They cover a host of topics from how to stay upbeat with Parkinson’s to constipation and podcasts. It’s an open and honest discussion with a few giggles along the way. @2parkiesinapod @daveclarkTV @morethanatremor This weeks People with Parkinson's do Amazing Things: Paul Sinha Samuel Smith Jon Goodwin

The boys talk to Parkinson’s Yoga expert Dawn Williams. There’s growing evidence that Yoga can help with a range of Parkinson's symptoms by improving slowness, stiffness, balance, flexibility and core strength Many people with Parkinson's also report improvements in their mood and sleep, plus benefit from the social interaction of group classes with other Parkies. Dawn explains the power of yoga and finishes with a relaxation exercise…. @DaveClarkTV @More Than a Tremor (Kuhan) Guests: @Annie https://dawnwilliamsyoga.co.uk/ People with Parkinson's do Amazing things: Neil Russell Roddy Forsyth Ian O'Brien

We talk to model and presenter Linda E about her experiences with her dad, Stanley. Switching from daughter to carer.. The precious moments they spent together and the difficulties of having a parent with Parkinson’s. We also meet film director Grant Taylor and his father Bob. Grant has released a film based on his dads battle with the condition. 'Ecstasy’ – is a short film about the experiences of a man living with Parkinson’s and his son, the film features their quest to get an ecstasy pill.. so that the father can dance with his wife at her birthday party. Hosts: Dave Clark @daveclarkTV Kuhan @morethanatremor Guests: Linda E Grant Taylor And doing amazing things this week .. Joe Wicks @thebodycoach Milly Khan @Milly_Physio Gary Shaughnessy @gshaug7741 Anne-Marie Booth @annieconmonkey Gary's Sky interview Workout for Parkinson's Ecstasy - Parkinson's short film Parkinson's Ecstasy article BBC Horizon documentary Warning - the use of Ecstasy to treat Parkinson's is not recommend

This week we talk to the wonderful Claire Bale, Head of Research, Communication and Engagement at Parkinson’s UK, to discuss their recently launched 'Research Needs You' campaign. In a wide ranging chat, we discuss: What is research? How can I get involved ? Are we close to a cure? Why are people reluctant to get involved in research? What's sexy in research right now? Balancing Hope Plus - Find out how Kuhan’s shakes could be turned into a hit record! Presenters: Dave @DaveClarkTV Kuhan ⁠@morethanatremor Massive thanks to guest: Claire Bale @ladybale Doing amazing things this week … John O’Groats to lands end cyclists Neil Russell 65-year-old person with Parkinson’s. Running 1000 miles from London to #wpc2023 in Barcelona… instagram: @neil.o.Russell Charlotte Edwards Catwalk To A Cure Parkinson's UK 'Research Needs You' Massage gun (we have no affiliation with Therabody, please consult your healthcare professional where required) North of Scotland Parkinson’s Research Interest Group podcast 2 Parkies in a Pod ‘Research needs you’ episode

This week the boys meet David Little, a former fireman, who had a dream to run the London Marathon. David has had Parkinson’s for nearly 20 years, but he’s determined “Mr P” won’t defeat him. David surrounded himself with a team of experts to try and get him across the finish line. Could he fulfil his dream, or would the 26.2 mile course defeat him? Show Links Dave @DaveClarkTV Kuhan ⁠@morethanatremor David Little (marathon man) @helshubby Maria Lewis www.reachyourpeakonline.com Katherine Baker @KBakerPhysio Karen Weir @RunwithKaren David's Fundraising Exercise Videos

This week we’re joined by the inspirational and entertaining Matt Eagles who was diagnosed with Parkinson’s in 1975 at the age of 7! Matt talks about his incredible life going through major milestones with Parkinson’s, from passing his driving test, starting work and getting married. If you’re struggling to get your head around a Parkinson’s diagnosis, Matt’s wisdom and optimistic energy will help you. Links @DaveClarkTV Dave Clark @morethanatremor Kuhan @MattEagles Matt Eagles @SalsburgMatthews Barbara Salsburg Matthews @JohnRoc92928019 John Roche @Gaynorzone Gaynor Edwards Matt's wing walk video

2 Parkies in a Pod are joined by physiotherapist & Parkinsons specialist, Julie Jones. Topics range from exercise prescriptions, balance & self care. Plus hear Dave’s new song …with the Beatles! Hosts: Dave Clark Kuhan Guests Julie Jones Helga Macfarlane Matt Eagles Gavin Mogan Nathan Smith Links Julie's Podcast North of Scotland Parkinson's Research Interest Group Parkinson's UK Exercise Hub Nathan's Three Peaks Challenge

The thought of travelling with Parkinson’s fills many people with dread and fear. This week, Dave, Kuhan and three guests, share their tips and hacks for stress free travel. They talk about driving, managing medication on the go, how to get through airports hassle free and going to the toilet on long flights. Plus more 'people with Parkinson’s do amazing things', including the TV presenter who turned off his DBS live on air, a dancing Parkie inspiring others and one man who used a particular type of exercise to turn the tables on the disease. Presenters: Kuhan @morethanatremor Dave @DaveClarkTV Guests: Charlie @CA_Annapurna Annie @annieconmonkey People With Parkinson's Do Amazing Things: @HarryForestell https://www.cbc.ca/news/canada/new-brunswick/first-person-harry-forestell-parkinsons-dbs-1.6752210 Barbara the Dancing Queen @SalsbergMathews Scott Hanley https://www.bbc.co.uk/news/uk-northern-ireland-64401274 Useful Links: QEF (driving) https://www.qef.org.uk/service/mobility/ Freedom Pass https://www.londoncouncils.gov.uk/services/freedom-pass/disabled-persons-freedom-pass Motability https://www.motability.co.uk/ Sunflower Lanyard https://hiddendisabilitiesstore.com/ Bamboo socks https://www.sockshop.co.uk/featured/bamboo