Just Listen: Voices of PK Deficiency Podcast
Medical
SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Facebook: bit.ly/KnowPKD. TRANSPARENCY STATEMENT Just Listen: Voices of PK Deficiency and KnowPKDeficiency.com are made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.
Location:
United States
Description:
SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Facebook: bit.ly/KnowPKD. TRANSPARENCY STATEMENT Just Listen: Voices of PK Deficiency and KnowPKDeficiency.com are made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.
Language:
English
Replay: My Dad Has PK Deficiency
Duration:00:15:35
Peak Registry
Duration:00:27:02
Genetics in Pyruvate Kinase Deficiency
Duration:00:42:41
REPLAY: MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
Duration:00:24:40
Iron Overload with Dr. Sujit Sheth
Duration:00:31:39
Definitive Diagnosis
Duration:00:15:56
My Dad Has PK Deficiency
Duration:00:15:35
Aging with Pyruvate Kinase Deficiency
Duration:00:15:38
REPLAY: Pyruvate Kinase Deficiency Foundation
Duration:00:27:17
Understanding Clinical Trials
Duration:00:27:42
LIVE in New Orleans: A Red Cell Revolution
Duration:00:48:33
Caregiver Series: Transitioning to Adult Care
Duration:00:38:14
Replay: The History of PKD
Duration:00:41:33
Parents Support: A PKD Caregiver Series
Duration:00:27:29
MythBusters Part 2 - Pyruvate Kinase Deficiency Edition
Duration:00:14:35
MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
Duration:00:24:38
The History of PKD
Duration:00:38:59
I Walked in to My Hematologist’s Office: The Power of Storytelling
Duration:00:38:43
Beyond the Numbers: The Impact of PK Deficiency
Duration:00:37:55
Pyruvate Kinase Deficiency Advocacy Advisory Council (AAC)
Duration:00:27:07