In Our Bodies

Long time friend Zion and I chat about what it meant for them growing up in a family where neurodivergence, tattooing while dealing with chronic pain and lots of other fun stuff. I hope you enjoy the episode! In Our Bodies instagram: ⁠https://www.instagram.com/inourbodies/ Transcript for this episode: https://docs.google.com/document/d/15kw_fN1LqzsLw6h4EQs6NtouhvQcWwvN/edit?usp=sharing&ouid=110632070071665884381&rtpof=true&sd=true Zi's socials: https://www.instagram.com/ziencefictionart/

Hello listeners, To celebrate making it to the 10th episode of this podcast I thought I'd flip the script and have someone interview me! I never properly talked about why I was making this podcast so thought this would be my chance! I also thought maybe it'd be nice for you guys to get to know me a little bit more. I'm pretty nervous for people to hear this, but... I hope you enjoy it! Infinite thanks to George Lou for taking the time and agreeing to help me guest host this episode. In Our Bodies instagram: https://www.instagram.com/inourbodies/ Text transcription of this episode: https://docs.google.com/document/d/1_xEgaXzbbWhrdhnSNj_fJJpg19SjBIWo/edit?usp=sharing&ouid=110632070071665884381&rtpof=true&sd=true George Lou Bon's socials: George Lou's socials: https://www.instagram.com/itismybody/ Well adapt: https://well-adapt.com https://www.instagram.com/well.adapt/ Track: Last Night's Dream — Tryezz [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/s-FBmZCBfiIFree Download / Stream: https://alplus.io/last-nights-dream

In Our Bodies instagram: https://www.instagram.com/inourbodies/ Transcription of the episode in google document form: https://docs.google.com/document/d/1p3XteTiOaNhdhOpiKPCB9aGqSUIV0V4-/edit?usp=sharing&ouid=110632070071665884381&rtpof=true&sd=true Erica’s socials: https://linktr.ee/justsaymaybepodcast https://www.instagram.com/justsaymaybepodcast/?hl=en SBSK (special books for special kids) youtube - interview with Erica: https://www.youtube.com/watch?v=GW4m50l7JwQ&t=1532s OCD vocabulary Erica mentioned: Rumination, checking, thought balancing, thought neutralization ACT - acceptance and commitment therapy Exposure response prevention therapy for OCD Doctor Steven Phillipson - coined PURE O OCD The self compassion workbook for OCD by Kimberly Quinlan: https://kimberleyquinlan-lmft.com/self-compassion-workbook-for-ocd/ Treat my OCD https://linktr.ee/treatmyocd https://www.instagram.com/treatmyocd/?hl=en Hidden Brain Podcast - https://hiddenbrain.org/ https://www.instagram.com/hiddenbrain/?hl=en

In this episode friend of the pod, George Lou (she/they) comes on to talk about their journey making Well Adapt; a wellness platform looking to provide physical and mental well being programs that centre the access needs of disability, chronically ill and neurodivergent folks. George Lou is currently still looking for people to test their beta test their platform so go sign up if you're interested! https://well-adapt.com Fully transcribed episode here: https://www.youtube.com/watch?v=lHOfcCHEPEQ George Lou's socials: https://www.instagram.com/itismybody/ Well adapt: https://well-adapt.com https://www.instagram.com/well.adapt/ Mentioned in the podcast: https://www.upwork.com/ https://www.laughingatmynightmare.com/about-us Track: Last Night's Dream — Tryezz [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/s-FBmZCBfiIFree Download / Stream: https://alplus.io/last-nights-dream

Please note: there is discussions around suicide from 17:55 min to 19:00 min of this episode. We're back with Chanika Svetvilas for part 2 of our conversation. In this part of the episode I was so honoured to get to hear about all the cool projects Chanika has done. Two I'll mention here, the rest you're just going to have to listen and find out! Project opening the conversations about diagnosis and community care around mental health. Chanika's projects has also taken part in trying to disseminate information on racial discrimination and immigrant rights in New York in a post 9/11 New York. Chanika's met Yuri Kochiyama everyone! All in all I really enjoyed this episode and I hope you will too. Chanika's Socials: Insta: https://www.instagram.com/chanikasvetvilas/?hl=en Website: https://chanikasvetvilas.com/ Podcast fully transcribed: https://www.youtube.com/watch?v=lUapI8Q3LxI If there is a different format in which the transcription of this episode could be more helpful to you, please do not hesitate to reach out and we will try our best to accommodate. Email us at inourbodies@gmail.com Chanika's projects mentioned: What I have learned - https://chanikasvetvilas.com/art/what-i-have-learned/ Side effects - https://chanikasvetvilas.com/side-effects/ Prescription of support - https://chanikasvetvilas.com/prescription-of-support/ Suit Cases on Tour - https://chanikasvetvilas.com/projects/ people and things mentioned in this episode: The ECASU *East coast Asian American Union* conference. www.ecaasu.org Yuri Kochiyama - American civil rights activist who had family members experience the American internment camps. AALDEF - Asian American Legal Defence and Education Fund. www.aaldef.org Track: Last Night's Dream — Tryezz [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/s-FBmZCBfiIFree Download / Stream: https://alplus.io/last-nights-dream

Hi listeners, we're trying something different this time and splitting the episode in two! Hopefully it will feel easier to listen. This episode we have Chanika Svetvilas she/her, cultural worker, artist, disability advocate. In this first part I ask her a bit about her daily life as she's chosen to receive a bipolar diagnosis and psychiatric help in form of daily medicines. We also talk about how she's been activated to advocate for herself amongst others in the disabled community and what mad pride means to her. Chanika's Socials: Insta: https://www.instagram.com/chanikasvetvilas/?hl=en Website: https://chanikasvetvilas.com/ Podcast fully transcribed: https://www.youtube.com/watch?v=bCEDZL56m0o If there is a different format in which the transcription of this episode could be more helpful to you, please do not hesitate to reach out and we will try our best to accommodate. Email us at inourbodies@gmail.com Things and people mentioned: DSM - Diagnostic and statistical manual of mental disorders ^ please note as Chanika says she has personally chosen to find diagnosis and medication guided by the DSM but we'd like to acknowledge here that there is deep history of the DSM being homophobic, transphobic and racist. Not saying it isnt a useful tool for certain aspects or for some but is NOT the end all be all for mental health. Please do your own research. Spoon theory: https://health.clevelandclinic.org/spoon-theory-chronic illness/#:~:text=What%20is%20a%20%E2%80%9Cspoonie%E2%80%9D%3F,energy%20based%20on%20their%20illness. Mad Pride: a little history - https://theindependent.ca/news/mad-pride-arrives-on-the-rock/ Petra Kuppers: disability culture activist, a wheelchair dancer, and a community performance artist. https://www.petrakuppers.com/ Sins Invalid: 10 principles of disability justice https://www.sinsinvalid.org/blog/10-principles-of-disability-justice Track: Last Night's Dream — Tryezz [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/s-FBmZCBfiIFree Download / Stream: https://alplus.io/last-nights-dream

Listeners, this episode we have with us Keiko (they/them)! Self proclaimed clownish creator, Keiko is first and foremost their own damn canvas. They own a business helping people adorn their mobility aids and their bodies. They are a drag king and they do music. They do it all! This episode we chat about fashion, what we're looking forward to as we step into the spring months and why it's important that people who use mobility aids get to fashion them in a way that matches their outfit! I had a blast talking to them I hope you have a blast listening. Keiko's socials: The shop: https://www.instagram.com/sadclownclub.shop/ https://www.sadclownclub.com/ Their insta: https://www.instagram.com/donutclown/ Their drag: https://www.instagram.com/dragprince/ Their music: https://www.instagram.com/missourisurfclub/ Cool people Keiko mentioned: Talk shit get hit sticks by: https://www.instagram.com/hate.kill.repeat/ Rebirth garments and radical visibility: https://www.instagram.com/rebirthgarments/ https://allmylinks.com/rebirthgarments Drag King Rydyr: https://www.instagram.com/dkrydyr/ J fashion Tabby: https://www.instagram.com/dreamytabby/ Mahou Prince: https://www.instagram.com/mahouprince/ Vocab talked about in the episode: EDS - Ehlers-Danlos syndrome Dysautonomia Mass Cell issues GI issues: gastroparesis PoTS - Postural tachycardia syndrome Podcast fully transcribed: https://www.youtube.com/watch?v=wh6wHfmhcAc If there is a different format in which the transcription of this episode could be more helpful to you, please do not hesitate to reach out and we will try our best to accommodate. Email us at inourbodies@gmail.com Intro and outro music: Track: Vein — KV [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/Y21qcjv5s00 Free Download / Stream: https://alplus.io/vein

This episode we have with us Dan (he/him)! Dan is a film and documentary producer and we sat down talked about a lot of great stuff. We talk about the often unacknowledged link between eczema and mental health, along with how that manifested itself in our home lives. I really enjoyed hearing Dan talk about what he believes are the blessing of living the life he has in his body. Note: So apparently LeAnne Rimes has psoriasis and took a nude photoshoot to show her 2020 flare up. https://www.today.com/health/leann-rimes-psoriasis-stress-2020-leads-flare-t196671 Podcast fully transcribed: https://www.youtube.com/watch?v=exTeZmVk-ZM If there is a different format in which the transcription of this episode could be more helpful to you, please do not hesitate to reach out and we will try our best to accommodate. Email us at inourbodies@gmail.com Follow us on instagram @inourbodies https://www.instagram.com/inourbodies/

*We had a little audio trouble for the last ten minutes of the episode, so the last ten minutes is little fuzzy. Our apologies! This episode's guest is Iman (she/her)! She is a huge online advocate for BIPOC disability voices as co founder of @amplifybipocdisabledvoices and her own account @alilbitofaith on instagram. She is also a beautiful dancer, artist and all around cute human. We chat about how it's difficult to navigate and learn about the upkeep of our ever changing bodies. Not to mention doing all this while fighting off other peoples ableist markers as what we should have accomplished in our adult lives. We swap stories and some much needed catharsis about eczema and much much more! Podcast fully transcribed: https://www.youtube.com/watch?v=_Q726VNrxLA If there is a different format in which the transcription of this episode could be more helpful to you, please do not hesitate to reach out and we will try our best to accommodate. Email us at inourbodies@gmail.com Follow us on instagram @inourbodies https://www.instagram.com/inourbodies/ Follow Iman @alilbitofaith https://www.instagram.com/alilbitofaith/?hl=en She is the co founder of Amplify BIPOC Disabled Voices https://www.instagram.com/amplifybipocdisabledvoices/?hl=en Introduction resources along with other accounts provided and mentioned by Iman: POTS - Postural orthostatic tachycardia syndrome: https://www.instagram.com/p/CXonBmCP2BA/ MECFS - Myalgic Encephalomyelitis: https://www.instagram.com/p/CXnSgI8rDVp/ other co founder of Amplify BIPOC disabled voices Rhi @rhi_is_sick: https://www.instagram.com/rhi_is_sick/?hl=en Chronically Brown https://www.instagram.com/chronicallybrown/?hl=en Asian American w Disabilities https://www.aadinitiative.org/ https://www.instagram.com/aadinitiative/?hl=en Intro and outro music: Track: Vein — KV [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/Y21qcjv5s00 Free Download / Stream: https://alplus.io/vein

This episode's guest is Veronica Louey (she/her) - lover of literature, a model with a keen interest in traditional Chinese medicine. This episode we learn even more about what Veronica calls "the disease with a thousand faces" Lupus. More than that we hear about the last couple of years Veronica has experienced leading up to her kidney transplant this year with new Co-vid protocols in place. We talk about what we think needs to change in terms of mental health support for those with chronic illness, we explore how we think people perceive us and more important how we want to be seen. All this and much more, hope you enjoy this episode! Podcast episode fully transcribe: https://www.youtube.com/watch?v=cStsGmackk4 If there is a different format in which the transcription o this episode could be more helpful to do, please do not hesitate to reach out and we will try our best to accommodate. Email us at inourbodies@gmail.com Follow us on instagram @inourbodies https://www.instagram.com/inourbodies/ Resources about Lupus suggested by Veronica: https://www.hopkinslupus.org/lupus-info/lupus/ Lupus assessment one could do: https://www.lupus.org/news/new-study-assesses-shingles-frequency-in-people-receiving-cyc-and-steroids https://lupuscanada.org/ interesting insight on how TCM describes lupus and a little on the history of Lupus in Chinese culture: https://www.pacificcollege.edu/news/blog/2016/10/19/lupus-and-traditional-chinese-medicine-restoring-balance - Intro and outro music: Track: Vein — KV [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/Y21qcjv5s00 Free Download / Stream: https://alplus.io/vein

This episode's guest is George Lou Bon (she/they) - musician, pole dancer and visual artist extraordinaire. We talk about the complicated process of trying to get diagnosed by doctors who simply won't listen or don't believe us, how to find a daily routine that works for George Lou's body, disability joy and much more! Content warning: between 8:20 - 9:25 George Lou talks about disordered eating Podcast episode fully transcribed: https://www.youtube.com/watch?v=H-ZeycTUEk4&t=29s Follow us on instagram @inourbodies https://www.instagram.com/inourbodies/ Follow George Lou Bon on instragram at @itsmybody https://www.instagram.com/itismybody/ website: https://www.itismybody.com/ Like their work? Tip them! : https://www.paypal.com/paypalme/georgeloubon Vocab and resources mentioned in the episode: EDS - Ehler Danlos syndromes MS - Multiple sclerosis Book: Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha Disability resource youtuber: https://www.youtube.com/c/JessicaKellgrenFozard George Lou's pole teacher: https://www.instagram.com/glitterbrowsiris/ Intro and outro music: Track: Vein — KV [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/Y21qcjv5s00 Free Download / Stream: https://alplus.io/vein

follow us on instagram @inourbodies https://www.instagram.com/inourbodies/ Trailer text: Hey my name is Henri and I am the creator and host of In Our Bodies a podcast made by and for people of colour who identify as disabled, chronically ill and or neurodivergent. But honestly medical identifiers aside, if you’ve ever felt like your body or your brain just doesn’t work how it’s quote unquote supposed to, this podcast celebrates you. It is no surprise that like in many other spaces, the realm of health and disability often favors and believes white people in a way that isn’t afforded to people of colour. In Our Bodies wants to carve out a space where that isn’t the case. Every episode we invite guests to talk about their struggles, celebrate their triumphs, explore their art, their activism and honestly just talk about whatever we want because our stories are valid. I hope this podcast provides those who are being interviewed and those who listen care and joy for wherever we are in our bodies. So I hope you tune in. And if you need any more information you can follow us on instagram @ in our bodies. See ya there! Track: Emoji — tubebackr [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/Dsr4o9cZxUo Free Download / Stream: https://alplus.io/emoji

To kick off this first episode I talk to long time friend, Annie Chen (she/her)! We talk about her journey with lupus, navigating the Canadian healthcare system as immigrants and contemplate the possibility of buying new bodies. For a version of this episode with transcriptions: https://www.youtube.com/watch?v=EB_acgmO-zo Follow us on instagram https://www.instagram.com/inourbodies/ Follow Annie Chen on instagram https://www.instagram.com/zooannimals/ Her writing at https://www.annie-chen.ca/journal Intro and outro music: Track: Vein — KV [Audio Library Release] Music provided by Audio Library Plus Watch: https://youtu.be/Y21qcjv5s00 Free Download / Stream: https://alplus.io/vein