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Muscle Owl Radio

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More Information

Location:

London, United Kingdom

Description:

Muscle Owl Radio is the podcast stream of The Muscle Owl. We provide updates and engage in discussion on topics within the neuromuscular and disabled community.

Twitter:

@muscleowl

Language:

English


Episodes

Muscle Owl Radio - Ep72: What about disabled people in spontaneous emergencies? (OwlTalks#63)

8/10/2017
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“What would we do, if he and I were out, and something like this happened?” After the Grenfell Towers fire, and the disasters involving acts of terrorism this year, we recorded an episode discussing what happens to disabled people in such situations. With some time having passed since these events, we have decided to post this episode. In some parts we talk very seriously, in some we add a little humour. We hope you find it another interesting discussion.

Duration: 00:13:08


Muscle Owl Radio - Ep71: NHS Wheelchair Lottery?! (OwlTalks#62)

8/9/2017
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This week, BuzzFeed​ published a report finding that tens of thousands of disabled children and adults are being denied NHS wheelchairs in England because of a postcode lottery in services. Michaela​ and Peter​ discuss their views on this; why it is a problem, and how it needs to be fixed.

Duration: 00:20:29


Muscle Owl Radio - Ep70: Accessible Gaming with Ian Hamilton and Vivek Gohil (OwlTalks#61)

8/2/2017
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This week on Muscle Owl Talks, we spoke to gaming expert, Ian Hamilton. He and Vivek discussed how the gaming industry is making games more accessible for a wide range of people with disabilities. Do you play video games? What type of assistance do you use?

Duration: 00:18:47


Muscle Owl Radio - Episode 69: Trains, the London Tube, and Accessibility! (OwlTalks#60)

7/24/2017
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Muscle Owl Talks Ep60: Trains, the London Tube, and Accessibility! Zoe was taken an hour out of her way last week, when her tube train decided not to stop at the station without prior warning! All this when she was on her way to one of her professional qualification exams! Tune in for another chucklesome episode!

Duration: 00:17:41


Muscle Owl Radio - Ep68: Early Access to Medicines Scheme (EAMS) with Diana Ribeiro (OwlTalks#59)

7/5/2017
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Muscle Owl Talks Episode 59: We’re joined by Action Duchenne CEO Diana Ribeiro, as she explains the Early Access to Medicines Scheme (EAMS), which is helping many adults in the UK with Duchenne muscular dystrophy access new treatment. Questions from Ravi and Peter also touch on the topic of the European Union, and whether the upcoming Brexit decision will affect how drugs are approved in the UK.

Duration: 00:16:11


Muscle Owl Radio - Ep67: AHCA & Medicaid Facing US Senate Vote (OwlTalks#58)

7/4/2017
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The senate vote on the latest US healthcare bill is upcoming, and many Americans are fearful it will finally pass. Watch Steve and Hannah as they give their reactions to last week’s ADAPT protests, and explain why they are very much concerned!

Duration: 00:17:31


Muscle Owl Radio - Ep66: School Sports Days for Children with a Disability (OwlTalks#57)

7/3/2017
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Muscle Owl Talks Ep57: We hope you’re enjoying the heat wave (depending on where you are in the world!) With it being Summer in the northern hemisphere, and all the sports day videos across Facebook, we decided to reminisce on sports days gone by. We ask what is best for young children with a physical disability, and how best to adapt races! Tune in here and on iTunes, and as always, feel free to like, share, and comment below!

Duration: 00:14:39


Muscle Owl Radio - Ep65: PS4 Gaming for Disabled People? Vivek Talks Gadgets! (OwlTalks#56)

6/25/2017
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Vivek has been developing some solutions to help make his gadgets more accessible! From his PS4 controller to a new extendible cup holder for his wheelchair! Do you have any handy accessories for gaming?? Tune in to our latest chat and leave a comment below!

Duration: 00:12:59


Muscle Owl Radio - Ep64: Shelley’s DMD Snowdon Challenge: DONE! (OwlTalks#55)

6/24/2017
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It’s a week since Shelley Simmonds took her son, Fraser, up Snowdon on her back! Tune in as we chat about how it went! Fraser is 4 years old and has Duchenne muscular dystrophy. However, unlike many other boys with the condition, Fraser has never been able to walk. So Shelley decided to embark on a mammoth hike and fundraise over £11,000 for research into Duchenne muscular dystrophy while she was at it!

Duration: 00:08:15


Muscle Owl Radio - Ep63: Charlie Gard & Patient/Parental Consent (OwlTalks#54)

6/23/2017
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Charlie Gard is a young child who is currently being cared for at Great Ormond Street Hospital in London; he is currently on life support. A last chance potential treatment for his condition lies in the US, but his parents are being refused the right to take him out and try the treatment. The doctors now want to turn the life support off, and end his life. What is the right option? Peter and Michaela discuss…

Duration: 00:14:26


Muscle Owl Radio - Episode 62: SMA Treatment Spinraza Delayed in UK?! (OwlTalks#53)

6/22/2017
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It’s a late night edition Muscle Owl Talks! We discuss the latest regarding SMA and Spinraza (nusinersen) in the UK. 70 children still not on the drug? What is causing the delay?

Duration: 00:12:02


Muscle Owl Radio - Episode 61: Shelley & Fraser Simmonds - Snowdon for DMD (OwlTalks#52)

6/2/2017
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This weekend, our friend Shelley will be climbing Mount Snowdon in the UK - with her young son Fraser on her back!!! Fraser, who is 4 years old, has Duchenne muscular dystrophy, and their fundraising efforts will support research into the condition. You can check out Fraser’s page here: Fraser & Friends and their fundraising page: https://www.justgiving.com/fundraising/frasersimmonds

Duration: 00:07:57


Muscle Owl Radio - Episode 60: Peter & Andrew Review their 10k Race in Manchester (OwlLive)

6/2/2017
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Join us as Peter and Andrew look back at their wild race in the Manchester 10k! As we had been discussing earlier, it was Andrew’s first race in his powerchair - who says guys with Duchenne muscular dystrophy can’t run races?! This episode was recorded LIVE on Facebook the evening after the race!

Duration: 00:21:25


Muscle Owl Radio - Episode 59: Peter & Andrew Preview their 10k Race in Manchester (Talks#51)

5/29/2017
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Join us for Muscle Owl Talks episode 51, as Peter’s brother Andrew makes his first appearance on the show! Both brothers will be running the Manchester 10k this weekend - in two very different styles!

Duration: 00:08:17


Muscle Owl Radio - Episode 58: Taxi Ruling in UK (Owl Talks #45)

5/21/2017
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Join us for Andrew Duffy’s first podcast episode, as he introduces the audio of our Muscle Owl Talks ep45 discussion with our editor Peter. In the debate, Peter, Michaela, and Zoe to discuss the latest Supreme Court ruling for taxis serving disabled people in the UK. As always, you can find us at www.muscleowl.com and on www.facebook.com/muscleowl!

Duration: 00:19:38


Muscle Owl Radio - Episode 57: US Healthcare & Pre-existing Conditions (Talks #50)

5/16/2017
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The AHCA is ready to replace the ACA (Obamacare). What does that mean at this moment in time? This week Michaela and Peter are joined by Iowa native, Hannah Soyer, who shares her views on the current issues surrounding the US healthcare bill. What does a pre-existing condition mean? Will disabled people be forced to pay huge sums for their health insurance? What is the future for US healthcare? We will be discussing and investigating through the coming months. As always, you can find our...

Duration: 00:21:59


Muscle Owl Radio - Episode 56: Peter Runs the Belfast Marathon 2017 …DRESSED AS AN OWL! (Talks #49)

5/15/2017
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So, our editor Peter ran the Belfast Marathon dressed as an owl! Tune in to hear how it went, as he sits down with Michaela. And hear about the upcoming Manchester 10k at the end of the month too! As always, don’t forget to check us out on Facebook, Twitter and at www.muscleowl.com!

Duration: 00:15:29


Muscle Owl Radio - Episode 55: Michaela’s Bristol University Keynote Speech!

5/11/2017
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Check out our latest episode (which featured in video form as Muscle Owl Talks #48), where Peter and Michaela chat live from Belfast about Michaela’s upcoming speech at Bristol University on disability rights! As always, you can find us at www.muscleowl.com and www.facebook.com/muscleowl!

Duration: 00:07:39


Muscle Owl Radio - Ep54: SMA Treatment Spinraza Approved in Europe (Muscle Owl Talks #46)

4/22/2017
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On Friday we received the news that Spinraza - the latest (and first) treatment for spinal muscular atrophy - had been approved by the EMA for use in all types of SMA across Europe. Here’s our catch up chat on the subject, and you can read the full EMA report here: https://www.muscleowl.com/

Duration: 00:11:59


Muscle Owl Radio - Episode 51: Duchenne Awareness Day 2016 with Pedro Fernandes & MDUK

9/9/2016
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It’s World Duchenne Awareness Day, so this week we are talking to Pedro Fernandes, father of six year old Luca, who has Duchenne muscular dystrophy. We speak about the diagnosis and discuss our own experiences of diagnosis. Host Peter’s brother was diagnosed at four, but our co-host Vivek wasn’t diagnosed until he was nine years old! Young Luca is also eligible for the drug, Translarna, and will be receiving his first set of treatment tomorrow! Pedro and his family have a family fund...

Duration: 00:27:30

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