TODAY is a Good Day Podcast

Navigating your baby’s health after discharge can be overwhelming. Our guest today will help us navigate the post-NICU experience with determining priorities and staying organized with post-NICU life. Dr. Kate Chappell is an Associate Professor with the University of South Carolina, College of Nursing and is a Pediatric Nurse Practitioner. She received her PhD in Nursing from the University of South Carolina and has been a nurse for nearly 20 years. She worked in the Pediatric Intensive Care setting and as a Nurse Practitioner in Pediatric Neurology and Forensics and Child Abuse. She has been part of the nursing faculty since 2007, teaching nurses and nurse practitioners. Her research and practice interests include family and healthcare provider vigilance for child abuse, creating equitable access to resources, integration of social determinants of health in nursing education, and resource support for children with specific healthcare needs. She serves as the Advocacy and Policy Chair for the Developmental, Behavioral, and Mental Health Special Interest Group in the National Association of Pediatric Nurse Practitioners. She is also the co-Program Director, alongside Dr. Victoria Davis, for two South Carolina based programs funded by US Dept. of Health and Human Services. One program, called Childcare Ready for All (or CRAwl), focuses on providing health need focused training and support for daycare and family care providers for children with a variety of health needs. The other program is BabyCoach, which focuses on providing nurse coaching support for families who have a baby leaving NICU or Special Care Nursery. Dr. Chappell is passionate about families feeling the emotional and material support they need to care for their child and feel secure in the care others are providing, to help families grow and stay strong and support the best outcomes for their children. On this episode you we discuss the following topics: - How Kate got into this line of work (in the Neonatal Intensive Care Unit); When families graduate from the NICU, it can be overwhelming to manage all of the follow-up appointments. How Kate determines priorities for care and follow-up appointments; - Kate's advice for families on how to stay organized for their follow up appointments; - If families need help with finding specialists, who they should contact for help after graduating from the NICU; - Government and insurance funded programs available for families to look into; - The role of non-profit health & development organizations and programs to facilitate referrals and services; - The resources available to support mom and baby; - The roles of a case manager, NICU nurse, post-NICU nursing support/visiting programs, and how families know what these different roles can offer to support them; and, - The one piece of advice Kate gives to NICU families? If you enjoyed this episode, please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes (SoftStix Productions LLC - www.softstixproductions.com, and CVO of CollegeCast LLC), along with co-producer and director of photography Michael Leary (One Fifteen Films LLC - www.onefifteenfilms.com, and CCO of CollegeCast LLC), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC/One Fifteen Films LLC/CollegeCast LLC.

Some families move from the NICU (neonatal intensive care unit) to the PICU (pediatric intensive care unit) during an extended hospital stay. What is the Pediatric Intensive Care Unit? How do you manage an extended NICU and PICU journey? Today’s guest will share more about her family’s journey with their 26-weeker, Eli, navigating from an extended stay in the NICU to their journey in the PICU and beyond. Karen Johnson is a Nigerian born and raised, naturalized American with 20+ years of professional experience in the field of Information Technology. As she will share with you, though, none of her life’s experiences could have prepared her for the journey with her son, Eli. On this episode you will hear: - You will hear about Karen Johnson's pregnancy journey and how it affected her family; - Karen experienced both the NICU and PICU, and she will tell you about the difference between the two; - Karen's transition to the PICU; - What helped Karen make it through each day; - The importance of journaling and writing; - How did Karen prepare to go home, after her extended stay in the NICU & PICU; - What appointments you may need to schedule before discharge; - What equipment you may need to learn about; - How to navigate all of that; - Karen's advice for other families coming home with equipment, from the NICU and PICU; - What Karen's journey looked like the past several years, with her son Eli; - Karen's biggest piece of advice for families navigating the NICU; and, - How Eli is doing today. If you enjoyed this episode, please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes (SoftStix Productions LLC - www.softstixproductions.com, and CVO of CollegeCast LLC), along with co-producer and director of photography Michael Leary (One Fifteen Films LLC - www.onefifteenfilms.com, and CCO of CollegeCast LLC), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC/One Fifteen Films LLC/CollegeCast LLC.

We hear about case managers supporting families in the NICU, but what is the role of a case manager and when do you need one? Also, what are social determinants of health and how do they impact a family navigating the NICU. We will hear answers to these questions and more with our guest today. Madeline Szabo is the Senior Vice President of Clinical Operations at Progeny Health, a national healthcare company dedicated to Maternity and NICU Care Management. The company serves women, infants, caregivers, and families through the milestones of maternal health — from conception and pregnancy to postpartum and parenting, with special expertise in managing premature and complex births and resulting NICU admissions. With over 25 years’ experience in the managed care arena, Madeline has developed a keen understanding of key aspects of the healthcare industry. Prior to joining ProgenyHealth, she served as Regional Director and Associate Vice President with both Molina Healthcare and Aetna. In these roles, Madeline developed and implemented programs to support lines of business that included commercial, Medicare, and Medicaid membership. Madeline earned her Bachelor of Science in Nursing from Bloomsburg University. On this episode you will hear: - You will hear about what inspired Madeline to get into this area of work; - How and when case managers get involved in a NICU case; - The role of a case manager; - Who families should connect with to ask for support, If a hospital is not working with Progeny Health; - A NICU Stay is very overwhelming for families, and they may not fully understand everything that is happening; you'll hear a discussion about what questions families should ask when they are admitted to the NICU; - We hear a lot about social determinants of health, and Madeline helps us understand what that means and how her team addresses these concerns; - Are there resources available for families who would be outside of the Progeny network; - The community partners ProgenyHealth works with to support families; - ProgenyHealth also has a special expertise in helping families and infants affected by Neonatal Abstinence Syndrome (NAS) or Neonatal - - Opioid Withdrawal Syndrome (NOWS); Madeline explains these conditions and how her team responds; - There has been a lot in the news about health inequities. We’ve read that Black Mothers, for example, have 3X the rate of maternal morbidity than white women. Madeline discusses how her work helps to “level the playing field” for all individuals; - Madeline shares how you can access case management services; and, - Madeline shares general tips for NICU Parents. If you enjoyed this episode, please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes (SoftStix Productions LLC - www.softstixproductions.com, and CVO of CollegeCast LLC), along with co-producer and director of photography Michael Leary (One Fifteen Films LLC - www.onefifteenfilms.com, and CCO of CollegeCast LLC), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC/One Fifteen Films LLC/CollegeCast LLC.

Advocating for yourself and your baby can be challenging in the hospital. Feeling intimidated by the medical terminology and the equipment is understandable. The large team of doctors and nurses caring for your baby can be overwhelming. Today we will discuss best practices for you to speak up and be a part of the care team for your baby. We will also hear about our guest’s personal journey as a caregiver. Today ‘s guest is Dwight McBee, Senior Vice President, Chief Experience Officer and Internal Health Equity Officer at Jefferson Health. In this role, Dwight has responsibility for managing the strategic priorities for the patient experience across the Jefferson Health system and has the responsibility of establishing the structures, processes and partnerships that build trust between patients, families and caregivers. In his prior role, Dwight served for four years as the Vice President and Chief Experience Officer for Temple University Health System, overseeing strategy and operations for the Offices of Patient & Community Experience, Food & Nutrition Services and Employee Health Services. In Dwight’s early career as a critical care nurse at AtlantiCare Health System in Atlantic City, New Jersey, he successfully led in various leadership roles on the journey to achieving the 2009 Malcolm Baldrige Quality Award. He led innovations in satisfaction, employee recognition and equity programs in his role as Corporate Director. Dwight earned his Bachelors of Science (BSN) degree in Nursing from Thomas Jefferson University, his MBA from Stockton University and is certified as a patient experience professional (CPXP) from the Patient Experience Institute. Dwight serves as a youth mentor for the Philadelphia Collaborative for Health Equity (P-CHE) and Temple’s Tools for Success Summer Youth Program. He is a volunteer for the American Heart Association, Gift of Life Family House and NJ Rett Syndrome Foundation. On this episode you will hear: - What inspired Dwight to go into patient experience, as a career path; - What family centered care is and more about Jefferson’s approach to this concept; - Dwight has worked with many patients and patients’ families over the years, and he shares what the first question you should ask the medical team members is; - The best way families can advocate for their baby (or a family member in the hospital); - After a hospital stay, how you can give feedback - either positive or negative, and where you should start with giving your feedback to the hospital; - Which team members, in a hospital, receive feedback; - Whether someone can really make an impact by providing feedback after their hospital experience, and the reasons why feedback is important; - Dwight shares more about his family’s personal journey, and his personal experience as a caregiver advocating for his daughter; - Dwight's advice for others just starting their family’s journey, navigating through appointments and setting up in-home care; and, - The moment that made the biggest impact on Dwight's work supporting families. If you enjoyed this episode, please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes (SoftStix Productions LLC - www.softstixproductions.com, and CVO of CollegeCast LLC), along with co-producer and director of photography Michael Leary (One Fifteen Films LLC - www.onefifteenfilms.com, and CCO of CollegeCast LLC), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC/One Fifteen Films LLC/CollegeCast LLC.

A prenatal diagnosis is filled with unknowns, anxiety, and fears for parents. Today’s guest knows this experience personally, after her son was diagnosed with a Congenital Heart Defect at just 18 weeks gestation. Sarah Banach was always passionate for child development and wanting to be a mom. While in college and graduate school she turned to childcare as her career prior to becoming a teen therapist. - Sarah shares a little about her story of starting a family, with you; - Sarah discusses how she managed learning about her son’s diagnosis in utero, and what steps she took to help get her through her family's feelings of uncertainty, anxiety and fear; - Sarah discusses what her pregnancy looked like, after receiving her son's diagnosis; - Sarah shares how she prepared for her son's arrival and the “unknowns”; You will hear about what helped Sarah the most during her pregnancy, to help get through each day; - Sarah discusses what her family's journey looked like, after Mikey (Sarah's son) was born; - Sarah shares the resources that she found to be the most helpful during her pregnancy and after Mikey was born; - Sarah discusses how her background in childcare and today, as a therapist, has helped her through this process; and, - Sarah shares advice she has for others who may be navigating a similar NICU journey. If you enjoyed this episode, please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes (SoftStix Productions LLC - www.softstixproductions.com, and CVO of CollegeCast LLC), along with co-producer and director of photography Michael Leary (One Fifteen Films LLC - www.onefifteenfilms.com, and CCO of CollegeCast LLC), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC/One Fifteen Films LLC/CollegeCast LLC.

Finding the right OB/GYN and high risk doctor can be a difficult process for families. When do you ask to speak with a high risk doctor? What can they help you with during a pregnancy? Dr. Jack Fitzsimmons is here to answer these questions and more. Dr. Fitzsimmons grew up in Philadelphia attending both LaSalle College HS and LaSalle University followed by medical school at Hahnemann, Abington Hospital for his residency, and Jefferson Hospital for Maternal Fetal Medicine Fellowship. He worked at various University health systems, including University of Wisconsin, University of Washington, and Allegheny University of the Health Sciences followed by time at the FDA and within the pharmaceutical industry before returning to clinical medicine in 2005 at Hahnemann. Dr. Fitzsimmons moved to Virtua Hospital in New Jersey for several years and now supports families at Temple Health and Holy Redeemer. On this episode you will hear: - What inspired Dr. Fitzsimmons to become an OB/GYN, focusing on high risk pregnancies - The difference between an OB/GYN and a high risk OB/GYN - When a family should typically seek out a high risk OB/GYN for the first time - Whether families should ask to see a doctor (like Dr. Fitzsimmons) if they are having a baby for the first time - Some of the questions families should ask when they first learn they are pregnant and continue to navigate through their pregnancy journey - Dr. Fitzsimmons' advice to families expecting multiples (for example: How serious should you take a pregnancy with multiples?) - The biggest piece of advice Dr. Fitzsimmons has for families navigating a high risk pregnancy - Dr. Fitzsimmons shares a moment/situation that impacted him the most throughout his career If you enjoyed this episode, please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel, and share our podcast with someone who may need it. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes (SoftStix Productions LLC - www.softstixproductions.com, and CVO of CollegeCast LLC), along with co-producer and director of photography Michael Leary (One Fifteen Films LLC - www.onefifteenfilms.com, and CCO of CollegeCast LLC), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC/One Fifteen Films LLC/CollegeCast LLC.

Hearing about the NICU and becoming a NICU parent can be far from what you expect it to be. Advocating for your baby and learning how to navigate the ups and downs is important. Today’s guest knows this unique journey firsthand with her 26-weeker. On this episode you will hear: - Camille will share her journey to starting a family, with you; - You’ll hear what Camille knew about the neonatal intensive care unit before delivering prematurely, and what you should consider; - Camille will talk about what she did to advocate for her baby; - Camille discusses what was most helpful for her, when family members or friends asked how they could help; - Camille shares her advice for others who may not be sure how to ask for help from family and friends; - The NICU is a rollercoaster, Camille shares what she did to get through the difficult days; - Camille discusses her was the transition home from the NICU; - Camille’s sweet miracle is almost a year old, Camille shares what was most challenging for her after coming home; and, - Camille shares her biggest piece of advice that she would give to other families just starting their NICU journey. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

Parenthood is an adventure for all of us. Today’s guest knows this adventure well. Lena Young and her high school sweetheart husband are the parents to nine beautiful children including a set of twins and a set of quadruplets born nearly 8 months ago. Lena is a stay at home mom sharing her family’s adventures through her Instagram page - "Raising our Youngs." You can follow Lena at @raisingouryoungs. On this episode you will hear: - Lena's multiple NICU experiences from premature to full-term; - Lena's advice for families going through the experience of being the parent of a full-term child in the NICU; - How the experience of welcoming a full-term baby might differ from welcoming premature children into the world; - What it felt like going back into the NICU after having had a prior childbirth experience; - Lena will discuss what is feels like taking one step forward and 2 steps backward in the NICU (Lena will share advice on how you can get through it); - Lena experienced a miscarriage, and she shares her perspective from that experience with you; - We always say “You can cry as much as you want!” when sharing your NICU experience; today - nearly 12 years later, Martha still cries at times; Lena shares how she worked through her emotions during her NICU journey; - Lena shares her experiences breastfeeding multiples; - When you graduate from the NICU, you can feel like you are going into this whole new “easy” chapter, but that is not always the case - Lena talks about her family’s chapter post-NICU; - Lena talks about the transition home with her older kids; - Lena talks about the follow up appointments she has to have now that her children are are post-NICU; and, - Lena shares the biggest piece of advice she wants to give others about parenthood. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. The TODAY is a Good Day Podcast is produced by CollegeCast LLC (www.collegecastpodcasts.com). Visit collegecastpodcasts.com for more information and to check out other nonprofit podcasts. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

We have an action-packed roundtable for this episode! We are honored to welcome three incredible neonatologists who have impacted more families than they know… Dr. Eddie Chang currently serves as the Chief of Neonatology at Jefferson-Abington Hospital, but more broadly believes that it is important to build teams that care deeply about children and their families. His experience includes founding medical practices, a seed-stage healthtech venture, and a Clinically Integrated Network focused on children. Board certified in both General Pediatrics and Neonatal-Perinatal Medicine, Dr. Chang is a Castle Connolly/Philadelphia Magazine Top Doctor and also holds an MBA from the Wharton School of the University of Pennsylvania where he also studied as an undergraduate. He completed medical school at Thomas Jefferson University Sidney Kimmel Medical College and Pediatrics residency training at New York University. Finally he returned to Philadelphia where he finished his Neonatal-Perinatal Fellowship training at St. Christopher's Hospital for Children. Currently, Dr. Chang is a Clinical Assistant Professor at Jefferson and is interested in sustainable healthcare strategy, innovation, and entrepreneurship. Dr. Cindy Dembofsky went to Univ of Ct for undergraduate where she met her husband and continued at the Univ of Ct for Medical School. She came to Philadelphia in 1992 when she began her Pediatric Residency followed by her Neonatology Fellowship at Thomas Jefferson/AI duPont Children's Hospital. She joined the Crozer Health System covering the Delaware County Memorial Hospital and Crozer Chester Medical Center NICUs after fellowship in 1998. She has been Neonatology Division Chief for the Health System since 2012. She is also a member of the Delaware County Baby’s First project. Dr. Jay S. Greenspan is the Professor of Pediatrics and Emeritus Pediatric Chairman for the Sidney Kimmel Medical College at Thomas Jefferson University and Nemours. He is also a Trustee for the March of Dimes. Dr. Jay Greenspan received his undergraduate degree from Connecticut College, his medical degree at Case Western Reserve University, and his training in Pediatrics and Neonatal Perinatal Medicine at St. Christopher’s Hospital for Children and The Children’s Hospital of Philadelphia. He completed his MBA at Capella University. His research interests include neonatal pulmonary function, development and treatment. He is also involved in research on the prevention of preterm birth, healthcare reform and the medical home. On this episode: - The doctors discuss why they went into this area of focus helping NICU babies and families. - You will hear about how the doctors encourage parents to be a part of the care team and ask the hard questions on the parents' minds, even though the NICU is overwhelming and many families feel intimidated, anxious, and isolated walking through those doors each day. - Personal guilt about what happened with a premature birth can be difficult to work through. The doctors share how they walk parents through realizing the early delivery is not their fault. - You will hear about some resources for parents to look into to feel empowered. - You will hear about “NICUitis” and why is it important for families to leave the NICU and take a break. - We discuss what the doctors each tell parents when they start googling. - We breakdown the best advice for moms who need to ask for help. - We discuss advice for when families are nervous and getting ready to leave the NICU. - The doctors share their "one line" they have typically shared with families over the years to help encourage them. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and...

The NICU journey can bring people into your life you never expected. I’ll never forget the day I met our next guests walking through the halls of the NICU. Melissa was wearing a Penn State sweatshirt and I said “We Are” walking past. That opened the door for us to connect with each other and we have stayed in touch for nearly 11 years. While our personal NICU journeys were different, we share a common bond of the NICU. Brett and Melissa have a special story to share of strength, determination, and dedication doing all they could do to advocate for their sons born at 24 weeks 5 days. On this episode: - Melissa and Brett share their journey with you; from pregnancy to the NICU. - Melissa and Brett discuss how they made it through ‘one day at a time.’ - Melissa and Brett share their boys’ NICU journeys with you. - We will hear about the steps Melissa and Brett took to work through the difficult decisions. - Brett talks about his perspective as a NICU dad and his approach to the NICU journey. - Melissa and Brett share what it looked like bringing Brody and Cameron home - Melissa shares how her career changed and what it was like going back to work after 3 years. - Melissa and Brett share what co-parenting looks like for them, now that they are no longer together. - You will hear about what the boys’ therapies look like post-NICU, and how Melissa and Brett found the right specialists. - You will hear about some potential clinical trials in the NICU space, as well as how you can get into them. - Melissa and Brett offer their one piece of advice for families navigating a similar NICU journey. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

Post-traumatic stress disorder is a diagnosis discussed frequently for families navigating the NICU. A family’s personal journey can also cause strain on marriage and a change in family dynamics with siblings at home. We will be speaking about these important topics today with Kellie Wicklund and Jenny Limm. Kellie Wicklund is a licensed Psychotherapist with 20 years of experience, and is the Owner and Clinical Director of the Maternal Wellness Center. Kellie is certified by Postpartum Support International as a Perinatal Mental Health Specialist. Her experience with both private and community clients has nurtured a passion in the area of reproductive health psychology — a specialty that acknowledges the complexity and trials of the developmental process of parenthood. Jenny is a marriage and family therapist, with specialization in sex therapy holding both a masters degree from Drexel University’s Couple and Family Therapy Program and Widener University’s Master of Education in Human Sexuality. She is currently a PhD candidate at Widener University to officially become a sex-doctor, as a clinical sexologist. Prior to this specialization in sex therapy, Jenny had extensive experience working with teens and families in crisis, as a lead clinician at a adolescent psychiatric hospital (both inpatient, and partial hospitalization programs), as well as lead therapist in family based services in Philadelphia. On this podcast episode: - Kelly and Jenny discuss Post-traumatic Stress Disorder, among NICU families, and what that actually means. - You will hear information about how to know if you are experiencing symptoms of PTSD. - Knowing the NICU experience is traumatic, as parents, we will find out how not to transfer that anxiety and feelings of trauma to our own children as they are babies and grow older. - With our personal story, we have always been very protective of Claire probably out of fear and just all that we have navigated through to help her feel successful. Kelly and Jenny will share what they tell parents to help them feel empowered to let go even a little bit. - We talk about siblings in a home with medically fragile children, and what that has looked like with families Kelly and Jenny have helped. - You will hear about how parents can include the child who does not have special needs. - We discuss how trauma can impact a marriage or partnership. - Kelly and Jenny share the signs that a family may need counseling. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

When you are navigating the NICU, many of us look to Facebook groups to connect with families who are experiencing similar journeys. I love how making a comment on a Facebook post can bring new people into your life. Our guests today are a part of a Micro-Preemie Support Network on Facebook, a group I have personally been a part of for many years. Nadine Bussie reached out to me to share her story and I’m thrilled to have her and her husband, Mark, here with us today from Baltimore to share their family’s personal journey. We’ll touch on topics including the comparison trap, advocating for yourself, and the NICU’s impact on marriage. Nadine and Mark - thank you for joining us today. On this podcast episode you will hear: - Nadine and Mark share a little bit about their family’s journey with you. - Nadine and Mark will provide advice on how they advocated for themselves when they felt as though their medical provider was not helping them in the ways they needed. - You will hear advice on how to speak up for yourself. - Mark will share with you how he felt after his daughter was born, and provide advice for other dads. - Mark will share how he navigated the NICU journey. - Nadine and Mark share advice for other couples navigating a similar journey. - You will hear about Facebook groups that may be helpful in navigating your own personal experience. - You will get advice on how to navigate through the "comparison trap" that many of us can fall into with our preemies. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

The bond between parents and their NICU Nurse can create friendships for life. Nurses help parents touch and hold their baby for the first time, change their diapers, and take their temperature. They manage parents’ fear and anxiety over having a baby in the NICU and help them feel empowered to take care of their child. Experiencing the NICU can also have a profound impact on a person leading them into a new career or guiding them toward giving back in meaningful ways. Today we are joined by NICU nurses Amanda Jacobus and Sheila Tarr. Amanda has been a registered nurse for over 18 years. She spent the first 5 years of her career working on a neurology unit. However, her career path drastically changed after her daughter, Hope, was born 15 weeks premature in 2005 at Abington Hospital. She wanted to find a way to pay it forward to other NICU families. And, what better way could there be to do that than to work beside the neonatologists & nurses who saved her daughters life. She has spent the last 13 years working as a NICU nurse, first at Abington Hospital & now at Einstein Medical Center Montgomery where she is the head charge nurse. Sheila Tarr was born in Manila, Philippines. She worked at both Retama Manor and McAllen Medical Center in Texas before moving to Morgan Stanley Children's Hospital of NewYork-Presbyterian and then Abington Jefferson Health where she takes care of both babies and families in the NICU. She has a loving Husband Blaise and is blessed with a younger sister, Sandra, with Down Syndrome. Sheila is also an active member of Bugasong Pag-Ulikid Foundation USA. This foundation was founded in 1989 with the help of her parish priest, the late Father Juaquin Dioso. The foundation helps with a variety of medical missions, livelihood and education projects for the church, schools and the poor of the town, Bugasong. On this episode you will hear: - Amanda and Sheila share a little about their journey to becoming NICU nurses, with you, and discuss why they chose this field. - Amanda and Sheila discuss the first things they say to NICU parents. - For many of us - multitasking, anticipating the future, researching information, etc...are all a part of our daily lives. Amanda and Sheila talk about how you, as parents, can stay “in the moment” while spending time with your baby. - With all of the tubes and wires, holding your baby in the NICU is a scary experience. You'll hear about how Amanda and Sheila walk parents, like you, through holding your baby for the first time. - Amanda and Sheila will discuss what you can do when you are struggling with breastfeeding. - Sheila has taken her personal experience as a NICU nurse and expanded her reach to help others in the Philippines. She will share information about the Bugasong Pag-Ulikid Foundation USA and the impact the foundation has made during the pandemic. - Amanda and Sheila discuss the moments that made a significant impacts on them as a NICU nurses. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

The journey to starting a family is different for each of us. This episode's guest is here to share her personal journey with IVF, finally learning she was pregnant, and welcoming a premature baby with a big brother at home. Karen Beck is a former educator and has served as the Program Coordinator for Today is a Good Day. She has been a part of Today is a Good Day’s dedicated team of volunteers for many years and we are grateful for all she contributes to help other families navigate the NICU. Karen knows first-hand the struggles of welcoming a premature baby, balancing home life and NICU life, and the challenges of starting a family. On this episode you will hear: - Karen tells you a little about her personal journey to starting a family. - Karen talks about "chemical pregnancy" and "blight ovums," and explains what those terms mean. - Karen talks about her next experience in the NICU, and will share with you what that journey to pregnancy looks like and what you can expect. - You will hear about what it is like to visit a baby in the NICU while caring for a toddler. - Karen shares how she explained having a new baby brother “here” but not actually “here” at home to her other child. - You will hear about how Karen helped her toddler feel connected to his brother. - Karen shares her most difficult moments during the NICU journey and how she overcame those moments. - Karen shares her advice for you or other families going through a similar situation? Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

We are covering several important topics today including black maternal health, lack of access to healthcare, breastfeeding, the role of a postpartum doula, and more. Camille Barnes is the Director of Diversity, Equity, and Inclusion at the Maternal Wellness Center. Camille is passionate about racial equity and inclusion, particularly as it relates to reproductive justice, and access for all to high-quality birth options and holistic postpartum support. She is a seasoned mother to four boys ranging in age from early elementary to middle school. Camille is a social justice advocate through her podcast “Two Not Too Black Moms” that she co-hosts with Maria Silver Pyanov...a former guest on the Today is a Good Day podcast. Camille is also a certified postpartum doula and breastfeeding counselor who has knowledge of infant care and soothing techniques, early infant development milestones, and breastfeeding initiation. In that work, she became attuned to how the disparities in Black maternal health were so significant which made her passionate about increasing the women of color working in the field to help bring support to moms of color. On this episode you will hear: - The role of a postpartum doula and breastfeeding counselor. - Disparities in black maternal healthcare. - How Camille helps moms of color navigate the healthcare system. - The questions you should ask to be the best advocates for yourself in a healthcare setting. - The lack of access to care and information in low income communities. - How Camille helps families get access to resources. - Breastfeeding, especially for families in the NICU, can be difficult, we talk about how Camille helps families approach breastfeeding. - We also talk about breastfeeding in the Black community, and how that has changed over the years. - If moms are having trouble breastfeeding, you will hear about where you can find additional resources to help you overcome breastfeeding challenges. - You'll hear about Camille's podcast. - You'll hear about Camille's scholarship fund, who is eligible for that fund and where you can find more information. - You'll hear about Camille's group for moms of color and where listeners can join the group. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

Many hospitals have a dedicated social worker on staff to support NICU families. How do you access the social worker? What questions should you ask as a new parent in the NICU? We are speaking on today’s episode with Shannon Davis and Leah Heyel from Nemours/Alfred I. duPont Hospital for Children. Shannon received her Bachelors in Social Work from West Chester University and Masters in Clinical Social Work from Widener University. She also has her License in Clinical Social Work. Shannon has just been accepted through Postpartum Support International to take her Perinatal Mental Health Certification. She began her career working for the Chester County Children, Youth, and Services agency. During that time, she also worked part time at Crozer Chester Medical Center as an on call social worker for Traumas and weekends in Maternity and the NICU. She later joined the team in the Psych Med Surgery Unit. Shannon currently works in the NICU at Nemours. She is excited to continue her education in Perinatal Mood and Anxiety disorders to further provide support for families in the NICU and Advanced Delivery Program (ADP). Leah Heyel is a Licensed Clinical Social Worker for Nemours A.I. duPont Hospital for Children. Since 2018, she has provided support for patients and families in the Neonatal Intensive Care Unit (NICU) and the Advanced Delivery Program (ADP). Leah joined Nemours initially supporting the tracheostomy/ventilator and general pediatric patient populations after receiving her Master of Social Work degree from Delaware State University in 2015. Dedicated to helping NICU & ADP families, Leah has recently focused on expanding her understanding around perinatal mood and anxiety disorders with plans to complete her Perinatal Mental Health Certification later this year. Prior to Nemours, Leah worked six years in the Addiction field as an outpatient Level 1 substance abuse counselor for adults and adolescents. On this episode you will hear: - Shannon and Leah discuss their work and share insights into how social workers can help you. - You'll hear about why the role of a social worker can be confusing for families not knowing how they can help and who can access that help. - We'll discuss what families, like yours, should know about the role of a social worker. - What you should ask a social worker in your hospital. - The most common question families ask social workers, like Shannon and Leah. - You'll hear about how social workers can help families, like yours, fill out paperwork for social security benefits, secondary insurance, etc. - You will find out how often you can speak with a social worker at your hospital. - We discuss some of the resources you, as parents, can have access to through your social worker during your NICU stays. - Many times parents feel at fault for why their baby ended up in the NICU especially if they arrive prematurely, you will hear how social workers help families through those feelings. - You will get Shannon and Leah's biggest pieces of advice for families when meeting with a social worker. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

Every NICU experience is different even when babies are born at the same gestational age. Today we are speaking with the Goldsmith Family who welcomed their NICU Miracles at just 23 weeks and 5 days. They have a powerful story, to share with you, about navigating the ups and downs of the NICU all the way to starting Kindergarten this fall. If you have concerns about how to navigate the NICU and what seeing your NICU miracles start their educational journey with kindergarten looks like, this episode is for you. On this episode you will hear: - The Goldsmiths' journey to starting their family. - How the Goldsmiths decided to transfer their son to a new hospital. - How they managed going between two hospitals while trying to heal and manage life outside of the NICU. - When the Goldsmiths had moments that they felt as though they needed to speak up and how they did that (and what you can take away from that). - Craig Goldsmith shares his journey and perspective as a dad and husband, going through the NICU journey with Jennifer. - Gavin and Declan both experienced surgeries during their extended NICU stays. You will hear how the Goldsmiths got through the surgeries and what their childrens' recoveries looked like. - What it feels like to hear the words “You’re going home.” - What it felt like to go back into the hospital. - What the Goldsmith family’s journey looked like since graduation (from the NICU) to kicking off Kindergarten this year. - How you can manage therapies and the therapy schedule (like the Goldsmiths). - The one piece of advice the Goldsmiths have for other NICU families, like yours, who may be navigating a similar path. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

Before graduating from the NICU, you choose a pediatrician to care for your baby after leaving the hospital. If you are a new parent, this can be an overwhelming task making sure you are asking the right questions and finding the right fit for your family especially after a NICU stay. Today’s guest is here to talk with us about how to find a pediatrician and, most importantly, how to build a strong relationship with your pediatrician. Dr. Andrew Lubell has been in practice as an owner and clinician at Lockman & Lubell Pediatric Associates LLC in Montgomery County for over 20 years. A native of New York, he attended Binghamton University where he graduated with honors and a B.A. in Biology. He then attended The Mount Sinai School of Medicine where he excelled and graduated earning the honor of being inducted into the Alpha Omega Alpha Honor Medical Society. His training then took him to Philadelphia where he completed a Residency in Pediatrics at the Children’s Hospital of Philadelphia. Dr. Lubell has been the Medical Director of the True North Medical Group (TNMG) for the past 3 years. He has been recognized as a “Top Doc” in Montgomery County for many years and listed as a “Top Doc” by Philadelphia Magazine the past 4 years. On this episode you will hear: - Why finding the right pediatrician who focused on preemies is very important. - For anyone looking to find a pediatrician - especially before leaving the NICU - the first step you should take and the questions you should ask. - Whether you should reach out to several pediatric practices. - What you need to know for your first pediatrician visit. - How Dr. Lubell helps families make the transition from the NICU to the pediatric practice. - How Dr. Lubell helps families like yours manage the special needs of their baby. - Why early intervention is important and what you need to know. - The role that specialists may play in the care of your NICU miracle. Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com), and editor David DeLizza. Copyright 2020 to 2022, SoftStix Productions LLC.

The NICU journey is a rollercoaster filled with ups and downs, twists and turns. Managing stress is a challenge and yet so important for families navigating the NICU experience. Having several stress management tools in your back pocket is helpful, not only during your time in the NICU, but for years beyond. On this episode, Teague O’Malley will walk us through several practices to help us as we navigate life’s challenges, especially in the NICU. Teague O’Malley is a meditation teacher and contemplative artist, weaving together evidence-based methodology with his creativity and open heart. Teague is a qualified teacher of the “Mindfulness-Based Stress Reduction” (MBSR) program, through the Center for Mindfulness in Medicine, Healthcare and Society at the University of Massachusetts Medical School, and training at the Penn Program for Mindfulness at the University of Pennsylvania Medical Center. He is also a certified teacher of the “Cultivating Emotional Balance” (CEB) and “The Breathing Class” programs. Teague teaches meditation workshops, courses and retreats in health care, education, corporate, and community settings around the world. To all of our practices for Stress Reduction & Emotional Support, please visit: https://www.todayisagoodday.org/stress-reduction-and-emotional-support-tools On this episode you will hear: todayisagoodday.org Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.

In this episode, we are learning about a new social venture working to improve the well-being of parents and their babies. Babyhood Lab was founded and is headed by Dr. Jessica Gaulton in collaboration with her colleagues at Newborn Special Care Associates. Dr. Gaulton is an Attending Physician in Neonatology and Director of Perinatal Innovation at Abington Hospital-Jefferson Health. Her expertise lies at the intersection of medicine, design, and entrepreneurship. She completed her Fellowship in Neonatology at the Children's Hospital of Philadelphia and Penn Medicine. Dr. Gaulton received her medical degree from the Johns Hopkins School of Medicine and a Master of Public Health in Health Policy and Management from the Harvard School of Public Health. Jessica graduated Summa Cum Laude from Cornell University. The Babyhood Lab project brings together a multidisciplinary group of clinicians, designers, entrepreneurs, and parents who are already designing products and delivering services to improve the postpartum experience to foster innovation from within the healthcare system and create change for families. Personally, I have been asked to serve on the Advisory Board for the Babyhood Lab and am excited to continue supporting families especially those navigating the NICU. On this episode you will hear: Please subscribe to the TODAY is a Good Day Podcast, wherever you enjoy your podcasts, or on our YouTube channel. Please also consider making a donation to Today is a Good Day, at www.todayisagoodday.org, to help support families with a NICU baby. This episode was produced and directed by Tony Lopes, of SoftStix Productions LLC (www.softstixproductions.com), in collaboration with co-producer and director of photography Michael Leary, of One Fifteen Films LLC (www.onefifteenfilms.com) and editor David DeLizza. Copyright 2020 to 2021, SoftStix Productions LLC.