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The Grace, Grief and Grit Podcast
Education Podcasts
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Location:
United States
Description:
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Language:
English
Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis
Duration:00:59:27
THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents
Duration:01:17:50
Looking Back and Looking Foward with Epidermolysis Bullosa | ft. Dr. Peter Marinkovich
Duration:00:59:27
A New Season: Lasting Legacy, Inspiring Impact!
Duration:00:49:40
Kids Grief Support, ft. Child Life Specialist Jessica Correnti
Duration:00:53:42
Savannah Ghost Pirates - EB Awareness Night is COMING!!
Duration:00:11:23
Siblings of EB - The Faces and Hearts of True Support
Duration:00:56:49
Meeting the Heroes Building Therapies for Genetic Diseases
Duration:00:46:14
Perfection of Imperfection | ft. Hodges R. Caldwell, Jr.
Duration:01:16:05
Wind to Fly Higher
Duration:00:24:53
The Journey of Hope and Connection
Duration:00:38:55
The Mom Episode
Duration:00:55:24
The Dad Episode
Duration:00:56:34
Once Upon a Ball with Cindy Brown
Duration:00:31:31
The Day Hallie Grace Met Hallie Grace
Duration:00:42:09
Hallie Grace’s Story: The Journey of Love, Hope, and Resilience
Duration:00:55:34