
The Grace, Grief and Grit Podcast
Education Podcasts
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Location:
United States
Description:
Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.
Language:
English
Countdown to the 4th Annual Hallie Grace Memorial Butterfly Ball for EB
Duration:00:38:36
Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson
Duration:01:06:23
Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity
Duration:00:46:30
Season 3 Kickoff: Sippin' on Grace, Grit, and Community
Duration:00:36:37
Finding Strength in Vulnerability: A Father's Journey Through Grief
Duration:01:02:55
A Night of Stars and Strength: The LA "Rock4EB" Experience
Duration:00:37:40
From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse
Duration:00:38:15
Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday
Duration:00:53:11
Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care
Duration:00:51:45
Navigating Hope: Conversations with EBRP's CEO Michael Hund
Duration:00:42:43
Connections: Capturing the Story with Lyle Dillie
Duration:01:00:07
Goals, Dreams, and the Power of Connection: We had another BALL!
Duration:00:55:19
Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis
Duration:00:59:27
THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents
Duration:01:17:50
Looking Back and Looking Foward with Epidermolysis Bullosa | ft. Dr. Peter Marinkovich
Duration:00:59:27
A New Season: Lasting Legacy, Inspiring Impact!
Duration:00:49:40
Kids Grief Support, ft. Child Life Specialist Jessica Correnti
Duration:00:53:42
Savannah Ghost Pirates - EB Awareness Night is COMING!!
Duration:00:11:23
Siblings of EB - The Faces and Hearts of True Support
Duration:00:56:49
Meeting the Heroes Building Therapies for Genetic Diseases
Duration:00:46:14