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United States

Language:

English

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5164489164


Episodes

Ep. 28: September 17, 2018 - w/ Val Bias and Dawn Rotellini

9/17/2018
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This month on The BloodStream Podcast, the National Hemophilia Foundation’s (NHF) CEO Val Bias and SVP Dawn Rotellini preview NHF’s 70th Annual Bleeding Disorders Conference taking place October 11th-13th in Orlando, Florida. UK Haemophilia Society trustee Clive Smith shares his Ironman story, Natalie leads a discussion on wearables and health outcomes, and Patrick walks through the recent The Atlantic article on hemophilia and gene therapy titled: The Patients Who Don’t Want To Be Cured....

Duration:01:10:22

Ep. 27: August 20, 2018 - w/ Wheels for the World

8/20/2018
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This month on The BloodStream Podcast, Shari Luckey shares her “Living in the Shadows with Mild Hemophilia” story, Natalie presents an article on the things you need to know before purchasing CBD oil, we bring to you updates on the legal dispute between Roche/Genentech, and we hear from participants and organizers of the Wheels For The World Barry Haarde Memorial Bike Ride. All that and more on Episode 27 of The BloodStream Podcast! Exclusive Sponsor: Shire Latest Ask The Expert...

Duration:01:09:23

Ep. 26: July 16, 2018 - w/ Rebecca Haber

7/16/2018
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This month on The BloodStream Podcast, community member Lidia Ruiz shares her “An Unexpected Blessing” story, Natalie presents an article on the Step Therapy bill headed to Rhode Island’s state house, we highlight ASH, ISTH, NHF, and WFH’s collaboration in developing clinical practice guidelines for VWD and expectant mom, Rebecca Haber, shares with us how her pregnancy led to discovering that she has Hemophilia C (Factor XI deficiency) in this month’s Interview Segment. All that and more...

Duration:01:11:52

Ep. 25: June 18, 2018 - w/ Lisa Thibeault

6/18/2018
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This month on BloodStream, we review major takeaways from World Federation of Hemophilia’s 2018 World Congress, Dakota Rosenfelt shares his journey of life with hemophilia, and we speak with Lisa Thibeault, the nurse coordinator from the Southeastern Ontario Regional Inherited Bleeding Disorders Program in Ontario, Canada, about the progress made in the treatment of women with bleeding disorders. All that and more on Episode 25 of The BloodStream Podcast! Exclusive Sponsor: Shire World...

Duration:01:08:09

WFH World Congress - Day 5 Recap

5/24/2018
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Day 5 from WFH's 2018 World Congress is in the books, as is the 2018 Congress itself! What a few days it's been. We spend a few minutes reviewing today and capsuling the conference before saying goodbye from Glasgow! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 WFH's Congress News...

Duration:00:15:02

WFH World Congress - Day 4 Recap

5/23/2018
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Day 4 from WFH's 2018 World Congress is in the books, and The BloodStream Podcast daily recap is ready! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on...

Duration:00:29:38

WFH World Congress - Day 3 Recap

5/22/2018
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Special guest Laurence Woollard from the UK joins The BloodStream Podcast for Day 3 of the World Federation of Hemophilia's World 2018 Congress! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders...

Duration:00:48:32

WFH World Congress - Day 2 Recap

5/21/2018
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During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes:...

Duration:00:25:11

Ep. 24: May 21, 2018 - w/ Jonathan James

5/20/2018
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This month on The BloodStream Podcast, Nabila Husseni from Gujarat, India shares her story of living with Factor V deficiency and championing women’s equality, Natalie presents a recent NBC story on the rise of depression, we discuss Takeda’s acquisition of Shire, and Hope For Hemophilia founder Jonathan James joins us for the Interview Segment. All that and more on Episode 24 of The BloodStream Podcast! Exclusive Sponsor: Shire Latest Ask The Expert Podcast: Episode 14 - Physical...

Duration:01:05:17

WFH World Congress - Day 1 Recap

5/20/2018
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During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia's World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. #WFH2018 Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes:...

Duration:00:16:20

Ep. 23: April 16, 2018 - w/ Bill Patsakos

4/16/2018
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This month on The BloodStream Podcast, Dr. Steven Pipe joins us to discuss Hemlibra, the recently reported patient deaths, and what this means for our community. FDNY Lieutenant, CVS pharmacist, and FEMA volunteer Bill Patsakos joins us to discuss accounting for the bleeding disorders community during disaster relief, and advocate Maryann May shares her #ibleedtoo story. All that and more on Episode 23 of The BloodStream Podcast! Exclusive Sponsor: Shire Like Segment: What Is Floating?...

Duration:01:08:45

Ep. 22: March 19, 2018 - w/ Molly Reeser

3/19/2018
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This month on The BloodStream Podcast, community member Kevin Krivosik shares his journey toward independence, Camp Casey Founder Molly Reeser joins us to share the camp’s mission and her inspiration for starting it, and we take a look a recent Forbes Magazine piece highlighting one of the many challenges in mental health treatment. And using a combination of written statements, audio recordings, and his own original writing, we say goodbye to community leader Barry Haarde. All that and...

Duration:01:00:47

Ep. 21: February 19, 2018 - w/ Michael Hargett

2/19/2018
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This month on The BloodStream Podcast, we discuss how one executive director in China has creatively given hope, dignity and income to her patients, we take you through how to stay fit and healthy while travelling, and we introduce a brand new game here on the BSpod. Plus, Hannah Lutz shares her story of life with Type 3 Von Willebrand Disease and Michael Hargett- the hemophiliac who lost 280 pounds and became the first person with hemophilia to undergo a heart transplant- joins us as...

Duration:01:13:09

Ep. 20: January 15, 2018 - w/ Susan Lynch

1/15/2018
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This month on The BloodStream Podcast, Shire and Roche are locked up in a legal dispute related to Hemlibra, what does this mean and will it impact patients’ ability to receive Hemlibra? We discuss in today’s Comment Segment. A New York Times article examines why the United States spends so much more money on healthcare than any other country in a story presented by Natalie in our Like Segment, and entrepreneur and hemo dad Mark Kenny shares his compelling story and perspective during our...

Duration:01:09:51

Ep. 19: December 18, 2017 - w/ Val Bias

12/18/2017
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This month on The BloodStream Podcast, Hemlibra is FDA approved and the first non-factor replacement therapy to treat people with hemophilia A (and inhibitors) is now on the market, we’ll discuss that along with other major product development takeaways from the American Society of Hematology’s Annual Meeting held earlier this month during our Comment Segment. Natalie will present a story on how new HIV guidelines are revolutionizing patients lives in the Like Segment, and Community Member...

Duration:01:27:35

Ep. 18: November 20, 2017 - w/ Alex Borstein

11/19/2017
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This month on The BloodStream Podcast, we interview actress Alex Borstein who’s best known as the voice of Lois on “Family Guy.” Alex talks about her life as an entertainer, a symptomatic carrier and a hemo mom. In our Like Segment, Natalie introduces us to the Feldenkrais Method and how it’s being used to manage chronic pain. In our Share Segment, New York City Hemophilia Chapter member Nicole Angeles shares her story of living with von Willebrand Disease, and some of the very challenging...

Duration:01:17:27

BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 3: Safety, Vigilance and New Frontiers

10/23/2017
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BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project." Exclusive Sponsor for The Factor...

Duration:00:31:15

Ep. 17: October 16, 2017 - w/ Dan Levy

10/16/2017
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This month on The BloodStream Podcast, we spotlight “Factor Revolution”, BloodStream Media’s new three-part series covering the history of treatment in hemophilia; Natalie takes us through the five things all new moms need in our Like Segment; “Factor Revolution” Producers Ryan Gielen and Seth Kirschner introduce themselves and provide a window into their work in our Share Segment; Patrick highlights recent news related to medical marijuana/cannabis use for pain management; and finally...

Duration:01:22:05

BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 2: The Contamination Crisis

10/9/2017
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BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project." Episode 2: The Contamination...

Duration:00:49:39

BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 1: The Revolution Begins

10/2/2017
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BloodStream Media is proud to present The Factor Revolution. The last sixty years in hemophilia treatment, with over forty interviews from community members, doctors, and advocates. We take a deep look at the history of factor treatment in the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project". Exclusive Sponsor for The Factor Revolution: Shire ISHIM.NET - “Who...

Duration:00:28:15