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United States

Language:

English

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Episodes

Ep. 40: September 15, 2019 - w/ Dr. Katherine High

9/16/2019
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NHF’s 71st Bleeding Disorders Conference (BDC) is just weeks away, the stress of back-to-school season is in full effect, and might Tai Chi be, “An Ancient Remedy for Modern Times” that we all need? Rick Starks says so! Nutrition consultant student Delisa O’Brien and Hong Kong-based singer/songwriter Kashy Keegan join the pod to talk about Sickle Cell Disease (SCD) and Charcot-Marie Tooth Disease (CMT), as September is an awareness month for both, and Spark Therapeutic Co-Founder & President...

Duration:01:57:22

Ep. 39: August 19, 2019 - w/ Dr. Austin Chiang, MD MPH

8/17/2019
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Is gun control a healthcare issue? Why is CBD everywhere? What new assistive device did Patrick buy? We discuss it all, plus, Association for Healthcare Social Media Founder and President Dr. Austin Chiang joins to discuss his mission, Debbie de la Riva’s back to talk about National Suicide Prevention Month, and Mama Sue helps us wind down with her latest streaming recommendations. All that, plus a community share from Meredith Meyers- and so much more- on Episode 39 of The BloodStream...

Duration:01:27:09

Ep. 38: July 15, 2019 - w/ Special Infusion Segment

7/14/2019
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This month on The BloodStream Podcast host Natalie infuses host/husband Patrick for the first time, on mic (and video)! Listen to the discussion around first infusions, infusion anxieties, and more on our Special Infusion Segment. A new Mental Health Resource Guide is the focus of our Moment For Mental Health Segment with Debbia de la Riva; headlines out of ISTH will come during our Comment Segment; “Is Medicare’s position on pain management changing?” is the central question of our Like...

Duration:01:12:34

Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope

6/27/2019
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In Part 3 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young adult’s FAMILY, and what they HOPE for the future of the hemophilia community. This conversation was recorded live on January 17th, 2018 at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick Lynch....

Duration:00:23:52

BloodStream Stories - Hemophilia and Young Adulthood, Part 2 - Limits, Pain, and Substance Abuse

6/27/2019
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In Part 2 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of PAIN MANAGEMENT, and troubling topic of SUBSTANCE ABUSE. This conversation was recorded live on January 17th, 2018 at the Madison Hotel in Morristown, New Jersey and was co-hosted by BloodStream Media’s Natalie and Patrick Lynch. Series...

Duration:00:32:14

BloodStream Stories - Hemophilia and Young Adulthood Series - Part 1: Identity, Disclosure & Transitions

6/27/2019
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BloodStream Stories presents Hemophilia and Young Adulthood, a special three-part podcast. In Part 1, eight young adult members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder; DISCLOSURE in school, professional, and social settings; and TRANSITIONS, such as those from high school to college, from college into the professional world, and from singledom to marriage. This conversation was recorded live on January 17th,...

Duration:00:31:51

Ep. 37: June 17, 2019 - w/ Amanda Bok

6/17/2019
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This month on The BloodStream Podcast, we breakdown “Clotting Factors: Aren’t They Basically All the Same?” from the May issue of the Parent Empowerment Newsletter (PEN), we discuss one physician’s social media crusade to tear down “fake health news,” we listen to Tabitha White’s story of becoming a hemo mom after losing her hemophiliac father to AIDS, we interview European Haemophilia Consortium Chief Executive Officer Amanda Bok, and Debbie de la Riva leads the latest A Moment For Mental...

Duration:01:32:52

Ep. 36: May 20, 2019 - w/ Dr. Galen Cole

5/20/2019
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This month on The BloodStream Podcast we talk to Dr. Galen Cole about Cognitive Behavioral Therapy (CBT) and positive psychology, we hear Jeron Hill’s “My Personal Experience” story of living with hemophilia B, autism, and ADHD, and we discuss child anxiety and transitioning care into adulthood during our Like and Comment segments. Plus, the latest from A Moment For Mental Health and Mama Sue’s Netflix Recs! All that, and more, on Episode 36 of The BloodStream Podcast. Presenting...

Duration:01:33:29

BloodStream Stories - Empowering Women - Part 3: Empowering Women

4/22/2019
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Empowerment isn’t something that appears out of thin air - it’s a culmination, an evolution. Our third and final episode shows how bringing women together and believing their stories leads to empowerment, which these women then spread to their families and communities back home. It illustrates how one well-crafted weekend of education, connection, and fun can shape the next twenty years. Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher:...

Duration:00:21:30

BloodStream Special Episode: World Hemophilia Day - April 17, 2019

4/16/2019
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It's World Hemophilia Day and we're honoring our commitment to raise awareness around the world! Ryan Gielen (Believe Limited, Creative Director/Co-Founder & Bloodstream Media, Co-founder) brings you this special episode of Bloodstream. He sits down with the incredible artists, producers, and educators who craft and grow the projects of Believe Limited and Bloodstream Media including; FREE podcasts, FREE videos, and FREE events. Notice a theme? Everything we build for the bleeding disorders...

Duration:00:23:37

Ep. 35: April 15, 2019 - w/ Dr. Assad Haffar and Dr. Glenn Pierce

4/15/2019
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This month on The BloodStream Podcast we talk to Dr. Assad Haffar and Dr. Glenn Pierce from the World Federation of Hemophilia about World Hemophilia Day, we hear Molly Livingtone’s “Raising Kids with Hemophilia in Israel” story, Debbie de la Riva returns for our “A Moment for Mental Health Segment,” Natalie and Patrick discuss miscarriages and men as well as Canada’s troubled history with Medicare-For-All during the Like and Comment segments, and Mama Sue returns for the latest streaming...

Duration:01:53:03

BloodStream Stories - Empowering Women - Part 2: Believing Women

4/8/2019
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Far too often, women across the medical spectrum aren’t taken seriously by their doctors. This is particularly true within the bleeding and clotting disorders community. In this episode, we hear about the damage that’s done when women aren’t believed - and the powerful outcomes when they are. Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud:...

Duration:00:22:53

BloodStream Stories - Empowering Women - Part 1: Uniting Women

4/1/2019
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In 1999, an HTC outside Houston, TX created a retreat that focused exclusively on women with bleeding and clotting disorders in the Great Plains region. Twenty years later, it’s going stronger than ever. We start our 3-part series by exploring how these women were brought together, and the forces that have allowed this remarkable event to grow and thrive. Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn:...

Duration:00:21:38

Ep. 34: March 18, 2019 - w/ Robert C. Cooper

3/18/2019
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This month on The BloodStream Podcast we discuss the questions to ask if you are considering participating in a clinical trial and how the US is struggling to think about gene therapy and rare disease drug pricing. Jonathan Hill shares his “A Long Road” story, Debbie de la Riva leads us through the first A Moment For Mental Health segment, and writer, producer, and “Unspeakable” creator Robert C. Cooper joins us for the interview. All that and more on Episode 34 of The BloodStream...

Duration:01:39:41

Ep. 33: February 18, 2019 - w/ Katy Wright-Mead

2/18/2019
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This month on The BloodStream Podcast, we discuss “KonMari-ing” your social media timeline and the case for the controversial gene editing technology CRISPR. We hear from entrepreneur Jimi Olgahere on overcoming sickle cell disease with sickle cell disease, and actor Katy Wright-Mead joins BloodStream to discuss the Sundance Film Festival premiere of sometimes, i think about dying, her new film portraying a young woman struggling with her mental health. All that and more on Episode 33 of The...

Duration:01:24:54

Ep. 32: January 21, 2019 - w/ Amy Board

1/21/2019
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This month on The BloodStream Podcast, Clive Smith and the UK Haemophilia Society provide an update on the inquiry into the UK’s Contaminated Blood Scandal, Amy Board joins to discuss her new role with Ask The Expert and Believe Limited, Natalie discusses a recent article on how to “invest” in your health, Patrick recaps a the HemAware story on New York Rangers Coach Dan Quinn, and we introduce a new segment: Mama Sue’s Netflix Recs. All that and more on Episode 32 of The BloodStream...

Duration:01:23:48

Ep. 31: December 17, 2018 - Year in Review

12/17/2018
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This month on The BloodStream Podcast, Natalie brings you a 2018 year in review, highlighting some of BloodStream’s greatest moments from the past year. All that- plus Believe Limited’s creative director Ryan Gielen hosts an interview with several teens who participated in the Breaking Through! Musical Theater Intensive in New York City- and more, on episode 31 of the BloodStream Podcast! Exclusive Sponsor: Shire Latest Ask The Expert Podcast: Latest Powering Through...

Duration:00:41:40

Ep. 30: November 19, 2018 - NEHA FallFest 2018

11/18/2018
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This month on The BloodStream Podcast, Patrick brings you to New England Hemophilia Association’s (NEHA) FallFest to learn about “Current and Emerging Therapies in Hemophilia Care,” and to highlight presentations on the Teen Impact Awards, Stop The Bleeding!, and Bombardier Blood during NEHA’s FallFest. All that- plus a new Share segment from NHF’s Nikole Scappe- and more, on episode 30 of the BloodStream Podcast! Exclusive Sponsor: Shire Latest Ask The Expert Podcast: Ep. 20: Women with...

Duration:01:07:53

Ep. 29: October 22, 2018 - at NHF's 70th Annual Bleeding Disorders Conference

10/22/2018
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This month on The BloodStream Podcast, Natalie records from the National Hemophilia Foundation’s 70th Annual Bleeding Disorders Conference, bringing highlights, small interviews and generally providing the flavor of this year’s annual meeting. In addition to conference coverage, this month we also hear from community member Ben Martin in our Share segment. All that and more on Episode 29 of The BloodStream Podcast! Exclusive Sponsor: Shire Latest Ask The Expert Podcast: Ep. 19: The...

Ep. 28: September 17, 2018 - w/ Val Bias and Dawn Rotellini

9/17/2018
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This month on The BloodStream Podcast, the National Hemophilia Foundation’s (NHF) CEO Val Bias and SVP Dawn Rotellini preview NHF’s 70th Annual Bleeding Disorders Conference taking place October 11th-13th in Orlando, Florida. UK Haemophilia Society trustee Clive Smith shares his Ironman story, Natalie leads a discussion on wearables and health outcomes, and Patrick walks through the recent The Atlantic article on hemophilia and gene therapy titled: The Patients Who Don’t Want To Be Cured....

Duration:01:10:22