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BloodStream

Health & Wellness Podcasts

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

Location:

United States

Description:

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

Language:

English

Contact:

5164489164


Episodes

Von Willebrand Disease finally has some “guidelines” + The Color of Autism’s Camille Proctor

1/15/2021
Patrick and Amy discuss the long-awaited Von Willebrand Disease (vWD) guidelines published in the medical journal, Blood; provide an exciting update on a recent “Believe 19” guest, and speak to Camille Proctor, founder of The Color Of Autism Foundation. Notes: PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite vWD Clinical Guidelines: http://bit.ly/vWDguidelines FLOW podcast: http://bit.ly/FLOWBSM PHILLY Famous podcast: http://bit.ly/PhillyFamousPodcast COLOR of Autism Foundation:...

Duration:00:32:44

Vaccine Q&A, FLOW hosts, a BIG WIN for healthcare, & remembering Max Goddard

1/8/2021
Patrick and Amy review NHF’s FAQs regarding the COVID-19 vaccine’s safety for people with bleeding disorders, discuss recent healthcare legislative victories, and welcome Christie VanHorne and Jessica Richmond, hosts of BloodStream Media’s newest show full of straight talk about extreme bleeding: FLOW. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite FLOW podcast: http://bit.ly/FLOWBSM CHRISTINE VanHorne on LinkedIn: http://bit.ly/CVHonLI JESSICA Richmond on LinkedIn:...

Duration:00:49:54

Diversity and inclusion with Alexa Abreu

1/1/2021
Patrick and Amy kick off the new year with health equity specialist and community member Alexa Abreu to discuss the role diversity and inclusion plays in achieving health equity. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite ALEX on LinkedIn: http://bit.ly/AlexaOnLI SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP LIKE BloodStream on Facebook - bit.ly/BSFB20 WATCH BloodStream on YouTube - bit.ly/BSPYT20

Duration:00:52:37

Dr. Robert Sidonio on vWD, WWBD, and the hemophilia pipeline headed into 2021!

12/25/2020
Patrick and Amy are joined by acclaimed pediatric hematologist and researcher Dr. Robert Sidonio for his take on the state of bleeding disorders as we close out this most unusual year. Happy Holidays! PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite FLOW, a BloodStream show for women - http://bit.ly/BSMFlow DHAMMA (Vipassana) - http://bit.ly/DhammaBSM SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP LIKE BloodStream on Facebook - bit.ly/BSFB20 WATCH BloodStream on...

Duration:00:51:29

State-based advocacy with NHF’s Bill Robie and Nathan Schaefer

12/18/2020
Patrick and Amy are joined by National Hemophilia Foundation’s (NHF) VP of Public Policy Nathan Schaefer and Senior Manager of Government Relations Bill Robie to discuss key differences between state and federal advocacy, unique challenges to state-level advocacy, and how NHF’s State Based Advocacy Coalitions (SBAC) program assists chapters with state advocacy. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite NHF’s State Based Advocacy Coalitions (SBAC) Program: bit.ly/NHFSBAC HERTZ...

Duration:01:14:37

Mind-blowing gene therapy news, exciting emi data, and hemophilia in People Magazine

12/11/2020
Patrick and Amy are joined by hemophilia and sickle cell expert Dr. Michael Callaghan who provides major takeaways from #ASH20. They also discuss actor Amanda Fuller’s disclosing her son’s hemophilia and the Irish Haemophilia Society’s CEO Brian O Mahony disclosing his enrollment in a gene therapy clinical trial. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite AMANDA FULLER’s IG post: bit.ly/AFullerHemB PEOPLE Magazine story: bit.ly/AFullerPeople DIVERSITY & Inclusivity in...

Duration:00:39:28

#ASH20, #GivingTuesday, and a child changing the world

12/4/2020
Patrick and Amy discuss the importance of Giving Tuesday, the significance of #ASH20 (American Society of Hematology’s Annual Meeting), and they speak with a young man named Zachary who recently made an incredible commitment to Save One Life. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite SUPPORT Save One Life: https://bit.ly/S1L2020 S1L SCHOLARSHIP Program - Philippines: https://bit.ly/S1LScholarshipPh WORLD AIDS Day w/ Jeanne White-Ginder:...

Duration:00:39:08

World AIDS Day w/ Jeanne White-Ginder

12/1/2020
Jeanne joins Patrick for a special World AIDS Day interview to discuss the current state of HIV/AIDS, the impact of the Ryan White Care Act 30 years after the bill’s passage, her experience through COVID, and much more! PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP LIKE BloodStream on Facebook - bit.ly/BSFB20 WATCH BloodStream on YouTube - http://bit.ly/BSPYT20

Duration:00:38:58

Happy Thanksgiving! + Philadelphia Youth Basketball CEO Kenny Holdsman

11/27/2020
The BloodStream team shares gratitude, stories, and bizarre moments from Thanksgivings past, then Philadelphia Youth Basketball CEO Kenny Holdsman joins for a Believe 19 interview! PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite SEGMENT SPONSOR: Genentech - bit.ly/BloodlessBattle TWITCH Rivals: bit.ly/2ZXZRTx PHILADELPHIA Youth Basketball: bit.ly/PYBBSP20 SUBSCRIBE to BloodStream on Apple Podcasts - bit.ly/BSPAP LIKE BloodStream on Facebook - bit.ly/BSFB20 WATCH BloodStream...

Duration:00:49:09

Holidays & Vaccines, ACA Enrollment, and NoStressMS Founder Damian Washington

11/20/2020
Natalie joins Patrick and Amy to discuss how coronavirus is impacting holiday plans, the Affordable Care Act’s Open Enrollment period- closing December 15th- and actor Damian Washington joins to tell us about his multiple sclerosis YouTube channel NoStressMS and much more! PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite DAMIAN WASHINGTON’s website: https://bit.ly/DWNoStress ORDER a free BloodFeed! Calendar: https://bit.ly/BloodFeedCalendar NHF’s Insurance Toolkit:...

Duration:00:52:41

The election’s over, so now what!? Plus, saying goodbye to Ziggy

11/13/2020
Policy experts Johanna Gray, a principal lobbyist representing the National Hemophilia Foundation (NHF), and Nathan Schaefer, NHF’s Vice President of Public Policy, join Amy and Patrick to discuss what the election results mean for bleeding disorders advocacy going forward. Plus, we pay tribute to beloved community advocate Donald “Ziggy” Douglas, who passed away suddenly earlier this week. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite LISTEN to BloodStream Journeys -...

Duration:01:07:08

ICER’s Hemophilia A Report, NHF’s Insurance Conference, and Black Women For Wellness

11/6/2020
Patrick and Amy discuss ICER’s recently published Evidence Report on Therapies for Hemophilia A as well as NHF’s Virtual Insurance and Reimbursement Conference. Then Amy interviews Nourbese Flint, the Policy Director for Black Women For Wellness, and we hear from the Assistant Secretary for Health, ADM Brett Giroir. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite ICER’S EVIDENCE REPORT: http://bit.ly/ICERHemA2020 NHF’S INSURANCE CONFERENCE: http://bit.ly/InsurReimburse20 BLACK WOMEN...

Duration:00:55:59

Mischief Night - Halloween special w/ Haunting Season’s Joshua Sterling Bragg

10/30/2020
In this Mischief Night 2020 episode, Patrick and Amy are joined by Haunting Season creator and host Joshua Sterling Bragg to escape the world as we know it for a quick trip into the paranormal and unexplainable! That, plus an interview with a representative of the high school activist group Swab4USA. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite HAUNTING SEASON: http://bit.ly/HSBSP20 SWAB 4 USA: http://bit.ly/Swab4USA SUBSCRIBE to BloodStream on Apple Podcasts -...

Duration:00:42:21

The People Have Spoken (about Copays) and SOBOing for Save One Life!

10/23/2020
Patrick, Amy, and Natalie share some announcements before Kollet Kouliaos, the National Hemophilia Foundation's Senior Director of Payer Relations, joins to discuss some recent and encouraging survey results regarding copays and out-of-pocket costs, then fresh off the Appalachian Trail, teen adventurer William Addison joins to tell us about his 2,200 mile hike benefitting Save One Life! PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite SEGMENT SPONSOR: Genentech -...

Duration:01:09:44

Unite for Bleeding Disorders with NHF’s Elizabeth Molnar

10/16/2020
Patrick and Amy discuss the recently published, “100 Days Agenda: A Patient-First Blueprint” and are then joined by National Hemophilia Foundation’s Elizabeth Molnar to talk about the Unite For Bleeding Disorders walks! PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite 100 Days Agenda: A Patient-First Blueprint: http://bit.ly/100DaysPatientsFirst NHF’s Blue Sky Initiative: http://bit.ly/NHFBlue2020 Unite For Bleeding Disorders: http://bit.ly/UniteBD2020 Casting for Season 2 of The Pain...

Duration:00:41:28

Mental Illness Awareness Week with Debbie de la Riva

10/9/2020
Patrick and Amy discuss social media’s impact on mental health before Mental Health Matters Too founder Debbie de la Riva joins to talk about mental health awareness, the questions she’s most commonly asked, the shifting role of telehealth, and the World Mental Health Day screening of the film Let’s Talk. PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite REGISTER for the Rare Impact Awards - bit.ly/NORDRIA20 RSVP for World Mental Health Day Let’s Talk Screening -...

Duration:00:37:36

NORD’s Lisa Sarfaty, Germantown’s Jim Fenerty, and Woe to the Denver Broncos

10/2/2020
The Rare Impact Awards, hosted by the National Organization for Rare Disorders (NORD), take place on Friday October 9th at 7pmEST and will honor music legend Peter Frampton, Ohio Senator Sherrod Brown, and our very own Patrick James Lynch (amongst others)! NORD’s Director of Strategic Planning and Project Development Lisa Sarfaty joins to discuss the event, then Germantown Academy’s legendary basketball coach Jim Fenerty joins to talk about his four-decade long coaching career, his...

Duration:01:06:39

Self-infusion, RBG, sickle cell, ACA, and concerns about gene therapy

9/25/2020
Self-infuse from anywhere, advocacy wins in Texas, and what the death of Supreme Court Justice Ruth Bader Ginsburg could mean for the future of the Affordable Care Act (ACA) are all topics on today’s episode, plus, an interview with sickle cell and hemophilia expert hematologist Dr. Michael Callaghan, and a reading of a recently published article challenging the scrutiny of gene therapy clinical trials. Presenting Sponsor: Takeda Segment Sponsor: Genentech NHF’s Blue Sky...

Duration:01:23:23

Honoring Roy Ginder, Husband of Jeanne White-Ginder

9/18/2020
Roy Ginder, the husband of notable AIDS and hemophilia advocate Jeanne White-Ginder, passed away early Wednesday morning. We pay tribute to Roy and share moving audio from a 2017 interview he gave to Patrick about the love of his life, Jeanne White. Presenting Sponsor: Takeda Fundraiser to support Jeanne White-Ginder SUBSCRIBE to BloodStream on Apple Podcasts! LIKE BloodStream on Facebook! WATCH BloodStream on YouTube!

Duration:00:34:27

Rare Disease Parenting with Bo Bigelow, 9/11, and Deer in Ohio

9/11/2020
The Disorder Channel and DISORDER: Rare Disease Film Festival co-founder and rare disease parent Bo Bigelow joins BloodStream to discuss a recent article on the parents who are navigating the “wilderness” of rare genetic disease and to preview The Disorder Channel’s work at the upcoming Global Genes Patient (un)Summit! Presenting Sponsor: Takeda The Wilderness of Rare Genetic Disease and the Parents Navigating It The Disorder Channel & Rare Disease Film Festival Global Genes LIVE! A...

Duration:00:52:13