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Connecting ALS

Health & Wellness Podcasts

Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.

Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.

Location:

St. Paul, MN

Description:

Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.

Language:

English

Contact:

6124552558


Episodes

"A Sunny Conversation…"

9/24/2020
Welcome to Connecting ALS. This week we chat with ALS advocate Sunny Brous, who shares how she finds hope and maintains connections during what has been a rollercoaster of a year.

Duration:00:27:16

"Living With ALS When A Natural Disaster Hits…"

9/17/2020
Welcome to Connecting ALS. This week we are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS.

Duration:00:35:08

"Injecting a Dose of Hope and Urgency in the Fight…"

9/10/2020
Welcome to Connecting ALS. This week we continue the discussion around Amylyx Pharmaceutical’s phase 2 clinical trial results of AMX0035, which was shown to slow down progression of ALS in trial participants.

Duration:01:11:37

"Expediting Access to a Promising New ALS Drug…"

9/3/2020
Welcome to Connecting ALS. This week we dig into the latest development out of Amylyx Pharmaceuticals, which recently announced findings of a phase 2 clinical trial of AMX0035, a drug compound shown to be safe and clinically effective at slowing down disease progression.

Duration:02:38:06

"College in 2020 and Resources for Families Facing ALS..."

8/27/2020
Welcome to Connecting ALS. This week we discuss what back-to-school means in 2020 for families impacted by ALS.

Duration:00:29:08

"Hearing Directly From the ALS Community Through ALS Focus…"

8/20/2020
Welcome to Connecting ALS. This week we turn our focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight.

Duration:01:18:55

"Looking at the Link Between Exposure to Algal Blooms and ALS…"

8/13/2020
Welcome to Connecting ALS. This week we talk to Dr. Elijah Stommel, a neurologist at Dartmouth-Hitchcock Health and a professor of neurology at the Geisel School of Medicine at Dartmouth, about the connection between exposure to blue-green algae toxins and the development of ALS.

Duration:01:04:31

"Perseverance in the Search for Treatments…"

8/6/2020
Welcome to Connecting ALS. This week we talk to Dr. Lauren Laboissonniere, a neuroscientist at the Ranum Lab at the University of Florida and a recipient of The ALS Association’s Milton Safenowitz Postdoctoral Fellowship.

Duration:00:10:17

"Living in the Present to Enhance Wellness…"

7/30/2020
Welcome to Connecting ALS. This week we get ready for National Wellness Month by checking in with Dr. Ellen Langer, a social psychologist at Harvard known as the mother of mindfulness.

Duration:00:45:49

"A Conversation with Lorri Carey…."

7/16/2020
Welcome to Connecting ALS. This week we talk to Lorri Carey, a veteran leader in the fight against ALS and host of the podcast “I’m Dying to Tell You.”

Duration:00:22:53

"Intimacy and ALS..."

7/9/2020
Welcome to Connecting ALS. In this episode, we discuss intimacy in relationships where ALS is present with Dr. Alair Altiero of Penn State’s Hershey Medical Center.

Duration:00:14:51

"Identifying Red Flags For Off-Label Drug Use..."

7/2/2020
Welcome to Connecting ALS. This week, we talk to Dr. Richard Bedlack, director of the Duke ALS Clinic and head of ALSUntangled, about a recent paper he co-authored laying out common red-flags patients need to know about when considering off-label treatments.

Duration:00:39:56

"Checking on the Global Fight Against ALS…"

6/25/2020
Welcome to Connecting ALS. This week, we commemorate Global ALS/MND Awareness Day with members of the International Alliance of ALS/MND Associations and get an update on the fight against ALS motor neurone diseases around the world.

Duration:00:48:46

"Remembering Lou Gehrig on His Birthday and Celebrating Father’s Day With ALS…"

6/18/2020
Welcome to Connecting ALS. This week we talk to Larry Falivena about his 2019 tour of Major League Baseball stadiums to raise awareness of ALS, his thoughts on Lou Gehrig’s birthday and why the Iron Horse continues to inspire people today, and how Father’s Day has changed since Larry’s 2017 diagnosis with ALS.

Duration:00:19:04

"Partnering With BrainStorm and I AM ALS in the Search for Biomarkers…"

6/11/2020
Welcome to Connecting ALS. This week we learn more about The ALS Association’s partnership with I AM ALS to provide a $500,000 grant to BrainStorm to study biomarkers during BrainStorm’s ongoing phase 3 clinical trial of NurOwn.

Duration:00:46:09

"Managing COVID-19 and Social Distancing While Living With ALS..."

5/28/2020
Welcome to Connecting ALS. This week we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.

Duration:01:36:50

"The Future of ALS Clinical Trials…"

5/21/2020
Welcome to Connecting ALS. On this episode we talk to Dr. Merit Cudkowicz about the impact of COVID-19 on conducting clinical trials.

Duration:00:58:07

"Helping Kids Affected by ALS..."

5/14/2020
Welcome to Connecting ALS. This week we look at the devastating impact ALS has on kids and the ways we can help.

Duration:00:30:56

"The Impact of ALS on Families, Mother’s Day, and Creating New Traditions…"

5/7/2020
Welcome to Connecting ALS. For our Mother's Day episode we talk with one family about how they're creating new traditions while living with ALS.

Duration:00:13:17

"Helping Students Overcome the Devastating Financial Impact of ALS…"

4/30/2020
Welcome to Connecting ALS. This week we talk about the Jane Calmes ALS Scholarship Fund, which is currently accepting applications from people affected by ALS who wish to pursue college degrees or vocational certificates.

Duration:01:00:47