Health Hats, the Podcast

Effective solutions & ethical guardrails for data-driven decision-making, care, & treatment require patient involvement in policy & technology development. Summary Patient Insights on Health Access, Technology, and Public Policy Data should inform decision-making for a triad of patients, caregivers, and clinician partners. Some patients desire data sovereignty - the ability to access, use, and share their health data. However, managing personal health data can be overwhelming for individuals. Transparency about data usage and privacy is crucial for building trust. There are concerns about potential stigma and discrimination from data misuse. Including patients in policy and technology development can lead to more effective solutions. Ethical guardrails are needed, particularly for data aggregation and monetization by companies. There's a mix of optimism and pessimism about the future of health data management. Collaboration with patients in development processes can increase the likelihood of successful outcomes. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introLevel set – Get Your Patient On90% Similar, 100% HumanInspiration from Data: Weak Link in our HealthRelationship Triad for Decision-Making: Patient, Caregiver, Clinician PartnerUnintended Consequences – Crystal Ball GazingData Sovereignty – Self-GovernanceFederated Model of Data (Confederacy of Confederacies)Call to actionTrust Communities – Relaxed ControlTransparency – Knowing What You Don’t KnowAnonymous Data. Really?Guardrails – Safety and PrivacyStigma and DiscriminationPessimism or Optimism About the FutureReflectionData and Decision-MakingData Sovereignty and ManagementEthical ConsiderationsPolicy and Technology DevelopmentOutlookPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via email YouTube channel DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk Leon van Leeuwen: article-grade transcript editing Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to Kistein Monkhouse, Claire Sachs, Christine Von Raesfeld, Geri Lynn Baumblatt, Aaron Carroll, Erin Holve, Adam Thompson, Kathleen Noonan, Andrea Downing Links and references The Panel Kistein Monkhouse, the moderator, founded Patient Orators. My peeps are Christine Von Raesfeld, founder of People with Empathy and with the Light Collective, and Claire Sachs, founder of the Patient Advocate Chronicles and TPAC Consulting. A federated data model for patient data PCORnet is a prime example of a federated data system. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8596061/ Episode Proem Kistein Monkhouse invited me to participate in a 30-minute panel at September’s Academy Health’s Datapalooza conference titled ‘Patient Insights on Health Access, Technology, and Public Policy.’ I thought, ‘OMG, this thesis-worthy topic can’t be addressed in 30 minutes.’ However, the opportunity begged to be embraced, especially with the citizen expert panel members: Kistein Monkhouse, the moderator, founded Patient Orators. My peeps are Christine Von Raesfeld, founder of People with Empathy and with the Light Collective, and Claire Sachs, founder of the Patient Advocate Chronicles and TPAC Consulting.

Philip Shadle, CEO, Aimee Copeland Foundation opens outdoor accessibility for disabled individuals with all-terrain wheelchairs. My endorphins flow. Yeehaw! Summary This podcast episode features an interview with Philip Shadle, CEO of the Aimee Copeland Foundation, discussing the transformative impact of all-terrain wheelchairs on accessibility and outdoor experiences for individuals with disabilities. The podcast underscores the importance of accessibility and inclusion in outdoor activities, celebrating the collaborative efforts of organizations, individuals, and communities to enhance the lives of people with disabilities. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introOff-road wheelchair travelIntroducing Philip ShadleTravel in Costa RicaFoundation Business ModelAll-Terrain Wheelchair Models Call to actionTraining for Off-Road TravelBirthing the FoundationExpanding the Foundation OfferingsGratefulContestReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via email YouTube channel DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk Leon van Leeuwen: article-grade transcript editing Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to Ann Boland, Bruce Kimmel, Olivia Zivney, Linda DeRosa, and all my many helpers Links and references Camino de Santiago pilgrimages, Costa Rica Aimee Copeland Foundation Action Track Chair in different sizes. Episode Proem According to the CDC A disability is any condition of the body or mind (impairment) that makes it more difficult for the person with the condition to do certain activities (activity limitation) and interact with the world around them (participation restrictions). Clearly, it's not a legal definition. I would add self-image, societal perceptions, and environment as components of that definition. Some days, I feel more disabled than other days, and some situations enhance or reduce my abilities. Ability/Disability is a continuum that changes over time and situation. Travel accentuates my abilities - puts them in high relief - for me. Travel requires close examination of my abilities so I can figure out how to manage minute-to-minute - constant decision-making. Travel allows me to stretch my capabilities. It’s exhilarating and eventually exhausting. Periodically, I share my travel experiences. Remember the two Camino de Santiago pilgrimages, one in 2019 and the other 2022? In 2023 we explored Costa Rica. We’re planning a music trip to Cuba in four months. Today, I describe our trip to Cloudland Canyon State Park in northwest Georgia. After a zip-lining accident in 2012, when she was 24, Aimee Copeland was hospitalized and diagnosed with a flesh-eating, bacterial infection. They had to amputate both of her hands, right foot, and entire left leg. Before the infection, she was extremely active, rock climbing, backpacking, and trail running. In response to her frustration with wheelchair life, she created the Aimee Copeland Foundation, which raises funds to create opportunities for connecting with the self, the community, and the earth through the provision of a fleet of all-terrain wheelchairs for free use by people with disabilities within select Georgia state parks. In this podcast episode,

Aaron Carroll, CEO of Academy Health, discusses his journey to improve health systems & decision making through community engagement & repetitive communication. Summary Aaron Carroll, CEO of Academy Health, shares his journey, from his frustrations with the healthcare system as a pediatrician, and the role of mentorship and science communication in his career. He delves into his efforts to make complex health issues understandable to diverse audiences through various media, his role in improving health care decision making and systems, involving communities in research, and building trust through consistent and repetitive science communication. Dr. Carroll also touches on the importance of implementation science and the challenges of making research findings effective in real-world settings. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introIntroducing Aaron CarrollHealth is FragileWriting a Prescription Isn’t EnoughFix itPhase one: Independent InvestigatorPhase Next: Mentor, Communicator, ResponderAcademy HealthCommunicating Science to the Public Where They AreThe Practice of Communicating for ImpactEngaging Lived ExperiencePatients Included at Academy Health Call to actionKey PointsLived Experience at the Table – Your Lived ExperienceResearch SkepticismLearning When the Hypothesis isn’t ProvenImplementation ScienceEfficacy and EffectivenessTrust and ListeningRepetition, Repetition, RepetitionReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via email YouTube channel DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk Leon van Leeuwen: article-grade transcript editing Oscar van Leeuwen: video editing Julia Higgins: Digital marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to Seth Godin, Nakela Cook, Ann Boland, Ellen Schultz, Steve Heatherington Links and references Aaron Carrol: The Incidental Economist, Healthcare Triage, Robert Wood Johnson Clinical Scholar, New York Times, Indiana University's COVID response. Academy Health: Academyhealth.org/Datapalooza, Communicating for Impact, community-led research grants, Health Data Leadership Institute, Dissemination Implementation Science Conference patient-included criteria implementation science Episode Proem Danny and Ann, July 3, 2024 Together for more than fifty years, my wife and I still practice communication - practice as in repetition, experimentation, and humility with two steps forward and one step back (or one forward and two back). No wonder anyone participating in healthcare continually struggles with the puzzle of communication. Just today, I texted a pharmacy about access to a critical medication with an expired prescription, tried to explain my newly diagnosed diabetes and diet choices on FaceTime with a friend, and drafted a letter about lessons learned about measurement for team members to share with our leaders. I know some master communicators: Seth Godin, Nakela Cook, my wife, Ellen Schultz, Steve Heatherington, and my guest today, Dr. Aaron Carroll, President and CEO of Academy Health. They each excel in different ways under different circumstances. I must take care to keep listening to their content and not float above and marvel at their artistry and skill. DALL·E 2024-07-24 09.19.39 - A scene depicting various master communicators, each in their element.

Family and friends dispersed Mighty Casey (Mary) Quinlan’s ashes in the Gulfstream, reflecting on her life and sharing outrageous and mundane pics and stories. Summary On May 24, 2024, Mighty Casey Quinlan's ashes were spread in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode captures the layers of that experience, featuring an introduction conversation between Jan Oldenburg and Health Hats, recorded on June 27. The episode includes self-introductions of the dispersal party, a historical photo tour of Casey's life, and a reflection from Hank Burchard. The package of audiovisual pieces including a 17-minute video with introductions and a three-minute photo tour by Casey’s sister, CeCe can be found in the show notes. Coming soon, Casey's website, mightycasey.com, will include all her podcasts and the contents of six VHS and one Beta tape recorded over the years. Check our progress. These show notes DO NOT include images. Images are key to this episode. Click here to view the printable newsletter with images. Contents Table of Contents Toggle CreditsEpisodeProemPodcast introThere’s Something Happening HereHow I Met CaseyCall to actionPhoto Tour with Historian, CeCe CaseyJan and Danny sign offReflection from HankPodcast OutroCreative Commons Licensing Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via email YouTube channel DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk Leon van Leeuwen: article-grade transcript editing Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to Jan Oldenburg, CeCe Casey, Michael Casey, Myrna Isaacs, Piper Dankworth, Laurie Rodgers Stukel, Hank Burchard, Dave DeBronkhart, Amy Price Links and references Casey's Website Health Hats Podcasts with and about Casey Credits Music behind photos scraped from YoYo Ma on Fresh Air Images of Casey throught taken by family and friends over the years Episode This transcript DOES NOT include images. Images are key to this episode. Click here to view the printable newsletter with images. Proem Health Hats: On May 24th, 2024, we spread Casey’s ashes in the Gulfstream of the Atlantic Ocean near Stuart, Florida. This episode layers several of the many pieces of that experience. I stopped here because I’d had enough. Time to publish! You’ll find an intro conversation between Jan Oldenburg and me recorded on June 27th, followed by self-introductions of the dispersal party, recorded by our guide, Karen Hallett. Next, we’ll take a historical photo tour of Casey’s life, piloted by Casey’s sister, CeCe. I only included about fifteen of the almost one hundred photos, as the resulting three-minute clip took almost twenty hours to produce. We’ll end with me reading Hank Burchard’s post-event reflection, and then Jan and I will wrap it up. The written and audio include everything except the videos, of course. I will create a 17-minute video with the introductions and a three-minute one with the photo tour. I’m resurrecting Casey’s website to include all her podcasts and the contents of six VHS and one Beta tape Casey recorded over the years. The URL will be Casey’s https://mightycasey.com. Try it to see if we’ve got it ready. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little.

Shana Davidson shares her day-to-day Long Covid challenges using the "spoon theory," a metaphor for the limited energy reserves people with chronic illness face Summary The episode explores the fascination with prolific enigmatic conditions, which are common yet complex and often misunderstood illnesses like fibromyalgia, chronic fatigue syndrome, lupus, endometriosis, and long covid. These conditions highlight systemic issues in healthcare, such as various biases and the complexities of corporate medicine and research. Shana Davidson, having personally experienced misdiagnosis and the challenges of navigating these conditions, emphasizes the intersectional barriers faced by women, people of color, and those with mental and spiritual health challenges. Shana shares her journey with long covid, discussing the day-to-day management challenges using the "spoon theory," a metaphor for the limited energy reserves people with chronic illness face. Shana's experience underscores the difficulties in obtaining a diagnosis and appropriate care, reflecting broader issues in the medical system's handling of chronic conditions. Throughout, the podcast touches on themes of resilience, the need for advocacy, and the struggle for recognition and adequate research in treating long covid and similar conditions. The conversation also highlights the importance of compassion and understanding within the medical community and society towards those living with chronic illnesses. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introLearning health is fragileSpoons, SpooniesPace Yourself versus SpoonsBudgeting spoonsRecovery mode variation in spoonsContracting CovidOpening upYikes, Long Covid?Tired of Pursuing AnswersLong Covid CenterAsynchronous communicationFinally Diagnosed Call to actionRebel HealthSocial media help – 2-edged swordUseful helpSome compassion, pleaseWhat’s in a Name?Chronic Disease Management – Diagnosis, Symptoms, Care, TreatmentInvesting in Long CovidReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via email YouTube channel DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk Leon van Leeuwen: article-grade transcript editing Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Podcast episodes on YouTube from Podcast. Inspired by and Grateful to Jeff Horner, Yaneer Bar Yam, Melissa Reynolds Links and references Episode Proem Ants: Prolific and enigmatic. Image by Open Art AI in style of Paul Barson Prolific enigmatic conditions fascinate me. Prolific (many) is the opposite of rare (few), so not a rare condition. Enigmatic means mysterious riddle. Examples of enigmatic conditions include fibromyalgia, chronic fatigue syndrome, lupus, endometriosis, and long Covid. Enigmatic conditions put a spotlight on isms – racism, sexism, ageism, ablism, paternalism. They reveal a near-universal discomfort with uncertainty. And when you pull back the curtain to try to search or solve, you find the weight of corporate medicine, the research industrial complex, and vested-interest policy making. I know the frustration of years of misdiagnosis. I was misdiagnosed with cardiac disease when I had multiple sclerosis. My privilege insulates me from many cultural barriers and humiliation experienced by women, people of color, and those with mental and spiritual health challenges arising...

Turn-around: Grandson interviews Health Hats about his Zelig-like career path and choices: unpredictable, privileged, mentored, supported, and spiritually healthy. Summary Health Hats is interviewed by his editor, grandson Leon, delving into a discussion about his diverse and impactful career. The episode starts with Leon interviewing Health Hats about the origins and motivations behind the podcast, tracing back to a serendipitous naming and a road trip that solidified the podcast's visual identity. Health Hats shares his journey from opting out of a higher-paying job that required him to cut his long hair to embracing a path in healthcare as a psychiatric aide, which led him to nursing school. The story also touches on being a male nurse in the 70s, transitioning from direct care to significant hospital and quality management roles. Leon and Health Hats discuss the significant impact of personal decisions on career paths, the unpredictability of life, and the profound influence of one's birth and circumstances. Health Hats reflects on his efforts to improve healthcare systems, advocating for better staff and patient conditions and participatory health. The episode explores Health Hats' professional life, his philosophy on work-life balance, his role as a change agent, and his commitment to continuous learning and improvement. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Contents Table of Contents Toggle EpisodeProemPodcast introBirthing Health HatsNursing school – what’s hair got to do with it?Wanted a lifeFirst male public health nurse in Western MassWe don’t hire men in nursing hereRetiring in our thirties as back-to-the-land hippiesCouldn’t manage an emergency at homeTwelve-bed hospitalWest Virginia, a Third World stateAdvanced Cardiac Life Support Call to actionVolunteering for the Emergency SquadFrom direct care to managementChange agent: staffing and visiting hoursRemote Learning for a Master’s DegreeMoving onStudent of organizational healthOutspoken, driven change agentBest Boss EverThe will to change – leadershipNo, lay me offRetiringProfessional life, more than the jobCan’t keep a jobReflectionPodcast Outro Please comment and ask questions: at the comment section at the bottom of the show notes on LinkedIn via email YouTube channel DM on Instagram, Twitter, TikTok to @healthhats Production Team Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk Leon van Leeuwen: article-grade transcript editing Oscar van Leeuwen: video editing Julia Higgins: Digit marketing therapy Steve Heatherington: Help Desk and podcast production counseling Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe's Blues for Proem and Reflection and Bill Evan's Time Remembered for on-mic clips. Five-minute episodes on YouTube. Inspired by and Grateful to Jim Bulger and Bob Doherty (deceased), Eric Pinaud, Jane Sarasohn-Kahn, Luc Pelletier, John Marks, Ann Boland, Lynn Hubbard Links and references Are medication error rates useful as a comparative measures of organizational performance? was published in The Joint Commission Journal on Quality Improvements in 1994 receiving the David K Stumpf Award for Excellence in Publication from the National Association for Healthcare Quality. The article was referenced in the book, Error Reduction in Healthcare by Patrice L. Spath in 2000. 1977 article about Danny van Leeuwen, the first male public health nurse in W Mass It sounds like a Zelig effect (if you know Woody Allen) or a Forrest Gump effect (if you know Tom Hanks) Jane Sarasohn Kahn, a blogging health economist West Virginia The University of Minnesota ISP Program Episode Proem As you may know, my production team includes Grandson Leon,

Kathleen Noonan’s quest to build bridges between communities & researchers with long-term relationships & respect for experience & expertise, just like juries. Summary Kathleen Noonan, the CEO, catalyzed the transformation of the Camden Coalition into a national platform for complex care. She focused on capacity building, bridging healthcare research with community organizations, and emphasizing the power of diverse partnerships. Noonan is a staunch advocate for community-driven healthcare, pushing institutions to incorporate local insights and foster long-term relationships that shape better research and policy outcomes. Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below. Two five-minute clips on YouTube. Contents Table of Contents Toggle EpisodeProemPodcast introThe fragility of healthJourney to healthcare advocacyInsights from the legal and corporate worldsTransition to Children’s Policy and HealthcareFirst encounter with Camden CoalitionThe impact of diversity at conferencesMeeting of the minds over community – research interfacesAn outsider co-directing a Research CenterImplementation, a different animal altogetherWho asks the research questions?Partnering in the communityEarning the right to speakFull of myself Call to actionPunching above our weight classFrom a local to a national organizationComplex care centerCommunity Nursing in 1976 – Walking Inner City route.Capacity to partnerLong-term relationships, lean into expertise.MediationMessy and localCommunity participation in research – capacity buildingStart with the research questions askedLong-term relationships informed consumers and researchersConsider juries as an effective, diverse set of mindsExpertise versus credentialsReflectionPodcast OutroPlease comment and ask questions: Episode Proem In 2020, early in the COVID pandemic, I joined with several colleagues asking the questions: How can the research industry help laypeople and communities find evidence-based guidance on how to live safely? Guidance that answers their questions when needed? Guidance that feels familiar and helpful. Guidance they trust. How can we be inclusive of our communities' awesome diversity? See the podcast episode here. We spent several years exploring those questions, informing my passion for community-research partnerships. I highlight such partnerships as often as possible in my podcast. One of my primary advocacy goals is to promote research that answers questions the public and communities ask. My guest today, Kathleen Noonan, is CEO of the Camden Coalition, a multidisciplinary, community-based nonprofit working to improve care for people with complex health and social needs in Camden, across New Jersey, and nationwide. They develop and test care management models and redesign systems in partnership with consumers, community members, health systems, community-based organizations, government agencies, payers, and more to achieve person-centered, equitable care. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. The fragility of health Health Hats: Kathleen, thank you so much for joining us. I've been looking forward to this. When did you first realize health was fragile? Kathleen Noonan: That's a great question. There are so many different answers to that. At some point as a kid, you realize that your parents aren't just older than you, but older adults don't stay around. When I was a kid, there was a girl on my block who passed away from pneumonia. It was an early developmental moment. But then, when did you realize that health is fragile because the healthcare system i...

Exploring the journey of coffee from farm to cup with expert Jen Stone, delving into flavors, cupping, & the ethics of coffee production. Music & Health, too Full 36-min episode on YouTube Two five-minute clips on YouTube. Click here to view or download the printable newsletter Contents Table of Contents Toggle EpisodeProemPodcast introIntroducing Jennifer StoneHealth is FragileProfound Knowledge of Coffee or CaffeineCaffeine Delivery SystemCoffee CupperCoffee Flavor Notes Call to actionCoffee Flavor Notes in My CuppaDifferent tastes and circumstancesFermentationTransparencySocial Justice in Coffee MakingMy PaletteSlow down and tasteYou’ve ruined me a bitEquipmentReflectionPodcast OutroPlease comment and ask questions: Episode Proem When I take two minutes to bitch about the annoyances of having Multiple Sclerosis, I insist that I can’t be repetitive. I must whine and complain with new words. How many words do we have for describing symptoms of pain? Not enough. Sharp, dull, achy, daily, itchy radiating, nauseating, disabling. Greenland has 46 words for snow and no wonder. Profound knowledge about something leads to more words being needed and created. The better we can describe ourselves to ourselves, the deeper we understand our nuances. More accurate and specific descriptions lead to better communication of our symptoms, moods, and circumstances with our health team. Then, we can make informed decisions, plan, and adjust together. Believe it or not, this rant about words leads us to today’s episode on coffee. Welcome to my new hat – coffee snob. Our guest is Jennifer Stone, my colleague in my Thursday morning mastermind group for solo entrepreneurs. Jen is a Sommelier of Coffee and the host of the Coffee Explorer Podcast, a Quality Lecturer, and a Licensed Q Grader by the Coffee Quality Institute. She is internationally recognized as an Expert Coffee Taster and Judge for the Cup of Excellence. She has expertise in finding, sourcing, and sharing remarkable coffees from quality global producers. Over her career, she’s opened multiple cafes and created several direct-to-consumer and business-to-business specialty coffee brands. She provided expertise to others in these areas and is always excited to share the best ways to brew coffee with the market. Jen Stone has opened my eyes in unexpected ways. Drink up! Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Introducing Jennifer Stone Health Hats: Jen, you've opened many senses for me. We met over the business. We are working together on our business; you know how that's growing and managing. But I've learned from you about coffee, not just coffee. It's about the sense of taste because it's not just, you know, while I'm learning to appreciate fine coffee. I was concentrating more on what was happening in my mouth. I'm finding it with food, chocolate, and alcohol, and just more awareness. Health is Fragile Health Hats: When did you first realize health was fragile? Jennifer Stone: This is such an interesting question. I love that you asked about the word health as fragile and not life as fragile. When a loved one passes, or you have a near-death experience, that speaks about life, but health, specifically, is a little vaguer. About a year and a half ago, I could say I loved to run. I'm not fast, but I love to jog and exercise. One of my knee joints began to wear down. I have some arthritis in one of my knees, and it felt like this bone-on-bone thing. It was disabling. After a few days of it not going away, no matter how much ibuprofen I took, I realized I needed my knee to strengthen. I don't want to focus on my knee.

Susannah Fox’s "Rebel Health" on the power of Seekers, Networkers, Solvers, & Champions in driving patient-led innovation & the communal fight against disease. Full 36-min episode on YouTube Two five-minute clips on YouTube. Click here to view or download the printable newsletter Contents Table of Contents Toggle EpisodeProemPodcast introRealizing the Fragility of HealthTransition from Research to ActivismThe Role of Perception in HealthcareA System Versus Community View of Healthcare InnovationHacking Healthcare and StartupsMotivation to Solve Call to actionSeekersNetworkersSolversChampionsNetworker, Seeker, Solver, ChampionNetworker, Champion, SolverPersisting BossLeading by Helping the HelpersActors on the Stage of InnovationEmergence of ChampionsServing CommunitiesRevolutionary Energy – Regina Holliday and Casey QuinlanDraft Counseling – Working from the InsideChampions Stoke FiresRebels in Health – You Are Not AloneC-Suite and Government Meet RebelsStep into Your PowerThe Enemy is Disease​ReflectionPodcast Outro Episode Proem Rebel Health by Susannah Fox As a student of advocacy and activism, I draw warmth from the heat of others’ passion, marvel at the diversity of origin stories, and burst with curiosity about what might come next. How did they start on this journey, and why do they persist? I’ve been a nurse for 50 years. One of the best things about nursing for me was the license to be nosy – for a brief time - a visit or a stay. This nosiness melds nicely as a podcaster for an episode. I often ask guests, “When did you realize health was fragile?” Another student of advocacy and activism is our guest, Susannah Fox. Susannah is a health and technology strategist. Her book, Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, has just been published by MIT Press. She is a former Chief Technology Officer for the U.S. Department of Health and Human Services, where she led an open data and innovation lab. She has served as the entrepreneur-in-residence at the Robert Wood Johnson Foundation, and she directed the health portfolio at the Pew Research Center’s Internet Project. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health Hats: Susannah Fox, how are you? It's so good to see you. I've been looking forward to this. You've been my idol for a long time. I first learned about you when you were at Pew Research Center, and I thought your perspective and research were so helpful. Realizing the Fragility of Health When did you first realize health was fragile? Susannah Fox: Wow. The first time I realized that health was fragile was when my dad was a flatliner on the table at the hospital after his heart attack. He was in his fifties and someone who, to anyone who looked at him, would've thought he was a health nut. He went four miles three times a week. He was fit. He loved to hike. He was a mountain climber. And yet he had genetically high cholesterol and a hidden, blocked artery. So, they luckily were able to revive him, and he had open heart surgery and lived long enough to then get kidney cancer in his sixties and melanoma in his seventies. My dad was my model for lifelong health and perseverance. I love this question because it explains how you learned that health is fragile. But then also what? What happened when you learned that health was fragile? For me, it was seeing my dad persevere to regain his health each time he had a setback. Health Hats: That's admirable. Transition from Research to Activism Health Hats: You had these experiences and are now in activism. How did that path happen? How did you get where you are now?

Celebrating my audience. Describing my multimedia journey, stats, ongoing advocacy, future episodes and a musical bonus featuring the host on the Bari Sax. Show Notes at the end. Watch on YouTube None today. Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle Watch on YouTubeRead NewsletterEpisodeProemPodcast introManaging my bandwidthStill learning in my sandbox.AdvocacyPodcast OutroEl QuitrinEpisode Notes Episode Proem Welcome to this bonus episode of Health Hats, the Podcast for subscribers I appreciate. Life is good while I play in the sandbox of audio-visual communication about best health. One of my Reckoning colleagues (we review each other’s podcasts), Craig Constantine, describes his audience in each episode so he remains focused. I look at the bobbleheads on my windowsill: Scarecrow, Rosie, the Riveter, and Scully from the X-files. My audience is people who help people on their journey toward best health through caregiving, technology, measurement, spiritual strength, and planning. You get the idea. For an added treat. At the end of this post, I'll include Lechuga Fresca Latin band playing El Quitrin by Bebo Valdez with me on the Bari Sax. Link here if you want to listen now. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Managing my bandwidth I’m finding video creation and production so exciting that I spent 100 hours on the last episode, #214, with Fred Trotter. I can’t sustain that pace. I realized I had spent so much time on a full-length video with images, title slides, and the like that I neglected the meat and potatoes – the blog/newsletter and audio podcast. I also need more time to play my horn and improve my music production skills. So, after spending all that time, I published the full audio podcast (63 minutes), two five-minute and four one-minute videos, and a 30-second teaser/trailer. I think I’ll put the five-minute ones on YouTube as discrete episodes as they stand alone. You can find them here: Video 1: Naughty Secret about Chart Reviews https://youtu.be/yLRilkr1LJI and Video 2: ChatGPT and health coverage https://youtu.be/pk4wYl0_U9s. Still learning in my sandbox. I remain committed to multimedia because you are all so different, and it’s a hoot. I’m continuing my understanding and skill at short-form videos for social media, especially Instagram. My team of Julia, Kayla, Leon, and Oscar cheer me on. I love that I can still learn. If stats interest you - I don’t know what they mean - for some reason, the downloads for the audio podcast have increased from an average of 5-10 a day for years to 27 a day for the past 30 days (or an increased from 80 to 800 an episode). 90+% of those downloads are consistently listened to for at least 3/4 of the episode length over the years (that includes people who automatically download. See what I mean about not being sure what stats mean). For those who subscribe to the newsletter version, with almost 50% opened, and readers spend more than five minutes reading when they do open. Kayla tells me I should be proud of that. Social media stats indicate that people scroll past and increasingly stop but don’t stick around for over a second. It is early days, and I’m refining my process. YouTube shorts require clips to be less than 60 seconds, but I’m not sure that’s my target so I may go for two-minute clips on Instagram and TikTok. Again, this is a totally fun sandbox. Advocacy Rebel Health by Susannah Fox Advocacy-wise, my attention is shifting to Long Covid,

Lisa Stewart interviews Health Hats to discuss family, music, & listening to younger activists taking over navigation & reform of healthcare. Watch on YouTube Download the printable newsletter here Contents Table of Contents Toggle EpisodeProemPodcast introWhy reflect? Accept and look forward.Bitch in bursts, not dribblesCatastrophizing, pathological optimistMusic, podcasting, grandsonsListening to younger activistsConnection through video, Instagram, YouTube shortsImpact Call to actionProgressing in musicProgressive condition and musicTravel with abilities in Costa RicaTravel with abilities in the USWords of wisdomReflection on AdvantagePodcast OutroPlease comment and ask questions:Production TeamCreditsInspired by and Grateful toLinks and referencesRelated episodes from Health HatsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem Boland van Leeuwen family Happy Holidays, family, friends, and colleagues. May the 2024 New Year infuse wonder, community, and rejuvenation. I reunited with my friend, Lisa Stewart, at the PCORI Annual Meeting a few months ago. Lisa suggested that she interview me for the new year. When I met Lisa, she was Senior Engagement Officer and Health Equity Advisor at PCORI (the Patient-Centered Outcomes Research Institute). Currently, Lisa is the Principal at Torchlight Engagement Advisors & Leadership Coaching. Her joy lives in connecting ideas, people, and groups for organizations serious about improving the health outcomes of over-burdened communities through health equity strategy implementation and integration, cross-sector partnerships, impact investing, and capacity-building. We ponder privilege, listening, bitching, travel, family, and music. Hang on. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Why reflect? Accept and look forward. Health Hats: Hi, Lisa Stewart. Lovely to see you, Lisa Stewart: Wow. It's lovely to be seen and be here with you. We had this wild and crazy idea that it was time for Danny to be interviewed, right? We're going to turn the tables on Danny. DALL·E 2023-12-16 - a color photo of a person looking in a mirror and seeing a black and white younger version of herself What better time of year as we march into 2024 and start thinking about the life we want to lead and what we want to do differently? I’m thrilled to be in conversation with you anytime, Danny. Anything you want to say? Health Hats: I have mixed feelings about reflection. On my podcast, I start with a proem, a preface. Why do I have the conversation? Why this guest, why this topic, whatever. A reflection at the end, done after production - the interview, the producing, the editing - were there pearls here? Is there one more story to tell? But the reflection is essential even though I'm not really a backward-looking guy. Lisa Stewart: Tell me more. Bitch in bursts, not dribbles Health Hats: Life has ups and downs. It is just the way it is. You can't have an up without a down where everything is flat - no ups and downs. Sounds boring to me. I have a chronic illness, and I'm pathologically optimistic, right? That's my style. Other pathologically optimistic people have taught me that you need to take two minutes periodically and just vent. And do the life sucks. Woe is me stuff. But mostly, I don't want to look back and think woe is me. So that's what I mean by not looking back. Accept what is and what are we going to do now. Lisa Stewart: Very practical. Do you have a ritual around your two-minute releases? DALL·E 2023-12-16 - biracial couple laughing, one in a wheelchair looking at their watch Health Hats: It's a good question.

Pathways & switches of pain affect well-being & productivity. Amy Baxter, MD. explores recent insights about managing pain and learning coping mechanisms. Watch on YouTube Download the printable newsletter here Contents Table of Contents Toggle EpisodeProemPodcast introLearning from lived experienceOldest and Best Survival SystemPain as opportunityThe thalamus conducts the switchboardPain: Your brain’s opinion of your safetyWhat’s going on? Communicating to physiciansSickle cell, self-knowledge, mu receptorsNeurotransmitters: on or offBrain FertilizerExercise as WD-40 loosening lubricantAcceptance and Commitment TherapyBuilding Resilience to Trauma and Pain Call to actionHolocaust PTSD, painMelissa versus FibromyalgiaHelpers: Child Life SpecialistsBrain’s survival systemPhlebotomists and clownsPain wuss or high toleranceFear and controlHope in the right frontal cortexGuiding someone to manage their painPrimary care in Managing PainOverride and telehealthCultural humilitySoul points and a bucket of painI am not my painLove myself, pain includedReflectionPodcast OutroPlease comment and ask questions:Production TeamCreditsInspired by and Grateful toLinks and referencesRelated episodes from Health HatsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem Buzzy, Relief from Needle Pain by Amy Baxter How crazy is it that pain is one of my favorite topics? Not so crazy as pain may be life’s most common symptom. One study pegs the annual cost of pain (as a primary diagnosis) to be between $261 to $300 billion. Yikes. No one I’d rather talk with about pain than Amy Baxter. Amy and I correspond regularly about life and pain. We last recorded a conversation about pain in July 2019, Pain: The Solution - Many Solutions. Our knowledge about the pathways and switches of the brain’s survival system has increased dramatically since 2019. Let’s jump right in. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Learning from lived experience Health Hats: You've learned much about pain since we last talked. Tell us about that. Amy Baxter: I broke my neck in 2015 and then got intubated for a while, and then I had a ripped rotator cuff that I ignored until it got horrific. So, I feel grateful that I've had the experience to cope with my own acute and chronic pain, mostly chronic. It's nothing like I imagine having a genetic issue or having an inflammatory ongoing issue, and particularly something like covid or fibromyalgia or an autoimmune system situation where it's ongoing and systemic. Nonetheless, I've had that experience, which has been valuable. I also have been working with the National Institutes of Mental Health, Helping to End Addiction Long-Term Initiative, bridging that place between pain and opioid use because if we didn't have the issues of post-surgical pain and acute pain that we treated with opioids, we wouldn't have an opioid problem. I've been busy. Health Hats: Goodness, where should we start? Amy Baxter: Let's start with the stuff I put in the TED Talk because I spent a lot of time trying to encapsulate what I'd learned so people could use and benefit from it, change society and how we deal with healthcare in this company or country—Freudian slip. Oldest and Best Survival System Amy Baxter: Physicians are not taught about pain in medical school. We don't know what it is. We don't understand how to treat it. We don't think it's our job because we're supposed to figure out what caused the pain and fix that or inflict pain to diagnose it. But most people go to the doctor for pain. So that was something I hadn't appreciated. What we have learned about pain in the last 20 years through fu...

My son, Mike, died 21 years ago at age 26. Wasn't born with a tattoo telling him how long he had to live. Best spiritual health of his life. Left me a sign. Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle Read NewsletterContentsEpisodeProem 2023Proem 2020Open Hearts 2018Love myself 2002He met a girl 2018Birthday wishes for the old guy 2002Spiritual health 2018Lifetime warranty 2018Not personalizing death 2018Leave me a sign 2018Reflection 2020Podcast OutroComment and ask questionsCreditsLinksRelated podcasts and blogsCreative Commons LicensingCC BY-NC-SADisclaimer Episode Proem 2023 I resurrect this episode to celebrate Mike and thank you, my readers, listeners, and watchers. It's hard to believe that 21 years have passed since Mike died. He would have been 46. We would have been proud of him, and he proud of us. "Danny helped me love myself. I had to love myself to have a good relationship with him." Still, the most glorious thing anyone has ever said about me. Let’s celebrate loving ourselves and at least one more. Mike, I feel you. Proem 2020 I wasn’t born with a tattoo on my ass telling me how long I have to live. Welcome to the second anniversary of Health Hats, the Podcast, episode number 99. On November 15th, 2018, the first episode honored my son, Mike Funk, who died on November 18th, 2002, eighteen years ago, age 26, of metastatic melanoma. Mike, a wise poet, found his best spiritual health in the last year of his life. Hence, the most memorable sentence in my life. I wasn’t born with a tattoo on my ass telling me how long I have to live. I’m grateful to have known Mike, my son, our brother, our friend. I resurrect this episode to celebrate Mike and celebrate this fantastic medium of sound and storytelling for advocacy and connection. Podcasting enriches my life and my work. I use podcasting to explore and organize my mind's chaos, experiences, and feelings. I connect with people I admire for brief intimacies. I’m thankful for my podcasting compatriots. We have met weekly and biweekly for two years to support, critique, and challenge each other as artists and technicians. You know who you are. I’m grateful to my readers, listeners, sponsor, Abridge, and web/social media coach, Kayla Nelson. I miss my mom, Ruth van Leeuwen, my first and greatest blog critic, and follower. She would have tried to learn podcasting technology if she could have found a 15-year-old from her church to teach her how to use a podcast player. She died around Thanksgiving in 2014. Gratefully, here you go, episode one and ninety-nine. Happy Thanksgiving. Open Hearts 2018 Health Hats: In this session, I'll share some tape of an interview with Mike a few months before he died. Bob Doherty conducted that interview and some thoughts and stories from me. One day, Mike and I were sitting at the kitchen table, talking about dying and superpowers. And Mike thought that he and I had the same superpower. We both accept what is. Not the ‘life sucks, what’re you gonna do’ variety of acceptance, but the ‘yup, here is impending death, how can we live our best lives’ variety. ‘Yup, he died young. Young death happens a lot. You open your heart, and tragedy walks right in. What's the alternative, closed heart? Not for me. So, let me set the stage for you. This recording happened on July 17th, 2002, at my 50th birthday party. We had the party in the Potato Barn in Schoharie County, New York. When you hear some of the audio, you'll hear a lot of noise. I'm able to filter some of it out, but not all of it. So here we are at my 50th birthday party. Love myself 2002 Bob Doherty was interviewing Michael Funk. I'm sure you'll be able to tell who is who. Michael Funk: Yeah. I meant to just shoot questions, and we'll just rap. Bob Doherty: All right.

Personal growth living with a chronic illness, sickle cell, the importance of open communication, building a supportive community, & advocating for oneself. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. Download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introFour more years, a motherYou mean I won’t get sickle cell?No lying in motherhoodHarder on myselfTreat us differentlyWhere do they fit in the world? Call to actionMoving on and building communityMuslim communityHealthcare CommunityTrust my teamEgo-centered, patient-centeredSpeaking truth to powerMakeup for the Emergency RoomIntentional whyYou can’t read my mind?I’m not your caregiver. I’m your partner.End-of-life. It’s for real.Live below your means, cut out the noiseReflectionPodcast OutroPlease comment and ask questionsProduction TeamCreditsInspired by and Grateful toLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem I’m delighted to reconnect virtually with my dear friend, Fatima. We last recorded several conversations, two with her mother, Esosa, in 2019 as part of the series on people with complex conditions transitioning from pediatric to adult medical care. The titles included Living a Happy Full Life, Good Listeners, Good Conclusions, and I’m Not Drug-Seeking. I’m in Pain. Becoming friends with Fatima has been one of the delights of my last decade. I especially value sharing our diverse experiences, finding many common cords (chords), leading to ongoing separate growth and development. From Fatima, I’ve dared to proudly introduce myself as a 2-legged cisgender old white man of privilege. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Four more years, a mother When we had the conversations in 2019, you were a mom, but it wasn't about you being a mom. Now, you've been a mom for four more years, dealing with sickle cell and being part of the family unit. Your mom said it's not just the person with the diagnosis; the whole family must manage. What are your thoughts about that now? You and your kids are getting older. Your son's graduating from preschool. I can't believe it. Anyway, what are your thoughts about that? Fatima Muhammed-Ighile: She states that sickle cell is a family issue. These last few years, I've understood that more profoundly. My kids are now five and six. They ask questions, and there are times when they can now comprehend how my restrictions, based on when I feel sickle cell pain, affect their lives. So that's required me to have discussions with them that, at times, I wish I could have delayed. Health Hats: If I remember correctly, your daughter probably has the most challenging questions. You mean I won’t get sickle cell? Image from https://www.kold.com/2021/01/28/federal-committee-recommends-more-research-care-patients-with-sickle-cell/ Fatima Muhammed-Ighile: It was a lazy Sunday afternoon,

Day starts with angst, leading to screen-free day, reservoir walk, visit to farm stand, reading real book. Revived with renewed sense of gratitude & well-being. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube None today. Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle Watch on YouTubeRead NewsletterContentsEpisodeProemPodcast introScreen-free dayWalking a mile around the ResFarm stand Call to actionBack homeDay’s endReflectionPodcast OutroEpisode NotesProduction TeamOther CreditsDisclaimerRelated podcastsCreative Commons Licensing Episode Proem JoJo and Danny selfie Good morning. I'm sitting on my porch with my dog, Jojo, who's now coming up to sit on my lap. The sun is shining. We live on a busy street, so you'll hear many of those noises. I didn't sleep that well last night. I had more angst than I've had in a long time. And my angst was about, oh, I'm doing so much, oh goodness, what is that, a cardinal, that I'm doing so much, I'm so busy, I'm trying so many new things, why can't I settle, do I have ADHD, just worry, worry, worry, worry. I haven't had this kind of worry in a long time, not since I've been working or... Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Screen-free day I finally got some sleep, woke up, and decided that everything I was doing was fun, that I was my master, and that I would have a screen-free day. So... It's already been a little bit of a challenge. I had to text my sister. She wanted to have dinner tonight. I guess that was just a second, and I listened to music on my phone, but I don't think that counts. My wife, the dog, and I will take a walk. I'm going to read an actual book instead of a Kindle. So, I'll check in as the day goes on and let you know how it's going. Walking a mile around the Res Arlington Reservoir image by Danny Hear that sound? That's the sound of the water going out of the Arlington Reservoir. The Arlington Reservoir is the secondary water source for where we Image of Danny and JoJo by Danny live in case our primary water source goes bad. I love that we have this. We're walking around it. It's about not quite a mile. See how I do. Arlington Reservoir image by Danny. Okay, I'm about three-quarters of the way around the reservation. It's really low. I wonder why because we've had a lot of rain. I'm still plugging away, going kind of slow. We've seen some bird watchers who identified some yellow bottom warblers, and then I saw a woodpecker on my own, and of course, there's a ton of squirrels, which the dog sees. There are a lot of dogs. So far, I've been okay. I think I will be thoroughly exhausted when we get back to the car, but we're three-quarters of the way there. So that's good. It's a good day. It's a good day to be able to walk that far. The leaves are beginning to change. But not too much. Hello. Okay. I see a gate here. It's open. I was thinking. I don't know if I could go around the gate. There's a beach path, but it looks narrow. What a beautiful day. It's so sunny. God! It's supposed to be that eclipse, but I'm not here, so I won't see it. But since I'm not doing screen time today, I have to wait till tomorrow to go on YouTube and see it. Anyway... Ooh, I'm fading. I can just feel it. Oh, my goodness. I'm going to have to sit at the next place to sit. Unless I'm, I don't think I can see our car, so I guess I can keep walking. Farm stand We stopped at a farm stand to see what good stuff we could find. I'm roaming around the farm store.

Newsletter subscribers: Apologies. My Mailchimp feed broke down, and I didn't notice until yesterday. You've missed 10 episodes!! I will repost an episode every other day until we're caught up. I'm so sorry! Dr Herndon, former Medicaid CMO: challenges faced to improve mental health care for emerging adults. Better support systems for their transition to independence Subscribers About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Proem.. 2 Podcast intro. 3 Meet Dr. Mike Herndon. 3 Health is Fragile. 3 Mental Illness in family practice. 3 Readiness to manage mental illness in practice. 4 State Medicaid Director 5 Levers of power 6 Aligning incentives 6 Minor success, at best 7 A word from our sponsor, Abridge. 8 Call to action. 8 Family Advocacy. 9 Not easy being an emerging adult 10 Reflection. 11 Podcast Outro. 11 Episode Proem According to the Commonwealth Fund, in 2016, spending in the US on behavioral healthcare was almost $160 billion, with 58 percent of all behavioral health spending being paid for by Medicare and Medicaid. According to SAMHSA, The Substance Abuse and Mental Health Services Administration, Medicaid is the largest payer in the United States for behavioral health services. Medicaid accounted for 26 percent of all behavioral health spending in 2009. Behavioral health is a term for mental health and substance use disorder conditions to differentiate from physical health. As a clinician, I seldom met a person with chronic physical health issues who didn’t also have behavioral health issues. I don’t know how meaningful statistics are, except to say a lot of people have behavioral health diagnoses in their records. It costs them, their families, and communities a fortune, and government health insurance pays a significant proportion of those direct costs. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Meet Dr. Mike Herndon Health Hats: I invited my friend and colleague, Dr. Mike Herndon, recently retired Chief Medical Officer for the Oklahoma Healthcare Authority, Medicaid, to chat with us about Emerging Adults with Mental Illness. Mike, thank you so much for joining me. Mike Herndon: You bet, Danny. Happy to be here. Health Hats: Thank you. My friend, Dr. Mike Herndon, and I have done quite a bit together over the years, mainly through PCORI, the Patient-Centered Outcomes Research Institute. We sat on an advisory panel together, then you were appointed to the PCORI Board of Governors, and I came on the board a few years later. You were my Board orientation buddy and helped me navigate and reduce the shock of the experience. I appreciate it. Let's just jump right in. Mike, when did you first realize that health was fragile? Health is Fragile Mike Herndon: That's an easy answer for me. I grew up in rural Oklahoma. In the summer between my sixth and seventh-grade years, I was 12 years old,

Immersion into cultural humility needs curiosity, addresses power dynamics, embraces failure, meditates on self-critique, & fosters respectful relationships. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. Download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introCultural competenceCultural sensitivityHealthcare, a product not delivered aloneNot the same person foreverCuriosity in not knowingReading the room, getting it wrongSelf-reflection and self-critiqueNot interacting with a statueRedress the power imbalanceCall to actionWhat about emerging adults?Person-centered approach to cultural identityTeenagers and cultural humility: ListenRelationship dyads and triadsCultural humility for the clinicianHumility in the relationship, power dynamicProviders, hang out on social media feeds where your patients hang outReflectionPodcast OutroProduction TeamCreditsInspired by and Grateful toLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem Image created on DALL.E Something is missing. I’m not yet ready to conclude this series on emerging adults with mental illness. In the next and last episode, I’ll dive for pearls in the fifteen episodes published over the past ten months. What’s nagging at me? Each guest spoke from the culture they knew and the cultures in which they received or offered treatment and service. I need an episode about how people can approach, be curious about, and be open to the cultures they experience. Is this cultural competence or sensitivity or what? I sought experts working with a kaleidoscope of cultures—first, Jamila Xible, a previous guest and community health worker with Cambridge Health Alliance. Jamila blows my socks off whenever Photo taken by Thyla Jane PhD on UnSplash I speak with her. Next, my friend and previous guest, Kiame Mahaniah, referred me to Catherine Smail, Ph.D., a psychologist at the Lynn Community Health Center. Cat is a clinician therapist and the Associate Director of Training for Behavioral Health. Erika Malik at the Innovation and Value Initiative referred me to Theresa Nguyen, Ph.D., who has a social work background at Mental Health America. Theresa primarily does research and runs their screening program of youth coming onto the internet to solve problems for the first time. Hang on. Here we go. I learned a ton. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Cultural competence Health Hats: Let’s discuss cultural competence, sensitivity, and humility. How do cultural humility, sensitivity, and competence come into the team sport of best health? We’ll dwell here briefly, hearing all three guests speak in depth. Catherine Smail: Cultural competence came about in the eighties, a first attempt to start grappling in a new way with the disparate health outcomes that providers saw in their immigrant populations.

Danny & Oscar muse about tension between thumbnails & descriptions, superconductors & the environment, health hats origin, life & bad habits, like snarkiness. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube None today. Check back later Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodePodcast introProemTitles, ThumbnailsDescriptionsClick-throughWho opens, downloadsSuperconductors, trains, speedEnvironmental impactEnvironmental sustainabilityHow does it benefit people?Why do you enjoy hats?PlugLife, the Universe, and EverythingSnarkinessCall to actionReflectionPodcast OutroEpisode NotesProduction TeamOther CreditsDisclaimerRelated podcastsCreative Commons Licensing Episode Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Proem Welcome to this third bonus episode. We’re busy producing the next Emerging Adults with Mental Illness episode about Cultural Humility. It’s taking longer than expected because we’re combining three 30–40-minute dynamite interviews into one episode, and my team has new school semester obligations. So, Oscar and I chatted, sitting on his couch. I asked him to ask me anything, and he did. No video today. We might put one up in the future. What a hoot. Here goes. Health Hats: Oscar first asked me about how people find my material, whether via the web, podcast platforms, or YouTube. We talked about titles, thumbnails, descriptions, click-through rates. Titles, Thumbnails Health Hats: Titles are hard. Oscar: Titles? In what way are titles hard? Health Hats: For example, in my series on Emerging Adults with Mental Illness, I have 15 episodes or so. I have a few words in the title and then the number in the Emerging Adults with Mental Illness series. The unique thing is those few words. I did that because I wanted people to know it's part of a series. But Emerging Adults with Mental Illness has so many characters that I'm trying to keep it to 60 characters. Okay. Then, it doesn't leave that many characters for something to be unique. Oscar: So, then what if you put the emerging adults with mental illness, and you put it in the thumbnail. You put those like words, like text, in the thumbnail. Descriptions Health Hats: Or in the description. Oscar: When a viewer looks at the video, they'll see the, maybe, the thumbnail for a brief second, they'll see the title, and then they'll, it'll probably like autoplay. They won't see the description until they click on it, and if you want to know, if you wanted them to know that it's part of a series, then you could do it in the thumbnail. Of course, that could mess up your captivating thumbnail. Health Hats: That's a lot of words for a thumbnail. It is hard. So, I try to pay attention to the title and the headings of the description. There's a tension between being descriptive of what's in the section or catchy. Oscar: Okay. Interesting,

Rodney Elliott discusses the PATIENTS Program, a community-research partnership for health equity. The podcast explores authenticity, engagement, & growth. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodeProemPodcast introHealth is fragile: sports injury.Health is fragile: caregiverThe table setter for the PATIENTS Program through the Bridge podcastHenrietta LacksRelationship between academics and the communityListening first wherever we canInternal marketingPlugPeer into the future – a yearGenuine, authentic, transparent, humbleNext play mentalityPodcasting communitiesInternReflection Podcast OutroProduction TeamOther CreditsLinks and referencesDisclaimerRelated podcastsCreative Commons Licensing Episode Proem I specialize in patient/ caregiver/ clinician/ community partnerships and the intersection between research, technology, and the health journey. This sentence describes the nut of what Health Hats offers. The key word is partnerships. My antennae quiver when I sense a mature, evolving community-research partnership. So, I readily agreed when my friends and colleagues, Janice Tufte and Sneha Dave, invited me to attend the SHining the SpOtlight Wide (SHOW) Conference. The PATIENTS Program sponsored the SHOW Conference. The PATIENTS Program envisions a world in which patients and stakeholders are heard, inspired, and empowered to co-develop patient-centered outcomes research (PCOR). The PATIENTS Program is an interdisciplinary research team of community partners and researchers housed at the University of Maryland School of Pharmacy that works to change the way we think about research by creating a path for health equity in West Baltimore. Our guest, Rodney Elliott, and his production partner, Eric Kettering, reached out to me after the virtual conference. They host a podcast, The Bridge: Your Health Your Voice, at the PATIENTS Program. We decided to interview each other for our respective podcasts. Here’s the link to Rodney and Eric’s version. Stay tuned for mine. Same raw footage, very different output. Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. Health is fragile: sports injury. Health Hats: When did you first realize health was fragile? Rodney Elliott: I realized health was fragile at two distinct times. Back to that part when I said I was playing basketball overseas in Europe, I had a significant injury for one year in Italy. I was playing, and it was the start of the game. It was a jump ball. I jumped the ball to start the game. A referee didn't move out of the way like they usually do. And I came down on his foot and fractured my ankle. I was out for the rest of the season. It was playoff time, just horrible. I rehabbed all summer, started that next year, and still had issues, so much so that I had surgery the following year. Up until that point, a sprained finger,

Journey in adlibbed speaking, video editing, business growth strategies, & the ups/downs of personal life, including music & health challenges. Bobbleheads, too About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read Newsletter The same content as the podcast, but not a verbatim transcript. Could be a book chapter with images. download the printable transcript here Contents Table of Contents Toggle About the ShowWatch on YouTubeRead NewsletterContentsEpisodePodcast introOn-micSeeking consultationMastermind communitiesBeehiveMusic, of courseDouble visionEpisode NotesProduction TeamOther CreditsDisclaimerSponsored by AbridgeLinksBusiness PlanRelated podcastsCreative Commons Licensing Episode Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot about very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. On-mic Welcome to this second bonus episode for Health Hats, the Podcast subscribers and patrons. These on-mic bonus episodes reflect on my writing, recording, and producing adventures. On-mic means just me extemporaneously. On-mic is challenging for me as I prefer to write and read a script, but then it looks like I’m reading. I’ve gotten anti-glare glasses, so my glasses don’t reflect. I’m trying out a new feature today with this bonus episode where the app rejiggers my eyes, so it looks like I’m looking at the camera. How does it look? Seeking consultation Lately, I have focused on improving my video editing skills, like transitions between scenes, use of images when I don’t have or don’t want to use video, and settling on the fewest possible video editing apps. A couple of months ago, I used six apps, Zoom (to record the call), Descript (for transcription), Shotcut and DaVinci Resolve (for video editing), and Audacity and Auphonic (for audio editing). Steve Heatherington, of The Alpaca Tribe Podcast fame, counsels me on efficient audio and video editing workflow. Last episode, I used three, Descript, Audacity, and Auphonic. Progress. I just engaged Julia Higgins, a freelance marketing professional, to help me integrate my business plan, website, and use of social media. I’ll put a copy of my business in the show notes. I’ve never really cared about how many followers I have, but now I want to grow my paid subscribers and patrons to build my production team. Also, my wife retired, so I’d like the podcast to be more self-supporting. Reviewing my mission, vision, and audience periodically helps me stay fresh, engaged, and relevant. I can’t overstate the joy of working with my grandsons on this podcast. One coaches me in video editing; the other takes the first pass at editing audio transcripts into newsletters. We have several years of mutual warm criticism that greases the process considerably. Mastermind communities I still participate in a weekly Sunday call with other podcasters. We’ve Zoomed since 2018 as a team at Seth Godin and Alex DePalma’s second Podcasting course. Steve Heatherington teaches that course now. I host a couple of mastermind groups. Reckoning with various podcasts with different subjects (Alpacas, Hansel, and Gretel fairytale, secondary education, environmental educator,