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"Heart to Heart with Anna" is the only radio show devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.

"Heart to Heart with Anna" is the only radio show devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.
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"Heart to Heart with Anna" is the only radio show devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.






Gastrointestinal Issues and Feeding Tubes in the CHD Community (Remastered)

According to Corience: An Independent European Platform on Congenital Heart Defects, "As many as 40–60% of children with congenital heart defects are undernourished." https://www.facebook.com/HearttoHeartwithAnna/ Healthy babies double their weight in 6 months; however, children with congenital heart defects put on weight more slowly. Their growth is also affected by the heart defect. Why do children with congenital heart disease not grow as other children do? The answer is because the...


Getting to Know Keith Flynn: A Heart Transplant Hopeful!

Keith Flynn was born in 1975 and shortly after birth, he was diagnosed with Ventricular Septal Defect, Double Inlet Left Ventricle, Pulmonary Atresia, and Hypoplastic Right Ventricle. He had two Blalock-Taussig shunts at age 6 months and 5 years, and a modified Fontan procedure when he was 15. Despite experiencing atrial arrhythmias in early adulthood, Keith received limited cardiac care in his 20s and early 30s. In his 30s, Keith started experiencing syncopal (or fainting) episodes, and...


Texas Heart Mom and Daniel’s Lion Heart Founder – Staci Geiger!

Texas Heart Mom, Staci Geiger, has experienced the trauma of handing her son over to surgeons far too many times. This experience left her grateful for the amazing care her son received and feeling blessed for his resilience and fortitude but it also left her wondering how people without the support she had could possibly go through the same journey she went through with her son's medical problems. A mother, teacher and friend in the heart community, Staci decided to start a nonprofit...


Care, Hope, Discover 2019 Conference: A Congenital Heart Defect Conference

In this episode of Heart to Heart with Anna, returning Guest, Mary Kay Klein talks with Anna about an upcoming conference for the congenital heart defect community. Care, Hope, Discover 2019: A Congenital Heart Defect Conference will occur on October 26, 2019, in Waltham, Massachusetts at the Hilton Garden Inn in Waltham (near Boston). This one-day educational conference is for CHD patients, family, friends, and caregivers. There will be an amazing group of speakers, medical providers and...


Raising Awareness of Ivemark Syndrome

If you've ever wondered what Ivemark Syndrome is, you need to listen to this program! Ivemark Syndrome is a very rare constellation of birth defects which typically include malformations of the heart. Julia Mayfield is and adult born with a rare genetic condition called Ivemark Syndrome. According to the National Organization for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in...


When a Heart Warrior Is Living in Heart Failure

Aubyn Baker-Riley is an adult born in 1963 with a bicuspid aortic valve and coarctation of the aorta. She had open-heart surgery at 7 years of age to widen the coarctation and ablations in 2005, 2016 and 2018. She is currently in heart failure. Although Aubyn is only in her 50s, it's unusual for someone like her to have made it to adulthood. Many people born in the 1960s, and even in the next decade, succumbed to their heart defects before reaching adulthood. What has Aubyn's path been...


5th Annual Adult Congenital Heart Symposium

Dr. C. Huie Lin is the Director of the Adult Congenital Heart Program at Houston Methodist Hospital. Dr. Lin earned his Ph.D. and M.D. from the University of Virginia. His residency was done at Beth Israel Deaconess Medical Center in Boston and he completed his fellowship work in Adult Congenital - Adult Interventional Cardiology at Washington University-Barnes-Jewish Hospital. Dr. C. Huie Lin specializes in the care of adults with congenital heart defects. He is certified in the care of...


When You're Married to a Heart Warrior

How is life different for a couple when the wife has a congenital heart defect? This week's episode features Megan and Matthew Tones. Megan was born with multiple, complex congenital heart defects which have required treatment since infancy. Tune in to hear how she and Matthew met, when he found out that Megan had a heart defect, and their philosophy of life and living with a chronic illness. Please take a moment to follow us on your preferred social media platforms: iTunes:...


Living with a Bi-Directional Glenn Heart

Most people today (2019) with a single ventricle heart typically have one of two courses of treatment for their heart condition: 1) a series of surgeries culminating with the Fontan Procedure or 2) a heart transplant. That is not the case with our Guest in this episode. Born in 1970, returning Guest Laura Ryan, talks about what her life has been like growing up with a single ventricle heart palliated in a rather unusual way -- with a Potts shunt, a Waterston shunt and a Bi-Directional Glenn...


Congenital Heart Defect Awareness at Podcast Movement 2019

Anna Jaworski, the Host of "Heart to Heart with Anna" attended Podcast Movement 2019 -- a conference, especially for podcasters. While at the conference, Anna met a number of people who had been touched by congenital heart defects, a fact she became aware of after she met new people and talked about the different podcasts each person made. This spawned an idea in Anna's mind -- to actually record people's stories about how congenital heart defects has impacted their lives thanks to the...


Behind the Scenes with Hearts Unite the Globe

This is a special episode of Heart to Heart with Anna that was recorded at Podcast Movement 2019 in Orlando, Florida. Buzzsprout set up a studio and invited its members to record a show at the conference. Three Hearts Unite the Globe (HUG) Board Members were attending the conference -- Guests: Laura Redfern and Frank Jaworski and Host: Anna Jaworski. Listen as the three Board Members talk about what HUG means to them, where HUG has been and where the Board Members believe it's headed, why...


Interwoven Lives and Congenital Heart Defects

Brandon Lane Phillips, M.D. is a very special doctor -- he's a pediatric cardiologist who was also born with a severe congenital heart defect -- tetralogy of Fallot. In this episode of "Heart to Heart with Anna," Brandon talks to Anna about the people who have come in and out of his life and who have helped to shape him into the person he is today. He shares his medical journey with Anna, as well as his educational struggles and how he was able to overcome his learning disability to...


Travels of a Heart Warrior!

Megan Tones is a woman who was born with multiple congenital heart defects and who has undergone multiple medical procedures. In this episode of Heart to Heart with Anna, Megan details special considerations and precautions she underwent before (and during!) her travels to China, Egypt, and Japan. A native Australian, Megan has appreciated the beauty and majesty of these other countries and doesn't believe her heart defect should hold her back from the travel she and her husband so...


The Changing Landscape of Care for Young Adults with CCHDs

Returning Guest, Vicki Lucas, shares with Anna how care for her son, Alexander, has changed over time, especially as he has transitioned from pediatric care to care for an adult with a critical congenital heart defect. As a special education teacher, Vicki has worked very hard as Alexander's advocate and she shares what she has done to help him be an advocate for himself. She also gives tips to parents on how they can best prepare their adult children as they leave home and go off to...


Hearts Unite the Globe's Summer of 2019 Audio Newsletter

Hearts Unite the Globe is full of news! Tune into this episode of Heart to Heart with Anna to hear about all of the activities in which HUG members are participating. In this episode of Heart to Heart with Anna, learn about upcoming training opportunities/retreats being sponsored by HUG -- retreats in Central Texas, Jerusalem, Israel, and Tuscon, Arizona! You'll also hear about a special award presented to Anna Jaworski (Host of Heart to Heart with Anna and HUG's Executive Director) during...


Silent Cries: Breaking Through CHD Awareness

Premiering August 6, 2019, Silent Cries: Breaking Through CHD Awareness is Phillip Wolf's latest documentary. With over forty types of CHDs, Silent Cries: Breaking Through CHD Awareness is produced to focus on children and adults born with heart defects and how they have inspired other families and individuals to never give up and continue their fight. There is hope, and advancements in technology are evolving rapidly, yet a cure seems elusive. Many CHDs (congenital heart defects) go...


Shameless Appeals for Applause: With A 66-Year Old ccTGA Heart Warrior

Ann Koplow is an extraordinary Heart Warrior, blogger, and musician. Born in 1953, she is one of the oldest child survivors of heart block requiring pacemaker insertion. Despite many mechanical failures with her pacemaker, Ann has continued to have an upbeat, positive attitude. In today's program, Ann shares with Host Anna Jaworski what it was like growing up with heart block, how her ultimate heart defect was finally diagnosed, how she helped other children in the hospital and more! You...


From Learning Disabled to College Professor

Kathy Ware was born in 1974 with tricuspid atresia and pulmonary stenosis. Her first surgery occurred in her first year of life when she had a Potts shunt. At age 5, she had a central shunt inserted. In 1989 she had a Potts reconstruction and modified Blalock-Taussig shunt and then a classic Glenn procedure. All of these surgeries were done with the plan of having a Fontan Procedure, but she developed pulmonary stenosis and has never had the Fontan. In this episode of Heart to Heart with...


A Connection between the Flu, Arthritis & Heart Disease: A Mother’s Instincts

Marie O’Donnell is Heart Mom to Anna who was born with complex, congenital heart disease. Anna is a Fontan Warrior and has been a model cardiac patient for more than a decade. Anna was born with double outlet right ventricle, complete atrioventricular canal defect, patent ductus, heterotaxy syndrome, ADHD and anxiety disorder. Marie O’Donnell is a return Guest. During Season 2, Marie joined Kathy Baker and Dawn Silverman in an episode entitled, “Making Memories Every Day.” Marie is a...


Crunching Numbers for CHD Research

Antara Mondal was born with aortic stenosis and has undergone open-heart surgery. In this episode of Heart to Heart with Anna, Antara shares what it was like growing up with a congenital heart defect (CHD), how it affected her childhood and early adulthood and why she chose to study statistics at Carnegie Mellon University. She'll also explain to Anna what field of study she plans to pursue as a post-graduate and how statistics can help doctors working in the field of pediatric...