I'm Aware That I'm Rare: the phaware® podcast-logo

I'm Aware That I'm Rare: the phaware® podcast

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A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global
More Information

Location:

United States

Description:

A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every Monday & Thursday. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death. Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease. Learn more about PH at www.phaware.global

Twitter:

@phaware

Language:

English

Contact:

8183953529


Episodes

Episode 181 - Victor F. Tapson, MD

8/16/2018
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Victor F. Tapson, MD from Cedars-Sinai discusses the different pathways that medical professionals and researchers utilize in treating pulmonary arterial hypertension patients. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD

Duration:00:03:24

Episode 180 - Richard Channick, MD

8/13/2018
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Richard Channick, MD discusses the importance of clinical trials and how various approved pulmonary hypertension therapies work on specific pathways. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD

Duration:00:05:07

Episode 179 - Roberta Keller, MD

8/9/2018
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Roberta Keller, MD dicusses the importance of clinical trials and clinical research in general, but particularly in newborns. Dr. Keller is a neonatologist from UCSF’s Benioff Children’s Hospital in San Francisco. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @UCSFChildrens @pphnet

Duration:00:06:58

Episode 178 - Roberta Keller, MD

8/6/2018
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Roberta Keller, MD discusses the importance of multidisciplinary comprehensive care centers for children with chronic cardiopulmonary conditions. Dr. Keller is a neonatologist from UCSF’s Benioff Children’s Hospital in San Francisco. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD...

Duration:00:06:17

Episode 177 - Anson Daine, RN

8/2/2018
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Anson Daine, RN from UCSF Benioff Children's Hospital discusses UCSF’s pediatric pulmonary hypertension program and caring for infants in the pediatric ICU. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @UCSFChildrens @pphnet

Duration:00:04:31

Episode 176 - Rolf Berger, MD

7/30/2018
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Rolf Berger, MD discusses Pediatric Pulmonary Hypertension treatment in the Netherlands and the challenges in clinical trials in children with PAH. Dr. Berger is a pediatric cardiologist from the University Medical Center of Groningen. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD...

Duration:00:06:08

Episode 175 - Dunbar Ivy, MD

7/26/2018
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Dunbar Ivy, MD discusses the pipeline of potential PAH pediatric therapies. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @ChildrensColo @DunbarIvy

Duration:00:05:06

Episode 174 - Dunbar Ivy, MD

7/23/2018
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Dunbar Ivy, MD gives an update on the 6th World Symposium on Pulmonary Hypertension, which was held in Nice, France earlier this year. Dr. Ivy discusses the progress of pulmonary hypertension science and its anticipated future developments. The WSPH series takes place once every five years. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for...

Duration:00:07:03

Episode 173 - Victor F. Tapson, MD

7/19/2018
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In this episode Dr. Victor Tapson from Cedars-Sinai discusses novel Pulmonary Hypertension Therapies. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD #ClinicalTrials @CedarsSinai @vic_tapson

Duration:00:08:06

Episode 172 - Richard Channick, MD

7/16/2018
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In this episode, Richard Channick, MD discusses pulmonary embolism or blood clots in the lungs, and how they can progress to CTEPH (Chronic Thromboembolic Pulmonary Hypertension). Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD #CTEPH

Duration:00:05:23

Episode 171 - Iain Hess

7/12/2018
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Iain Hess discusses his lifesaving double-lung transplant and his plans for life post PH. Iain Hess is a former pulmonary hypertension patient from Boulder, Colorado who was diagnosed at age 5 with IPAH. He received a double-lung transplant on January 17, 2017. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure:...

Duration:00:08:20

Episode 170 - Steven D. Nathan, MD

7/9/2018
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In this episode Dr. Steven D. Nathan discusses sarcoidosis and how it can be complicated by the development of pulmonary hypertension. Steven D. Nathan, MD, is a member of several professional medical associations, including the American Thoracic Society, the American College of Chest Physicians, and the International Society for Heart and Lung Transplantation. Dr. Nathan is board certified in internal medicine, pulmonary diseases, and critical care medicine. Learn more about pulmonary...

Duration:00:07:10

Episode 169 - Uyen Truong, MD

7/5/2018
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In this episode, Dr. Uyen Truong discusses how MRI has the potential of providing as much if not more information about the cardiovascular system as cardiac catheterization, and this may shift the paradigm of pediatric PH care towards a safer, noninvasive monitoring modality and significantly improve quality of life in children with PH. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook,...

Duration:00:05:25

Episode 168 - Amina Berbić

7/2/2018
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Amina Berbić is a pulmonary arterial hypertension (PAH) patient from Bosnia and Herzegovina. She is a student and a local non-government organization (NGO) project manager who works to help empower 300 unemployed women through developing new skills to increase employability, as well as positivity and stress reduction. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram,...

Duration:00:05:18

Episode 167 - Harrison "Hap" Farber, MD

6/28/2018
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Harrison "Hap" Farber, MD discusses ways Team PHenomenal Hope seeks to build community with those suffering from PH including the #LetMeBeYourLungs program. Dr. Farber is the Vice President of Team PHenomenal Hope. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical...

Duration:00:03:05

Episode 166 - VIPhaware Pin Trading

6/25/2018
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A LIVE Global #phaware Activation. phaware global association® invites you to become a #VIPhaware Pin Trader! Participate in a LIVE “treasure hunt.” phaware® President and Co-Founder, Steve Van Wormer details how Int’l PH Conference & Scientific Sessions attendees can be part of an inclusive, fun and educational experience for exhibit hall visitors of all ages taking place June 28 - July 1 in Orlando, Florida. Learn more about pulmonary hypertension at www.phaware365.global. Never miss...

Duration:00:05:23

Episode 165 - Vinicio A de Jesus Perez, MD

6/21/2018
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In this episode, Dr. Perez discusses health inequality and ways to improve access of care for patients with disadvantageous ethnic backgrounds. Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter,...

Duration:00:07:54

Episode 164 - Pirooz Eghtesady, MD

6/18/2018
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Dr. Pirooz Eghtesady is a pediatric cardiothoracic surgeon at the Washington University School of Medicine in St Louis. His research focus is on congenital heart diseases, with particular emphasis on aortic stenosis and hypoplastic left heart syndrome. In this episode, Dr. Eghtesady discusses the surgical procedure called a Potts shunt as a treatment option for children who suffer from pulmonary hypertension. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an...

Duration:00:09:24

Episode 163 - Michelle Liu, MD (Pt 2)

6/14/2018
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Michelle Liu, MD discusses how physicians can use “PEARLS” to build relationships with patients. The mnemonic PEARLS – stands for partnership, empathy, apology/acknowledgment, respect, legitimation, and support. Dr. Liu is a Parent, Caregiver and PH Support Group Leader. Her daughter Ester Grace is a former PH patient who received a double lung transplant in 2014. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app....

Duration:00:05:16

Episode 162 - Michelle Liu, MD (Pt 1)

6/11/2018
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PH and Transplant: Perspectives from a Physician‐Mother Caregiver. Michelle Liu, MD discusses her daughter Esther Grace’s 5 year journey from pulmonary hypertension diagnosis through transplant. Dr. Liu is a Parent, Caregiver and PH Support Group Leader. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate...

Duration:00:09:15