Not Defined by Endo

Hello and welcome to this first episode of 'Endo University,'. This is a short lightening podcast season where I'll be sharing a lot of information on all things Endometriosis. Today, we're delving into the fundamentals with a focus on 'What does Endometriosis look like?' Articles & References: Kennedy S, Bergqvist A, Chapron C, D'Hooghe T, Dunselman G, Greb R, et al. ESHRE guideline for the diagnosis and treatment of endometriosis. Hum Reprod. 2005;20:2698–704. [PubMed] [Google Scholar] Stratton P, Winkel CA, Sinaii N, Merino MJ, Zimmer C, Nieman LK. Location, color, size, depth, and volume may predict endometriosis in lesions resected at surgery. Fertil Steril. 2002;78:743–9. [PubMed] [Google Scholar] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2505050/#:~:text=The%20typical%20appearance%20of%20endometriosis,also%20be%20endometriosis%20(1). Disclaimer: Remember that I am not a medical professional. So whatever I share on this podcast is to enlighten and inspire. Please always speak to your healthcare professional before making any changes to your diet or lifestyle. Music: Sunrise - Mehul Choudhary https://soundcloud.com/mehulchoudhary Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/3RYLj0k Music promoted by Audio Library https://bit.ly/48AUtab

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast. Today’s conversation is with Dr Anita Sharma and Courtney Omrod. Dr. Anita is a General Practitioner based in Manchester, United Kingdom and a national campaigner on women’s health. Courtney is an endometriosis warrior and advocate making a difference in this space. We hear a lot about the work they have both been doing and how Courtney's personal experiences with Endo have impacted every aspect of her life. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast. Today’s conversation is with Dr Barbara Guinn, a Reader in Biomedical Sciences at the University of Hull. As well as teaching the undergraduate and postgraduate degree courses in the Centre for Biomedicine, Hull York Medical School, Barbara also supervises MSc, MD and PhD students in their research. Barbara read Genetics at Aberystwyth University and received a PhD in Medicine from the University of Wales College of Medicine, Cardiff. Following 4.5 years working at the University of Toronto in the Department of Immunology, Barbara set up her own research group in the Department of Haematological Medicine at King’s College London to identify new targets for the treatment of acute leukaemia. Barbara worked on the development of DNA vaccines to treat leukaemia at the University of Southampton and then started to work on ovarian cancer. In 2016 Barbara joined the University of Hull and began her work on developing new treatments for endometriosis and a urine test for endometriosis called EndoTect. Barbara has three children and two dogs and loves to X. Her X handles are @BarbaraGuinn1 @GuinnLab. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Tihesia Bennet. Tihesia is a 24-year-old incoming Junior Doctor. She was inspired to create her sexual and reproductive health awareness page, She Talks, after she was diagnosed with superficial endometriosis in 2020. Join me as we listen to Tihesia’s story. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Tanya. Tanya is a 30-year-old endometriosis advocate from London. She was suffering from endometriosis for eight years before she was diagnosed and underwent extensive surgery. She now lives life with an ileostomy bag on her stomach because of endometriosis and how much damage it had done to her organs. It was so refreshing speaking all things endo, stoma, and living our best lives with Tanya! So sit back, relax and join us in this conversation! Follow her instagram @tanyalivingfree. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today, we carry on listening to Kailey and Betsy’s stories and how they have overcome all they have been through in their diagnoses of endometriosis and infertility. If you didn’t listen to Part 1, please click on the previous episode to do so. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s episode is with lovely Kailey Lee and Betsy Austin. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Stephanie Moss. Stephanie is an Endometriosis advocate, Infertility warrior, Trauma survivor, and a third-year Medical Student pursuing her Medical Doctorate (M.D.) at Rush Medical College in Chicago. She has a passion for trauma-informed care and advocating for those disenfranchised in society. She loves to share her story through writing, social media, podcasts, and presentations. Her work has been featured across various platforms including The Endometriosis Foundation, KevinMD, American Medical Women’s Association, and Survivor Revive. She has also created a website called medpsycmoss.com which features her blog, links to her work, and a comprehensive selection of trauma-informed resources for both patients and health care providers. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s episode is with Amy Corfeli, a powerhouse and amazing advocate in the world of Endometriosis and chronic illness. Amy has endometriosis and has also been diagnosed with IC, fibro, Mast cell activation syndrome, and Small Intestine Bacterial Overgrowth. She was diagnosed with endo at thirty-three, sixteen years after her symptoms began. She’s the content creator of the popular podcast called In Sixteen Years of Endometriosis. With her co-host Brittany, they laugh, cry, and shout about all things endometriosis. Amy is also the author of Finding Peace with a Devastating Disease. It's a beautifully raw and honest collection of seventy-six reflections on acceptance, meaning, and self-compassion. On Amy's website and Instagram, @in16yearsofendo, you can find accurate information and trustworthy resources for endometriosis. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today's episode is with Nicole Marriott, a warrior who lives with Endometriosis, Adenomyosis, and PCOS. Nicole set up her Instagram account @endo.of.an.era to raise awareness and break the stigmas and taboos surrounding chronic conditions, infertility, and menstruating. After a 20-year journey to diagnosis and a nearly 10-year journey with primary and secondary infertility, her aim is to connect, raise awareness and help others feel seen, heard, and free in their own truths and all aspects of their journey living with these conditions. Nicole believes in an inclusive community that does not exclude the voices and experiences of others. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to info@notdefinedbyendo.com. Till next time, remember, you are not defined by endo! Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Today’s episode is with Ana G. Herrera, founder of Hormone University, an educational platform with the mission to improve hormone health through accessible knowledge and to advocate for social impact in our communities. Ana suffered from stage IV Endometriosis for years and went through excruciating PMS pain, infertility, and five surgeries, the last one ending in a full hysterectomy and a colon resection, which led to surgical menopause. Join the conversation today as Ana shares her story and her passion for what she does. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. I hope you enjoyed today’s episode. If you did, let us know on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. If you want to get involved in any way, please visit www.hormone-university.com to learn more. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Today’s episode is with Dr. Allyson Shrikhande, a board certified Physical Medicine and Rehabilitation specialist and the Chief Medical Officer of Pelvic Rehabilitation Medicine. Allyson is a leading expert on pelvic health who works with expert gynecologists, urologists, physiatrists, and interventional pain physicians, and also specialists in pelvic floor physical therapy, kinetics, and movement, as well as acupuncturists, nutritionists, cognitive-behavioral therapists, and functional medicine physicians. This means that even with an extensive background in mainstream clinical medicine, she also makes use of many alternatives, holistic and homeopathic approaches. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Manju Bangalore, the founder and executive director of Operation Period, a grassroots, youth-led nonprofit dedicated to creating a world where menstruation holds no one back. They fight for menstrual freedom through art, advocacy, education, community engagement, and direct aid. Manju started this organisation after experiencing severe period pains and encountering those who could not even afford their menstrual products. If you want to get involved in any way, please visit www.operationperiod.org to learn more. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Kelly Newton, who founded BP3 Underwear in 2019. Kelly founded BP3 as a result of her issues with bladder incontinence as she entered menopause. We know that many young women with Endometriosis, Interstitial cystitis, and even those in postpartum also have bladder issues, and Kelly soon realized that all of these women could use her knickers both for their periods and leaks and incontinence. Kelly also has a fascinating story about her endometriosis and I really had so much fun getting to know her. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Jodie Hughes, the founder of the charity Endometriosis South Coast in the UK, and a Ph.D. student studying how endometriosis differs in different sample groups of people. Jodie’s endometriosis story begins at the tender age of 11, and like many of us, she has had to navigate a behemoth healthcare system, advocating for herself and others and raising awareness about the disease. Endometriosis is such a poorly-funded and poorly-researched disease, and Jodie is working hard to change this by devoting her life to studying the impact of Endo. For her undergraduate and master's studies, she researched the stress levels of patients with endometriosis and was able to obtain statistically significant results in both studies. Apart from doing research on Endo, she also founded the all-inclusive charity called Endometriosis South Coast, supporting and educating those with endometriosis by running webinars and support groups. Here is the link to Jodie's survey - https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Valentina Milanova, founder of Daye, a female health research and development company on a mission to bridge the gender gap in product innovation. They have created pain-relieving tampons infused with CBD which are not only effective but also sustainable. Join me today as we listen to the incredible journey of Daye and how they are raising the standards of women’s healthcare. If you want to know more or try out their products, please go to https://yourdaye.com. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Anna Brightman, founder of UpCircle Beauty. UpCircle Beauty is a natural sustainable skincare company that repurposes would-be waste ingredients to create award-winning skincare and beauty products that are uplifting for the skin. Anyone that knows me knows how important sustainable living is to me, especially living with Endometriosis, a condition that is hugely affected by our hormones. So you can imagine my excitement when I discovered how UpCircle is making use of leftover coffee grounds, aromatic chai spices, and even fruit-stone waste to make good-for-you and good-for-the-environment skincare products. Join me today as we understand more of Anna’s story and get inspired by what she’s doing! If you want to know more or try out their products, please go to www.upcirclebeauty.com. There are so many awesome products on there, you’ll be spoilt for choice. Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook. You can also join our community on Health Unlocked and ask any questions or share your stories. Don't forget to share, rate, and subscribe to this podcast. If you also have any questions to ask or topics you would like me to discuss, feel free to shoot me an email at info@notdefinedbyendo.com. I love to hear from you all. Till next time, remember, you are not defined by endo!

Welcome to episode 7 and the final episode of Endo 101! What an amazing educational few weeks it has been! Today, we are going to discuss a case study on a woman who was diagnosed with Endometriosis and the treatment route that her doctors took, all hypothetical. We want you to know that even if you or someone you know has been diagnosed with Endometriosis, you do not remain without hope. There are many treatment approaches that your doctors can take, considering your individual case and you can regain your quality of life back. Most importantly, please never forget that you are not alone. There is an army of women, fellow sufferers, doctors, researchers and advocates fighting with you. If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast. Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to episode 6 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. Today’s episode will be about the myths that have plagued this disease. There are so many inaccuracies we have always known to fly around when it comes to this disease. Myths such as Pregnancy cures endometriosis can do a lot more harm than good. Therefore, today Tom and I will be discussing some of these myths and Tom will be giving us an idea of the origins or the reasons why these untruths find their way into society. If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast. Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M

Welcome to episode 5 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetrics and gynecology at the Chelsea and Westminster Hospital, in London, UK. Last episode we discussed the surgical treatments for Endometriosis, and why the gold-standard treatment for Endometriosis is excision surgery to remove the disease completely. We also understood the different surgical approaches based on the kind of Endometriosis, whether an endometrioma, peritoneal endo or even deep infiltrating bowel endometriosis. Today, we want to talk about Endometriosis and Infertility. Up to 40-50% of women with Endometriosis do suffer from infertility or subfertility. So let’s talk about this and understand better how and why this happens. If you have any questions you are keen to get answers to or if you just enjoyed this episode and would like us to know, send an email to info@notdefinedbyendo.com with your questions, or DM me on Instagram @notdefinedbyendo or the Instagram Page of Chelsea Centre for Minimal Invasive Gynaecology (CCMIG) @ccmig.london. There, Tom shares a lot of relevant and helpful information on Endometriosis. Don't forget to share, rate, and subscribe to this podcast. Till next time, remember, you are not defined by endo! Background Music: Life by Roa https://soundcloud.com/roa_music1031 Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/_-life Music promoted by Audio Library https://youtu.be/dXqEepAme-M