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Location:

United States

Twitter:

@paulkidwell

Language:

English


Episodes

Joyce Kulhawik -003

10/30/2018
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Interview with Joyce Kulhawik, Emmy Award-winning arts and entertainment critic and three-time cancer survivor. Even with cancer treatment advancements a diagnosis that leads to remission and survival is still a rare occurrence. Now imagine if you have lived through this three times. That's the life of Joyce Kulhawik, whose intelligent and charming public persona as a well-known media personality never gave any indication of her personal battle. In Openly Rare she shares a candid and...

Duration:00:48:59

Philip R. Reilly, M.D. -002

10/2/2018
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Interview with Philip R. Reilly, M.D., author, “Orphan: The Quest to Save Children with Rare Genetic Disorders” Dr. Reilly’s book, Orphan, is equal parts oral history and whodunit, and in his discussion with the host shares stories of genetic disease through the stories of researchers, physicians, patients, and family caregivers. This episode tells the story Reilly’s bleak days as a young physician-scientist early days as a physician where there was little available to treat rare genetic...

Duration:00:39:01

Rare Disease Film -001

8/3/2018
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Interview with Daniel DeFabio and Bo Bigelow, co-creators of “DISORDER: The Rare Disease Film Festival.” Host Paul Kidwell explores the most powerful storytelling medium of movies and their ability to offer the viewer a spellbinding blend of the visual, audio and emotional. In his discussion with Daniel DeFabio and Bo Bigelow you will learn how a rare disease diagnosis for each of these “Rare Dads” led to an introduction at an industry conference, and ultimately the brainchild of the film...

Duration:00:40:42