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Our MBC Life

Health & Wellness Podcasts

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.

Location:

United States

Description:

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.

Language:

English


Episodes

S02 E06 MBC & Latinx Issues

4/12/2021
In today's episode, we wanted to shed light on key issues impacting the healthcare of the Latinx community living with MBC here in the United States. Our cohost, Natalia Green, speaks with her sister about their experiences as patients, caregivers, and members of the Latinx community. We also hear from Dr. Mabel Mardones, a breast oncologist based in Colorado, and Sara Carbajal-Salisbury, the executive director of Alliance Community Services, which has the mission of helping minority...

Duration:01:34:30

S02 E05 A Conversation with Judy Perkins

4/5/2021
As we started season 2 with the search for unicorns and a look at clinical trials from the patient perspective there was one person we had to interview. Judy Perkins is that person. From her initial DCIS diagnosis in 2003 to her metastatic recurrence in 2013 to being the first person declared cancer free after a course of immunotherapy using Tumor-Infiltrating Lymphocytes (TILs) in December 2015 Judy shares her whole story with us. It is one of many trials and not just the clinical ones....

Duration:00:53:35

S02 E04 Clinical Trials from the Patient Perspective Part 2

3/31/2021
Here is Part 2 of our two-part series on Clinical Trials from the Patient Perspective. This time we hear from the experts who have solutions to the issues raised in Part 1. We continue to explore how research processes were impacted by Covid 19 and the race to find vaccines and treatments. Spoiler Alert – there are some Covid silver linings for those of us looking for change in MBC research. Co-hosts Jim Kremens, Lisa Laudico, and Sarah Mann, speak with experts Susan Colen of...

Duration:01:24:23

Trailblazer of the Month 305 Pink Pack and Dar's Dash of Joy

3/26/2021
We are back with the Trailblazer of the month and are so excited to share the great work of 305 Pink Pack in Miami, Florida. Rosemary Carrera joins host Victoria Goldberg to talk about her story, starting pink pack, and how she discovered the unique needs of people living with metastatic disease and how the organization changed to address those. Also in this episode it's time for a Dash of Joy. Living with MBC means many things and for our host Dar Finkelstein it means finding joy every day...

Duration:00:40:32

S02 E02 Clinical Trials from the Patient Perspective

3/15/2021
Join us for Part 1 of this two-part series on Clinical Trials from the Patient Perspective. We review some of the basics about clinical trials for people living with MBC and share personal stories from our co-hosts Lisa Laudico and Sheila McGlown. The team was joined by podcast members, Jim Kremens and Sarah Mann, as we spoke with patient advocates Lianne Kraemer and Christine Hodgdon. The team then had a series of conversations with Lisa’s oncology team, Dr. Neal Fischbach of Yale New Haven...

Duration:01:08:20

Bonus Episode - A Dash of Joy

3/5/2021
This season we are thrilled to welcome some new members to the podcast team. In this very special and joyful episode, we are introducing Dar Finkelstein who is going to be hosting and writing a monthly segment “A Dash of Joy” which will air with our Trailblazer series on the last Friday of each month. In these segments, Dar will talk about her search for Joy in the middle of a life filled with doctors, shots, pills, and scans and offer some simple practices she has put in place to keep her...

Duration:00:08:04

S02 E01 Searching for Unicorns: Exceptional Survivors & Responders

3/1/2021
Welcome to Season 2! In this episode, we spoke with five extraordinary individuals who have surpassed prognosis expectations and continue to live with MBC far longer than anyone could have predicted. They spoke about their experiences as exceptional survivors and responders, what being a “unicorn” means to them, and offered insightful advice on living with MBC. We also spoke with Dr. Mark Burkard and Dr. Stephanie Graff to find out more about studying outliers and what we can learn from...

Duration:01:08:05

S01 E34 - Best of Season 1 - Trailblazers

2/26/2021
Welcome to another bonus episode of Our MBC Life. In this episode we reintroduce you to our season 1 Trailblazers. These women and the organizations they started are making a difference in their communities for people living with cancer. Look for our season 2 Trailblazers in a special episode the last Friday of each month. Send your comments, feedback, and ideas to ourmbclife@sharecancersupport.org or record your comments at https://www.speakpipe.com/JustGottaShare Check out our blog and...

Duration:00:41:59

Season 2 Trailer: Our MBC Life

2/25/2021
From SHARE Cancer Support this is Season 2 of OUR MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease and the experts who partner with us to help make our lives better. Our creator and co-host Lisa Laudico and producer Anne Woodward preview the coming season. Hear what's coming up as we amplify voices and share realities about life with MBC. Send your comments, feedback, and ideas to...

Duration:00:15:28

S01 E33 - Special Bonus Cancer & Covid with Dr. Joshua Hill

2/22/2021
Welcome to this bonus episode of Our MBC Life. We are pleased to again highlight a program from our parent non-profit SHARE Cancer Support. We are less than 1 week away from Season 2. The premiere episode will drop on March 1. While we do that, we hope you catch up on any episodes you missed from Season 1. Our MBC Life is a part of the metastatic breast cancer program at SHARE Cancer Support. SHARE has many programs to support women living with MBC including the Talk METS Helpline, several...

Duration:00:53:12

S01 E32 - Bonus Pod from the 3 Black Docs Podcast

2/19/2021
Welcome to our fourth bonus episode of Our MBC Life. We are so excited to share a great episode from another podcast we admire - our friends at the 3 Black Docs podcast. In this episode from last summer, Dr. Karen Winkfield, Dr. Tiffany Avery, and Dr. Zanetta Lamar, discuss the legacy of Henrietta Lacks and what we can continue to learn. We are so grateful that they have allowed us to share this episode with you. If you haven’t followed the 3 Black Docs podcast there is no time like the...

Duration:00:29:00

S01 E31 - Best of Season 1 ~ 3 Black Docs Re-release

2/8/2021
Welcome to our third bonus episode of Our MBC Life. Our team is working on Season 2 – to be launched in a few short weeks on March 1 – and so we wanted to share some of our favorite episodes from Season 1. This episode is certainly one of those all-time favs! With us are the outstanding Dr. Tiffany Avery, Dr. Zanetta Lamar, and Dr. Karen Winkfield who have developed their own podcast called the 3 Black Docs. These incredible women give their professional take on racial disparities in...

Duration:00:49:12

S01 E30 - Best of Season 1 Interview with Carol Evans

1/25/2021
Welcome to our second bonus episode of Our MBC Life. Our team is working hard on season 2 and it’s going to be great! Look for our premier episode on March 1 with the stories and research behind long term MBC survivors. Always good to have a little hope to talk about. This bonus pod is the full interview that Senior Producer, Anne Woodward, and Host, Lisa Laudico, had with Carol Evans, CEO and Executive Director of SHARE Cancer Support as she was celebrating 1 year into her new role. Carol...

Duration:00:53:57

S01 E29 - Report from SABCS with Dr. Neil Iyengar

1/11/2021
Welcome to this bonus episode of Our MBC Life. Our team is currently working on season 2 and we are excited. The premiere episode will drop on March 1. While we do that, we hope you catch up on any episodes you missed from Season 1. We will have 3 more bonus pods for you in January and February. Our MBC Life is a part of the metastatic breast cancer program at SHARE Cancer Support. SHARE has many programs to support women living with MBC including the Talk METS Helpline, several virtual...

Duration:00:56:46

S01 E28 - We Remember Chawnte Randall

12/21/2020
This is our final episode of the Our MBC Life Podcast inaugural season and it is all dedicated to the memory of our friend and co-host, Chawnte Randall, who died in November of this year. Chawnte was involved with many Metastatic Breast Cancer organizations, foundations, and initiatives during the short 19 months she lived with this disease. She was passionate about eliminating racial disparities in MBC healthcare and brought her boundless energy to everything she did. Chawnte touched so...

Duration:00:29:30

S01 E27 - Interview with Christine Hodgdon & Julia Maues of GRASP

12/14/2020
Co-host Natalia Green finds out how Christine Hodgdon and Julia Maués , co-founders of GRASP (Guiding Researchers and Advocates to Scientific Partnerships) saw an opportunity last year to bridge the gap between researchers and MBC advocates in the pursuit of better research connections. Christine Hodgdon was diagnosed with metastatic breast cancer in 2015 and has a background in biology and nonprofit programming. In addition to her work with GRASP, Christine is the founder of the Storm...

Duration:00:43:45

S01 E26 - The Right Dose Initiative

12/7/2020
Today we learn more about the Patient-Centered Dosing Initiative (“The Right Dose “) with MBC advocate and author, Anne Loeser and Dr. Aditya Bardia, Attending Physician at Massachusetts General Hospital and Assistant Professor of Medicine at Harvard Medical School. Usually when metastatic breast cancer patients begin new treatment, they are treated with the highest possible dosage, also known as the Maximum Tolerated Dose (MTD) that causes the most challenging side effects. Given we, those...

Duration:00:55:57

S01 E25 - #InclusionPledge One Year Later

12/7/2020
Join Co-hosts Sheila McGlown and Lisa Laudico for a conversation with Maimah Karmo, founder of the Tigerlily Foundation along with Christine Hodgdon and Julia Maues, co-founders of GRASP and the #PullUpASeat initiative. We are pleased to release this episode on the eve of Maimah's groundbreaking keynote and session at the 2020 San Antonio Breast Cancer Symposium, the largest breast cancer symposium in the world, where she is co-presenting with the AACR on Setting the Stage for Health Equity,...

Duration:01:08:02

S01 E24 - November Just Gotta SHARE Listener Roundup

11/30/2020
This month’s JGS Listener Roundup features a listener message from Massachusetts reflecting on our Parenting episode along with special Just Gotta SHARE messages from Katherine O’Brien, Julia Maues, Ricki Fairley, Dr. Aditya Bardia, and Anne Loeser. We also have a great interview from Senior Producer and Co-host Anne Woodward with Sue Cappucci, a person living with MBC who navigated the tough transition from work after her second-line treatment became too exhausting and depleting to continue...

Duration:00:39:48

S01 E23 - Working while living with MBC

11/23/2020
Today’s episode is all about Working while living with MBC. So many of us have been threading this needle, living with difficult side effect and treatments, while keeping up with work either because we have to or because we want to. It is no secret that the supports and safeguards for people working while living with MBC vary across the country and that protections at the federal level are still not fully fleshed out nor do they help everyone who is living and working with MBC. It is...

Duration:01:11:48