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Our MBC Life

Health & Wellness Podcasts

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.

Location:

United States

Description:

From SHARE Cancer Support this is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease, and the experts who partner with us to help make our lives better. So glad you’re here since no one should face MBC alone. New episodes available every other Monday and join us on the last Friday of the month for our Trailblazer series. Send your voice memos, ideas, and questions to ourmbclife@sharecancersupport.org and visit us at www.ourmbclife.org.

Language:

English


Episodes

S04 E17 - Psilocybin-assisted Therapy: One Patient vs the DEA

7/6/2022
Welcome to the third and final episode in our series on the potential of psilocybin-assisted therapy to relieve the existential distress of, and help us live as well as possible with, metastatic breast cancer. In this episode, we speak with two women taking action to increase legal access to psilocybin-assisted therapy in the United States. The first is a patient living with MBC who, along with her doctor, has brought a lawsuit against the Drug Enforcement Agency which is denying her access...

Duration:01:14:38

S04 E16 - Psilocybin-assisted Therapy: Patient Experiences

6/29/2022
Welcome to the second episode in our series on the potential of psilocybin-assisted therapy to help us live as well as possible with metastatic breast cancer. In this episode, we talk to two women with breast cancer who had legal access to psilocybin-assisted therapy. Journalist and writer Erica Rex participated in a clinical trial at Johns Hopkins after being diagnosed with early-stage breast cancer. Mari Singfield, a young Canadian woman living with MBC, gained access through an exemption...

Duration:01:25:32

S04 E15 - Healing our Distress: The Potential of Psilocybin-assisted Therapy

6/15/2022
Welcome to our series on the potential of psilocybin-assisted therapy to help us live as well as possible with metastatic breast cancer. Distress, including anxiety, depression, and loss of meaning, is a common side effect for those of us living with MBC. Psilocybin-assisted therapy has been tested and found effective in relieving distress among advanced cancer patients but is not widely available. Our new series provides an introduction to the potential of psilocybin-assisted therapy in...

Duration:00:59:59

S04 E14 - MBC & Parenting: Advice from Experts

6/8/2022
How does one even begin to bring up the topic of metastatic breast cancer to a child? In this third episode of our MBC & Parenting series, we’ll talk to three experts that can give us some insight and guidance on how to talk with our children in the most open and safe ways. First up, Co-host Martha Carlson and Senior Co-host Victoria Goldberg speak with Dr. Leeza Park, psychiatrist, clinical researcher, and Deputy Director for the Comprehensive Cancer Support Program at the University of...

Duration:01:23:13

S04 E13 - MBC & Parenting: The Kids Are Alright

5/25/2022
What does a metastatic diagnosis mean for our children? In this second episode of our MBC & Parenting series, we talk to the kids of those women in our community who are thriving with metastatic breast cancer and those kids whose mothers have died because of it. Our interviewees range from ages 6 to 29, lending their diverse voices to the conversation and their unique perspectives on being a part of the metastatic community. Spoiler alert - we found out that the kids will be and are...

Duration:01:31:43

S04 E12 - Dr. Nancy Lin: Are CNS Mets Becoming More Treatable? What’s New with STOP-HER2?

5/20/2022
Brain metastases are unfortunately an all too common and devastating complication of breast cancer. The blood-brain barrier has long been a key obstacle to developing effective systemic therapies; however, newer agents are showing signs of overcoming this challenge. Dr. Nancy Lin explains in this Road to a Cure episode, hosted by Victoria Goldberg. Thanks for listening! More info is available on our website: www.ourmbclife.org Got something to share?...

Duration:00:55:07

S04 E11 - MBC & Parenting: The Parents Are Hanging In

5/11/2022
Remember all those birth and parenting books we poured over as newly minted parents? Well, I bet if we checked, there would be nothing on how to parent while living with MBC. This episode is one of three in our series of “MBC & Parenting,” where we will address all things related to being a parent living with a metastatic breast cancer diagnosis. In later episodes, we’ll share some viewpoints of their children and information from a panel of experts that will provide insight into tackling...

Duration:01:09:05

S04 E10 - ER Progression and Resistance: Causes, Consequences, and Hope

5/5/2022
About 80% of breast cancers are ER+, meaning that the cancer cells have estrogen receptors, and estrogen is likely to make them grow. Here’s the good news/bad news story for ER+ MBC patients. First, the good news: there are a number of effective medications that either reduce available systemic estrogen or block its ability to stimulate cancer growth. The bad news: over time, ER+ cancers develop resistance to these medications, resulting in cancer progression and signaling the need for a new...

Duration:01:04:28

S04 E09 - Our MBC Bookshelf with Caroline C. Barney

4/27/2022
We all love the new book, Pull Yourself Together: How to connect to a life that you love by Caroline C. Barney. The Our MBC Bookshelf series continues with Senior Producer and Host, Lisa Laudico speaking with Caroline about how disconnection can happen when life gets hard. This is a series where we get to talk about the books that sustain us during the days, months, and years of living with a disease without a cure. Sometimes when life hands us the unimaginable, we need to learn to be...

Duration:00:40:13

S04 E08 - Dr. Stephanie Graff: Understanding Progression

4/20/2022
In the inverted language of MBC, “unremarkable” is something we all aspire to, and “progression” is something we dread. Progression means that our current medication regimen is no longer working and cancer is spreading and/or growing. It means that treatment is likely to change—bringing new drugs with new side effects. It also means that we’ve exhausted one of the available treatment options for our disease, leaving fewer remaining lines of treatment. In this episode, breast oncologist Dr....

Duration:00:57:24

S04 E07 - Grief, Loss, & Faith

4/13/2022
This episode has been a long time in the making. We knew that to cover our varied perspectives on grief, loss, and end-of-life, a discussion on faith traditions would be an important part. The world around us infers that talking about death is not the same as talking about the joy of birth or the happiest of life's milestones. Certainly this unspoken “sweeping under the rug” of what is actually happening to all people and all families can feel so isolating. We wanted to hear some messages of...

Duration:02:04:48

S04 E06 - Dr. Lidia Schapira: Hey Doc, What Are You Telling Me?

4/6/2022
Before our MBC diagnosis, many of us saw our doctors once or twice a year or even less often. And most visits were likely routine check-ups or focused on a particular issue with a relatively straightforward solution. But MBC changes all that. It throws each of us into an unfamiliar world--with its own language, new and complex information shared in high stakes appointments and a relationship with our oncologist that immediately becomes one of the most important relationships in our...

Duration:01:03:23

S04 E05 - Doing End-Of-Life Right

3/30/2022
How does one do things right at the end of life? There are many ways to answer this question, as varied as all of us. In this episode, we continue with our Grief, Loss, and End-Of-Life series. Co-hosts Shonte Drakeford, Ashley Fernandez, Natalia Green, and Lisa Laudico speak with Julie McFadden, aka Hospice Nurse Julie; Jennifer O’Brien, author of Hospice Doctor’s Widow; Cal Cates, Hospice Massage Therapist; and Sundari Malcolm, Birth, Death, and Grief Doula. More info is available on our...

Duration:01:41:38

S04 E04 Dr. Priya Kumthekar: Glimpses of Hope for Leptomeningeal Metastases

3/23/2022
This is a new stop in our ongoing series Road to a Cure. From the start, our goal for this series was not only to educate and give hope to every listener but also to ensure that each of these special interviews feels like an intimate conversation with our smartest friend who also happens to be an oncologist researcher. Co-hosts Victoria Goldberg and Dr. Paula Jayne sit down with neuro-oncologist Dr. Priya Kumthekar to talk about leptomeningeal metastases: what they are, how are they...

Duration:01:02:15

S04 E03 - Ambiguous Loss & Dr. Pauline Boss

3/16/2022
All of us have experienced a wide range of loss and grief from the last 2 years of life under a pandemic. In this second installment of our focus on grief and Loss, host Lisa Laudico speaks with leading social scientist, family therapist, professor, and writer Dr. Pauline Boss about all of her research and her latest book, The Myth of Closure: Ambiguous Loss in a Time of Pandemic & Change. Dr. Boss has extended the lens of her groundbreaking research to the world we live in today. This is...

Duration:00:48:37

S04 E02 - Dr. Timothy Pluard: The Future of MBC Care Is Already Here

3/9/2022
The future of personalized care for those living with MBC is already here, and it is happening in Kansas City, Missouri. Dr. Timothy Pluard, Medical Director of the Kansas City's Saint Luke's Koontz Center for Advanced Breast Cancer is with us today. We'll ask him how he and his team create an individualized, completely comprehensive plan for each woman. More info is available on our website www.ourmbclife.org Got something to share? Feedback? Email:...

Duration:00:45:59

S04 E01 - Lara MacGregor: How To Decline Well With Hope

3/2/2022
Welcome to our premiere episode of Season 4! We wanted to bring you something very special and our guest, Lara MacGregor certainly delivers on that and more. Host Lisa Laudico spoke with Lara in November of last year. In 2012, Lara MacGregor founded Hope Scarves which to date has sent over 20K scarves to people facing cancer in every state in the US and 29 countries around the world. In 2014 when Lara was diagnosed with metastatic breast cancer the focus of Hope Scarves broadened to include...

Duration:01:29:29

S03 E19 Black History & Health Equity Every Month, Every Day

2/27/2022
Join Co-host Sheila Johnson for a very special panel in honor of Black History Month. Sheila speaks with Rev. Dr. Tawana Davis, Ricki Fairley, Kelle Southern, and Stephanie Walker. This wide-ranging conversation is one not to miss as we dig into what it is like to be a Black woman seeking medical treatment for breast cancer or metastatic breast cancer and what these incredible women are doing to improve health equity for black women and men. We believe that Black History Month should always...

Duration:01:30:00

S03 E18 Report Back from SABCS 2021: What’s the Latest in MBC Research?

2/22/2022
Learn about the most recent information released at the annual San Antonio Breast Cancer Symposium regarding metastatic breast cancer research with Dr. Peter Schmid, Professor of Cancer Medicine at Barts Cancer Institute in London, England. Dr. Schmid will provide a comprehensive update and answer your questions about these new developments. More info is available on our website www.ourmbclife.org Be sure to rate, review us, and sign up for our newsblast. Got something to share? Feedback?...

Duration:01:02:41

S03 E18 Report Back from SABCS 2021: What’s the Latest in MBC Research?

2/22/2022
Learn about the most recent information released at the annual San Antonio Breast Cancer Symposium regarding metastatic breast cancer research with Dr. Peter Schmid, Professor of Cancer Medicine at Barts Cancer Institute in London, England. Dr. Schmid will provide a comprehensive update and answer your questions about these new developments. More info is available on our website www.ourmbclife.org Got something to share? Feedback? Email: ourmbclife@sharecancersupport.org Send us a voice...

Duration:01:05:12