Real Pink

Millions of women in the U.S. can access no cost screening mammograms, but if the patient is at a higher risk of breast cancer or the mammogram reveals an abnormality, the cost of imaging makes it unattainable for many. Komen has worked with state legislature to eliminate the patient’s out-of-pocket costs. Unfortunately, not all states have passed such laws, and federal legislation is still pending. Susan G. Komen’s Center for Public Policy is championing legislation that addresses this significant flaw in health care insurance coverage and ensuring all people have access to high-quality, affordable care. Here today to discuss Komen’s public policy is Deandrea Newsome, Regional Manager of State Policy & Advocacy at Susan G. Komen. Learn more about how you can support the ABCD Act here: https://www.komen.org/how-to-help/advocacy/action-center/?vvsrc=%2fcampaigns%2f128891%2frespond%3f_gl%3d1*3b3ivi*_gcl_au*MTk3NTA1Mjk2My4xNzcwMDU5MTYy*_ga*MjUzMDUxNzk3LjE3NTYyMzI0NjI.*_ga_HGS8BJYTKQ*czE3NzU3NTExODEkbzkkZzEkdDE3NzU3NTExOTgkajQzJGwwJGgxMTE2ODQ1MzE2*_fplc*WTlIZnY0dVc3ZEpvZFZmQWElMkJpNUh6T2lNUlhTOHJWJTJGV3RyckU5OFJ0b0k5WkhJamh0RjE2c2JoVkRwbjVNcDE1SnB6d0ZnVDBTYUxhZnRwYmluZm1QSlU1bElSU05JY2ZudWZZMmd4TmxJRkROYVB6RWF1SzhNZmEwZ1FGdyUzRCUzRA..

We’re excited today to welcome Dina Farris and her husband, Caleb, to the podcast. Dina and Caleb navigated her breast cancer diagnosis, together, one test at a time, and just weeks before their wedding. We know that breast cancer disproportionately affects the patient, but it also deeply affects the loved ones and family members who are among the biggest supporters.

The risk of getting breast cancer increases as you get older, but breast cancer can happen at any age. Today’s guest is Abby. Abby was diagnosed with Stage 3 luminal B invasive ductal carcinoma breast cancer at the young age of 31 with no prior family history. She is mom of a 4-year-old, a DIYer and spends time trying to live a more simple, happy life. This episode originally aired on May 27, 2024

AI-powered support tools are moving fast in health care — and breast cancer is no exception. In this special episode, we look at how AI companions and chat tools might expand access to support, while also raising serious concerns about accuracy, bias, privacy and inequity. Host Adam Walker is joined by breast cancer survivor Ellyn Winters-Robinson to discuss what it means to design AI with lived experience, cultural responsiveness and patient safety at the center. They explore where AI can help (navigation of information, emotional reassurance, questions to bring to appointments) and where human expertise must remain non-negotiable.

We know the statistics – breast cancer affects more women under age 50 than over 50. But facing breast cancer as a young woman brings with it a whole set of challenges and decisions that may not impact older women…Trying to date, deciding whether to have children, establishing a career, or just figuring out life and how to navigate it. Joining today’s conversation are two ladies who were diagnosed in their 30s: Jenna Tomasiewicz and Linda Gulbransen. Linda was also diagnosed with breast cancer a second time at age 59, when her life looked very different and she knew what it would take to survive and thrive during treatment.

Breast cancer doesn’t just affect the person that is diagnosed. It touches families and can often inspire a life’s purpose. Today’s guest grew up witnessing breast cancer firsthand, supporting her mother through surgeries as a young teenager. This was an experience that would later influence her passion for the work she does today. As a Wacoal fit consultant, Pam Gibson provides women more than just measurements. She offers confidence, comfort and compassion during some of life’s most vulnerable moments. Whether you’re recovering from breast surgery, navigating your own health journey or simply want to better understand the physical and emotional importance of a proper fitting bra, this episode is filled with practical advice and reminders that support comes in many forms.

Everyone is at risk of breast cancer. Some are more at risk than others due to hereditary factors – such as a family history of cancers – and lifestyle choices that affect our overall health. Knowing your risk of breast cancer can help you decide what steps to take to lower your risk. Joining me today is Dr. Jennifer Ligibel, a Susan G. Komen Scholar and Komen grantee, Professor of Medicine at Harvard Medical School, Senior Physician at the Dana-Farber Cancer Institute and an expert on the impact of lifestyle factors, cancer risk and outcomes. Through more than a dozen lifestyle intervention trials, Dr. Ligibel has evaluated the impact of exercise, weight loss, fitness, body composition and quality of life in cancer patients and survivors.

Today, in honor of Black History Month, we’re exploring what happens when inequity itself becomes a risk factor for breast cancer in the Black community — shaping who gets screened, how quickly they’re diagnosed and, ultimately, who survives. Our guest, Dr. Lori Pierce, is a renowned radiation oncologist, former ASCO president and Komen Scholar, and national leader in advancing equity in cancer care. She has dedicated her career to improving outcomes of women with breast cancer, with a focus on the underserved, by transforming not just treatments but the systems that deliver them. Her perspective is rigorous, compassionate and urgently needed.

Today’s conversation is a deeply personal look at what it means to be diagnosed with breast cancer at just 30 years old. We often hear the statistics that more young women are being diagnosed, but numbers can’t capture the shock of finding a lump before you think you’re even old enough to worry… or the life-altering shift that happens when you are put into medically induced menopause. Caroline McNally knows the struggles of being in the thick of treatment and the isolation of being diagnosed younger than most. But she also knows about strength, hope and learning how to advocate for herself and others.

Treatment is a significant part of overcoming breast cancer, but what about the mental, physical and emotional challenges this disease presents? Sarah Cipolla and Tawana Davis both relied on their faith to get through breast cancer. Through it all – the ups and downs and good times and setbacks – they had hope for better days and trusted in their faith. Hope and faith are powerful forces during challenging times. Susan G. Komen leads Worship in Pink, a nationwide program that brings breast health education to faith communities. Through this effort, Komen can reach people who don’t participate in breast health care and people who rely on their faith to overcome life’s challenges. Thanks to Merck and Novartis for supporting the Worship in Pink Program

Three years after finishing treatment for stage 1 breast cancer, Lea learned she had metastatic breast cancer, for which there is no cure today. Even after having to fight for an initial screening, not receiving a recommendation to start tamoxifen and not experiencing transparency from her doctor, Lea Leach kept advocating for herself and making changes be treated as a whole person. Today, she is living her life with purpose and is passionate about advocating for breast cancer awareness, particularly for women of color.

Welcome to the Komen Health Equity Revolution podcast series on Real Pink. Each month in this series, we bring together patients, community partners, health care providers, researchers and advocates to talk about real challenges and real solutions driving the health equity revolution. Today, we’re exploring what happens when survival requires more than strength — it requires grace. Our guest, breast cancer survivor and advocate Joi White, discovered that letting go, softening and advocating for herself became the real pathway to healing. Her story is courageous, culturally resonant and deeply honest.

No one should face breast cancer alone. Luckily, childhood friends Caryn Siegel Finley and Tammy Leyden didn’t have to. The two grew up together on Staten Island and have been best friends since they were 7 years old. When they both were diagnosed with breast cancer in their early 40’s, just one year apart, they were able to support each other through the process. Caryn and Tammy are here today to share their stories with us and how they are committed to supporting those affected by breast cancer.

Lakysha was diagnosed with breast cancer in 2018. Her cancer was caught early but test results showed there was a high chance of recurrence. She required surgery, chemotherapy, radiation and a hormone blocker for five years. She also had a hysterectomy to minimize her risk of other cancers. Life is a journey for her, filled with ups and downs, new challenges and triumphs. And Vonya is the friend we all need. She’s the friend who helps you reframe your bad days and encourages you to focus on something that brings you joy. She helped Lakysha normalize what she was going through and accept her emotions as they came. She’s also the friend who reminds you not to let one bad day spill into the next day.

There is no way around it, breast cancer is hard. But as our guest today will tell you, trying to remain upbeat throughout treatment can have a positive impact on your life. Amy Elizabeth Chalmers Hicks brings a unique perspective. She was adopted so she doesn’t know her biological family’s health history, leaving her to navigate two cancer diagnoses without the insights many rely on to understand risk. However, despite these unknowns, when she found a lump, she stayed at ease, started treatment right away, surrounded herself with people who were loving and supportive and made a deep commitment to keeping a positive attitude. She is here today to share her inspiring story with us.

Men often don’t think of themselves as having breasts. For men, it’s their chest or their “pecs.” So it may come as a surprise to learn men are at risk of breast cancer. The fact is men have breast tissue and can get breast cancer. In the U.S., less than 1% of all cases occur in men, but it does happen. Today we are joined by Jake Messier, a man living with metastatic breast cancer, after being misdiagnosed twice and finally learning in August 2024 that it had advanced. Jake openly shares his story across active social media platforms and is dedicated to spreading awareness of male breast cancer, as well as the distinct mental and physical health struggles that go largely unaddressed when a man is navigating what is typically seen as a woman’s disease.

As we close out the year, we’re shining a light on the quiet, powerful work happening every day inside Komen’s Patient Care Center. In this special episode, we sit down with two of our remarkable patient navigators — Marcela Orozco and Ladoya Mayfield — to share the biggest impact stories of the year. From helping Spanish-speaking callers break through language barriers to supporting Houston communities facing some of the highest burdens of breast cancer, Marcela and Ladoya bring humanity, hope and heart into the lives of people going through one of their hardest moments.

We are thrilled to be joined by the co-founder of the Home Edit. She is an Emmy-nominated, NY Times best-selling author, a mom, a wife and a breast cancer survivor - the amazing Clea Shearer. Clea is here to talk about her shocking breast cancer diagnosis at the age of 40, the ongoing reconstruction complications that she has had to endure over the past three years and the unexpected lessons that have come with all of it. Clea’s new book is aptly called Cancer is Complicated and she is here to tell us all about how true that statement really is!

Children can be one of life’s greatest blessings. Breast cancer survivors Alex Miles-Stiffler and Sara Galher-Barlow long for larger families but their diagnoses put those dreams farther and farther out of reach. Alex struggled to start a family before her diagnosis. The heart ache she felt after two miscarriages was unbearable at times, and her fertility challenges only grew after breast cancer treatment, but she wasn’t giving up on the family she dreamed of having. Sara always knew she wanted several children. She was blessed with a precious daughter prior to being diagnosed, but her cancer was aggressive and treatment couldn’t wait. She had to forego egg preservation, and the uncertainty of fertility along with the cost of fertility treatments will make it harder to grow her family.

Knowledge is power, and when it comes to breast cancer, having access to accurate, up-to-date information can make all the difference. That’s why Susan G. Komen is committed to providing trusted educational resources that empower patients, caregivers and families to make informed decisions about their care. Today we are joined by Jessica Thompson, who is both a survivor and health communication scientist, to walk us through where the breast cancer community can turn to find comprehensive, unbiased information, what they will find there and the vigorous review process that Komen uses to create its content, starting with their long standing partnership with Dana-Farber/Harvard Cancer Center.